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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,254
4/18/16 3:17 P

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Glad you worked through the leak issue. I am a huge fan of coconut oil. Try it on your lips. Feels so much better than petroleum jelly and healthier too.

Cathy
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LITHE11 Posts: 44
4/18/16 1:57 P

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I think I might have worked out the problem (fingers crossed, but so far it's good!). One night as I was about to put it on, I noticed that I was using a petroleum-based lip balm and remembered somebody on this forum talking about how petroleum-based products broke down the mask. Since I didn't think it was in contact with it, I didn't think at first that this could be it, but I used something else that night and the succeeding nights anyway. And haven't had any more morning troubles. Apparently, the grease from the lip balm was spreading and working its way down my cheeks during the night. Doubt it was breaking down the mask this quickly, but it was making things shift at least.

Thank you both for your assistance!!!

Edited by: LITHE11 at: 4/18/2016 (13:58)
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54JIMMY's Photo 54JIMMY SparkPoints: (0)
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4/18/16 11:03 A

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Lithe*
I wear a full face mask and I have a beard. Two strikes against me for getting a great seal. So for me leaks are going to happen.
What has helped me the most is to initially adjust my mask straps in front of a mirror trying to keep the straps as close to symmetrical as possible. After I do the initial setting I will lay out the mask and straps on a flat surface and make each side as equal as I can (by looking). Loosen the left side a bit, tighten the right side to even them up. Then see what happens on your next sleep cycle. From this point I will make very minor adjustments to the straps, about 1/16" to 1/8" adjustments. Hopefully you will have it sealing great in just a day or two.

Jerry

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,254
4/13/16 8:58 P

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I like cpap.com.

Yes, I wrapped my straps early on too. It helped prevent those lines when I cranked the mask tighter. Good idea.

Cathy
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LITHE11 Posts: 44
4/13/16 5:56 P

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I'm using a Respironics Amara View. It's the only one I've tried, but, until now, it has worked so well I did not see any point in trying any other. (I really lucked out that the first one worked and I was able to sleep the whole night from the beginning!)

I just had an online chat with a customer service person at CPAP.com (not my provider, but they had the chat window on the page I was looking for reviews on so I thought I'd ask). She said the oils in skin can break the silicon down. But she suggested a liner and said that she used one herself.

You know, I just checked my calendar and it has actually been a month and three days that I have been using it. So maybe it's just a matter of how old the mask is (hopefully I will get the replacement the company rep said I would be getting soon!). If that's not it, I may try rigging a mask, unless somebody else has a better suggestion!

As far as the lines on my face, the reviews I was looking at for my mask suggested using some pads on the straps. I saw some on Amazon that were basically a tube of fleece that you connect with velcro, but think I will try making my own. I already have the materials.

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,254
4/13/16 2:03 P

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No lines. I am in my sixties. Lines from laying on the mask should be gone in about an hour. You may have the mask too tight. Also the mask may not be the best fit either. Have you experimented with other masks? Most insurances will pay for trying out two or three styles and sizes. It is also always nice to have a spare mask in case something breaks. I keep parts to three masks and hoses on hand and then rotate them. When something wears out, I still have two while I order the new part.

Which mask do you use? We might want to check the reviews.

Cathy
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LITHE11 Posts: 44
4/13/16 1:24 P

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Thank you so much for your help!!!

I used to toss and turn, but don't with the CPAP. I'm a side sleeper and pretty comfortable on one side. As far as the data card, the screen does not show anything about leaks, but I know it tracks it because the lady who called to check on me when I first started mentioned that it showed I wasn't having them (or, since I know it was happening, I assume it was not enough for the machine to notice). But I did just download the app (Dream Mapper), so that data might be there. I haven't set up a log-in yet, so I don't really know what data I'll get (the reviews on the App Store were pretty negative, so I was kind of waiting to see if they would get the bugs out).

I wouldn't mind if I could just shift it around and fix the problem if it happens intermittently when I move. But even shifting it around hasn't been helping. The only thing I have been able to do is to keep my hand on it, shoving it into my face with a fair amount of pressure.

And I know I do have the straps tightened on pretty tight, so much so that I have lines on my face for hours afterwards. But I tried loosening them up just a little and couldn't get it to stop leaking. I just figured the lines were the price to pay to get a good night's sleep!

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,254
4/13/16 12:21 P

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Hello, Glad you are here.
You ask a very good question.

Do you toss and turn a lot?

I am wondering if it is the mask or your movement.

Some leakage is normal. Does your machine register the leaks on the data card?

I used to tighten the mask so much I had lines from the mask and straps that lasted for hours. If you have a lot of lines when you wake you are wearing the mask too tight. There is suppose to me some give and movement and then resetting if you move around.

The link goes to a resetting video by Lanky Lefty. He says to turn the machine off to reset. I don't wake enough to do that. When the leaking wakes me, I just shove the mask around on my face or reset it till it stops leaking. I toss and turn a lot. Even with the tossing and resetting, I still wake with more energy than I ever did prior to the cpap. I think it has been 14 years since I started using the cpap. Best thing that could have happened for me. but I do struggle with leaks. I used to mentally and physically fight them, but eventually got over that and just rely on resetting the mask as leaks spring up. I don't even notice the minor leaks anymore. I have a nasal mask, hoping a couple of our full face mask users will weigh in on this. Hang in there. I will keep researching strategies for you.
www.youtube.com/watch?v=r05p
lMyTlcw


Cathy
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LITHE11 Posts: 44
4/13/16 9:57 A

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So I am a new CPAP user, just passed my 21-day anniversary. I was extremely lucky in that everything was going pretty smoothly. But the last 3-4 days, I have been waking up in the early morning with my full-face mask leaking and it has been increasingly difficult to get it to stop. Last night I had to keep my hand pressing it to my face to keep the seal. But I'm able to seat it fine when I go to bed (after a few tries, of course, but that seems to be par for the course). The leaks can be at any point around the mask, but usually more around my cheeks.

I wash my mask every morning using a mild hypoallergenic face cleaner (Aveeno Ultra-Calming Foaming Cleanser). I clean my face in the morning (my face was getting irritated by the mask when I did it the night before. Thanks to this forum for helping me work out what to do!).

Anybody got any suggestions of what might be causing this and how I make it stop? Thanks!

Edited by: LITHE11 at: 4/13/2016 (09:58)
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