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SIONAFOX's Photo SIONAFOX SparkPoints: (2,926)
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5/4/18 1:07 P

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Out of college a year and half, living life to the fullest. Full time job. New husband. Nice apartment. Hiking on the weekends. Weeknight dates. Lump on throat. No pain. No side effects. Just a lump. Went to doctor. Told it was just an enlarged gland from having a cold or allergies.

Few months later, lump is still there. CT Scan. It's just an enlarged lympnode. Nothing to worry about.

6 months go by. Depressed. Sleeping 18 hours a day. Failing to perform well at work due to being so sleepy. Lump still present. Doctor says I am depressed. Started me on a barrage of depression medicines. Nothing helps.

Another 6 months go by. Lump is still there. Requested to be rescanned. Rescan is scheduled. Go to Disney World. It was already planned and paid for anyway. Scan results come back. Need a biopsy. Oh hey, you're not depressed, you have cancer! Hodgkin's lymphoma (are you sure you don't mean non-Hodgkin's lymphoma? yes, I'm sure. repeat this conversation for the next 4 years, ongoing).

Close on house you were in the process of buying. Is this really the best time to buy a house? Well, what else are we going to do? We're already this far along. Move 3 hours away where you were transferring with your job.

Go on chemo. ABVD. Have to stop the B half way through due to breathing issues. Steroids cause weight gain. Hair does not fall out, even though I was told it would. However, hair is very unhealhty. Shave it off. Be depressed about buying larger clothes.

Chemo lasts 8 months instead of scheduled 6 months due to failing blood work a few times. At least I have long term disability paying me. Job lays me off via form letter for being on leave in excess of 6 months. Radiation is not needed.

Complete chemo after 8 months. Weigh 20 pounds more than when I started. Am bald from shaving my head. Have no energy. Won't eat. Am depressed. Have no job to go back to, job that I moved to a new city for, bought a house for. What to do? At least I don't have cancer anymore.

Forward 3 months later. Got a new job. Better job. Hair is sinfully short. It is just hair. It will regrow.

Forward 3 years. Am pregnant with miracle post chemo baby. Have low amniotic fluid. Baby will be small and come early.

Forward 1 year. Have beautiful healthy baby girl. Another 30 pounds gained.

Now. Remission of 4 years. Scans every 2 years. Oncologist visits every 6 months. Time to lose the weight. Time to be happy. Time to enjoy my family.



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CHICHI47's Photo CHICHI47 SparkPoints: (2,301)
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4/26/18 1:31 P

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My cancer story started with a knee replacement pre-testing for surgery. My chest X-ray showed a spot on my lung. So I had a cat scan and a pet scan and was told all was okay. One year later, the spot grew, but again pet scan was okay. Doctor decided to do an biopsy. It came back ok. 6 months later it had grown again. Insurance denied a pet scan, so I went to the hospital for another biopsy. I finally came back that I had a carcinoid tumor. It is kind of a rare cancer. Less than 1%of lung patients have this type of cancer. It is supposed to be slow growing and not known to spread.

So the surgeon decided to remove my lower left lung. He also took 11 lymph nodes. The cancer had spread to two of my lymph nodes. Chemo or radiation is not recommended at this time. I just get a CAT scan every 6 months.

Two weeks ago my oncologist was killed in a car crash. I use Moffitt Cancer Center. They are assigning me a new oncologist.

Francine

Gulfport, FL (St. Pete’s)



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3/10/18 8:01 P

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Read your post. More power to you and us and yes, rockon! Oddbelle. Well said: rockon!

I was diagnosed with melanoma stage 0 in spring 2017. It started as two sites on my face and now I'm told that the edges of some moles on my back are 'furling'. Suprising how much this has peaked my anxiety.

Just wanted to reach out and let you all know I'm here, too. :)

Edited by: SHARONECLAIRE at: 3/10/2018 (20:05)
ODDBELLE2011's Photo ODDBELLE2011 Posts: 61
11/20/17 11:09 P

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Well, I posted my initial cancer story just a few posts down in Nov 2016. Today I have an update. I had previously beaten breast cancer, but in August of 2017 it was found to have made 3 tumors in my brain and a cyst. (Apparently, my type of breast cancer likes to make brain tumors when it recurs.). One tumor was walnut sized and the doctors were seriously concerned that my brain would herniate from the amount of pressure the tumors caused. I had the surgery and was out of the hospital back at work full-time 2.5 weeks after surgery.

Because of all this, my breast cancer is now considered Stage 4. It'll be 29 next month. My cancer is not curable, but is treatable. And I'll rock this treatment plan as many times as it takes because I've got plans and dreams to fulfill still. Rock on y'all! Best of luck and good skill to our docs!

I wrote a blog post today (if anyone's interested) that has way more details. You'll find the link on my SparkPage. The title starts with: "Update"

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WINTERSDREAM's Photo WINTERSDREAM Posts: 110
11/13/17 6:41 A

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Hi My name is Ruthann, and my daughter who is 34 yrs old, was diagnosed with vocal cord cancer,which is extending on to the base of her tongue and into her lymph nodes in her neck, she started chemo and radiation therapy on 11/6. We have gone through hell and back to get her to this point, Many many doctors appointments, A tracheostomy in place because the tumor is pressing on her bronchial tubes and shutting her airway off, a chemo port placed, a J-tube placed. and she had all her teeth pulled.because they said if she had one cavity the radiation could cause the cavity to extend to her jaw and an ulcer on her jaw would never be healed and she would loose her jaw bone ( her teeth were really bad ) . I am dealing with her many many , ups and downs , ranging from anger , to depression, Also she had to come 3 hours from her home to stay with me away from her children and husband to have the treatments done because i am a nurse and the family and i thought it would be better for her to be with me and have time to rest and recooperate after the treatments , (she would have had to be mother, wife, housecleaner, farm hand , etc. if she stayed home ) and my husband and i can get her to and from the treatments easier than she would have been able to do at home. so she is also dealing with homesickness and missing her kids and husband. so she goes through a wide range of emotions along with fear. Sometimes i have problems coping with the wide range of emotions and i have to keep telling myself this is normal and not directed at Us, (my husband and myself) but its hard sometimes. I need all the help i can get and all the prayers i can get also . I know God has a plan for her but i am scared and was not at all prepared forthis, as i know no one ever is but a mother shouldn't have to watch her child struggle with this sort of thing, Any advise from anyone that has gone through this will be greatly appreciated. PS i posted this in another forum on this Team

Never allow yourself to be bullied into silence, never allow yourself to be made a victim, accept NO ones definition of your life , Define yourself."


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JOYCE12356's Photo JOYCE12356 Posts: 5,006
4/30/17 10:04 A

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PERK1270 - you are truly an inspiration. I'm so sorry for all of your struggles, but I love your attitude! Stay strong, keep positive and congratulations on your 5 yrs!

Joyce


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3/16/17 3:39 A

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Lung cancer or carcinoma of cancer of the lung is the most common forms of cancer nowadays. There are many treatments available for lung cancer like surgery, radiation therapy and chemotherapy. Recently, I met one of my friends, he told me that his uncle is suffering from lung cancer and taking the treatment from radiation doctor Rockland County , and they are providing radiation therapy for curing the cancer. www.advancedradiationcenters.com/can
ce
rs/lung-cancer/


FLRED12's Photo FLRED12 Posts: 9,320
3/6/17 11:08 P

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Welcome to the team TECAVINESS! Sorry you are having problems with
insurance approvals.


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"A journey of a thousand miles begins with a single step." - Chinese philosopher Laozi
TECAVINESS's Photo TECAVINESS Posts: 1,941
3/5/17 8:49 A

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I have stage 4 Lymphocytic Leukemia. Have gone through 6 rounds of chemo. Doctor has said we have started remission. Was scheduled to have infusions to build up immune system but insurance has declined as they do not think I am a candidate as my counts are not lower enough yet. Trying to build up system naturally. I always tired and have no energy . Any suggestions would be greatly appreciated.

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FLRED12's Photo FLRED12 Posts: 9,320
2/25/17 10:08 P

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I am sorry you went through so much PERK1270. Congratulations on your five years! emoticon

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PERK1270 Posts: 69
2/25/17 7:40 P

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I was diagnosed with melanoma 10 yrs ago. Just had a spot on my chest. cut out a 4 in hole, and had sentinel node biopsy. Margins and node were clean. For 5 years all was good. Then one morning I couldn't lift my arm. Went to the Dr. who sent me to ER. While waiting for CAT scan, I lost all feeling in my leg. Diagnosis, Melanoma in my brain. A tumor that was bleeding. Brain surgery and a PET scan. PET showed another brain tumor, lung tumors, and a tumor in the hip bone. At that time I was told I could have less than a year. I spent a month learning to walk and use my arm again. I've had 2 craniotomies, Gamma knife twice. I'm on my 4th kind chemo. and two rounds of radiation, and cryoablation on my hip. I am now on Keytruda. I am down to two spots we are watching. One on brain and one in my chest. it has been a long road, but I am still here, still hopeful, still joyful. I swim, and I am back to riding my horse. I love spending time with my grandkids, and THIS MONTH IS MY 5 YEARS. emoticon

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FLRED12's Photo FLRED12 Posts: 9,320
1/30/17 5:13 P

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READYFORGOOD - I am so sorry for what you have been through. Welcome
to the team!
WRITE-OWN-STORY - Congratulations on your house! I think it is fantastic
that you expect to be mortgage free by age thirty. I am glad things
are working out with your treatments.
Lesley - Yay!!!!!! I am so glad to hear the good news about your biopsy
results. I am sure it was a big relief for you.

Weekend of migraines dragging on into today. We are having winter weather
(for us) right now. Hope everyone has a good evening.


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"A journey of a thousand miles begins with a single step." - Chinese philosopher Laozi
READYFORGOOD's Photo READYFORGOOD Posts: 5
11/29/16 4:07 P

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Hello all,
My cancer story started on March 18, 2015. I had received the call that the radiologist wanted more pictures after reading my third mammogram. In 2013 my sister was diagnosed with breast cancer so my doctor got me started with mammograms. The technician had warned me each year that I would probably get called because I was young and my breasts were probably dense.

What I thought was only going to take 10 minutes turned into a day of going from imaging machine to waiting room and back several time. Finally after an ultrasound the radiologist appeared and explained what he was looking at. There was a 1.5cm mass in breast with the shape and density consistent with breast cancer. I was only 39.

I endured 2 surgeries, 4 rounds of chemo, and 36 radiation treatments. I consider myself lucky to be alive.

My weight has ballooned because of the drugs and side effects and I'm still trying to manage the side effects.

ODDBELLE2011's Photo ODDBELLE2011 Posts: 61
11/4/16 11:09 A

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My cancer story started a little over a year ago, when I found a small, ovalish lump in my left breast on November 1st. Seeing as how it was also the first day of my period and I'd had lumps before while on my period I mostly ignored it...it only worried me that this one wasn't painful on palpation. I'm a nurse and was only 26 (27 in a month) so I knew my cancer risk was low...as far as I knew at the time, my aunt was the only one in my family ever diagnosed with breast cancer and both times were after menopause...so I figured it would go away in a couple of weeks like most period-lumpiness.

It didn't and it didn't grow any bigger. I did some research and figured it was probably a fibroadenoma...I kept palpating it to check its size but told no one. I was still living at home with my mom at the time so Mom noticed me rubbing at my breast one day and asked me about it until I told her and then nagged me until I agreed to go to the doctor. "You don't play with something like that!"

Because of the holidays, I could only get in to see the NP of my primary doctor...I hadn't met her before but she was sweet and she also felt the lump and set me up for the mammogram as I'd expected. Had the mammogram...(it wasn't bad at all! and I'd been hearing horror stories from women about squished, painful boobies for years...stop it y'all!)...and was told to wait in the waiting room while the radiologist looked at my results. Then had to go back in for more boob-flattening because I'm clinically obese and have big, dense breasts. It was a little unexpected, but still within the realm of possibilities.

A few days later, I got a voicemail from my primary doc that they needed to talk to me about my test result...I was nervous so I decided to go to the doctors office and get the results in-person. So I got to see the mammogram report and read where it said "highly suspicious of carcinoma" and "BIRADS category 5". At the time, I wasn't familiar with BIRADS but judging by the doc's expression and the highly suspicious of carcinoma part...I felt the blood drain from my face and when the doc wanted to schedule an appointment with a specialist on a day I was supposed to be at work, I only put up a token fight before caving and calling my work's scheduling person freaking out.

It wasn't until I got home that I researched BIRADS Category 5 and found out that it means the radiologist believes the lump to have a 95% chance of being cancer. The odds were definitely not in my favor. But being a nurse and one of those weird people were research will sometimes calm my nerves, I started researching and was pretty well prepared for what to expect from there on out.

I wore headphones and blasted music during my ultrasound (inconclusive, semi-expected) and core-needle biopsy because I knew the surgeon was young (maybe 5 years older than me) and I didn't want to hear either he or the nurse slip up and actually say something that would kinda confirm in my mind a breast cancer diagnosis (like "oh, there's blood in the sample" or a significant "hmm"). I wanted to cling to the 5% chance I had that the radiologist was wrong. And besides I was nervous, those needles are huge!

But when the nurse bandaged me up afterward, she told me she put a big wad of gauze on me because I "bled more than expected." Thanks to my research I knew that was not a good sign...so, I researched more and kept my thoughts to myself (because mom was bound and determined that positive thinking was gonna power through and fix everything). Though I did warn mom just before we walked in for my diagnosis appointment...the only appointment I allowed mom to come to at the time (other than the oncologist new patient visit, port placement hospital visit, and first chemo appointment)...I warned Mom that based on my research the result was probably not gonna be good.

Because I knew Mom was gonna completely fall apart if she got the full brunt of the news at the doctor's office. As it was, it wasn't until after that appointment that Mom told me she had breast cancer back in Poland when she was my age (apparently they didn't biopsy it, just treated it with some "French pills")...I didn't know wether to believe her but she always has been very reluctant to share her medical history or any personal details that she believes should be private.

Which sucks, because if I'd known about Mom's breast cancer history, I could've gotten myself screened for it earlier and then maybe it wouldn't have spread to three lymph nodes.

Anyway, this past year has been a whirlwind of working full-time 12-hour shifts while undergoing chemo, lumpectomy (only scar tissue left, no evidence of cancer remained anywhere), radiation, and now Tamoxifen. I've bought a house like two-minutes away from Mom's. Our relationship is finally slowly improving. My hypothyroidism is finally starting to make heads-or-tails of itself. I lost a guinea pig and gained two more (now I have 3 fur-kids). And I've dealt and am dealing with the fact that my fertility is now a question mark. Any natural kids that I might be able to have will have to wait at least 5 years. And my dream of having five kids will almost definitely need some help from adoption agencies. But that's down the road a ways.

My hair is growing back. This is the first year I actually felt like I'm finding my groove as a nurse...lol, six years is all it took. I'm still clinically obese (hit my highest weight ever this year @225#). I have a goal of paying off my house by the time I turn 30, and while it's a stretch, it is achievable. I've started being able to pick up extra shifts at work again...when I want to...and I'm still working full-time besides. I'm excited about the fact that my last chemo treatment and my last chemo-related ECHO will be completed before this health insurance year ends. I'm hoping I can get my follow-up mammogram done before then as well.

Happiness, I'm still working on. I think I'll probably end up needing to go visit a psych doc and finding out if I have ADD or what, before I will find true happiness. But I'm putting that off for now...and faking it until I make it for now.

One thing's for sure, I'm not your typical millennial.

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SOPHIEDO13's Photo SOPHIEDO13 Posts: 8,455
8/22/16 3:19 A

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Just wanted to post for future sparkers that my Breast biopsy came back benign. Thanks FLRed for all your support. Best wishes to you, and hope your next scan will be good. Hugs Blessing to you ....Lesley

Lesley

Blessings to All

Central Florida
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FLRED12's Photo FLRED12 Posts: 9,320
8/13/16 6:46 P

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Keeping you in my prayers Leslie.

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SOPHIEDO13's Photo SOPHIEDO13 Posts: 8,455
8/13/16 5:20 A

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I talked to the PA on Friday and the pathology report was not back, but she did say they got a good sample. So at least I won't have to do that again !! I will keep you posted I should her Monday ..... I'm less anxious, but of course I think of it at times.

Lesley

Blessings to All

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FLRED12's Photo FLRED12 Posts: 9,320
8/10/16 10:09 P

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Hoping for the best for your biopsy. Welcome to the team Leslie.

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SOPHIEDO13's Photo SOPHIEDO13 Posts: 8,455
8/9/16 2:38 P

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Hi my name is Lesley when I was 45 I had a complete hysterectomy due to ovarian cancer. At that time they noticed a growth in my bronchial a year later it was diagnosed as cancer. Radiation and chemo was done at age 46 then at 51 another round of chemo and cyberknife for the inoperable tumor in my bronchial. I am now 56 and am going in for a tumor biopsy on my right breast. Very unsure how it will come out since its on the right side where all the radiation was done. But my dear mother had lumpy breasts so I'm hoping that is all it is. 8/10 is my biopsy I will update this post when I know more. I guess after 5 years of being on spark people I finally found this forum and joined.

Lesley

Blessings to All

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FLRED12's Photo FLRED12 Posts: 9,320
4/19/16 10:44 P

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Welcome to the team Chandi! You definitely have lots of motivation to get healthy!

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"A journey of a thousand miles begins with a single step." - Chinese philosopher Laozi
CHANDRARAE's Photo CHANDRARAE Posts: 189
4/18/16 12:28 P

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Oops. I posted this as my intro post, but this looks like a more appropriate place to post it.

Hi there! I'm Chandi. I'm 31 and I hesitate to call myself a cancer survivor, but I have had it, and I deal with its effects on my mental health on a daily basis.

In March of 2014 when I was 29, I started having pain in my right lower quadrant. It felt like gas pain, and I had just had a very large coffee before work so I ignored it. It was a Friday I ended up doing a 16 hour shift that night at work (3pm-7am) and so I had lots to do to ignore the pain. The next day, I did an 11pm-7am shift, and it was less busy. The pain was still present. I was off on the Sunday and lay on the couch all day and by the time it was Monday morning my brain clicked in, and said "you have appendicitis, idiot, go to the ER". I was half right.

I was slated for day surgery, and ended up in an ambulance to another hospital because the first surgeon wanted to open my abdomen to do the appendectomy, and I wanted a laparoscopic procedure (it is risky to have a large incision on a morbidly obese abdomen!). I met with the new surgeon, and was assured I would go home that night.

After waking in recovery, I fell asleep again, and woke up in a hospital room. My wife was there, and she told me that they found a tumor in my appendix, and they think they got it all but some of its fluid spilled, and I would be at risk for peritoneal spread, etc. Because it perforated and the stuff spilled out, I won a two-night stay at the hospital.

I am monitored closely by a surgical oncologist who is amazing. Appendix cancer is one in a million, and people with it are at risk for a scary cancer-like syndrome called pseudomyxoma peretoneii (PMP), which is medical-ese for a snot-like mucus tumors that can harden on intestinal organs. I had a cat scan every 6 months for a while and now I am on a yearly scan. Treatment for PMP is a crazy surgery called "the mother of all surgeries" and after, they put heated chemo liquid directly into the abdomen to kill microscopic tumor cells after they physically remove the tumor snot.

I hope I never need the surgery but there is a chance I will. Like I said earlier, opening up an obese abdomen is very risky, and that's part of why I'm here. I've been given a second chance. I was lucky I got away without needing this treatment so far, and so I need to make sure that if I relapse, that I have the best shot at survival. I suffer anxiety that increases dramatically during scan season, and I worry a lot about relapse.

Wow. What a long intro. Thanks for reading. Looking forward to getting to know you all!

Chandi





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FLRED12's Photo FLRED12 Posts: 9,320
3/12/16 5:57 P

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Welcome to the team SUZYPOOZY! I agree with you about healthy eating and natural foods. I especially agree with you about hope!

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3/11/16 9:23 P

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I am a two year plus survivor of breast Cancer, stage 2, it had gone to my lymph nodes but only one of the two sentinel nodes. I am still taking the medication to keep the hormones down and I think that the medication and the previous chemo makes me tired and achy. My own story isn't that different than most women. I think that the important thing is to fight this cancer by healthy eating and natural foods. This is sometimes so difficult to do in this fast paced fast food world. Just saw my oncologist on Tuesday and things are going well right now. My goal is to get to goal before I see him again in September. Hope is the most of what we Have!

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FLRED12's Photo FLRED12 Posts: 9,320
10/12/15 11:19 P

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Fabulous! Please let us know the results. Praying for full remission!

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CHERI*ANN7's Photo CHERI*ANN7 Posts: 4,913
10/11/15 10:09 P

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Wonderful news Sandra!

CheriAnn

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MOM2ACAT's Photo MOM2ACAT SparkPoints: (190,535)
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10/4/15 12:55 P

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That is great news! Still praying for a full remission!


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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SLW1299's Photo SLW1299 Posts: 173
10/2/15 6:50 A

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UPDATE: Saw the oncologist Thursday, and he thinks we have achieved a full remission. Still waiting for another CT scan and endoscopy (10/7) to support/confirm the PET scan results.

Too tired to laugh, or cry...but thanking God for His mercy.

Sandra
"Don't accept complacency"~Jillian Michaels
Complacency: feeling of quiet pleasure while unaware of potential danger


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SLW1299's Photo SLW1299 Posts: 173
9/27/15 8:51 A

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I do not have cancer, but I live with it...my husband had what he thought was an appendicitis attack in May and I urged him to get it checked that afternoon - after all a ruptured appendix can kill a person.

No appendix issues, but a CT scan revealed a spot on his liver, more tests and a biopsy confirmed cancer, but not liver cancer. Crap! It has spread already and we don't know where it is!! More tests and we found tumors in the stomach and esophagus - Gastro-Esophageal cancer with that spot on the liver and some lymph nodes related to the digestive tract only.

By June 25 he was receiving chemo. Four rounds later, two hospital stays from crashing, 3 trips to the emergency room and one night when I thought he might actually die (his B/P was 76/48 for over an hour) he had his 3rd PET scan yesterday. Tomorrow we find out if the treatments have been successful and we can put this behind us (except for the constant monitoring for re-emergence) or if we need to continue with the punishing treatments.

My heart says he's healed. My head is afraid we will need to continue with more treatments. This has been the worst/scariest summer of my life, and my summer was a cake-walk compared to his.

No way to put it, except, Cancer Sucks!

Sandra
"Don't accept complacency"~Jillian Michaels
Complacency: feeling of quiet pleasure while unaware of potential danger


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MOM2ACAT's Photo MOM2ACAT SparkPoints: (190,535)
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8/2/15 10:53 A

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Welcome to all the new team members! emoticon


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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LEEANNFARLEY's Photo LEEANNFARLEY SparkPoints: (212)
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7/16/15 11:26 A

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My name is Lee, And yes that is my whole first name. =]
I myself do not have cancer [yet..] but my entire life has been around those with it. My aunt Eileen had breast cancer twice and won, but still has cancer scares. My aunt Margo had endometriosis with cancer starting to grow, so she had an entire hysterectomy to prevent it from going further. My great grandmother who raised my mom, and my mom had skin cancer removed on several occasions. My aunt Gail, is now an angel after a 8 year battle with breast cancer. My uncle Chris was diagnosed with testicular cancer even though no cancer in his family at all, and he beat it. So far it's been a year and he's still good. My aunt Kristi was diagnosed with the same worst form of breast cancer that her mother died from, and she currently is good, not in clear though. My grandpa on my dads side has prostate cancer, that has spread. My grandma had a tumor the size of a watermelon. My great great aunt had breast cancer at 17 and my great great uncle died from arm cancer. The stories go on... Everyday I think about cancer, and it haunts me. I already had a benign lump removed from my leg, but im scared I will too develop cancer.

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7/15/15 6:36 A

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My cancer story is like a novel! and it's not even that detailed or the whole story.

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7/15/15 6:34 A

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Hi everyone, I've been a member of sparkpeople for a while but only recently got comfortable telling people my cancer story. I'm 24 and from New Zealand and a week before my 23rd birthday I got my cancer diagnosis(must be why I keep forgetting that I'm 24 and keep telling people that I'm 22), but this story starts well before that.

In July 2013 I started bleeding, it wasn't like a regular period it was heavy to the point I had to use maternity pads and even then change them every 30 minutes or so. My friend was really worried about me so we went to the emergency room where the doctors were convinced I was pregnant. I told them there was no way because I hadn't been sexually active in months, but they kept telling me that I must have been really drunk and forgotten about it. After that I had to get blood tests done and get checked out by the early pregnancy team every week. I was so scared of what my parents would think and what my boyfriend would think, but I knew something wasn't right so I persisted and told them to run some scans.

By the time August rolled around they figured out it wasn't a pregnancy and I had to go through a very painful biopsy and several scans. And finally in October a week before my birthday (and my final exams) I got my diagnosis. I'd been diagnosed with a stage 1 Placental Site Throphoblastic Tumour. The doctors said there wasn't much information about my cancer and the regular treatment is a hysterectomy, but because of my young age and lack of offspring they would let me try some chemo.

After I finished my exams, I moved back in with my parents and started treatment straight away. I went through 6 or 7 cycles of chemo. Spent 3 days in hospital weekly, usually sharing a room with some little old lady that felt really sorry for me even though she was probably doing worse. My chemo made me so sick, I lost all my hair (even my eyebrows), I had ulcers down my throat and couldn't feed myself. It was the toughest time in my life so far. After 5 months of chemo I got a bad infection and my doctors said we had to stop chemo because it would kill me to continue. That was the worst thing I could've heard. It meant there was no hope for my uterus and I would have to be operated on.

I'm now 1 year in remission and I still mourn the loss of my uterus. At the same time I have come so far (I remember refusing to talk about it with my mother) and the most important thing is that I'm still around.

I'm so sorry for this long message and all the detail if you want to know more don't be afraid to ask.

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ZOOMZOOM1231 Posts: 576
6/22/15 3:27 P

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HI! Everybody!! my name is RITA, I have survived breast cancer (Sarcoma), uterine (Carcinoma), skin (melanoma) over the course of 36 yrs. Each time I did my ranting WHY ME! then I turned to "GOD ALMIGHTY" AND GAVE MY BURDEN TO HIM AND RECEIVED HIS PEACE AND ACCEPTED HIS WILL. I SURVIVED ACCEPTING THAT HE HAD A MISSION FOR ME AND I HAD NOT FULFILLED IT YET AND THANKED GOD FOR SPARING MY LIFE. I tell you this day to NEVER EVER GIVE UP "ONLY GOD KNOW'S THE HOUR OF YOUR DEATH". Be calm and fight to live, to quit is to give victory to the DEVIL, HE IS THE TRUE ENEMY.

All things are possible through Jesus Christ JUST BELIEVE !!!!!!!!!!!!!!


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6/21/15 7:55 P

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You have the right attitude. I too believe you will get through this. emoticon

Co-Leader Chair Exercise Team
Co-Leader Surviving Cancer Team

"A journey of a thousand miles begins with a single step." - Chinese philosopher Laozi
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6/20/15 11:40 A

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*deep breath* Here goes... reading some of the posts here have been so inspiring. It also made me realise that my story isn't as bad as it has felt on many occasions :)

August 2014, I was diagnosed with Stage 3 breast cancer that had metastised to my lymph glands. Using diet and supplements, I shrunk the cancer by 2cm (just under an inch). Then in November, my husband died very suddenly of an aneurism and my wheels fell off. My diet went to pot and the cancer grew again. I have just had my mastectomy and will be meeting with my oncologist in two weeks time. In the meantime, I'm going crazy itching at my scar tissue and have my surgeon worried about aching bones in that arm. It could be damaged nerves from the surgery or it could be that the cancer had spread to the bone. I don't even want to think about it!

My goal right now isn't so much weight loss, as I've opted to use my belly fat in reconstruction, but fitness and flexibility. It's hard to know where to start as the guidlines are, at best, very vague, so I'm stretching and walking. My rebounder awaits, but I fear the chest bounce may be a bit much :) Once my scar is healed, I plan to swim, walk and do yoga.

I WILL get through this!

Edited by: CORRIANNEL at: 6/20/2015 (11:42)
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1/21/15 12:20 P

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Hello! Here's my story:
I graduated high school in 1999, a few months later is when they found it through an eye exam (I've worn glasses since I was 4); I had brain cancer. Oligodendroglioma mixed with anaplastic astrocytoma (say that 3 times fast!). I did a ton of research back then, and I was the only lat teenaged person that I could find with this exact disease.
They did 2 surgeries to remove it, it was too large to remove in one surgery; that would have been bad for the brain. The doctors thought many times that I would not make it, but I did a little over a year of chemo, and here I am!
Since then, I have gotten married, had a miscarriage (due to anti-seizure medicine, which I no longer take), had foot surgeries, a stroke (not sure why), and I am employed full-time. I can't exercise well until they can fix my feet, so I'm just trying to start some good habits, and maybe lose a few pounds until then.

Jo

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9/16/14 1:52 P

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this is my story...

Had a hysterectomy that was way overdue as I had had a prolapse for a long time. The Dr. did testing to see what she was dealing with and found many cysts. She opted for a C-section type surgery so she didn't rupture any of them, and after surgery she said everything looked good. She did the Braca tests, Lynch tests, and a couple of others...they came back negative. ...then the pathology came back. One of the cysts showed cancer cells so I was sent to a Gyne Oncologist who just transferred to our hospital. She wanted to do exploratory surgery, and I agreed. She took lots and lots of biopsies...the flush was negative....but when pathology came back........again, cancer was found on my bladder, colon, and pelvic lymph node. Diagnosis is Primary Peritoneal Cancer. So we started on chemo ...I am having my 2nd Thursday. Every four weeks - 6 treatments in total. Hoping to get them all in on schedule and be done on Dec. 11th and be in good shape by Christmas!! It's amazing they found this when they did.....and I am getting lots of support.

Edited by: CHERI*ANN7 at: 9/16/2014 (13:53)
CheriAnn

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9/10/14 5:00 P

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Welcome to all of the new members! I'm sorry that I haven't checked into this thread sooner.

Please check out our chat room thread, that is where most of the "action" is!


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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9/10/14 2:52 P

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Hi All:
I read your posts to get a boost of good thoughts and gratitudes when I am feeling down. Today in recognition of September being Blood Cancer Month, I will share my story. In 1998, while washing windows on a ladder, I had a sudden loss of leg strength. Fortunately I made it down before collapsing. Next day at work I started walking down a hallway on one side and ended up on the other side. Dr's visit and lab work indicated extremely high platelet counts. Hematologist did more work up and a provisional dx of chronic myelogenous leukemia and I started oral chemo. I hit the wall of age and treatment in 2002 and had a bone marrow biopsy that showed I did not have the genetic markers for CML, so diagnosis was changed to Essential Thrombocythemia. It is interesting that the oral meds have not changed since this started, only the dosage.
Unfortunately long term chemo for blood cancers can create some medical issues too. So I have chronic anemia and CKD that is treated with Procrit injections on a regular basis.
I am grateful that my cancer is managed and relatively stable allowing me to establish a lifestyle that includes friends, travel, exercise and creative endeavors. There have been some tough times, but more good times in the past 16 years.
I hope this is encouraging to other blood cancer survivors who may be facing many years of therapy.

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9/8/14 3:22 P

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Thanks Cassiecat!

Just call me Goose!


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9/7/14 8:11 P

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Hi SisterGoose - welcome to this team! I am very new here, but they're a very nice group of people. :)

Diagnosed with breast cancer on 8/19/14; working on a healthy lifestyle every day!


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9/7/14 3:03 P

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In brief: Ovarian Cancer stage 3C in September 2011. Multiple recurrences with nearly 80 chemo treatments since then...and consequently lots of steroids and 50 extra pounds. emoticon

I need to find a way to stay as healthy as possible and get rid of some of the weight I have put on. I recently joined a cancer wellness class that includes yoga, pilates, cardio and strength workouts. I promised myself to get to as many classes as I physically can manage, but also to focus on eating healthy.

Thank you so much for letting me join you! emoticon

Edited by: SISTERGOOSE at: 9/7/2014 (15:05)
Just call me Goose!


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7/17/14 10:25 P

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My cancer journey started with a phone call on August 19, 2011 saying that my bone marrow biopsy showed I had Acute Myeloid Leukemia. No time for second opinions, it was literally pack your bag and go straight to one of the local cancer hospitals-thankfully we have two near me. It didn't fully sink in that I had cancer until the first time the nurse hooked me up, which was late in the night. THat was the beginning of a 45 day stay, then subsequent week stays once a month for a few months. Thank the good Lord I have been in remission since mid September 2011-went into remission after the second induction during first stay. So far, each check up shows good numbers in normal range. After my next check-up in September I will have two more years to go to be considered "cured". For now, I am trying to fight an eating disorder so that I can keep my body in fighting condition. I am also planning my wedding to a wonderful man who has taught me real love. THe coolest thing is my 16 year old son attends each oncology check with me whether my fiance is available or not.

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6/29/14 6:49 P

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Great stories here. Thanks to you and everybody for sharing them. Just diagnosed 3 months ago, planned to die this year. Now I'm planning to live at least another 7 years.

Muscle is life. (Fat is death.)


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5/24/14 4:32 P

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I found the breast cancer two months after a normal mammogram about 14 years ago. It was very aggressive so we did surgery. Chemo, radiation and more chemo followed by ten years of pills. Because I was adopted it was difficult getting history but did find out that both my mother and aunt had breast cancer. Mom died at 74 of ovarian cancer and Dad died at 82 do lung cancer. Meanwhile my adoptive mom is still alive at 100. My adoptive dad died at 76 of multiple myeloma. Life is good. I continue to be watchful as doc says not actually cured. Each day is an amazing blessing.

Becoming the healthiest me that I can be.
Barbara
(MST)


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10/30/13 10:39 A

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Since I'm relatively new to the team, I'll share my story.

Here is some family history - my maternal grandmother had endometrial cancer in the 40s - she was treated with radiation and lived to be 84. In 1973, my father was diagnosed with colon cancer. He passed away in 1974. In 1996, my older sister was also diagnosed with colon cancer. She had surgery to remove her rectum, chemo and radiation. She is nearly a 20 year survivor. In 1998, my oldest sister was diagnosed with ovarian cancer. She passed away in 1999 after stem cell replacement. The common symptom in all of them was hip pain.

The summer of 2011, I was getting ready to have knee surgery to correct years of arthritis as a result of degenerative cartlidge disease. My left hip was starting to flair up, but at that point, I figured it was because my right knee was out of whack, and didn't think another thing about it. I had my knee surgery, and my knee got much better. My hip, however, got worse. In April of 2012, I had brought up the hip pain so many times to my primary care physician that he sent me to a rheumatologist. The Rheumatologist examined me, did a bunch of blood work, and sent me for a spinal MRI. The MRI showed some stenosis in my spine, but additionally, it showed a large cyst on my left ovary. My blood work showed I was anemic. Knowing my family history, he told me to go to my gynocologist immediately.

In May, I got in with my gyno. He proceeded to ask some questions - yes, I did have very heavy periods. I had gastric bypass in 2009, and heavy periods following bypass surgery were not uncommon. That could also explain the anemia, because my body doesn't process iron well. The physical exam showed no abnormalities, but to be on the safe side, my gyno ordered a vaginal ultrasound. The first ultrasound showed that the cyst on my ovary was gone (yay!) but I had a number of fibroid tumors. It also showed an "area of concern" in my uterus. My gyno didn't have a good feeling about the ultrasound, so he sent me back for another at the end of June. Fast forward to the 4th of July. My husband and I were at our beach house for the holiday. On July 3rd, we were out eating crabs with my sister and her hubby, and I started to feel kind of crappy. I went home early. I woke up the next morning, bent over the sink to wash my hair, and got a horrible pain in my side. I nearly passed out. I was down for the rest of the vacation - I went to a walk in clinic and they said I had a virus. I didn't get better, and was retaining a TON of fluid. Two weeks later, still feeling horrible, I went to my primary care - he did a total blood workup, and found NOTHING. He sent me for an echocardiogram concerned my swelling and symptoms were as a result of myocarditis.

In late July, I had the 2nd pelvic ultrasound in the am, and the echo in the afternoon. On the way home from the echo, my gyno called - I had a leision in my uterus 2mm long. He immediately referred me to a gynocological oncologist at the University of Maryland. They did a uterine biopsy, and determined I had pre-cancerous cells - they scheduled me for a hysterectomy, and told me that because it was precancerous, they had caught it early, and there would likely be no more treatment. My oncologist (who is my hero) also said to me that my family history was a concern - it was quite possible I had Lynch Syndrome - a mutation in one of my genes that can lead to an increased chance of having colon cancer, ovarian cancer and uterine cancer.

I had my hysterectomy on August 22, 2012. When I woke up in the recovery room, my husband was sobbing. I knew at that minute it was more than pre-cancerous cells. My official diagnosis - Stage 3 2c endometrial cancer - I had adenocarcinoma in my uterus - and it had spread 4mm into the lining. They removed 21 lymph nodes. Of those, 17 were cancerous. Two weeks later, I began sandwich therapy - 3 cycles of chemo (carboplatin and paclitaxel), followed by 25 radiation treatments, 3 brachytherapy treatments (internal radiation), and then 3 more cycles of chemo. The did a CT Scan two weeks after my hysterectomy - No Evidence of Disease. They have now done 3 other CTs (I won't have anymore) and I'm still NED.

So, I've been in remission for 14 months. I also had genetic testing, and I did, in fact, test positive for Lynch Syndrome. My surviving older sister also tested positive. We do not know if the gene mutation came from my Dad or my Mom - as her mother also had Endometrial cancer.

I am an advocate for gynecological cancer awareness now. I'm happy to be a survivor, but my cancer took so much from me - a chance at children is what I miss most. I'm trying now to find my new normal.

I write a blog - Learning to Fight Like a Girl. thehappyhysterectomy.wordpress.com/

So, that's my story.

Be the change you see in yourself.
RNY 11/9/2009
Endometrial Cancer DX - 8/22/2012
Remission Date - 8/22/2012
Treatment End date - 2/18/2013

Visit my blog! Learning to Fight Like A Girl thehappyhysterectomy.wordpress.com/


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9/20/13 1:46 P

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Well, I thought it was about time to share my story.

Most of you know that my Daddy has cancer. I am his caregiver. My Daddy lives with myself and my husband on a small farm that I grew up on. Daddy gave it to me as a wedding present.

We were actually lucky in the way that Daddy was diagnosed. In early April he had a cold or something and was miserable. We kept telling him to go to the doctor. Well, none of his regular doctors could fit him in so he went to a walk in clinic. The clinic did x-rays to check for pneumonia. (None of his other doctors would have done that..they have all stated as such) The x-rays showed a spot on Daddy's lung. Within a week it was biopsied. (They collapsed his lung during this and he spent three weeks in two hospitals eventually requiring surgery to re-inflate the lung. ) The biopsy came back small cell lung cancer. No cure.
We were told it had probably spread and given about 3 to 6 months. Then at the second hospital they did a PET scan (the original hospital had scheduled one to confirm that it had spread but did not complete before his transfer for collapsed lung) The cancer had NOT spread! His doctor said it was very rare to actually diagnose small cell cancer before it spreads and she has only seen a few cases...she ordered the test redone to confirm - second PET showed same thing...cancer has not spread outside the lung. Now we have been given a 2 to 5 years prognosis. Being that Daddy is 78 and no one else in his family ever lived past 76 this is a very good prognosis.
Since the diagnosis Daddy has had 37 radiation treatments and multiple chemo treatments. As most of you know - this is very rough on him. He expected the radiation to go smoothly because 9 years ago he had 44 treatments for prostate cancer that he beat. It did not go smoothly this time. He was quite sick during the treatments but is getting better since he is just on chemo at this time. He has to have blood work twice a week and usually a transfusion once every couple of weeks.
This has been scary for him as well as me. Daddy's brother died from small cell lung cancer that had spread by the time they found it. We all keep remembering how hard Uncle Kent had it.
Well, I'll wrap up my book now...LOL...I am so glad I found this team and very honored to be its leader. You all have been a huge help to me and I hope I can help you as well.

Kathy from southern West Virginia


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7/16/13 2:49 P

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Two years ago my husband was diagnosed with stage four throat and neck cancer. He has gone through radiation, and is still going through chemo. The last report was that the tumor they are watching is a little larger, but the cancer is not quite as active. There are times it is very difficult for me to cope with his changing moods and unreasonableness. I don't know if it is just me but I pray that the Lord give me the wisdom to do whatever I should.

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5/4/13 6:03 P

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I started a blog to help me through my ovarian cancer last year. It helped me emotionally deal with it and kept my family & friends updated without having to ask me questions I was too tired too answer most of the time.

battle-the-o.blogspot.com/2012_09_12
_a
rchive.html


I copied this entry from October 4th, 3 days after the surgery and I was still in the hospital.

One of my Facebook friends said she had been following my posts lately. She said I really was an inspiration for so many of us and that I was amazing in sharing this experience with my friends! She was just curious as to what my symptoms were before I was diagnosed or if I had any symptoms? She hoped I didn't mind her asking...and she thanked me so much for sharing and she's praying for my full recovery every day!

I thought I'd share my answer with everyone.....


Ovarian Cancer is called the silent killer for a reason, the symptoms are minimal. Like my hips and back ached.... just thought I was over working myself or the mattress needed flipping. My period was heavy this time last year, would bleed for a week, stop a week, bleed a week.... it would stabilize, then miss a month, only to stabilize again. I was getting night sweats and the normal signs of menopause. I'm 48 years old, seemed normal to me when my period stopped last May.

I was diagnosed with gall stones this time last year and I think if they would have done a CT scan instead of just the ultrasound, they may have caught it in the early stage. Since I was still receiving unemployment benefits while I was attending college at that point I didn't qualify for the community program (I made $2100 too much). I blamed a lot of what was going on (pain wise) on that. Not realizing it was my right ovary that was really the culprit. The kicker was I lost 40 lbs (I had gotten very heavy there for awhile and attributed that to bad genes, age, and lousy eating habits), but my stomach dimensions didn't change. I figured since I was about 2-3 months away from graduating I would just take care of it after that.

All I can really say (in my own personal case here) is that being in school and not having health insurance was still NO EXCUSE for not having a yearly visit with my OBGYN. Do ***NOT*** take it for granted and if you have no insurance, make the time to register with the county where you live for help. I feel if that I had just spent the money for the office visit I could have caught this sooner. I had a little money but was more concerned with other obligations (like money for gas to get to my clinical sites) than my health.

I never thought for one second that I could possibly have ovarian cancer. It's not something you think about... unless you're a hypochondriac. LOL. But like I said, I can only recant my own reasoning why it got to this point.

A woman I worked with a few years back (that I still have contact with on Facebook) had went through (is still going trough) breast cancer and she made a blog about it. Her experience was inspirational to me. It was right about that time that I knew I had to see a doctor yet STILL procrastinated long enough to finish school (reiterating here but I never thought I could possibly have ovarian cancer). And I figured if she could be that inspirational to me, maybe I could inspire someone else with writing this all down and sharing my experience. Maybe another woman will not have to go through what I did if they pay attention to their health.

The blog helped me mentally and spiritually to deal with this. Plus it fielded a lot of inquiries from family and friends so I wouldn't have to answer the same questions over and over again. Everyone gets an update on how I am doing and where I am as far as progression and recovery. This type of illness is very personal and serious. Sharing it, and my feelings about it, not only helps me but allows everyone to be closer to me through it.

So I definitely don't mind the inquiry and appreciate all the love, concern, caring, well wishes, and prayers. It all helped me be stronger and know I wasn't alone.

Edited by: LASTBASTION at: 5/4/2013 (18:03)
Our greatest weakness lies in giving up. The most certain way to succeed is always to try just one more time.
~Thomas A. Edison



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2/19/13 7:47 P

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I was diagnosed with uterine papillary serous carcinoma in May, 2011, which is grade 4 and metastizes early. Fortunately following a radical hysterectomy and 39 lymph node dissections, no other cancer was found but there were lose cells found in the abdominal wash so my oncologist recommended chemo and radiation. Chemo made me more exhausted than I have ever been in my life and I was unable to eat properly due to nausea so I had supplemental IVs. I also had to take Neulasta injections (which the hospital charged $13,000 apiece for) and I had pneumonia 3 times during the course of treatment so treatment took a bit longer than originally anticipated. When it came time to discuss radiaition the radiologist was a bit of a jerk. He told me that the lympocele my oncologist had all ready diagnosed as noncancerous WAS cancer and that I would need 35 external and 3 internal treatments. I demanded more testing and when the PET scan showed no cancer I elected not to do the radiation treatment because I was in a serious relationship with someone (whom I eventually married) and I didn't want to give up having a physical relationship with him.
I might add here that I was widowed 14 years ago so I did not have the support of a spouse and 18 days after my radical hysterectomy, my mother, who lives with me, had a spontaneous hip fracture so I was not only dealing with my own problems but hers as well. Fortunately I had great friends and some wonderful neighbors who helped me with my numerous trips to the hospital. I am now on survelliance and just had my 4th "wonderfully normal" exam today. I go to the oncologist every 3 months and have a yearly cat scan. Looking back, dealing with cancer wasn't as bad as I thought it would be. I received optimum care and, aside from being "down" for 7-10 days following each chemo session, I pretty much lived a normal life. I started dating a new man, went out with my female friends and family and did just about everything I wanted (except exercising, I simply didn't have the energy to do zumba or anything like that). I even managed to slip in a few martinis now and then! I did lose all my hair following the first treatment but it has grown back and my life is "great"! If God brings you to it, He'll bring you through it. Just remember that whatever you're going through is temporary and will be over before you know it and you'll bounce back, as good, maybe even better, than ever.

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10/1/12 5:26 P

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Wow, what a tough year you have been through, Moon_litskies. But it sounds like you have toughed through the worst of it and are looking to the future. Keep us posted here as you work through your battle, and if we can help, reach out. My best to you!

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