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ESMERM's Photo ESMERM Posts: 6,474
10/2/13 10:57 A

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I am sorry you were having problems with Dish, I hope everything is better now. Nothing new with me, which is a good thing. I hope you have a great rest of the week.



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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

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I am the literary equivalent of a Big Mac and Fries.
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
9/7/13 2:53 A

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It has been yet another crazy week. Too many frustrations. Was hoping for a total relaxation day, but wasn't meant to be. Dish crapped out and it is the last straw. I spent hours trying to deal with their customer service fails and after getting yet another crap answer and some extremely rude people, I called Direct TV to talk to them about switching. I really wanted today to be a calm, relaxing day. Ugh! Not the way to start a weekend.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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ESMERM's Photo ESMERM Posts: 6,474
9/6/13 7:35 P

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Hi! Hope you had a good week. Things were OK for me. Have a great weekend!



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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
9/1/13 9:48 P

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Things are always up and down with me, and I'm always facing some battles.

Keep hanging in there. The more effort you put into making things better the greater the chance that it will get better.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
9/1/13 8:45 P

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I hope that things are getting better for you! I am still hanging in there. Health wise things have not gotten any worse. Job wise, I am still looking. My kitty was sick last week, and now I am just waiting for the lab results. I hope you have a good week!

224.5

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
7/15/13 3:35 A

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When you have a significant sleep deficit, it can take awhile to wear down the tired feeling and build up energy. Keep at it and soon you should feel a difference.

Things just tend to get worse for me. I'm just doing what I can until things turn for the better.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
7/14/13 6:28 P

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I hope you are feeling better. I had an OK week, really tired, even though I am sleeping better.

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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
7/9/13 12:19 A

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I hope you have a good week this week. If acid reflux is a common problem, pay attention to what and how you're eating. Some foods exacerbate the problem, as does drinking soda and eating too quickly.

Things have been very rough here. Today I had an upper endoscopy done, which was quite rough on me (even though it was better than when I've had it done previously). My throat and esophagus is very sore now.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
7/7/13 7:03 P

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I hope you are having a good weekend. I've had an up and down weekend, yesterday I couldn't sit up without getting acid reflux, but I feel a bit better today.

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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
7/1/13 11:51 P

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I know the feeling. My sleep is always messed up and I'm frequently waking up partially, all the way, or just ending up in painful positions. The only meds that help me knock me out totally, so if I end up in a bad position I don't wake up to move - so there's positives and negatives. But hey, check out your numbers - down a bit. Looks like the sleep is helping a bit.

Oh I always keep fighting. I can't get away from it. There's no one else to do it, so it's either this or give up anything and everything good in my life. I've just gotta do it slow and steady as best I can.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
7/1/13 10:33 P

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Sending positive thoughts your way, I hope you get some resolution soon, especially for your house.
It does feel better when I get some sleep, even though its not much, 4 hrs straight on a good day, its still better than the one or two hours I get without the meds. emoticon

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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
7/1/13 4:46 A

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Glad they're working. Sleep is very important to living a healthier life. Hopefully getting better sleep will help you in many ways.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
6/30/13 10:37 P

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emoticon I am sorry this is happening to you, hopefully you'll get answers soon.

The meds are just to help me sleep, and they do work.

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/30/13 9:57 P

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Is the new med helpful?

Things are always a nightmare here. LTD said a bunch of conditions are pre-existing (which is absolute crap) and is down to 3 that they're going to try to claim are not disabling. I'm at 6 1/2 months waiting for this. Waiting for a social security disability hearing. House is in foreclosure and a person tried to break in last week. In the process of starting over with a new medical team (replacing most of the specialists). Still trying to get help from the county, but if I lose my house they don't really have anywhere to put me so I might end up leaving the state anyways. Good news is I won an ipad mini from a sweepstakes and I won another $5 amazon gift card from PCH. I'm hoping to set up an online donation page soon too. I'm trying to hang in here while other people figure out what they are and aren't going to do.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
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My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
6/30/13 8:00 P

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I hope that you are doing well. My appointment went OK, traded one med for another. I hope that your medical/insurance situation has improved. I am hear to listen.



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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/1/13 9:34 P

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I hope your doctor appointment yields helpful results! Keep taking things slowly - you'll be okay.

Things just keep getting more difficult for me. After 5 1/2 months LTD still hasn't made their decision. Insurance and doctor's offices are refusing to work together. And after pouring out my heart about some horrible crap yesterday, a friend told me 'All I read is negativity. Work on being more positive.' But at least I stood up for myself and told her that was very hurtful, why shutting it in is dangerous, and if she doesn't like reading it she has the choice to ignore it but I don't have the choice to not live it.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
6/1/13 9:01 P

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Hope you are doing well and having a good weekend. I have been taking it one day at a time and do what I can each day. I have an a dr.'s appt. next week and will see what happens.



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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
5/19/13 1:46 A

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Things are rough as always here, but I'm trying to have hope! This week I found a lecture/paper by a doctor who has treated people w/ one of my conditions and it links the rest of my conditions to it and more. So that's now going to make the rounds to my doctors to help make my case. With any luck, it will find its way to the long term disability company ASAP, considering they really need to make their decision!

So how are things with you? Tell me what's been going on in your life. Are you trying to get back on your journey to better health, or are things still difficult?

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
5/18/13 10:36 P

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I hope things are better and you have a great weekend! I got an HP-Envy, its OK.



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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
5/5/13 5:51 P

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What kind did you get? Hopefully it'll give you a bunch of years of great use! How's everything else going?

I'm dealing with an on-going nightmare, as usual. It's starting to look like I'll never get disability or half the support I'm due from the state.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
5/5/13 1:55 P

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Hi! I finally had to buy a new laptop, luckily HP was having a sale. I hope things are going well with you.

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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
4/4/13 12:54 A

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There are laptops on the market now that cost like $300. It's not great but it is better than nothing. My laptop is showing signs I won't be able to keep it running for much longer, so I'm going to have to look into something new soon. Not looking forward to it considering I have no money, but if I must I must.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
4/3/13 6:33 P

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Hi! I hope you are doing well. I don't have the money right now for a new computer, since I had already paid for the first repair. The computer I am using right now is an old slow laptop, but as soon as I can I will read your blogs.

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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195.875
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
4/2/13 12:13 A

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Krikies, maybe it's time to get a new computer. Hope it gets fixed quick so you can get back to it.

If you haven't checked out my blogs about my GA trip, I have 2 posted.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
4/1/13 9:22 P

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Hi, hope you are doing well. My computer is back in the shop, so job hunt has slowed down a bit. Feeling a bit unwell, but I wanted to check in.



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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
3/19/13 11:03 P

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What's needed/wanted in a resume is always changing, and if you don't know this it's easy to put the wrong info in the wrong way and be thrown out of the running just for that. (It's not right, it sucks, but that's the way it is.) Having someone who knows what should be there and in what way is helpful as it can ensure you get a decent look and consideration.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
3/19/13 10:39 P

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Glad you had fun on your trip! Its always good to take break. emoticon

No luck on the job front yet, but I will get my resume looked at soon.

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
3/18/13 12:59 A

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I had a lot of fun in GA. I slept so much last night trying to recover from it. It'll still be a few day before I'm sorta back to normal, but I'm hoping to blog about my trip soon.

Have you tried contacting some head-hunter or temp companies? Often times places like that will help you clean up your resume, help with interview skills, and will help talk you up to a company.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
3/17/13 11:08 A

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I hope Georgia went well! I have been applying to any job that I might even be remotely qualified. My computer has been in and out of the repair shop, so the job hunt is going slow.

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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222.625
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195.875
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
3/5/13 5:30 A

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Have you been applying for other jobs? Some places never contact you - which sucks.

Well, a week from today I'll be in GA. It's going to be crazy difficult on me, I definitely can't afford it, but I need the positive. So keep your fingers crossed that it'll go okay for me.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
3/3/13 7:58 P

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Thank you, I'm still waiting to hear back. I hope you are doing well and have more small positives to hold on to.



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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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195.875
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
2/14/13 3:24 A

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Best wishes (and a little luck) for the new job. I hope you get it.

Things keep getting harder and more difficult for me, but I've had a couple small positives lately I'm trying hard to hold onto.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
2/13/13 10:34 A

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My computer finally gave up, so I haven't been on much. I hope you are doing well. I myself am hanging in there. I interviewed for a less stressful job, and am waiting to here back.

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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195.875
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
1/7/13 3:27 A

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Every day is up and down, of course. I've had a week off from pretty much everything, but starting tomorrow it's back to all the crap. Still, I've had a few good smiles lately and I'm working on being hopeful.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
1/7/13 12:34 A

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Thank you! I hope you are doing better in this new year.



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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
1/2/13 1:26 P

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I hope your 2013 brings good things and less stress than last year.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
1/1/13 7:47 P

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Wishing you a better new year!



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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
12/27/12 10:17 P

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I'm trying to get my head on straight. It's so hard, especially with all my medical issues and some of them worsening.

Yes, some doctors have prejudices and assumptions. Sometimes it's best to move on to another doctor and start over. Make it clear that you want to try other options before using medications. For me, I make the point that all attempts with painkillers have failed and most medications have opposite or unintended reactions. The hard part is that by the time they realize all that's going on with me, they prefer the medications over the surgeries that may eventually be required.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
12/27/12 8:09 P

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I am so sorry that you are in a bad place. I hope things have gotten better since you wrote this. I understand how you feel though.

My appoinment was a bust because the PA refused to see me and sent a message through a staff member that I needed to see another one of my doctors. She thought I just wanted more drugs.

233.5

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
12/2/12 8:53 P

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How was your appointment a bust? What happened?

I'm in a very bad place. Things are just too difficult right now and I can't handle it. Whatever is going to happen, is going to happen - and it's probably going to get much worse. Since I'm the only one fighting for my life and I can't fight against everything anymore, either others are going to finally step up or I just don't care anymore.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
11/27/12 7:46 P

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I hope you are doing well! My doctor's appointment was a bust.

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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
10/24/12 11:38 P

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The lawyer told me I'll probably be turned down on first appeal, but once I get in front of a judge I've got a good shot. He said the liberal judges would most likely go for my case because it's not the standard back pain and depression ones they see a lot of, and the conservative judges would like me more when they find out my father was career military and I worked for the military for over 4 years (the conservative judges are all military or ex-military). He said most likely the reason I was turned down was actually because I'm such a rare case and the people reviewing it probably hadn't heard of most of my conditions and don't have time to look them up.

I hope the appointment goes well; be sure to let me know what happens.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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ESMERM's Photo ESMERM Posts: 6,474
10/24/12 8:18 P

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Glad you are making some headway. I know it took my dad several appeals to get his disability. Hope things go well.

Work is OK, really busy right now. Just waiting for my appointment this Friday.

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Esmer

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I am the literary equivalent of a Big Mac and Fries.
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
10/16/12 12:18 A

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I hope the appointment goes well and they can do something to help you. How's work been?

I'm making a little headway, but it's slow progress. I was turned down for social security disability, so I'm meeting with a lawyer on Weds about it, and I finally found a lawyer (a different one) to help appeal the long term disability appeal, which is going to be costly. Finally got approved for medical assistance, so they'll be paying for my COBRA now. I'm waiting to hear about some other aid yet. I should be starting warm water PT soon and I'm hoping that will be helpful. My exercise has been waning as I get more and more fatigued.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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ESMERM's Photo ESMERM Posts: 6,474
10/15/12 11:08 P

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Hope you are doing well this week. I am sorry to hear about all the red tape and hope you get the help you need soon.

I am familiar with all the pack pain doctor run around. I've suffered from it since I was a child, when there was no weight problem. I've done all the stuff the docs want, even PT, didn't help. I do not want surgery. I have an appt. in 2 weeks.

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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

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I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
10/5/12 11:32 P

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While my weight is staying up, my fatigue is getting ridiculous and then some and my health feels worse and worse. The amount of stress I'm under because of incompetent people wrapping me in red tape to attempt to deny me my rights. I know my health is suffering more and more because of it, but I can't be without the help I'm trying to get. I just sometimes wonder how much fight is worth it.

Oh, I know all about back pain. Get it checked out soon, though I'm sure part of what they're going to tell you is that you need to lose the weight. Excess weight adds extreme pressure on the spine. Add in an accident or injury, excessive bad posture, and a lack of core strength (from lack of exercise) and that pain is only going to get worse. My mother has had 2 back surgeries, so I've seen how bad it can be. My mother never exercised, made every excuse to not take care of herself, has been obese my whole life, and has had a few car accidents. She also takes lots of medications, including muscle relaxers, drinks pretty heavily, and used to smoke. They made her stop smoking and promise to exercise and do PT before they did the surgury, but while she's not smoking, her drinking is ridiculous, she still doesn't exercise and has every excuse to never do more activity than she has to, eats way too many calories and has no intention of ever changing that, and has severe mental health problems she refuses to even acknowledge, let alone get treated. All of these things not only mean that her back and her entire body will always be overly taxed (she has plates and screws in her back so it can't ever be healthy again), but it is also most likely the reason she got breast cancer - which she somehow blames everyone else for. My point is to say that I know how awful it is to have a bad back (I'm 31 and my back has been in constant pain since I was a kid because of my Ehlers Danlos), I know how much worse it is to correct through surgery and then what it takes to try to make it healthy afterwards, and I know many doctors will avoid doing anything but PT and steroid shots unless it is absolutely required.

While I hope they can help your back pain, be prepared to hear a lot of comments from your doctor(s) about weight loss, exercising, stopping all nicotine and alcohol (not sure if you use either), and maybe that they will not do any drastic measures at all.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
10/5/12 10:26 P

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Hang in there, I know how frustrated you must feel. I hope there has been some improvement for you.

I have been having severe lower back pain, so its going to be back to the doctor for me as soon as I can get an appointment.

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Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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209.25
195.875
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
9/17/12 1:19 A

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What have you been doing to try to pull out of the depression? I know you've been dealing with it a long time, but the longer you go without getting help to make it better the worse it will be and the more dangerous it can be for your health and well-being. Still, I'm glad you were able to get some chores done and get out for a movie.

I've been feeling pretty defeated lately. No matter what I do I can't get energy. I'm frustrated with my doctors and the whole situation. I really wish I could find some energy, but it seems the more healthful stuff I do the worse I feel. I'm still trying though. I'm doing what I can to hang in there.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
9/16/12 2:27 P

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I hope you are doing well and are having a great weekend! My internet DSL connection has been working a lot better, but now my laptop is giving me problems, oh well. I think I mentioned before that Im really fighting my depression right now, and I wasn't doing to well, but this weekend was better. For exercise I started doing chores that I have neglected for quite a while and I went to a movie with a friend.

234.5

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
9/3/12 2:09 A

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Keep calling and bothering them. Talk to your neighbors and see if they're having problems too; if not, then it might the wiring in your house, but if they are then you can try to take your complaints up higher in the company together.

MN has been having 80s during the day and 60s at night for the majority of the past few weeks. The days are still often too warm for me, but some of the nights have been nice enough for me to sleep with windows open.

So what have you been doing indoors? Have you been trying any new exercies?

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
9/2/12 2:28 P

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I hope you are doing well and enjoying your weekend. It seems that everytime there is a rainstorm here the phone/internet service goes out and i have to call the phone company.

I have been doing as much as I can indoors since it is still over 100 degrees outside. I hope you are having better weather.

231.5

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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195.875
182.5
1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
8/26/12 7:21 P

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Wow, over this much time and with 2 visits, it should be fixed! Holy moly!

What have you been doing to be healthier, lately?

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
8/26/12 3:49 P

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Thank you! I think its fixed now, but this is the second time the phone company has had to come out.

I hope you are doing good. I have been hanging in there.

233.5

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
236
222.625
209.25
195.875
182.5
1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
8/11/12 2:55 A

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Hope you can get your connection problems figured out so you can check in more often. Hang in there!

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
8/10/12 11:10 P

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Sorry to hear that. I have been having a lot of internet connection problems, but I will log in whenever possible.



230.5

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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222.625
209.25
195.875
182.5
1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
8/6/12 4:03 A

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Not much for new answers.

How are things with you?

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
8/5/12 2:24 P

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I hope all went well!

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
236
222.625
209.25
195.875
182.5
1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
7/29/12 12:42 A

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I'm in Milwaukee for more appointments (done on Thurs and Fri) and I'm flying home tomorrow afternoon. I'll blog about it when I get home. Luckily, I've been doing pretty good lately!

How are things at work lately? Have your stress levels dropped some?

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
ESMERM's Photo ESMERM Posts: 6,474
7/28/12 12:07 P

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I hope you are doing better. I have been weighing myself almost every day and there has been little fluctuation these past weeks.


228

Esmer

Co-leader of the X-Files Team & the Cat Lovers team

My Spark Jar $0

I am the literary equivalent of a Big Mac and Fries.
Stephen King


 current weight: 182.5 
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222.625
209.25
195.875
182.5
1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
7/27/12 10:02 P

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You might want to take those steel toed boots off to get a more accurate weight. It's best to weigh yourself at the same every day in the same clothes. Morning is usually best because there is less discrepancy based on the food you've eaten in the day.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
PAPA175's Photo PAPA175 Posts: 1,098
7/27/12 11:33 A

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193 with steal toed boots on

Hoping for Success Without Hard work is Like Trying to Harvest Without Planting.
Charles


1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
7/11/12 4:56 A

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Though summer is such a great time to exercise, and with all the extra work it's hard to fit in the exercise you need. Have you tried adding any extra movements to your day? I hope you're planning something good for yourself at the end of the summer!

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
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