Group photo
Author:
CATHYG7's Photo CATHYG7 SparkPoints: (220,404)
Fitness Minutes: (257,089)
Posts: 10,063
4/27/16 10:28 A

My SparkPage
Send Private Message
Reply
Thank you Lisa B!

I understand how you feel. I was diagnosed very late as well when my then 12 year old son was diagnosed as well. It was a relief to understand why I didn't fit in anywhere and why I did the things I did and the way that I did them. Finally I began to understand that there wasn't everything WRONG with me, just a lot different about me.

You are very welcome in this group as several of us are on the spectrum as parents, caretakers and have kids on the spectrum and/or with ADHD, sensory and more.

We chat daily on our monthly Cafe thread. Hope to see you there!

Best to you, Cathy (team leader)


Cathy
Co-Leader of Autism, Aspergers, Sensory, Oh My! and Leader of W.O.R.T.H. team and T.E.A.M.

Rather than love, than money, than fame, give me truth. Every man is a builder of a temple called his body. Thoreau

All the Darkness in the world can not extinguish the Light of a Single candle. St. Francis of Assisi


 current weight: 185.0 
212
194
176
158
140
LISAB540's Photo LISAB540 SparkPoints: (24,822)
Fitness Minutes: (17,167)
Posts: 2
4/27/16 10:22 A

My SparkPage
Send Private Message
Reply
I'm currently reading "Very Late Diagnosis of Asperger Syndrome (Autism Spectrum Disorder)" by Philip Wylie. I'm into chapter 7, "How to live well with very late diagnosis of autism spectrum disorder," and I feel like I've just been hit by a train.

My 22 year old daughter was diagnosed with Asperger Syndrome 6 years ago. She's a lot like me as well as my mother, brother, and sister.

I'm 48 and always wondered: why I don't fit in? what is wrong with me? why can't I be like everybody else at work? why? I left a job a couple of weeks ago, because it was too much: the corporate out of state office was always changing procedures, always changing the rules, always changing everything! Too much multi-tasking. Too many things "top" priority. No guidance. No support from the corporate office or the regional manager.

At this point I've taken a few online assessments that glaringly shout I fall under the spectrum (http://autismresearchcentre.com/arc_tests
); however, I'm still a bit skeptical until I go for an evaluation for an official diagnosis.

Sorry, I got side tracked. This is a very good book and I highly recommend it.

 current weight: 140.0 
169
161.75
154.5
147.25
140
ZAIVALA's Photo ZAIVALA Posts: 2,137
6/14/13 8:11 A

My SparkPage
Send Private Message
Reply
I got my copy of "Life and Love" in the mail yesterday and have gotten through most of the first chapter. It has really opened my eyes - about 1/3 of the things she describes are so ME, another this are so NOT ME, and the third batch, well, I don't know but it will require some investigation and soul=searching to find out how much of one or the other they are.

The only thing I don't like about it is that the author refuses person-first language, arguing that for autistic people we ARE our disease, or there is no way to separate ourselves from it. It might be a valid point, but I can't imagine how it can be self-affirming to identify with a non-treatable disorder.

Moss

I overcame my spiritual obesity, now for the physical!


 current weight: 254.4 
272
252.75
233.5
214.25
195
LARKSONGRUTH's Photo LARKSONGRUTH Posts: 1,248
2/18/13 2:02 A

My SparkPage
Send Private Message
Reply
I just finished reading The Complete Guide to Asperger's Syndrome by Tony Attwood. This really did help me to understand what Asperger's Syndrome is about. It was like reading my life history so very, very often.

Ruth

Why I am sparking:

I want to protect my health, feel better, look better, and have more energy.


 current weight: 180.0 
180
176.25
172.5
168.75
165
ALLYTHEATHLETE's Photo ALLYTHEATHLETE Posts: 864
5/30/12 8:06 P

My SparkPage
Send Private Message
Reply
"You Will Dream New Dreams" edited by Stanley D. Klein

I found this book at the library shortly after my son was diagnosed and it really made me feel better. I'd describe it as a "Chicken Soup for the Parent-of-a-Special-Needs-Child's Soul."

At the time, I couldn't imagine getting to a place where I could hope again and reading about parents who'd been there, survived, and could now see the good in it was just what I needed.

What is really hard, and really amazing, is giving up on being perfect and beginning the work of becoming yourself. --Anna Quindlen


 current weight: 230.8 
232
210.25
188.5
166.75
145
PROFKORI's Photo PROFKORI SparkPoints: (0)
Fitness Minutes: (9,341)
Posts: 207
6/11/11 11:06 P

My SparkPage
Send Private Message
Reply
That's Daniel Tammett. He's from the UK and he has a phenomenal memory, and a gift for languages

"What does the Lord require of thee? To do justly, to love mercy, and to walk humbly with thy God"

~Leader of "Having Faith in Florida"
www.sparkpeople.com/myspark/g
roup
s_individual.asp?gid=14858


~Leader of "Treasure Coast (FL) Sparkers!!" www.sparkpeople.com/myspark/g
roup
s_individual.asp?gid=49416


 current weight: 253.0 
256
233.25
210.5
187.75
165
VBPARROTHEAD Posts: 2,081
4/17/11 9:08 P

My SparkPage
Send Private Message
Reply
I Was Born On a Blue Day by Eric (I think) Tammett. He is on the autism spectrum.

The Best Kind of Different but I can't remember the author I know it is a professional baseball player and his wife who wrote it,

 current weight: 171.0 
215
204
193
182
171
DAISYGIRL77's Photo DAISYGIRL77 Posts: 158
3/1/11 12:04 P

My SparkPage
Send Private Message
Reply
A good book that I have been reading is Growing an In-Sync Child it's simple fun activities to help every child develop, learn and grow. By Carol Kranowitz. The activities are cheap. My kids are having fun strengthening some of their muscles that are weak and they don't even realize it's exercise.

 current weight: 256.0 
256
220.75
185.5
150.25
115
71STEPSIDE Posts: 98
1/16/11 11:36 A

My SparkPage
Send Private Message
Reply
My son also loves the All Cats Have Aspergers book. We bought a copy for the school so that his teachers can have a quick, cute way of understanding him.

Our doctor recommended the Freaks and Geeks one but Austin took one look at it and got so mad about the title. We have it but haven't read it. I have a kindle so from here on out I will buy them on that so he doesn't see the title.

 Pounds lost: 25.2 
0
29.25
58.5
87.75
117
BECCAJEAN17 Posts: 104
1/13/11 10:28 P

My SparkPage
Send Private Message
Reply
My son's favorite book is called "All Cats Have Asperger's Syndrome." This book is adorable and describes him perfectly. It is definitely at the top of my list of fave kids books of all time.

 Pounds lost: 0.0 
0
12.5
25
37.5
50
KITTY_WHO's Photo KITTY_WHO Posts: 234
1/10/11 3:51 P

My SparkPage
Send Private Message
Reply
"The Out-Of-Sync Child (Recognizing and Coping with Sensory Processing Disorder)" by Carol Stock Kranowitz is a great insight into the different sensory needs thos with autism have. It makes sense of a lot of behaviours which may seem strange.

"Ten Things Every Child with Autism Wishes You Knew" by Ellen Notbohm is a really good introduction for those who may spend time with a child with autism but does not necessarily have the time or inclination to read vast amounts. It helped my son's granparents understand him better.

5:2


 Pounds lost: 0.0 
0
8.75
17.5
26.25
35
ARIANERA's Photo ARIANERA Posts: 1,081
1/6/11 8:56 P

My SparkPage
Send Private Message
Reply
I just finished How to Teach Life Skills to Kids with Autism or Aspergers by Jennifer McIlwee Myers. Haven't had a lot of time to put things into practice, but found it very concrete and down-to-earth.

I'm looking for recommendations of books to explain Asperger's to my 8 year old.

Ari

 current weight: 9.4  over
10
5
0
-5
-10
DEE797's Photo DEE797 SparkPoints: (164,312)
Fitness Minutes: (162,952)
Posts: 16,686
10/24/10 7:11 P

My SparkPage
Send Private Message
Reply
Two books that I have found to be helpful are:

Asperger Syndrome by Tony Attwood

Thinking in Pictures by Temple Grandin

dee2 (D2)
Hutto, Texas
Central Time (CT)


 Pounds lost: 38.6 
0
11
22
33
44
CATHYG7's Photo CATHYG7 SparkPoints: (220,404)
Fitness Minutes: (257,089)
Posts: 10,063
10/23/10 3:14 P

My SparkPage
Send Private Message
Reply
Hi Team!

This thread is for all of us to share the books we've read that have really helped us with the challenges we face with our loved ones, friends etc.
I want to keep it on topic with the challenges like Autism, Sensory, ADHD, and all the many co-morbidities as well.

Thanks!

A great book to start with is:

Asperger's from the Inside Out by Michael John Carley (Executive Director of GRASP The Global and Regional Asperger Syndrome Partnership. Michael has Aspergers and shares very candidly his expertise and feelings as well as the challenges he and we face.

Asperger Syndrome in Adolescence Living with the Ups, the Downs and Things in Between Edited by Liane Holliday Willey

Freaks Geeks and Asperger Syndrome A User Guide to Adolescence by Luke Jackson

Pretending to Be Normal and Asperger Syndrome in the Family - Redefining Normal both my Liane Holliday Willey...I highly recommend her books.

That is all I have for now. Hope this helps!

Hugs to all, Cathy



Cathy
Co-Leader of Autism, Aspergers, Sensory, Oh My! and Leader of W.O.R.T.H. team and T.E.A.M.

Rather than love, than money, than fame, give me truth. Every man is a builder of a temple called his body. Thoreau

All the Darkness in the world can not extinguish the Light of a Single candle. St. Francis of Assisi


 current weight: 185.0 
212
194
176
158
140
Page: 1 of (1)  

Report Innappropriate Post

Other Autism, Aspergers, Sensory, Oh My! For Your Information Posts

Topics:
Last Post:



Thread URL: https://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=4089x12045x37489696

Review our Community Guidelines