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JLCONROD's Photo JLCONROD SparkPoints: (16,982)
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8/23/10 2:12 A

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Hi Juanacee

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41 years T1 -- from a diagnosis viewpoint we're contemporaries. I'm encouraged by your comments and slightly envious of the small amount of insulin you need. Of course I realize that each of us is truly different -- "ymmv" -- or, Your Mileage May Vary.

My personal issue has been "brittleness", blood sugar dips and spikes frequently not related to diet, exercise, meal times, or insulin dose. Symlin seems to help somewhat, as does paying even closer attention to dietary intake detail. In a just a few weeks I've found the SP Nutrition Tracker invaluable.

I appreciate your encouragement, and that of many other Spark People. Thanks again!

Warm regards,
John
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John Conrod, Medtronic MiniMed Ambassador
Brittle Type 1 Diabetes 47 Years, Insulin Pump 7 years
Founder: BrittleType1Diabetes on Facebook

www.facebook.com/BrittleType1Diabetes



www.minimedambassadors.com/johnc

NOTE: As a volunteer MiniMed Ambassador, I receive promotional items and educational material to use and share as I see fit. No monetary compensation has taken place and any opinions expressed by me are honest and refle


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JUANACEE Posts: 9
8/22/10 7:38 P

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I survived on shots for more than 35 years. When I went to the pump, it was a little scary, but now, I would never go back to shots. One of the things that took me most by surprise is when something goes wrong, and it will, was how fast my BG rose. I hadn't had high BG for such a long time that I almost forgot what it was!!! I, myself, am VERY sensitive to insulin. I don't use much to survive, but let me not get that half a unit, and I am in trouble!! Now when I feel a little thirsty or my heart beats a little too fast, I am on it right away to make sure everything is ok. I test pretty often. It's not that I didn't get high BG with shots, but when you take Lantus or something similar, you always have some background insulin on board. With the pump, it's all fast acting so when it's gone, its ALL gone. YIKES!! Pumping does require that you pay closer attention to what is happening, but it is also one of the greatest freedoms I've had since I was very young. I just passed my 41st year with T1. Good luck with your pumping ventures and keep us posted on the Solo.

JLCONROD's Photo JLCONROD SparkPoints: (16,982)
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8/15/10 4:22 A

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To Carey.Lisk,

Thank you, my friend, for the info about TuDiabetes in your post. I visited the site -- it's all you say. Nice point: a web site by people with Diabetes for people with Diabetes that supports Diabetes Research!

BTW, I use the lengthy phrase "people with Diabetes" purposely. I don't say "I am a Diabetic", rather "I have Diabetes".

emoticon Diabetes does not control me, I control Diabetes. emoticon

I'll look for the book you recommend for more about pumping. Another thanks for that tip and sharing your experience as a pumper. You are simply
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Did you visit the Solo4You web site? It has great resources about Diabetes with an emphasis on Type 1, not just another vendor site pushing a product. I highly recommend the Solo site to everyone who wants to learn more about Diabetes, and commend Mendingo/Solo for the non-Pharma approach.

I'll SparkMail you about carb counting, adjusting bolus doses, pump profiles, etc., for an experienced pumper's perspective.

Glad to share whatever I've gleaned as a reasonably well controlled 40-year Type 1 who's mostly complication free.

Thanks to SparkPeople for a great health-oriented Social Network from a
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John


Edited by: JLCONROD at: 8/15/2010 (04:31)
John Conrod, Medtronic MiniMed Ambassador
Brittle Type 1 Diabetes 47 Years, Insulin Pump 7 years
Founder: BrittleType1Diabetes on Facebook

www.facebook.com/BrittleType1Diabetes



www.minimedambassadors.com/johnc

NOTE: As a volunteer MiniMed Ambassador, I receive promotional items and educational material to use and share as I see fit. No monetary compensation has taken place and any opinions expressed by me are honest and refle


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CAREY.LISK's Photo CAREY.LISK SparkPoints: (0)
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8/15/10 1:26 A

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Hey John a great book to read up on about pumping is pumping insulin it is a must read any pumper will tell you that. I love pumping and will never go back to shots as me and the lantus never got along it stuck around way to long. lol but my pump and i we are life long friends suck at the hip litterially!

"you CAN do ALL things through Christ which STRENGTHENS you"
phil 4:13


I don't believe in failure.

( this includes getting healthy!!)


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JLCONROD's Photo JLCONROD SparkPoints: (16,982)
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8/14/10 6:48 P

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Hi Juanacee, (and anyone else interested)

RE; Medingo's SOLO MicroPump insulin delivery system

I'm another long-time Type 1, forty years in November! Still on ICT injections with Apidra and Lantus. I'm preparing to become a pumper.

I had a demo kit for the SOLO pump which I loaned to my physician. He's a Diabetologist, Endocrinologist, Metabologist and CDE. He's very interested in conducting clinical trials with the SOLO MicroPump (with me as his first participant since I introduced him).

It is one of the most promising developments he's seen. He's used MM and Omnipod, but prefers the SOLO. Tube-free, it's low profile with a shallow patch-type mount and cannula. The small PDA like wireless control unit has a PC interface.

My doctor talked to Medingo about the SOLO at a medical convention in June. He understands that Roche has tentatively planned a 2011 release.

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Medingo is a developer of medical equipment used extensively in Europe, with 20 years experience, based in Israel. The acquisition by Roche gives them greater resources for introduction, distribution and support of the SOLO in the U.S.

It is my understanding the SOLO is FDA approved. Medingo was waiting to release it until their distribution, technical support and supplies systems were tested in clinical trials.

The Roche acquisition delayed those trials originally set for this year. Of course this information is speculative, based on my experience and whatever information I could glean.

For information about the SOLO MicroPump, and to request a sample kit for yourself, visit the U.S. web site below. There is a mailing list, on-line interactive tutorials, and other tools on the site. Medingo's SOLO web site:

www.solo4you.com

(FULL DISCLOSURE: SparkPeople moderators, this is not an advertisement. I've had Type 1 Diabetes 40-years and am sharing personal experiences and opinions. I do not represent or have any direct connection or financial interest in Medingo, Roche, or other firm.)

Hope this is helpful

I'd appreciate any suggestions or comments about preparing to become a pumper, especially basal rates, carb response, and profiles. Seems like there is a lot to learn, but I think I'm ready to make the change and achieve better control.

I'm also interested in CGM, but MediCare -- my sole insurance -- does not cover it yet.

Warm regards from fellow Type 1,

John


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John Conrod, Medtronic MiniMed Ambassador
Brittle Type 1 Diabetes 47 Years, Insulin Pump 7 years
Founder: BrittleType1Diabetes on Facebook

www.facebook.com/BrittleType1Diabetes



www.minimedambassadors.com/johnc

NOTE: As a volunteer MiniMed Ambassador, I receive promotional items and educational material to use and share as I see fit. No monetary compensation has taken place and any opinions expressed by me are honest and refle


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JUANACEE Posts: 9
8/13/10 6:27 P

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I use the MM 522. I have tried the Omnipod, but I also don't like having separate things to keep track of. I don't use a CGM because it requires another poke (more tissue damage). I have had T1 a very, very long time and I am running out of real estate on my body. What's left, I need to keep for pump infusions. I don't really mind doing regular BG checks. I haven't heard about the Solo, but I'll ask my Dr. later this month. He is big, big into research so usually has the latest info.

CAREY.LISK's Photo CAREY.LISK SparkPoints: (0)
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8/9/10 7:25 P

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I like the concept From what I hear the omnipod is releasing a new smaller sized pod similar to the solo. they are also working on getting intregrated with a CGM as well. personally I like my minimed because of the all in one feature I don't have to deal with a PDM or sep. CGM device it is all in one little pump for me and it is pink lol. You guys might like a web group called Tudiabetes.org they have every group for every diabetic known to man and we get the fast track info on new diabetes tech and info. so stop by and check it out and hey even offer you 2 cents as well it is for diabetics by diabetics

"you CAN do ALL things through Christ which STRENGTHENS you"
phil 4:13


I don't believe in failure.

( this includes getting healthy!!)


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1CYNIC Posts: 2
8/9/10 4:10 P

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I agree with you the Solo is a neat pump idea. I have asked Roche Insulin Delivery people a couple of times about the Solo pump but they claim no knowledge.

I'm hoping Roche releases the Solo, or the system currently testing in Ireland, by the end of the year in the US. It is time for a new pump.

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Edited by: 1CYNIC at: 8/9/2010 (16:11)
SHARI0721's Photo SHARI0721 Posts: 23
4/19/10 10:00 P

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Did anyone read the news blurb on diabetesmine last week that Roche just bought the Solo pump? I have received their marketing packet with a prototype of the Solo last summer, kinda cool. I really want to play with this thing and see what it can do.

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