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PEACEFUL-SPIRIT's Photo PEACEFUL-SPIRIT Posts: 16,453
1/29/14 9:32 A

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Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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MEMARE's Photo MEMARE Posts: 2,365
1/20/14 3:47 P

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I'm Mare. Survivor 3+ years. Stage 0, hormone receptor positive, lumpectomy and radiation of left breast. After treatment I met my goals and maintained for two years. Then I became a slacker and gained back about 10 -15. Working on that now. (o: Eating clean, drinking lots of water and getting my exercise in.
Hubby got me a treadmill for Christmas/Birthday, it was just delivered last week. I've put a few miles on it. emoticon

I don't frequent here as much as I did at first, but I still drop in from time to time. emoticon

I recommend this team to anyone on SP that needs it. I had received so much support here during my 'dark days'. Everyone on this team imparts something to the cohesiveness of it.
Kudos to you all, and especially to Inga. emoticon

~~If your dog is fat, you're not getting enough exercise. ~~ ~Author Unknown

Former Team Leader ~ Rescued Dog Lovers teams.sparkpeople.com/rescueddogs

EST~ GA, USA


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PEACEFUL-SPIRIT's Photo PEACEFUL-SPIRIT Posts: 16,453
1/5/14 12:56 P

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Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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MASHELDON's Photo MASHELDON SparkPoints: (38,055)
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12/29/13 4:06 P

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I'm Melissa, 43 and just finishing a very long 2 years! (stage 2 estrogen positive-double mastectomy) It's my life and cancer can't have it, but the the tamoxifen certainly did change a lot of things for me. I am taking my life back, I have more important things to do! emoticon

For I Know The Plans I Have For You declares the Lord, Plans to Prosper You and Not Harm You. Plans to Give You Hope and a Future.

Jeremiah 29:11


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MOM2ACAT's Photo MOM2ACAT SparkPoints: (190,535)
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12/19/13 6:27 P

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I'm Shari, I just joined the team today.
I already posted an intro in another thread, so I will keep this one brief.
I am 50, and currently in treatment for stage IV breast cancer; my cancer spread to my bones in the early part of 2007. (My first diagnosis was in May 2003).

I use to work in retail, but I had to stop working in November 2008 because of health issues related to the cancer.

My full story is on my Spark page.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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SWINKIE57's Photo SWINKIE57 SparkPoints: (111,036)
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11/22/13 8:40 A

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My name is Carol and it was this time last year that I almost didn't go for my yearly mammogram thinking to myself all the others have been fine I can skip this year but thank heavens I did not skip it because that is how they found the stage 1 breast cancer in my right breast. I had a biopsy Jan 22nd and found out Jan 23rd. I had a lumpectomy Feb 7th and again on Feb 15th (to get clean margins) I had 30 rounds of radiation but no chemo and no other meds. Had my first follow up mammogram in August and was good. Next one is in February 2014.

I lost my weight through Weight Watchers and am a lifetime member as well as I work for them one day a week as a receptionist. I have become a runner since losing weight and completed my first half marathon this past September. I also workout to Cathe Fredrich DVD's and when weather is bad I run on my treadmill or Spin bike. I pretty much have a mini home gym. I am recently retired from AT&T (well it will be a year at the end of December) and love it! So glad I didn't have to deal with breast cancer and work at the same time.





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PEACEFUL-SPIRIT's Photo PEACEFUL-SPIRIT Posts: 16,453
11/20/13 9:00 A

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emoticon all you champions! emoticon emoticon emoticon

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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MAURIZIA's Photo MAURIZIA Posts: 13,397
11/8/13 3:49 P

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No problem, Carol. That is what we do here, right? Share info to help each other. I learn so much from all of you, which helps me do my job 1,000 times better!

Mauri, EASTERN TIME ZONE, NEW ENGLAND

"Start by doing what's necessary; then do what's possible; and suddenly you are doing the impossible." - St. Francis of Assisi

“Never be in a hurry; do everything quietly and in a calm spirit. Do not lose your inner peace for anything whatsoever, even if your whole world seems upset.” —Saint Francis de Sales


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CAROL_31649731's Photo CAROL_31649731 Posts: 7,573
11/5/13 12:48 P

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Maurizia, thank you so much for your response. The info was indeed very helpful. Probably aging going one here (I'm 56). It started about a year and 1/2 ago in the left breast. And has just recently started in the right breast, too. Thanks again for caring enough to reply!

Carol


Champions in the Kitchen (CL)
Summer 5% Challenge

"Everything in your life is a reflection of a choice you have made. If you want a different result, make a different choice."

"There is no diet that will do what eating healthy does."
MAURIZIA's Photo MAURIZIA Posts: 13,397
11/4/13 6:55 A

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Carol, though an inverted nipple could be a sign of breast cancer, it also is caused by other conditions, including aging. Here is a link to a website that does a good job of explaining the changes:
breastcancer.about.com/od/whatisbrea
st
cancer/tp/nipple-variations.htm


When I teach classes on breast health/cancer, I do mention inverted nipples as a symptom, but in over 80% of women who develop them, it is not breast cancer. You took the right action by having a medical professional check it, and having the mamm & ultrasound.

Hope this helps.

Mauri, EASTERN TIME ZONE, NEW ENGLAND

"Start by doing what's necessary; then do what's possible; and suddenly you are doing the impossible." - St. Francis of Assisi

“Never be in a hurry; do everything quietly and in a calm spirit. Do not lose your inner peace for anything whatsoever, even if your whole world seems upset.” —Saint Francis de Sales


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SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL Posts: 9,709
11/2/13 12:00 P

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Carol...it's quite okay to be blunt here. Sorry, I really don't know anything about inverted nipples and cancer, so I really can't help you there, but maybe someone else can.

Kay from Tennessee



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CAROL_31649731's Photo CAROL_31649731 Posts: 7,573
11/2/13 10:42 A

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Glancing through, I noticed several are not cancer survivors either. I, too, am fortunate enough to say that I don't have to call myself a cancer survivor, but I have been experiencing breast changes and am concerned for my own breast health . . . as well as the breast health of women everywhere. So I'm hoping this is the right forum for me to learn and share as well.

At this point, I've seen two breast specialists, who have agreed that I should not be concerned about inverted nipples. Mammo & ultrasound are fine (and nipples are not permanently inverted, I can pop them out, with some effort--started in the left breast over a year ago, and just started in the right breast couple months ago). Anyone else have this issue before developing cancer? Sorry to be so blunt.

Looking forward to getting to know you all & making lots of new friends!

Carol


Champions in the Kitchen (CL)
Summer 5% Challenge

"Everything in your life is a reflection of a choice you have made. If you want a different result, make a different choice."

"There is no diet that will do what eating healthy does."
SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL Posts: 9,709
10/29/13 11:40 A

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I'm Kay. I was diagnosed with stage 2b triple negative BC (grade 3) almost three months ago. I'm doing neoadjuvant chemo right now (taxol weekly for 12 weeks). Tomorrow, I'll be on week 9. When that is finished, I'll be doing AC (every other week x4). After that, I'll have surgery and radiation. My treatments should finish up around April.

I've been on Spark since 2009. I'm currently at my ideal weight, so that's not an issue for me (right now). I've lost 25 pounds since joining Spark (and regained it twice). I live in a small town in Tennessee and travel 2.5 hours each way for treatment at Vanderbilt in Nashville.

I'm dealing with a lot of fatigue right now, so my goal is 10 minutes of exercise a day. Since being diagnosed with cancer, I've gone over to a no sugar, no salt, whole foods diet with lots of vegetable juicing. I think the juicing helps with my prechemo blood tests (they keep coming back normal) and my overall well-being.

Kay from Tennessee



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MATER88's Photo MATER88 SparkPoints: (196,027)
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10/22/13 7:15 P

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I'm MaryAnn and I will be celebrating one year after lumpectomies on both breasts on Thursday. I also had 30 sessions of radiation. I passed my first mammogram after surgery last month. I am going to see my radiation oncologist on Friday. I sailed right thru the surgery and radiation but when I started on Arimidex that was another story. My hot flashes are just flushes and don't occur as often as before. I do have memory problems and my medical oncologist says that is the Arimidex. My energy level is almost back to normal since starting the meds last February. I love this team but haven't been very active lately. I'm going to be more active in the future.

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FLUFFYWONKENOBE Posts: 2,030
10/22/13 5:37 P

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I'm Paula, I'm not a cancer survivor but I am a Registered Mammographer and work in the Breast Imaging Department of a local Cancer Center. I started this team because I wanted to connect with breast cancer survivors here on SP and provide a place where they (and those who care about them) could come to share each other's joys, concerns, fears, etc and support each other.

I've been a member of Sparkpeople since 2007. I've had great success, then stopped showing up & fell flat on my face, and finally came back to what works for me - Sparkpeople!

As far as nutrition & fitness - I try to stay in the 1200-1550 calorie range at least 5 days/wk, I try to limit sweets and breads and I try to eat lots of fruits & veggies each day. Some days I do great, other days not so much.

My fitness routine consists of Leslie Sansone's Walk Away the Pounds DVD's on Monday, Wednesday & Friday, and more WATP on Tuesday, Thursday & sometimes Saturday . . . in other words, it's all Leslie!! I like not having to get up & leave the house to work out, I just push the coffee table out of the way, pop in my DVD & start walking! Some people say that it's not intense enough for them but I work up a good sweat & I've lost 50 pounds since February simply by controlling my eating habits & doing WATP. So it works for me!

I love that all of you have made yourselves at home here, and am so glad that you feel comfortable enough to share with each other what you're going through. I love, love LOVE that this team has gone from me & a couple of others to 990 members!!! I know that not all of those 990 are active here, but for those of you that are, THANK YOU for making this team such a wonderful place!!

AND I WANT TO SAY A HUGE THANK-YOU TO INGA (yes, I'm shouting it!!) for keeping this team going all these years! I may have started the team & gotten it up & running, but she has been the driving force behind this team for several years and I love her for it! Thank you Inga, for your commitment, your fun & creative ideas, and most of all for your friendship. Love you, girl!
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CARPROTH's Photo CARPROTH Posts: 19,257
10/21/13 11:40 P

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Just celebrated 3 year anniversary - Stage I invasive ductal breast cancer. Lumpectomy followed by brachy (internal) radiation (one week rather than 9). Low oncotype dx score so no chemo necessary. Completed two years of a recommended five year aromatase inhibitor treatment (tumor was hormone +) but stopped when drug side effects were compromising my health and well-being to such an extent I felt I was much better off without them. I now take no prescription drugs and am working on re-losing weight gained taking anti-cancer and sciatica drugs (caused by bone spurs - side effect of anti-tumor meds).

I belong to a gym where I do ST 3x/week, and practice tai chi twice/week. I am co-captain of a breast cancer survivor dragon boat team and we paddle for an hour and a half every weekend. I also have both real and stationary bikes and try to get in 45-60 min/day on one or both of them (my go-to cardio exercise). I am a volunteer docent at the Desert Botanical Garden and lead tours talking about plants every Monday. My DH of 35 years was diagnosed with vascular dementia a little over 6 months ago - he has some fairly good days and others that are not very good at all. I do what I can, really try to stay positive and life-affirmative and fully intend to live long enough to die from something other than cancer.

Carol


Shoot for the moon. Even if you miss you will land amongst the stars.


Nothing changes when nothing changes.



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MAURIZIA's Photo MAURIZIA Posts: 13,397
10/20/13 12:17 P

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I've not had breast cancer but I work for a local breast cancer resource foundation on their Hope Bus, a residential RV, that travels throughout RI & nearby Massachusetts. We offer education, help find resources, and provide programs for those touched by breast cancer, whether patient/survivor, family, friends, or medical staff. These include yoga, healing arts, mind-body-spirit such as meditation, angels, reiki, massage, reflexology, etc. We visit 9 hospitals monthly, with support groups facilitated by a LMHC at 2 of the hospitals. I LOVE what I do, and it is only a job when I'm off the RV and in the office. :)

Mauri, EASTERN TIME ZONE, NEW ENGLAND

"Start by doing what's necessary; then do what's possible; and suddenly you are doing the impossible." - St. Francis of Assisi

“Never be in a hurry; do everything quietly and in a calm spirit. Do not lose your inner peace for anything whatsoever, even if your whole world seems upset.” —Saint Francis de Sales


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JESSIG5's Photo JESSIG5 Posts: 2,418
10/20/13 10:52 A

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Hello everyone,

Inga, I am glad to see you posting again. I have thought of you often and have read your blogs.

To re-introduce myself, I will say that in October, 2009 I was diagnosed with Stage IV triple negative breast cancer when I was admitted to the hospital through the emergency room. Treatment began immediately but in December I was admitted to ICU with four different infections. I spent the next four months in hospital and rehab because I was so weak I could not even turn over in bed.

My cancer treatment did not resume until July, 2010 and I did not have radiation until January, 2011 so it depends on who is doing the counting as to whether I am a four year survivor or coming up on three years.

Either way, I am doing great. I have been on Spark a couple of years I think with mixed results. My weight goes up and down but seems to stay within a 10 to 15 pound range. However, my exercise has increased tremendously. When I came home from rehab, I could barely walk across the room. Now, I walk four miles every Saturday with two Spark friends, do water aerobics twice a week and strength training three times a week.

The greatest benefit I have received from Spark has been the support of this team and, Inga, when I started on Spark, you were a big part of the reason I stayed. When I first joined Spark, I signed up for several teams but quickly realized that it was becoming a burden so I cut back to this Breast Cancer team and my local team.

There is a great deal of support and wisdom to be found here since so many of us have shared the same treatments, emotions and challenges. I can usually be found on the How do You Feel Today thread on this team and we would welcome anyone to join us there.

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Jess





One day at a time; one pound at a time.

NILLAPEPSI's Photo NILLAPEPSI SparkPoints: (122,853)
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10/20/13 8:51 A

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emoticon My name is Sheila & I live in Virginia. My 2-year survivor anniversary is in January 2014.

47 pounds gone (16 of it before I found Spark). 26 pounds to get to my goal.

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Keep smiling!!
Nillapepsi (Sheila) :-)

There is no passion to be found playing small - in settling for a life that is less than the one you are capable of living. ~Nelson Mandela~


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SYLVIALYNN2's Photo SYLVIALYNN2 Posts: 572
10/19/13 2:52 P

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Hi, diagnosed January 2011, right breast mastectomy March 2011. Stage 1 nothing in lymph nodes. ER+, PR+, HER2-. Oncotype Dx score 23. 4 rounds Taxotere and Cytoxin. Latttisimus Flap reconstruction August 2011. Started Anasterozole August 2011. Doing well but some Truncal and right arm Lymphedema that is managed with self massage and MLD massage as I deem needed. Recommend Elaine Dohms in Bradenton, FL and Missy Baylor in Clear Lake, TX.

Helpful hints:
1. As soon as you are diagnosed, search for a breast health navigator. Marie Borsellino at Sarasota Memorial was a great resource and so helpful in so many ways.
2. Go for a second opinion.
3. Listen to your inner voice. If you are not comfortable with your doctor or the surgeon, find another one The tumor has been there for a while so don't be in a rush, take time to research, connect to a support group and find the right doctor for you.
4. Become a strong self advocate for your self.
5. If you choose reconstruction, interview at least 3 different plastic surgeons. I did not do this as I was comfortable with the PS recommended to me. BIG MISTAKE. Not happy with the back muscle flap reconstruction or the results. There were better surgeons in the area if I had waited, gotten recommendations from my support group, researched and interviewed other PS. You do not have to have reconstruction immediately even though it sounds good in theory.


2010 the year to be the best I've ever been!


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PEACEFUL-SPIRIT's Photo PEACEFUL-SPIRIT Posts: 16,453
10/19/13 11:34 A

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Spark People is ever changing, so let's post a little something about ourselves, so we can get better acquainted and reach our goals. Some of us have been here for years, others are brand new, let's work together on our goals!

Inga
Co-Leader of Breast Cancer Survivor's & Those Who Care. Days Go By...So Live Your Life.

Motivational Quote:
"You have within you a supply of energy limited only by your ability to discover and develop it. In body, mind and spirit, you are endowed with capabilities far greater than you know, keep reaching for your potential. "




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