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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
11/13/14 1:49 P

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I agree with Jane.
If you have shaking in one hand, and its the same side at the rotator cuff that's causing problems, there's a very good chance its a pinched nerve.

I don't understand how the doctor can say its all in your head, when you are holding a cup and they can actually see your hand shaking. It sounds to me like they can't figure out the problem is.

Time to see a chiropractor!

: )
Mzzchief

New decade. Big world.
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11/13/14 6:05 A

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GOANNA2, if your hand is shaking it is not in your head! Have you checked with a chiropractor? You could have a pinched nerve in the neck or something similar. I do not like doctors who like to put women down because they are not feeling well. Can you change to someone who will listen to you?

Jane



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GOANNA2's Photo GOANNA2 Posts: 23,964
11/13/14 3:54 A

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Glad you are feeling better Jane. I get a tingling in my right hand
and when I pick up a cup or glass, hand starts to shake. I have had
a nerve test done and do have trouble with my rotator cuff and was
told it's all in my head. I don't know who to believe. I just know
the shaking is very real.

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
11/9/14 1:24 P

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Hi Jane

I am sorry to hear you are still having problems.
Its so frustrating!
My own experience is that Synthroid was great until peri-menopause got serious.
Cytomel resolved some of those issues for me.
Now that I'm menopausal I need less T3.

One of the disadvantages of Armour, is that you are stuck with the ratio of T3 to T4 that comes with that med. Same with Thyrolar, which is a synthetic thyroid hormone combo of T3 and T4.

With Cytomel you can add and subtract Cytomel as determined by your labs and cessation of symptoms.

Exotec
It sounds as if your Endo and your FM are not on the same page.
I would stick with the doctor who is serving you best.
Which will leave you with fewer battles to fight and more money in your pocket.





New decade. Big world.
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EXOTEC's Photo EXOTEC Posts: 3,327
11/9/14 11:09 A

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I was on l-thyroxine (Synthroid) for several years, prescribed by my (traditional) endocrinologist. It did absolutely nothing for me - even in my lab results, much less in symptoms. I evidently am a very poor converter. His only concern seems to be whether my thyroid feels normal on palpation.
I had to enlist a Functional Medicine Practitioner before this was addressed. He's prescribing me Cytomel, now at 5 mcg twice a day, which seems to be helping. I'm very reluctant to mention this to my endocrinologist... but he doesn't ask why my thyroid labs are improved. I think I'll just let sleeping dogs lie!
Meanwhile, the FM guy is monitoring me and will continue to adjust my dosage until things get right -- or, as "right" as they're going to get.

Keep pushing for results. It's crazy that we have to educate our physicians - even specialists! but if that's what it takes, so be it.



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they've forgotten we're really just animals ...
(attributation forgotten)

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~C.S. Lewis


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11/9/14 7:30 A

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I am beginning to feel better. About the time I was given CYTOMEL I had started experiencing severe pain in my neck, left shoulder, arm and finally my hand. The hand going numb with chopsticks in it that I had to remove with the other hand sent me to the chiropractor the next morning. My primary doctor is SDA so they are closed Saturdays. The chiropractor and I talked and he wanted x-rays of my neck which I got Monday morning and saw him in the afternoon. The pain was not continual but there enough that I was exhausted much of the time so could not tell if the CYTOMEL was working or not.

I still have some pain but not all the time and I am beginning to feel better. Hopefully by the time I get blood work and return to the endocrinologist I will be feeling better and will not need a sleep apnea test nor an MRI on my neck.

Time will tell.

Jane



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11/9/14 12:42 A

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Wow! Thanks Mzz. I have to pay $75 to Quest lab for this test if Medicare denies my appeal.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
11/8/14 5:10 P

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Tee
HbA1c kit is found in Walmart for under $40.
Which in some cases isn't as much as a copay for a visit to a specialist like an endocrinologist.
And far less annoying. ha

www.walmart.com/ip/ReliOn-A1c-Test/1
05
75934


There may be other less expensive alternatives... check online!

: )
Mzzchief

New decade. Big world.
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11/8/14 3:40 P

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Thanks Mzz. Acella since it does not ring bell. I thought it was WP or NT

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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11/8/14 3:37 P

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Insurance does not pay for A1C test unless diabetic. Mine was denied although I provided proof that the meds I take cause diabetes and my fasting glucose rose.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
11/8/14 2:02 P

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All~

For those of you having slow weight loss, and all of your thyroid hormone and TSH numbers "perfect" or close, I would suggest a fasting glucose test and a HbA1c.

Your problem might be glucose rather than thyroid related.

Also, about the reverse t3 (RT3) test...
Its meaningless if you've been ill, have exercised and the morning and have been fasting.

Have a fun day!
emoticon
Mzzchief

Edited by: MZZCHIEF at: 11/8/2014 (14:02)
New decade. Big world.
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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
11/8/14 1:20 P

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Tee

I think the thyroid replacement for original Armour that you are thinking of might be Acella?


: )
Mzzchief

New decade. Big world.
Hello, 60!
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Never underestimate the value of getting out of your own way.

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11/3/14 10:29 P

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Jane,

Are you feeling better on Cytomel?

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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11/3/14 10:29 P

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Did a member mention a brand of thyroid medication that is similar to original Armour? I can't find post and wonder if it was this group. Anyway, Armour does not seem to be working for me. I become extremely tired and go back to sleep after taking upon waking. I go for test this month and will ask endo to switch me to different med when I see her the following week, if I can come up with name.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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10/31/14 4:41 A

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I hear you Nancy. It took 7 years for me to talk doctor into testing these hormones and only after my adrenals were bleeding.

PA endos said standard part of yearly thyroid check is ultra sound, antibodies,etc. Yet, she was the only doctor that performed these tests in my 50 years of thyroid disease.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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UNICORN212's Photo UNICORN212 Posts: 13,986
10/30/14 3:26 P

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Tee - in the 6 years since the Hashi's killed my thyroid, no one had ever looked at my cortisol, renin or aldosterone hormone levels. I doubt it will happen. Here in AZ it is hard to get anyone who does thyroid well.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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10/30/14 6:44 A

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Are you aware that TSH plus different T levels can indication if patient has deficiency that needs to be corrected for thyroid to work properly. Cortisol, renin and aldosterone hormone levels, which are part of the endo system need to be balanced for proper thyroid function too. If one of these hormones is off, thyroid and medication will not work.

The more I read about endo system, the more I realize that optimal thyroid function consists of more than type or dose of thyroid medication a patient takes.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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UNICORN212's Photo UNICORN212 Posts: 13,986
10/29/14 11:39 P

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TSH does not measure thyroid levels. It measures what the pituitary is telling the thyroid to do. If your blood levels are good, it would make sense that the TSH would be nearly zero.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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10/29/14 11:08 P

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Sending test to Hawaii and expense would be reason Guam doctors do not order test, but T-3 tells more than TSH and T-4.

It is sort of like doctor ordering fasting glucose test instead of A1C. Fasting glucose test only shows glucose level when patient fasted from midnight. A1C shows several months of glucose when patient ate, fasted, etc.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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10/29/14 12:00 A

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There are several reasons doctors do not order T- 3. If you are already taking medication it does not seem to be as valid as the TSH and T- 4. It is also more expensive to run and here on Guam it must be sent to Hawaii because non of the labs here run it.

Some of this information came from endo's and some from some of the reading I have done. I do not push for T-3 anymore.

My primary doctor ordered TSH before I saw this endo and she ordered T- 4 and TSH for my next lab work.

Jane



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10/28/14 11:48 P

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My TSH was 1.26 and Free T-3 was 5.8 (high) after taking Armour before test. The high Free T-3 after taking medication is due to T-3 in Armour being high until it wears off. High Free T-3 causes Reverse T-3 which causes lack of weight loss, etc.

My TSh was 4.20 when I did not take meds before fasting test. I don't know what my Free T-3 was since doc did not order that test.

My Free T-4 was same with/without medication....1.1

I am going to ask my doctor to order Free T-3 next month since I have not had one in almost a year.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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10/28/14 1:06 A

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Tee, I put the post under the Grandmother's Fitness Club, 60+ LQQking to Lose 50+ and the Chair Exercise Team. I called it Strengthening Muscles Around Bladder. Hope that helps you find it. Also learned the word for the exercise, Kegel if you want to google it.

Jane



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10/27/14 11:49 P

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Tee - my "normal" TSH was 1.4 before Hashimoto's got me. On Armour it is usually .5 or less. Which only goes to show my pituitary recognizes that I am doing well on this dose and do not need more T4.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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10/27/14 10:45 P

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Jane,

I can't locate your post about urinary exercise, but thought of a few things. How much water do you drink daily? I drink half my weight in water. Do you consume a lot of caffeine? Caffeine is diuretic. We need to consume two glasses of water for each cup of coffee we drink.

Have you undergone a urine output tests? I did this test twice. Both times it showed I urinate little during waking hours and most first thing in morning.

Also no caffeine drink before eating breakfast. Caffeine and thyroid meds do not mix. And decaf coffee can contain up to 30% caffeine. I drink water until after I eat breakfast. Then, I have my cup of decaf coffee. Switching was hard, but it made a big difference.

I lost 2 lbs since starting to take thyroid med twice daily. I read in medical book today that optimal TSH is 1.0 or under. Even 2.0 TSH is considered hyper (low) thyroid. I know people without thyroid condition have 1.0 or less TSH.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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10/27/14 9:58 P

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Thanks for mentioning magnesium. I take 400 mg with 2,500 iu of D after dinner. It makes me too sleepy. So I am going take half from now on.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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10/27/14 12:13 A

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Tee - You might want to add Magnesium in the evenings. A lot of us are deficient in it and it helps with sleep. It helps with the bowels and intestines, too.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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10/26/14 11:15 P

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Thanks Nancy. We are taking same amount. I use to fall asleep around 3pm when I took Armour once daily and insomnia at night. I live alone and no person or animal disturbs my sleep.

I was under 190 lbs and losing steadily on levoxyl with 60 mg of Armour daily. Then, endo moved and med changes caused me to gain 30 lbs. And my diet and exercise program has not changed.

My next thyroid check is in Nov. We can compare notes.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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10/26/14 11:05 P

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Laurie,

Stop asking for Armour. Armour was reformulated ( different filler) a few years ago and does not work the same as original Armour. I did best on a combo of levoxyl and Armour that former endo prescribed. New endo put me on straight levoxyl and I started gaining inches and weight around my belly and hips. My health continued to decline. I begged new endo to prescribe combo. She refused and I am stuck taking Armour.

Doctors know how much T-3 is in Armour. It is too much. More than our thyroid produces. Our thyroid only produces 20% of T-3. Armour contains way more than that. Over consumption of T-3 can lead to reverse T-3 which causes the body to hold onto carbs from good food like lettuce.

The T-3 in Armour only lasts 3 hours, which is why my T-3 level is high if I test within 3 hours of taking medication and low if I don't take med before testing. Endos recommend splitting dose and taking twice daily.

I have been splitting dose and taking at 5-6 am and 10-11 am. Only need to wait a half hour after taking Armour to eat. I fell much better splitting dose, but gained a pound a day since I started taking this way. And I have not changed my diet or exercise program. I am going to continue this since leg pain that has been plaguing me for over a year disappeared.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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UNICORN212's Photo UNICORN212 Posts: 13,986
10/26/14 1:15 P

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Tee - I am taking 60 mg twice a day it has only been since July. I have another apt in November to review the blood work (TSH, Free T3 and Free T4 I think) I did 2 weeks ago. I dont know if it contributes to insomnia or not, but since I have lunch at noon, Id have to take it by 11 to take it that early and Id be asleep by 8 PM. I wake up a lot at night, but I think it is due to the husband and 3 dogs, not me. I can really feel it as my 2 PM dose gets closer. I start yawning and want to put my head down on my desk! I have not lost weight, but that is also my fault. I need to get my head back in the game.

Appy-Laurie tell your doc that the bodys thyroid production waxes and wanes due to cellular needs so how is Armour any different? The T4 meds give the same dose all the time which may be too much at times and too little at others. Armour was the first thyroid med out there it has a much longer track record than any other thyroid med.


~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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10/26/14 9:43 A

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The Armour has both T4 and T3 in it so often supplementing T3 is not necessary. I wish my Doctor would prescribe Armour for me but she won't. Doctors have issues with not knowin ghow much T3 and T4 is in each tablet of theArmour, because it is a natural thyroid from pigs. Doctors being control freaks like they can be. But I keep asking for it.


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10/26/14 5:38 A

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Nancy,

How much Armour do you take? I take 120 mg daily. Endo instructed me to take second dose before noon or it causes insomnia. I found if I take after noon, I can't sleep. Did you noticed weight change taking medication twice instead of once daily? I haven't lost weight in over a year and hope switching to taking twice daily works.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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10/26/14 5:32 A

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A doctor that tests R T-3 is rare. I should move there. I am happy the increase in cytomel lead to weight loss and feeling better. Let us know your new test results.


Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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10/25/14 11:46 P

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I am taking my Armour twice a day. I take one at 5:15 AM and the other between 2 and 3. I don't convert very well and can feel when I am on empty. I had to push to get my endo to do this....it helped that I was already on compunded pig thyroid twice a day from another doc (who moved to another state).

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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10/25/14 11:45 P

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I agree with Appealstome. Testing for Free T3 and Reverse T3 are vitally important. My doctor only tested TSH and Free T4 for a long period of time, but I was gaining weight and had all the Hypothyroid symptoms - low heart rate, low b/p, cold all the time, tired all the time, etc. Finally he tested for the Free T3 a couple of years ago and it was low. He added Cytomel. Last year, I started having all the Hypo symptoms again, and we re-tested my Free T3 and my Reverse T3 - both were low. We doubled my Cytomel (T3) and I immediately started losing weight again and feel much better. I just had my 3 month "after the increase" re-test of my labs and will receive the results on Monday.

Lisa L. South, BSN, RN


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10/25/14 8:36 P

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I appreciate members mentioning taking Cytomel twice daily. My doc suggested splitting Armour in half and taking twice daily. Today I did that. I took half tablet at 4 am and other half at 10 am and no leg pain for first time in year. Drawback is I was extremely tired and could not do anything until this afternoon. But I am going to continue taking Armour this way until blood tests in a month to see if my levels are off since I am tired, can't lose weight, etc.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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10/25/14 8:30 P

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It is great that your doctor will do any tests you request, but does he or she know how to interrupt them? Interpretation is key to treating anything.

I have had this condition for almost 50 years and read every book published about it. Hashimoto the root cause. The fast metabolism diet by Haylie Pomroy. Wheat Belly Total Health, etc.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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10/25/14 8:22 P

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Not true about Free T-3 testing not being necessary. Free T-3 shows how much active thyroid medication is getting into cells where it is needed for patient to feel, look better, lose weight, etc. Sorry your lab does not do this test.

TSH measures pituitary is unnecessary. Free T-4 tests shows how much inactive thyroid hormone is circulating in blood stream. I mean FREE T-3 and 4. Not T-3 and T-4, which are different.

It has to be hard to regulate thyroid with TSH and Free T-4 since neither test shows how much active medication is getting into the cells.

When levels of the frees are low a person could have low ferin, etc. That is what I mean about there is more to optimal thyroid levels than simply thyroid medication.

Another important tests is R-T-3. Reverse T-3 shows if the active form of medication (T-3) is getting into or bouncing off cells instead of getting into them. Too much R-T-3 prevents weight loss and other conditions. I haven't found a doctor that does this test bc they do not know how to interrupt it.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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APPY-LAURIE's Photo APPY-LAURIE Posts: 117
10/25/14 10:03 A

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My doctor will do wahtever tests I ask for now. Initially she only did TSH and T4. I forced myself to throw a holy fit. She agreed then to do more and so I went and did more blood letting. I explaned stuff to her in my next appointment which I demanded. She is an MD osteopath and so should be looking at this holistically. She had to admit that I know more about thyroid function than she does. She said she would read up on what I was telling her. Then she called me back and told me that I am right! Now she goes with whatever I am telling her as long as I can explain to her why.

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10/25/14 4:58 A

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Tee, tsh and T-4 will be tested but not T-3. T-3 must be sent for off island and is expensive so that is a no. From what I understand the T-3 testing is not needed if everything else is okay.

Jane



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10/24/14 11:36 P

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There are not many progressive thinking endos anywhere. Most were taught to prescribe T-4 meds and other meds for anxiety, etc. I was diagnosed almost 50 years ago and only had two doctors that agreed to add T-3.

Does your doctor do Free T-4 and Free T-3 test in addition to TSH? MIne does these tests every three months.

It takes more than test results for optimal thyroid level so patient feels and looks good.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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APPY-LAURIE's Photo APPY-LAURIE Posts: 117
10/24/14 10:59 A

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Cytomel will make quite a difference if you are like me and a poor T4 to T3 converter. Cytomel is T3. Our thyroids secrete T4 but that is not the usable form for our body. Through some magic, something in our body converts T4 to T3 and that is the form that our cells can utilize. through lab tests I convinced my current internal medicine doctor that I hardly convert any T4 at all. She had to agree that a series of tests, after taking away my T3 supplement about 18 months ago, that I have very poor conversion. I am taking 10 mcg once a day. I know that 10 or so years ago 10 mcg was the top dose. I had a feeling that at this point in time perhaps that is old information and I might be able to take more of it now with more current information. I was happy to see on this thread that someone takes 10 mcg twice daily. I am being so good on this weight loss attempt and if I don't lose anything significant in 6 or 8 week I am going back to the doctor with new information for her.

BTW, I have not been able to find a progressive thinking endocrinologist in Madison Wisconsin, yet. I had one about 10 years ago and that is how I got a script for Cytomel in the first place. Then she left town!

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Edited by: APPY-LAURIE at: 10/24/2014 (11:02)
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10/24/14 5:38 A

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I am to get bloodwork in six weeks and see the endo again to see how things are progressing. When things are stabilized I will probably have bloodwork every three months as long as I am feeling okay.

Jane



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10/24/14 4:03 A

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Hope increasing dose of Cytomel makes you feel better. How often does your doctor check your thyroid levels? Mine checks them every three months. I have been tired to point of wanting to go back to bed after taking thyroid medication and go for blood tests/see endo in Nov.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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ROMANTILLY's Photo ROMANTILLY Posts: 9,193
10/23/14 6:56 P

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I was started on Cytomel about 2 years ago now and have noticed a difference. In fact, this past 6 months or so, I started noticing all of the Hypothyroid symptoms coming back - low blood pressure, weight gain, more swelling, more tired, etc. I was due for my annual exam in June, and sure enough my T3 was low again. He increased my dose of Cytomel from 5 mcgs twice daily to 10 mcgs twice daily. I just had my labs re-drawn today and will let you know the results.

Lisa L. South, BSN, RN


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10/22/14 11:08 P

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Thanks for update Jane. Cytomel may help you feel better since it contains T-3. Thyroid makes 20% of T-3. Synthroid is T-4. Most patients feel better on drug combo. Cytomel may also help you with weight loss, increase energy, clear thinking, lower pain, etc.

I can not tell you how many doctors recommended sleep study. I declined since sinus is root of my problem. Apnea machines are smaller, quitter, etc. A few of my relatives and friends have machine.

I am glad your appointment went well.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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ELSEEBEE's Photo ELSEEBEE Posts: 4,410
10/22/14 8:08 A

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Jane, having a doctor who listens to you and works WITH you is a wonderful thing. I hope you will be able to find solutions to your problems very soon. I'm new to the thyroid scene (although I've had the problem all my life apparently) so I can't comment on your medications, but I did have a similar nerve problem in my neck, shoulder and arm as a result of cancer surgery and acupuncture and massage have pretty much taken care of it now. Best wishes on your journey to a healthier you!

-Carol
You are what you believe.
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10/22/14 7:48 A

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This post is a long time coming.

I saw a different endocrinologist today and we discussed all the stuff that has been going on for some time.

These are weight gain, swollen legs, sleeping during the day as well as night, no energy, brain fog and some I seem to have forgotten. I did forget to get a copy of my lab work that was done but she had last May's results as well as the results from October 7th and said there was not a change. She cannot feel the nodules so does not feel another ultrasound is needed at this time. The Synthroid dosage will remain the same at 150 mg but she did add CYTOMEL to see if that will help. I was given the generic and hopes that works okay.

We also discussed the neck, spine and nerve problem I have been having with my left arm as one of our team members said she had had this type of issue. I am seeing a chiropractor and if that takes care of the problem then great other wise I will see her again in six weeks.

If there have not been some significant changes then she wants me to be checked for sleep apnea. I was tested years ago and did not do it for many reasons. One of which I move around a lot at night and having things over my face drives me up the wall. She said the new machines do not cover the face as much so hopefully will not be a problem.

Any thoughts and input will be greatly appreciated.

Jane



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