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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
10/5/14 3:45 P

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Best of luck with your bloodwork, Nythat!

Let us know what the results are, hoping for the best!

: )
Mzzchief

New decade. Big world.
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RANEYDAY91's Photo RANEYDAY91 SparkPoints: (12,270)
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10/3/14 2:15 P

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Nytath that is so good to hear! TY!

~Debbie~

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10/3/14 12:00 P

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Just wanted to pop in with a comment about Graves. I was diagnosed as hyper thyroid last year. I did have the radioactive uptake scan and the results were consistent with Graves although my blood work was not and I tested negative to thyroid antibodies. The positive thing about Graves over Toxic Nodular Goiter is that after a year of anti-thyroid meds, it is possible for Graves to go into remission. That is not the case with Toxic Nodular Goiter. I took anti-thyroid meds for 13 months and just stopped less than a month ago. I will go for blood work shortly to see if my thyroid is functioning correctly on it's own very shortly. Although Graves is scary, it can go into remission. Hang in there!



RANEYDAY91's Photo RANEYDAY91 SparkPoints: (12,270)
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10/3/14 11:58 A

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emoticon emoticon

~Debbie~

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
10/3/14 11:27 A

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Raney,
Did the nutritionist have any ideas on how to kick start his metabolism aside from eating more and losing the guilt?

Everyone's different but frankly eating more has never helped me lose weight, its done just the opposite.

I agree about losing the guilt. If you're going to eat something, go ahead, just make it a reasonable portion and enjoy it, otherwise you're losing the whole benefit in eating that "off limits" food, which is pleasure.

IMO he's got to get his thyroid issue sorted out before any meaningful dietary suggestions can be made.

Hang in there, we will be interested in knowing his test results when he has them.
: )
Mzzchief



New decade. Big world.
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RANEYDAY91's Photo RANEYDAY91 SparkPoints: (12,270)
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10/3/14 10:47 A

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Mzz I am with ya and pray it is not Graves...I have not mentioned to DH yet what all that could involve. He has already been to a nutritionist and she basically told him he needed to enjoy food and stop with all the guilt. Greg feels guilty every time he eats potatoes, bread, pasta. She wanted him to get in more calories she said he has shot his metabolism from dieting so much...but he puts on the weight when he eats within the calorie range provided for him and at best maintains when he eats below. Poor guy has been working so hard and I do not know how to help him!

~Debbie~

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
10/2/14 6:30 P

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hi Raney

I agree the endo's response of SO WHAT is abrupt and dismissive.

I think its reasonable to say that this endo's only interested in test results at this stage of the game.

Whether or not he will address some of your husband's questions and observations, time will tell. But it seems as if your experience combined with those of the health grade confirm he's got a lousy bedside manner.

Frankly I think once you get your test results you might be better served by seeing a functional medicine doctor or osteopath. As a rule, these people are more open to discussion, give and take conversations, looking at a person as a whole rather than as a collection of test scores and parts.You may have to pay out of pocket as these doctors aren't always on insurance.

Sad to say there are plenty of hyperthyroid patients that DO eat within their caloric range, get plenty of sleep and exercise, but for some reason still gain weight easily.


Reason being, that there's more that comes into play in weight management than levels of thyroid hormone.

Cortisol plays a role as do sex hormones, body composition, leptin and gherlin, neurotransmitters.
As well as having a healthy liver and digestive system, inclusive of a certain ratio of gut bacteria, (bacteroidetes and firmicutes).

These are the things I know about, there's prolly more.
In short, its complicated.... your doctor wants to keep things simple for now.

What your endo will be looking for in the uptake is to see if there are any hot spots or non-productive spots on Greg's thyroid. he will be given radioactive iodine that will show where those are. Here's a full explanation of that.

www.hopkinsmedicine.org/endocrine/gr
av
es/Answer.asp?QuestionID=14


If it were me, I'd stick to the TSI test.
That's as simple as giving a vial of blood.
If he's got those, past a certain limit, then he's got an autoimmune thyroid issue
I have them, the last time I tested they were just under the limit for Graves... yet I am hypothyroid. So I'd prolly ask for an anti-TPO antibody test as well as a Anti-Thyroglobulin test just to see if he has Hashi's and is experiencing a brief flare of hyperthyroidism.

Keep staying away from supplements.
Then test out in 6 weeks TSH, free T3, Free T4.

Its possible he has Hashi's but is experiencing a burst nodule that contained thyroid hormone. This will make you temporarily hyper until the nodule drains.

This plus Gregs symptoms abating since he got off the supplements would be reasons to hold off on the radioactive scan.
His thyroid and pituitary may need more time to recover.
Plus I'm leery of radioactive anything.

But that's ME... not him!
He's got to make that decision for himself.
With your love and support of course.

emoticon
Mzzchief



Edited by: MZZCHIEF at: 10/2/2014 (18:46)
New decade. Big world.
Hello, 60!
Primum non nocere.

Never underestimate the value of getting out of your own way.

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RANEYDAY91's Photo RANEYDAY91 SparkPoints: (12,270)
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10/2/14 12:29 P

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Mzz~ What you said makes sense but this doctor just won't listen to anything. It isn't all about the nutritional thing. Every time DH would start to say something the doctor would head him off and not even let him ask questions. For instance DH has had a body temp of 96 and wanted to ask about that and the doctor simply stated SO What. The reason DH was bringing weight into it is because he was stumped how he could be hyper and still have problems losing weight. When I looked up obesity and hyper thyroid the reason it stated for people with hyper thyroid have trouble losing weight is because they are hungry a lot of the time and therefore over eat, but I started tracking Greg's calories and he was staying with in range. I looked up this doctor's health grade and he scored very low (2.5 out of 5) because of lack of communication with his patients.

No Greg is not taking cytomel or any other thyroid altering supplements. We listed the stuff he was on( in my last post) at one time, but he has not been taking anything to boost thyroid at all since.

The doctor is doing the TSI and a scan of the thyroid to check if it is Graves. What will he be looking for with the scan? Will the thyroid be enlarged if he has Graves?

one encouraging thing is Greg is not doing the excessive sweating now so I think he maybe leveling out some. emoticon

Edited by: RANEYDAY91 at: 10/2/2014 (12:39)
~Debbie~

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
10/2/14 12:04 P

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PS
About your hubby's endo's bedside manner... ha... here are my thoughts...

IMO Dr Endo didn't want to address the weigh issue or see his nutritional information, bc when you have a thyroid problem (which the tests clearly indicate), its irrelevant. Plus he's an endo, not a nutritionist.

Let's say your house is on fire.
Your not going to be terribly concerned as to whether the kids made their beds or you vacuumed, emptied the trash, unloaded the dishwasher, dusted, mopped the floor that day.
You're going to want the fire put out, and an investigation started as to how the fire started in the first place.

That a previous test revealed suppressed TSH, elevated T4 and T3, is like smoke. So more tests are run to find out what the cause of the blaze might be.

Its only after the cause has been identified and the blaze put out and the house returned to normal, that keeping the house tidy is important.

Hub's list of calories and foods, that's like keeping the house tidy.
Sure its important, but it pales in the face of thyroid disease.
A fire fighter isn't interested in a list of your housecleaning activities until the blaze is put out and the cause identified. Then he would be interested in the list from the standpoint of whether or not your kids have candles in their rooms or you combined or stored certain chemicals together. Just like your endo would be interested at that point in the nutritional data... AFTER he figures out what's causing the thyroid tests to be screwy.

A thyroid issue is big guns, its potentially life threatening, its your body attacking itself, you can't stop it by an act of will.

Having problems losing weight, that's seen as something within an individual's control.
Sure he may have to really deprive himself to lose weight, more so than what he's comfortable with, but it could be done.

So they're two different issues.
He might even refer your husband to a nutritionist, as that is not his area of expertise.

Does that make any sense?

I know its super frustrating, and its easy to get angry, but that's not going to be helpful.
I've been thru the stubborn weight thing with my own body, so I can identify.

: )
Mzzchief





Edited by: MZZCHIEF at: 10/2/2014 (12:09)
New decade. Big world.
Hello, 60!
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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
10/2/14 10:58 A

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Hi Raney!

It's clear your husband is hyperthyroid. Both from his symptoms a few weeks ago, and now the labs.

Based on his symptoms a few weeks ago, it's no surprise, it's the diagnosis we expected.

How he got to this state, could be autoimmunity (Graves), could be from taking supplements inappropriately, could be from taking Cytomel or an over the counter"thyroid booster" that contains T3, or desiccated thyroid tissue.

I'm hoping it's the later and not Graves, but only testing will tell. I would consider doing a TSI antibody test to rule Graves in or out. It's the simplest, least invasive, most cost effective way to find this out.

If you hubby has been secretly taking Cytomel or an OTC thyroid booster, in an effort to lose weight, now is the time for him to come clean. Otherwise he will be putting himself thru unnecessary testing. Bc his elevated thyroid hormone numbers and suppressed TSH, is similar to a patient on thyroid hormone who is taking too much thyroid hormone. Specifically desiccated or Cytomel (T3).

Be well!
: )
Mzzchief



Edited by: MZZCHIEF at: 10/2/2014 (11:05)
New decade. Big world.
Hello, 60!
Primum non nocere.

Never underestimate the value of getting out of your own way.

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ndividual.asp?gid=732


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JOGBIKEWALK's Photo JOGBIKEWALK Posts: 142
10/1/14 8:34 A

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Raney, I got my new labs yesterday too. Good luck with all this. Keep us posted! I am not sure how to read all these numbers. But I do know there are many good boards on the internet (including this one!) where people are willing to share and help.
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RANEYDAY91's Photo RANEYDAY91 SparkPoints: (12,270)
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9/30/14 5:03 P

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Finally got the lab ranges and report from the doctor of my husbands test results which I will post. DH saw the endo today and was not very happy with him. Doctor knows all attitude and did not want DH to ask questions or put in input. Dh has been having extreme trouble with weight loss so brought in his nutrional information of what he eats and his calorie intake. Doc did not want to discuss it said the weight was a totally opposite issue from what DH as going through! I told Greg to get another doctor, but he is going to wait until after the test are completed. With all that being said here is DH's lab results from his DO his endo took blood but we do not have those back yet, but wanted you all to see these and see what you think.

TSH 0.006 range 0.450-4.50

THYROXINE T4 12.1 range 4.5-12.0

T3 uptake 31% range 24-39

free thyroxine index 3.8 range 1.2-4.9

triiodothyronine (t3) 206 range 71-180

Endo thinks he has graves disease. He is going to do a scan of the thyroid and another blood test.

~Debbie~

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