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JOURNALISMBEE Posts: 31
8/17/09 9:58 P

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Sigh -- just saw this on Mary's Shomon's Blog:

"Nature-Throid Natural Desiccated Thyroid Announces Back-Order, Anticipates Availability in 90 Days
Monday August 17, 2009

RLC Labs, the manufacturer of the natural desiccated thyroid drugs Nature-Throid and Westhroid, announced today that their products are currently on back-order, and they are not taking any new orders for their drugs. In recent months, shortages of Armour Thyroid during their reformulation caused a large increase in demand for Nature-Throid and Westhroid (which are identical products). After patients reported problems with the reformulated Armour, and many experienced worsening symptoms, an additional demand was put on RLC as patients were switching from Armour Thyroid to Nature-throid and Westhroid. RLC has attempted to ramp up production, but a shortage of raw materials -- the "Thyroid USP" desiccated powder that is the main active ingredient -- has prevented the company from being able to meet the demand of its customer base, plus the addition of many patients who were formerly on Armour Thyroid.

According to company owner Rick Cox, with regarding to getting more natural desiccated thyroid drugs to market, "We are doing everything we can to move as quickly as we can, safely, to make it happen." According to Cox, the company is estimating that they will have product availability within 90 days. "

http://thyroid.about.com/b/

WINWIN1's Photo WINWIN1 Posts: 589
8/16/09 6:46 P

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I can't read this right now - I will stay up late so I can. However, I want to say that I get Nature-throid from Knowles Apothecary, 301-942-7979. My doctor faxed the prescription. I have more info (d\fax # addy etc) in case you didn't already get this answer), so my e-mail is dwiant@columbus.k12.oh.us, or djwstarr@aol.com. I can't wait to read all of the posts - I've been on the nature-throid (130 mcg) since 7-29...can't tell you that I have had immediate relief as someone from another forum said. donna

Follow your bliss and the universe will open doors where there were only walls. Joseph Campbell



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AMAZING55's Photo AMAZING55 Posts: 2,188
8/15/09 8:05 P

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Yep! It was a Medco pharmacist that told me that due to FDA required, expensive testing on thyroid meds such as Armour and Nature-Throid that there would be a shortage for the foreseeable future. She also recommended I speak to my doctor about changing to a synthetic medicine instead....there is nothing wrong with the synthetic meds for some, but Nature-Throid works great for me.
I just read that article Peaches...unreal.
Thanks for the link!

Edited by: AMAZING55 at: 8/15/2009 (20:08)
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PEACHESII's Photo PEACHESII Posts: 1,247
8/14/09 2:18 P

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Hello all ... In Mary Shomon's newsletter there is the information regarding the fact that Medco is scaring people with talk that the FDA is requiring studies on dessicated thyroid products ... it is evidently not true. thyroid.about.com/b/2009/08/11/medco
-t
hyroid-scandal-response.htm?nl=1


PeachesII

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
8/14/09 1:55 P

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Thx peaches!

Girls, look at it this way... if the Porcines wind up having to go thru studies to win FDA approval, it could be the best thing for everyone concerned.

Sure they will cost a little more, but it will finally remove the stigma that they've suffered under for so long.

Its not like they are gonna "fail" any clinical trials, right?

It will give them a legitimacy that they do not currently enjoy.

Docs could no longer dismiss them as "ground up pig thyroids" and would consider them as legitamite alternatives to the Synthetics.

Works for me!

: )
Mzzchief





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PEACHESII's Photo PEACHESII Posts: 1,247
8/14/09 1:28 P

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Hello all ... In Mary Shomon's newsletter there is the information regarding the fact that Medco is scaring people with talk that the FDA is requiring studies on dessicated thyroid products ... it is evidently not true. thyroid.about.com/b/2009/08/11/medco
-t
hyroid-scandal-response.htm?nl=1


PeachesII

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KJGETTINHEALTHY's Photo KJGETTINHEALTHY SparkPoints: (0)
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8/10/09 1:37 A

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I hope this not off the subject too much but i was looking at my 60 mg new formula armour pills and i compared them with the more recent ones and the have size differances I'm serious i wonder if they messed up in the reformulation and is hoping noone notices pills should be identical shouln't they and they are the 60's
Also i had the sane problem Purrballs had which was my t-4 and t-3 were a little on the low side,i need all the t-3 i can get keeps my mood right.
Naturethroid is a little differant and i think stronger at first then feels like not enough but got to wait for labs.
But ther was definately compression differances in the armour i have maybe they could suprise us with switching back i know they have had pleanty of complaints but FDA i thought is the ones to complain to but they are really not a friend either:)

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PEACHESII's Photo PEACHESII Posts: 1,247
8/7/09 11:36 P

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No response to my email request, yet. I plan to follow up with a phone call next week.

Love him or hate him, one thing our new President has shown is that you can create a grass-roots effort to open the dialogue and bring about change ... we can do this to.

We can start by writing our senators and explaining that we have found health and optimized relief with natural dessicated thyroid and are hearing that its availability may be compromised by new FDA mandates and that we demand that our access to this treatment, proven since the 1800's be preserved and guaranteed (Visit the RLC Lab to learn more about the history of natural dessicated thyroid.

Another option is to begin a petition demanding that the FDA stop this nonsense. We would need to word our petition eloquently. Perhaps Janie Bowthorpe or Mary Shomon can initiate such an activity.

Call or email ... take action ... it doesn't get fixed if we don't "do" something.

PeachesII

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AMAZING55's Photo AMAZING55 Posts: 2,188
8/7/09 4:07 P

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Hmmm....I wish I could be so trusting, but my husband and I have a good friend who was a 3 term congressman - "quiet lobbying" is very much alive and well within the walls of our government. The makers of Armour and Nature-Throid are not huge, wealthy pharmaceutical companies. If they choose not to run the expensive required studies, it may very well be because the expense might financially break them. The pharmacist I spoke to said these studies are extremely costly.
I am all for quality assurance of a product, and I agree that all manufacturers should be held to the same guidelines.
Even as I type, we have some of our most popular diabetes, high blood pressure, cholesterol, heart(and the list goes on) meds being produced in countries like India, Sri Lanka, CHINA(very scary given their obvious lack of quality control), and Malaysian countries. These meds are produced more inexpensively in these countries and then shipped here for our consumption. I doubt that studies or testing are being done frequently and/or consistently enough on these foreign produced meds, but then they are owned by wealthy pharmaceutical companies that can afford good lawyers and even better lobbyist.
Although, I have not worked as a nurse in years, I still subscribe to medical journals, and try to keep up-to-date with the world of medicine.
Armour Thyroid and other meds like it have been around for decades longer than any of the synthetics. It has been subjected to retesting over the years too. I guess, if studies need to be done, why not get the subjects among it's avid users? Or perhaps, instead of insisting on a costly study, why not gather the Armour patients who have been using this med for decades and check out their health? There are other ways, to confirm a medications reliability and quality control while checking it out. Why insist on redundancy via expensive testing(instead of just checking it's track record) and force the makers to stop producing, thus denying many patients the only medicine that is working for them?
So, back to my question of what can we do as patients and consumers to keep these meds available for us?
I agree with what someone posted earlier, we need to get in touch with the companies of these meds and find out what exactly is going on, and what can we do to help the situation? Getting a hold of our area congressman or senator might, in fact, might eventually have to be done as well.
If any of you have updates, please keep us posted.

Edited by: AMAZING55 at: 8/7/2009 (16:10)
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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
8/7/09 1:54 P

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LOL

I doubt there is a lobbying conspiracy amongst the manufacturer's of synthetic thyroid hormones to get the Porcines off the market.

More than likely its just the FDA making the manufacturer's tow the same line as Synthetics.
Thats only fair. Why should one drug enjoy exemption status?

If the manufacturer's of Porcines don't want to run studies because they are too expensive, then that's their choice... the buck ends with them.

But if a product is popular, financially it makes more sense to run the study and pass the cost onto the consumer. Porcines already enjoy an impressive track record with millions of enthusiastic supporters, so its not like it won't pass the studies the FDA requires.

: )
Mzzchief



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AMAZING55's Photo AMAZING55 Posts: 2,188
8/7/09 1:59 A

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Yep - Thanks Peaches.
I am also going to talk to my MD, he's not an endo, but he he does prescribe Nature-Throid and Armour.
Most definitely I think there has been some "quiet lobbying" going on from the pharmaceutical companies manufacturing Synthroid, Levothyroid, etc.
I need to check in to "Stop the Thyroid Madness" and see if they've heard anything about all of this.
I will be very interested to hear what the makers of Nature-Throid say.....

Edited by: AMAZING55 at: 8/7/2009 (02:01)
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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
8/7/09 12:03 A

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Thx, Peaches!

: )
Mzzchief

New decade. Big world.
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PEACHESII's Photo PEACHESII Posts: 1,247
8/6/09 8:07 P

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I know of an endo who presecribes Armour, Robert Rees-Jones in Denver; but he holds patients to TSH values regardless of how the patient feels. Maybe that works for some, but it didn't work for me.

I sent an email to RLC Labs, the producers of NatureThroid and asked them about the future availability of natural dessicated thyroid. When I hear back I'll share it with the forum.

PeachesII

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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
8/6/09 7:51 P

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I don't think the government is the boogie-man, here. Government would have known nothing about it unless someone made a big stink. Who benefits most from Armour going off the market? Synthroid? They are the ones who have been telling all the doctors that their product is superior to Armour. I don't know of one endocrinologist who is dispensing Armour. None of them want to do it because they fully believe Synthroid is superior. I think there has been a run on endos to dispense and they are complaining because the rest of us are not bowing down to their vast knowledge. I say the Pharmaceutical companies are behind this. They have very powerful people who make demands for this study or that and they have all the doctors in their pocket to back them up.

Sic!

I think we should all call our congressmen! Hey, ladies, let's have our voices heard about this one!

Whose husband is the pharmacist? What does he say is the best thing to do? Who do we contact?

Saundrella

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AMAZING55's Photo AMAZING55 Posts: 2,188
8/6/09 6:35 P

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JOURNALISMYBEE ~
Great question - what can we as patients/consumers do to keep these medicines on the market? Do we contact the pharmaceudical companies/manufacturers? Do we contact our congressmen or senators?
We don't have a lot of time - what can we do?


Edited by: AMAZING55 at: 8/6/2009 (18:36)
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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
8/6/09 6:04 P

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Why is it that the gov't feels the need to screw up the things that are working! What is it with these people? They are people, aren't they? Any good conspiracy theories about aliens taking over our government??

All knuckleheads in my book! I only like one and that is the one that wrote legislation helping us to keep compounded medicine while all those in the pockets of the pharm co's were against it.

I think it is just a movement against anything natural!

At least, I think the govt knows not to mess with our estrogen. They don't want an army of Menopausal *witches marching on Washington!! lol

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JOURNALISMBEE Posts: 31
8/6/09 2:00 P

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Is there some way for us to protest this or even, hell, I don't know volunteer to be participants in these studies. I DO NOT want to go back on synthroid. EVER.

I mean, I am a scientist by training. I trust studies too, but I know *I* feel better on Armour (or well used to before the freaking reformulation) and just looking at this board, many people do, too. This just isn't fair.

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
8/6/09 1:52 P

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Amazing~

Ya, we hear about this sort of thing from time to time. My thoughts are that the cost of the studies will simply be passed on to the consumer. As it is the Porcines are quite a bit less expensive than the Synthetics. Purrballs will most likely weight in on this topic, her bro is a pharmacist.

Saundee,

Naltrexone sounds like a promising medication!
We'll all be interested in hearing how it works on youse if you and your son decide to try it.

: )
Mzzchief


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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
8/6/09 1:04 P

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This is lousy news about future natural thyroid med usage. I suspect our endocrinologists are complaining as a result of their patients insisting on Armour or Naturethroid because they all insist on Synthroid. Humph!

Mzchief: My son and I are going to a naturalist who is willing to dispense Low Dose Naltrexone (LDN). I've shared this site before and there are others like it.

www.ldninfo.org/

I don't know if this is the best site but it does provide several links to related information. Check out the Cautionary Warnings for hypothyroid patients. My son and I are going to give this med a try and will get back to you once we find out how it's working for us. Our appointment is on the 12 of this month. The doctor is comfortable prescribing it to us. It may provide an alternative therapy for the usual thyroid meds, I don't know. Or at least reduce our need for thyroid meds. At such a low dose, there are no side affects even with long term use so we figure it's worth a try.

If anyone finds a better site, let us know. I'll share this one, for right now.

Saundrella

Edited by: SAUNDRELLA at: 8/6/2009 (13:10)
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AMAZING55's Photo AMAZING55 Posts: 2,188
8/6/09 12:41 P

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Well folks, guess what? The shortages of Armour and Nature-throid, and all other desiccated thyroid are just the beginning of our headaches. I just got off the phone with our prescription supplier(Medco), they put me through to one of their head pharmacist's when I called because they can't get Armour or Nature-Throid in. I am going to put into quote marks exactly what this pharmacist explained to me;
"The future availability of Armour, Nature-Throid and all other desiccated thyroid meds is in question at this time because the F.D.A. has called for all manufacturers of these medications to submit studies on these meds for quality control purposes. These studies are now mandatory in order for production to continue, because these studies are extremely costly many of these companies are not willing or able to afford them."
I asked her what she would recommend at this point since the synthetic thyroid meds were not effective for my husband and myself in the past. She advised that we make an appointment with our physician soon, and discuss not only the use of synthetic T-4 meds such as Levothyroid, Synthroid, etc. but the possibility of supplementing that with a T-3 such as Cytomel.
Phew! When I told my husband all of this he was more discouraged than I was, he was on high dosages of Synthroid for years and felt lousy constantly.
Any suggestions? Or any other information on this shortage?
Deb

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
8/6/09 12:29 P

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What Saundee said is correct, T3 is a shorter lived thyroid hormone and for most people, it makes sense to take it sublingually in the morning and again in the afternoon.

T3 gives your body an almost immediate boost... for that reason it best not taken too close to bedtime.

I say generally, because it doesn't matter what works for most people, what matters is what works specifically with your unique physiology and lifestyle.

Since T3 is good to go, doesn't need to be deiodenased in order to work the way T4 does, and it has a short halflife, it makes sense for most people to put it under their tongue, rather than swallow it and put it thru both digestion and thru the liver.

If you go to a mirror and look under your tongue and around the bottom of the gums, and you will see a bunch of blood vessels there.

The reason you have to swallow Synthroid (T4), is because its formulated to interact with the acids in your stomach before it can be absorbed by your jejunem(middle intestine) and upper ileum (the part of your intestine between the jejunem and the colon).

Once its in the blood it goes directly to the liver thru the portal vein(as does EVERYTHING absorbed by your intestine).

You can think of your liver as a gatekeeper of your intestinal track. Nothing that's swallowed gets into the rest of the body, unless it goes thru the liver first!

In the liver the majority of the T4 is bound with "carrier" protiens.

The bound thyroid hormone cannot be used by the cells. By binding it, its put into "storage" and recycled for later use, which accounts for its long half life in the body.

Or its released as Free T4 which can dock with your cells and be deiodenased ...turned into T3 by removing one of the 4 iodine atoms attached to it by cells all over your body on an as needed basis.

That's why if you want to determine how much thyroid hormone is available to your body, you get a "Free T" test. This test measures the Thyroid hormone that's not bound up in carrier proteins.

The liver also deiodenases a good bit of T3 from the T4(Synthroid), which is also released as free or bound T3.

Anyways, that's the science behind is as I understand it. But it really isn't important to know, what's important is figuring out what works for your particular body!

: )
Mzzchief

Edited by: MZZCHIEF at: 8/6/2009 (12:31)
New decade. Big world.
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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
8/6/09 12:13 P

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Yes, Armour and Naturethroid should be taken at the same time every day.

I have always chewed up the tablet first, even when Armour was sweet and melted very easily before the reformulation. But I don't place the powder under my tongue, rather in front of my lower front teeth and then make sure I don't swallow while I'm doing that. Some people place it under their tongue but I'm always afraid of swallowing the saliva, that way. When I have it in front, I can swallow the saliva in my mouth without feeling I'm swallowing any of the pill because it's in front of my teeth, not behind them. This is what works for me, at least. I can't speak for anyone else. Personally, I would not be comfortable chewing or crushing the pill and placing it under my tongue. But, like I said, that's me.

Saundrella



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MONICATJ's Photo MONICATJ Posts: 163
8/6/09 12:04 P

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Yes, Synthroid should be taken at the same time everyday and on an empty stomach with a full glass of water. I take it as soon as I wake up in the morning at 5:30, since it takes me about an hour to get myself and the kids ready, so my first drink of coffee isn't till about 7am and breakfast at 9 w/ my supplements, so it's been working for me. I can't take it at night, because I'm not willing to give up my sleepytime tea or a glass of wine (depends on what kind of day I had!) before going to bed.

In researching on switching to the natural meds, I had understood that the empty stomach was no longer a requirement because it's absorbed directly into the bloodstream, bypassing the stomach, but that it should still be taken at about the same time everyday to make sure there is a steady amount of hormones in the body.

That's why I was concerned about chewing the tablet, because I think some of it will go to your stomach with the saliva. I think the first doctor to prescribe sublingual meds told me not to crush them or swallow them because of that. It's been 20 years since, so I may be wrong.

I can do all things through Christ who strengthens me.
Philippians 4:13

One can never consent to creep when one feels an impulse to soar. - Helen Keller


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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
8/6/09 11:53 A

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I should clarify a bit: When I say Synthroid can be taken anytime, I'm thinking as long as it is taken at the same time every day when it won't be disrupted by the contents of your stomach. If I were taking Synthroid or any T4 med, I would definitely take it at night before going to bed instead of in the morning when it has to contend with whatever is eaten for breakfast.

Saundrella

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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
8/6/09 11:48 A

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My understanding is you can take Synthroid (T4) any time of the day. Some people take it at bedtime so they don't have to worry about what's in their stomach after taking it in the morning and then eating. As for Armour, it has the T3 which gives one a bit of a boost of energy over a four hour period or so. That is why one is supposed to split their Armour dose, one in the AM and another in the early afternoon to maintain a steady level of T3 in the blood stream. People don't take their Armour at night for this reason. Perhaps it's more difficult to sleep because of the T3 factor? I've forgotten mine in the afternoon and taken that second dose in the PM before going to sleep and it didn't disrupt my sleep as a rule. I have heard some people swallow their Armour just before going to bed and it works better during the night because there is no food in their stomach all night long. Many options out there. The one that makes the most sense to me is to take it sublingually in the AM when I need a little boost of energy and then again in the afternoon when I could use another little boost of energy.

Saundrella

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MONICATJ's Photo MONICATJ Posts: 163
8/6/09 11:40 A

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I also thought that because it is sublingually, you don't have to wait for an empty stomach, as with Synthroid? So you should be able to take it anytime during the day, right? as long as it's at the same time everyday?

I can do all things through Christ who strengthens me.
Philippians 4:13

One can never consent to creep when one feels an impulse to soar. - Helen Keller


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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
8/6/09 11:34 A

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You can...

When you take the Armour sublingually, it doesn't go to your stomach, you realize that, right? The reason for doing your Armour sublingually is to bypass the stomach and be absorbed directly into your bloodstream. That's the beauty of the sublingual process, you don't have to worry about what's in your stomach at any given time! I hope I'm not telling you something you already know. You did tell me NOT to assume anything.

Saundrella

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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
8/6/09 11:28 A

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Lol!! Sorryyyyyyyyyyyyyyyy!!

Yeah, you have to chew the thing up even if you use the powder in the straw, otherwise, that bugger is going to be under your tongue for a lifetime!

Saundrella

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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
8/6/09 11:20 A

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We can call it that!!

Actually I am putting them under my tongue when I wake up in the early a.m. (or 5am as it was this morning)but then I go back to bed.

See, I also have to take a slow release cortisol pill when I wake up first thing. The capsule dissolves and causes the cortisol beads to expand, swell and stick together in a gooey glob in my stomach that then moves through my body slowly being dissolved over a 10hr period of time.

I definitely need my thyroid pills to be out of my stomach by the time the blob arrives!

I may have to go back to taking my armour in the middle of the night and be done with it.

Almost every family has some old Aunt that requires all kinds of special foods, medicines, and special treatment because she has every known ailment to mankind. I do not want to become that Aunt; though I fear it is me......damn! (can i say that?)

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MONICATJ's Photo MONICATJ Posts: 163
8/6/09 11:06 A

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Now that's interesting. I've always put all pills that need to be taken sublingually in whole. I thought crushing them would make some of the medication go to the stomach instead of being absorbed directly.

I do have to say, though, it might be that it's because you are taking it when going to bed. I've gone to bed with cough lozenges at the roof of my mouth and have woken up with it almost undissoved. During the day, that thing doesn't last more than a few minutes and I dont' chew it.

I think there is not enough saliva stimulation or movement of the tongue while sleeping to dissolve the pill, but it's enough for the gooey mess. I'd read on another post that she puts it in the space between the lip and gum and goes about her day. It stays put even while talking and drinking she says. It does take about 20 minutes to completely dissolve. I can't remember who, or the post, but I remember because I thought I would try that with another med I take sublingually.

Just a thought, remember I'm no expert! BTW, USE2BAGODDESS, you're having quite a couple days, aren't you?
emoticon emoticon

I can do all things through Christ who strengthens me.
Philippians 4:13

One can never consent to creep when one feels an impulse to soar. - Helen Keller


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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
8/6/09 10:28 A

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Ok,now there is some important info that could have been included in the instructions!! Don't assume I know anything.

I was putting it under my tongue whole. I didn't know I was suppose to chew the nasty thing first!! LOL

The koolaid thing might work too!! emoticon

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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
8/6/09 10:23 A

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Well, you have to chew them up, first, ya know! It is nasty, I grant you that. One more thing, I read where some people get some of those Kool-Aid straws with the sugary powder in them and tap a little of that sugary powder with the pill to help it dissolve. I haven't tried that, yet, but it sounds more interesting. I would think the sour/sugary powder stimulates saliva production and dissolution of the pill. Sounds like a plan. I'm going to give it a try as soon as I can find those particular candies/straws.

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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
8/6/09 10:15 A

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going back to the nasty slurry under my tongue.

I tried that again, and still didn't like how it worked. I take 1 1/2 pills. So I am putting a whole pill under my tongue + a half.

If I try again I think I will break up the other pill as well. Or break them into smaller pieces and let them dissolve.

Otherwise, I'm giving up on this nasty mess!

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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
8/6/09 10:11 A

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cool, I have a doppleganger!!



Edited by: USE2BAGODDESS at: 8/6/2009 (10:12)
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PURRBALLS's Photo PURRBALLS Posts: 7,966
8/5/09 8:49 P

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sometimes nothing fixes things except a cold hard reboot. Meaning leave the puter off for over a minute before turning it back on. That goes for SP's server computers as well as our own personal ones. If they can't ever turn them off...this happens until they can go down for service.

If you get stressed out eat some catnip and go to sleep

“Many of life's failures are people who did not realize how close they were to success when they gave up.” Thomas Edison

If you soap or make bath/body/candle products join us at the soapers and chandlers sparkteam!

The Seven Dwarves of Hypothyroidism: Itchy, *itchy, Sweaty, Sleepy,
Bloated, Forgetful and Psycho


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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
8/5/09 8:15 P

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I have a few theories.

Sometimes is that the bandwidth gets overwhelmed... too many people on Spark at one time.

Our Internet Providers are experiencing difficulties.

Someone is looking at your page, writing a comment, giving you a goodie, or sending you mail. I've had this one happen cuz just like Santa's elves the goodies, comments or mail have been left at the time I was trying to axcess my page.

Time generally solves most of these problems. The one I have problems with the most is the nutritional tracker, inputting foods and my nutrition page disappearing. I think that has something to do with the popups and my antivirus program. But just don't get me started on THAT one!

Glad your page is up.
Might be a good idea to get rid of one of your identities so that things won't be confusing to others. If you'd like to keep both, a suggestion is to put the name of the other entity in the tagline below your post. Something along the lines of "my evil twin is...(insert name)".

: )
Mzzchief

New decade. Big world.
Hello, 60!
Primum non nocere.

Never underestimate the value of getting out of your own way.

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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
8/5/09 6:51 P

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CDS = Cissy D Stobaugh

goddess - me, ofcourse!! LOL

I am not messing w/anything. I have no idea what happened to my page or why it went down, but it did.

I am just soooo happy that it came back up.
happy!happy!happy!!!!

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MONICATJ's Photo MONICATJ Posts: 163
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I was going to change my screen name to something more interesting and descriptive, especially after seeing others' but was afraid I'd lose everything and people wouldn't know who I was, etc., etc., so I haven't. It looks like you created another profile... Let me know how you fix it!

So what does the new name mean?

I can do all things through Christ who strengthens me.
Philippians 4:13

One can never consent to creep when one feels an impulse to soar. - Helen Keller


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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
8/5/09 5:35 P

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I still can not access Margie's but mine is back up???????????????????????????

So, now I have to reconcile Use2BaGoddess w/CDSGoddess.

I need a nap!

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CDSGODDESS Posts: 15
8/5/09 5:25 P

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I have a friend screen name Margie100%Pure and that is the first time I noticed a problem.

I rec'd the email stating that she had added me as a Friend w/a link to her page. Every time I try to click it nothing happens.

When I tried to find her I rec'd the same message (an entire page comes up and says 'Error').

So, I guess her page disappeared before mine did.

I wonder if SP is having problems?

CDSGODDESS Posts: 15
8/5/09 5:22 P

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No. I have no idea what happened.

Someone sent me a goodie and when I went to my page is was gone! It said that I had an Error.

I logged out and tried to log back in and nothing.
I never existed!!???

MONICATJ's Photo MONICATJ Posts: 163
8/5/09 5:12 P

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Was it because you changed your screen name? That's terrible! I was thinking of changing mine...

I can do all things through Christ who strengthens me.
Philippians 4:13

One can never consent to creep when one feels an impulse to soar. - Helen Keller


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CDSGODDESS Posts: 15
8/5/09 5:07 P

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My Page Disappeared!!!!

Everything is gone! My pages, my points, my blog, my friends, everything!!!

How often does this happen? Anyone who had me as a Friend you will have to Friend me again. I have just a lonely little blank page w/no anything!!!

emoticon

SAUNDRELLA's Photo SAUNDRELLA Posts: 845
8/5/09 4:44 P

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I know, I know, but it's better than having to go back to swallowing. I think I'd be willing to do just about anything to avoid that. Weird, huh? :o)

Saundrella

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CDSGODDESS Posts: 15
8/5/09 4:33 P

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Ewwwah!!

Ok, maybe I will try it again.

SAUNDRELLA's Photo SAUNDRELLA Posts: 845
8/4/09 5:42 P

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Yes, this is the way it is. What you can do, next time, is spread that goo out with your tongue, the thinner the better, actually, and then make sure you don't swallow until it is absorbed, which will be in no time at all, at that point. I do this in front of my lower teeth so as to make sure I don't end up swallowing it. Bottom line, if you chew it up and just leave it, it will become goo; once it does, spread it out thin with your tongue and it will be absorbed very quickly.

Hope this helps.

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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
8/4/09 4:28 P

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I tried sticking my armour pill under my tongue and went back to bed. I probably woke sometime during the 2:00 hour to go to the bathroom.

When I woke around 6am I still had part of a pill under my tongue and a glob of gu under the rest of it. I grabbed the glass of water swishing it around my mouth and swallowed the remainder of the pill.

Is this normal?

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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
8/4/09 4:08 P

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I am gaga for porcines only because my adult acne/rosacea (mean pimples on upper cheek bones and redness in cheeks down to jawline) and joint problems disappeared after ten years of dealing with them. To me, that is a pretty dramatic change. I wish you the best on the switch if you do decide to switch.

Saundrella

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
8/4/09 3:03 P

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ps... another thing I do to save cash is buy the meds in bottles of 100, in twice the dosage I need and split the dose in half with a pill splitter. This also allows me to customize my dose. I'm on 62.5 mcg, a dose that Synthroid doesn't make.

This way I get 200 days out of one bottle.

But the bottle does cost approx. $65.

Which is why I'm considering another T4 med that's cheaper like Levoxyl... Synthroid isn't the Industry Leader for nothing... those sales reps and advertising costs are passed on to the consumer.

Or even a switch to Nature-thyroid since I haven't been on a Porcine before and everyone's so gaga about Porcines! LOL

: )
Mzzchief

New decade. Big world.
Hello, 60!
Primum non nocere.

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
8/4/09 2:58 P

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Good idea, Moni!

It would work, but I rarely see my prescribing doc. I have all my labwork run thru healthcheckusa.com or planned parenthood, send him the results, he looks at my TSH and calls in a script for the next year.

Since I don't have to pay an office visit fee or even see him... can't ask for more!

But its a GREAT idea for those of you who do see your doc regularly... thx for the suggestion!

: )
Mzzchief

New decade. Big world.
Hello, 60!
Primum non nocere.

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


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MONICATJ's Photo MONICATJ Posts: 163
8/4/09 8:46 A

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MZZCHIEF, you might want to ask your doctor for the coupons from the boxes of samples of Synthroid. My docs are really great about giving out samples and have even asked me if I wanted the coupons from the boxes that are empty. Using the coupons turns out to be a few $$ cheaper than the copay.

Hope this helps!
Monica

I can do all things through Christ who strengthens me.
Philippians 4:13

One can never consent to creep when one feels an impulse to soar. - Helen Keller


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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
8/3/09 11:17 A

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Peaches!

Wow, that's a rockin price for 90 days of pills! Synthroid costs like $65 for 100 pills... and I've not been able to find an online coupon to defray the cost.

Glad to hear you're getting some relief from your symptoms. Its annoying whenever ya got a good thing going and the rug's pulled out from under your feet.

: )
Mzzchief

New decade. Big world.
Hello, 60!
Primum non nocere.

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
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PEACHESII's Photo PEACHESII Posts: 1,247
8/2/09 5:44 P

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I contacted a compounding pharmacy here in the Denver area (Belmar) and they actually had NatureThroid in stock. They shipped it the day my doctor's office called in the script and I had it the next day. They don't deal with insurance, but I got a 90 day supply for $29.50. (I take 2-1/2 grains a day). So, that was a good deal.

I started NatureThroid on July 19 and many of the hypo symptoms have subsided. I had my lab drawn last week and expect my values sometime next week. I still have bone pain in one leg, so something isn't quite back where it needs to be. But the energy is good and I don't have fatigue, depression, or moodiness.

I feel better on NatureThroid than I did on "new" Armour. I do sublingual. The NatureThroid doesn't dissolve as well as "old" armour, but it works.

For kicks I tried "new" armour by swallowing it before switching to NatureThroid and I felt as if I had no thyroid medication at all ... it was my worst day in years.

I called Forest and complained, but I'm not hopeful. I didn't get the sense that they really cared.

PeachesII

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MISSBLUM's Photo MISSBLUM Posts: 14
8/2/09 9:27 A

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I have recently changed over from Armour to Naturethroid, so here's my info for you.... In May, I found a doc who finally agreed to put me on Armour. I switched over gradually from Synthroid and started feeling GREAT! My depression immediately disappeared and I started really feeling like myself again - first time in 4 years. We were working on getting my dosage right when I obviously got a batch of the "new" Armour. Within 2 days I was tired, agitated and not sleeping well again and had to take naps in the afternoon after more than 2 months of no napping. I had read about the reformulation and went back to the old pills I had left (just took more to make the right dosage) and felt great again. I explained all of this to my doc and he agreed to let me try Naturethroid. Walgreens told me they could get it - then called back and said they couldn't. I made them call RLC labs (info regarding that on Mary Shomon's site) and while I was waiting for her call back found that WalMart carries it. Walgreen's called back and said there was a miscommunication from their warehouse and they could get everything but the 3 grain size (my dosage). So I got it from them and just take three 1 grain pills everyday.

I didn't have any luck with taking the Armour subling. method so I swallow the pills. It took about a week, but I now feel great again -as I did on the Armour - I didn't think it was working at first, but I hung in there and am feeling good again. Also, when I spoke to Walmart they said the cost of my script for 30 days supply would be like 18.00 for the Naturethroid w/o my insurance, which isn't too bad (Way better than Synthroid with insurance).

Hope this helps!

I have not lost my mind - it's backed up on a disc somewhere...


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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
8/1/09 3:23 P

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Goddess!

I used to dothe middle of the nite thing, but then I started sleeping thru the nite and it messed things up for me.

Additionally I thought that by taking it middle of the nite, mabbe I was reinforcing a wake pattern that I did not want to encourage. I kinda like sleeping thru the nite.

So now I fill the jazzy lookin shot glass I bought for the purpose of middle nite Synthroid dosing, with my morning vitamins... so I don't forget them. The shot glass is great for directing pills into your mouth without a fumble.

And take my Synthroid before going to sleep at nite.

Taking my Synth before bed, encourages not eating, drinking or otherwise snacking past 7 or 8, which I think is a better habit then middle of the nite awakenings.

At least that's my rationale.

Sublingual's great for Armour or any of the other Porcines, Cytomel or Thyrolar... anything with T3 in it like Purrballs said.

The synthetic levothyroxines, ie Synthroid and its ilk, better to swallow them, then to go the sublingual route.

My understanding is that levothyroxine sodium(t4)in these pills has to interact with your stomach's acid first, in order to be absorbed by the intestines, get into the bloodstream.

That's also why you need a full glass of water with your pill if you swallow it, so it can get to the jejunem and upper ileum where it can be absorbed. Thyroid hormone (levothyroxine sodium... T4)is not absorbed by the stomach, only prepared by the stomach's hydrochloric acid, for the intestines to absorb... which interestingly enuf are alkaline.

Nothing like spending a few years with thyroid disease to learn more about your body! LOL

: )
Mzzchief



Edited by: MZZCHIEF at: 8/2/2009 (14:54)
New decade. Big world.
Hello, 60!
Primum non nocere.

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


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PURRBALLS's Photo PURRBALLS Posts: 7,966
8/1/09 4:00 A

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The benefit of taking natural thyroid meds sublingually is the T3 goes directly into your bloodstream and you then don't have to wait to eat.

If you get stressed out eat some catnip and go to sleep

“Many of life's failures are people who did not realize how close they were to success when they gave up.” Thomas Edison

If you soap or make bath/body/candle products join us at the soapers and chandlers sparkteam!

The Seven Dwarves of Hypothyroidism: Itchy, *itchy, Sweaty, Sleepy,
Bloated, Forgetful and Psycho


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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
7/31/09 10:04 A

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It wasn't on a Spark thread that they were bashing Armour, so I was suspicious. That is why I want to ask those I trust.

I never dissolved the Armour under my tongue. What is the benefit of that?

I always (almost) wake up in the middle of the night.
When I do I have a pill, and a glass of water on the nightstand ready to go. Otherwise, when my husband gets up at 5:30am I take it then. I don't get up and going until 8am or so. That is usually enough time to be in my system. At least I hope it is!


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KD1KC108 Posts: 163
7/30/09 9:25 P

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Will do. This is my second day on the Nature-throid and so far so good. Energy is definitely back, itching hasn't completely stopped, but I totally took myself off of the Armour for the two weeks prior to getting Nature-throid. I KNOW you're not supposed to do that, and I don't recommend it. However, I was feeling soooo bad on the Armour I couldn't stand it. I will say that I've tried Nature-Throid sublingually and no, it doesn't dissolve like the Armour. It's doable though. I think everyone has to find the med that works for them with the help of your doctor and pharmacist. I notice I haven't been as "cranky" or moody as I have been being either. I so hope this works!

Good luck to you. As I said everyone has to find what works for them. This board gives excellent feedback to make some choices (with the help of your healthcare prof.). I haven't read anything negative about the Nature-throid yet so I can't speak to that. Obviously I didn't find the blogs you did! But for me and Nature-throid, so far so good. Good luck!

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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
7/30/09 8:31 P

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KD, please keep in touch and let me know how the Naturethroid is working for you. I found a blog written by a man who said both he & his wife had negative reactions to it and went back to Armour.

I went ahead and am having WalMart refill my script w/old Armour but after this I have to get a new script from my doctor. Hopefully, by that time I will find an alternative or at least have feedback from those who've tried the new Armour as well as though who've tried the Naturethroid and have compared the two.

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KD1KC108 Posts: 163
7/29/09 5:39 P

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I, too, went through heck trying to find a pharmacy that would/could get Nature-throid. My doctor had finally written a compounded formula because I couldn't find anything else. Well, when I went to the compounding pharmacy, the pharmacist there was AWESOME. He said at first Armour hadn't changed their formulation, but I told him he needed to check again and that it was supposedly just the fillers that changed. He came back on and said I was right.

I proceeded to tell him about my re-occurance of symptoms. He said that the insurance company didn't pay for compounded drugs the same as the formulations from the manufacturers and it was a shame the Armour wasn't working. I told him about Nature-throid and Westthroid. He told me he'd call me back. Well, he called back and told me to call my doctor and to tell them to allow substitutions on the compounded formula and he was able to get me the Nature-throid. It took several days and he told me to be sure to let him know a week in advance of needing my meds. so he'd have it. He said if I do well on it, he'll keep it in stock. Out of 9 pharmacists, this was the only one that tried to help me and went out of his way to find something the insurance would let me pay a co-pay on so it wouldn't cost so much and something that would work for me (hopefully).

Now, I can't wait to see how I feel taking Nature-throid. I really hate that Armour changed because to me it was a miracle after I was finally diagnosed. However, I can tell you from personal experience, I KNEW when something had changed without anyone telling me. Then I checked on this SparkTeam and Mary Shoman's website and contrary to all the "no, nothing's changed or only the packaging changed" I was given, something had changed!

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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
7/29/09 1:57 P

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Walgreen's is my regular pharmacy and they can't get either one and are the one's who've had Armour backordered for months.

Yesterday I went to Walmart and the pharmacist was super nice. He printed out a list of what he had left in stock, both Armour & Naturethroid and the dosage amounts available. He has 60 & 180 mg of Armour left. He said he hates telling his customers to cut pills because they are not scored and crush better than they break. He also told me that another pharmacists there was on the phone trying to get some Armour drop shipped to them.

He acted like he didn't know anything about them reformulating the Armour, he just said they have had it on order for months and haven't rec'd any.

I don't know whether to refill my Armour while he still has some of the old stuff or ask the nurse at my doc's office to send over a script for Naturethroid. (Pharm wants new scripts to change)

I don't know anything about Naturethroid yet and think investigating it might be best before I change?
Those of you who have changed over what differences if any have you noticed?

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MZZCHIEF's Photo MZZCHIEF Posts: 10,408
7/28/09 8:03 P

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Its pathetic that patients have to go thru this rigamaroll, corner pharmacists, speak the "right language" to get the medication that was prescribed for them by their physicians.

Techically it might not be a conspiracy, but it sure isn't good business.

: )
Mzzchief

New decade. Big world.
Hello, 60!
Primum non nocere.

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
7/28/09 7:53 P

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You've got the right language down, all right!!

Saundrella

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PURRBALLS's Photo PURRBALLS Posts: 7,966
7/28/09 6:06 P

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First off many of us are getting the new formulation so it can't be they are holding the old ones. Some pharmacies only deal with certain wholesalers. Cardinal (which is a wholesaler) doesn't deal with naturethroid or westhroid which are both from RLC labs. This is common in the drug as well as corporate world. There's no mass conspiracy....it's just corporate politics and who's buttering who's bread. You need to learn to go behind the scenes. My doc this week switched me over to naturethroid off armour. I have NOT exhibited any symptoms of yet but my test results show my T4 is out of the bottom of the range and my Free T3 is lowering. Slowly and slightly but she isn't willing to have me lower at all. In doing this my family small town pharmacy can only get this by drop shipping. Now if I hadn't asked about this option I wouldn't have been able to get it at all. I can also only have the option of 1/3 grain or 3 grains. So I'll be cutting pills because it takes 24 hrs to get in and I take 2 grains twice a day. Walgreens also deals with cardinal in supplying their needs but they are less willing to go behind the scenes-they lied to me saying it was no longer produced and can you try some armour. I bald faced told her that her supplier lied to her, gave her RLC Labs phone number and had her call while I waited...it would take them 4 days...I said thanks but no thanks. She was amazed at my knowledge and that I was right let alone knew to ask her if she could drop ship from the manufacturer. Walmart was willing to order it for me but it's a 45 minute drive. You just have to speak the right language.

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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
7/28/09 2:14 P

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If they ARE doing that, and they very well could be because I don't put anything past them at this point, then that is CRAZY!! Might account for his comment that their business is doing better than ever before, too. Who can believe that!!

Saundrella

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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
7/28/09 2:10 P

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My pharmacy has had Armour on backorder for at least 4 months now. They can't get any Armour at any amount. They are having to use what they have left in the larger amounts and are telling their customers to cut the pills!

This is what made me think the company is withholding the 'new' pills until all of the 'old' ones are gone. But who knows for sure?

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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
7/28/09 2:07 P

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There are 15 mgs tablets, too, and they seem to be the old formulation so your theory sounded very interesting at first but then I thought: If they are withholding the new until the old goes, why are they having any shortages, then? I still think it's just poor planning on their part, just as they have poor customer care. They've sold themselves short on more levels than just one, is my opinion.

Saundrella

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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
7/28/09 12:29 P

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That has been my thought that the Naturethroid is running out because the Armour supply has been cut off.

My theory on the withholding of the 'new & improved' Armour is that the company is waiting until all of the old Armour has been used up. First to go all the 30mg tablets, then the 60mg, lastly the 180mg tablets. I'm sure that if the company released the new while the old was still out there the pharmacies would want to return the old in exchange for the new. This way all the old is used up.

Personally, I think it is a stupid move because it creates bad public relations and people are trying to move over to Naturethroid. If it works as well as Armour many will stay, me included if I can get hold of an Naturethroid??!!!

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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
7/27/09 6:26 P

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I suspect there is a shortage of Armour because of the reformulation and bad planning. You'd think Armour would be okay because apparently a lot of people left Armour for Naturethroid. When I talked to the guy at Armour, they said their business has never been better! Hic! Wonder what he had been drinking!! I have a very difficult time believing so many new people were brought onto their rosters for no reason at all. I mean, they never told anyone about the reformulationg so how could anyone know to jump on board with their "new and improved" product?! After hearing all the complaints, I can believe people ran the other way (to Naturethroid) but I have a very hard time believing Armour is doing better than ever.

If a lot of people switched over to Naturethroid, then Naturethroid is probably having a hard time keeping up with the unexpected demand.


Saundrella

Edited by: SAUNDRELLA at: 7/27/2009 (18:34)
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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
7/27/09 6:01 P

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After reading some of the postings I decided to ask my pharmacist if they can/will substitute Naturethroid for Armour.

He said they still can't get any Armour and after checking on the Nature-throid said they can't get that either!!

What is up with the Naturethroid?? anybody know?

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