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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,040
10/16/18 7:10 P

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Thanks for weighing in on this. Cleaner is better. I agree. I usually keep two of everything, so I can wash one and let it dry over the vents and wear one that is dry. Now that I have decent insurance again I can actually replace my hoses every six months. I had some last ten years. I washed them with soap and water daily and on the weekends they got a vinegar rinse.

I think using alcohol wipes on my mask when I was sick burned the lining of my nose. I had a flu and either it or the wipes caused me to lose my sense of smell. I keep meaning to schedule an acupuncture appt to see if sense of smell can be brought back.

Cathy
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MIAMIRN's Photo MIAMIRN Posts: 2,398
10/16/18 5:52 P

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Hi, emoticon

Cleaning tubing every day, may be inconvenient and painful Lol. But it prevents growth of bacteria's, viruses AND mold and fungi! Believe you me, you do NOT want a slow growing fungus or anerobic bacteria hiding in the folds inside your tubing. It very easy for it to happen, even if you are not sick! Trust me I am a retired RN who worked in home health. I've seen it all sorts of strange and weird things with equipment. Don't trust you are healthly. Before you get sick, you may not even know you are already ill. It happens all the time. Unless you life in the desert, fungi are lovers of the interior folds of tubing and humidifiers.

After a while the drudgery of cleaning become easier, more efficient, takes less time.You stop forgetting to clean it and it becomes a good preventative habit. I have cleaned my equipment in 10 min time. That's not very long and it uncludesThen gone back and made sure it was totally dry.

I have always washed my hose with hot water and vinegar. Vinegar is a mild natural antibacterial. It doesn't destroy the hose and leaves a fresh scent. Alternatively, you can use real lemon or pure liquid lemon with no preservatives. When I have been sick I change my tubing every week. I call my Pulmonologist and ask them to order extra tubing while asking it be covered by my insurance company due to infection.

Viruses are not killed by either vinegar or lemon. I have poured alcohol down the hose when to tide me over during illness.It evaporates quickly, but then I have to remove the alcohol residue with hot water. It does kill most everything that invades the tubing, but it is not routinely done and decreases the life of the hose. Still I think it's better than reinfecting myself. You can also put the hose in direct sunlight for 30 min. Sunlight also decreases the age of the tubing, but as I said, it' is a good antiviral and antibacterial, a good prevention against viruses and bacteria.

I know DME companies sell special solutions to clean tubing when have in infections, but they are costly. I rather use the old fashioned nursing method. Lol.

Hope this helps

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Edited by: MIAMIRN at: 10/16/2018 (18:17)
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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,040
12/19/16 4:05 P

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emoticon

Cathy
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JANEYBEE's Photo JANEYBEE Posts: 2,014
12/19/16 2:45 A

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Teddy, was this a one time occurrence that it was off by 4 hours or is it regularly off? Can you check online to see what was charted?

Maybe you had a real interesting night and didn't know it emoticon

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,040
12/18/16 9:50 P

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Did you wake with the mask on?

Does your machine graph your usage so you can see when the mask came off and possibly went back on?

Do you toss and turn a lot? You may have dislodged it and then rolled over and it resealed on its own.

There might be something wrong with your machine's little computer brain.

Hopefully Jerry will weigh in here, because I don't know much about the newer machines.

Cathy
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TEDDYTEDDY's Photo TEDDYTEDDY Posts: 2,852
12/18/16 5:22 P

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Silly question: The other night I thought I was in bed 8 hours, but my machine usage indicated only 4 hours. Does this mean I took off my mask, sleep walked 4 hours and put the mask back on? I have no idea what I was doing for 4 hours.....hmmmmm

Teddy

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,040
3/13/15 12:19 P

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emoticon Glad we have a tech person on board. Thanks Jerry.

Cathy
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54JIMMY's Photo 54JIMMY SparkPoints: (31,464)
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3/5/15 11:51 A

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I have a heated hose on my S9. I also like to have cooler air. The humidity and hose temp adjustments were ganged together. So to get enough humidity I would have only a temperature adjustment to get it there. I would crank the knob to 86 to get the humidity but the air was too warm for my comfort level. So I would turn the temperature way down. This created an issue with getting enough humidity to keep my mouth from drying up so horribly bad. I landed up getting the clinicians manual for my machine and I was able to separate the humidity level from the hose temperature. This way I could adjust the humidity to 4.5 (0 - 6) separately from the hose temp to 67F.

Getting everything dialed in can be quite a dance but it will happen.

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22JAMIE Posts: 1,589
3/5/15 10:19 A

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I guess I should be taking cleaning more seriously lol. Thanks for the advice

I was just wondering about the regular water in case i ran out of distilled. because using the c-pap with out water at all is horrible. I sleep so long that almost every night the water dries up before I wake up anyhow and i'm sooooo dry. I like the idea of using Ice cubes I'm going to try that.

Do you think that turning off the heat would make the water last longer I think that's an option on my machine.




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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,040
3/3/15 11:27 P

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Cathy
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54JIMMY's Photo 54JIMMY SparkPoints: (31,464)
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3/3/15 11:24 A

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I would say that Kathy's advice for cleaning is the best. I am quite lazy in comparing to that standard.

You are very fortunate with the machine that you have. The newer ResMeds (at least the A10's and S9's) will run the fan at a low speed for about 20 minutes after you stop your therapy session. This is usually enough to dry out the hose and the mask. If you are having rainout issues during your nightly sessions it won't dry out the hose.

A good rule of thumb here is 'If it's dry nothing will grow". A lot of the times I will hang up my hose and mask and then rinse the tank and air dry it. For those times that I don't wash the mask I will use Pampers unscented wipes to give it a brief scrub. Again, Kathy's advice is what you should set your goal to.

Definitely use distilled water. After only one or two nights of using tap water I will see quite a mineral build up in the tank. In the summer time when the temps get in to the 80's I will use a combination of distilled water and ice made from filtered water (like store bought). I prefer the cooler air blowing on me. I don't know if this causes any issues but it works for me.

Jerry

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GRAMMACATHY's Photo GRAMMACATHY Posts: 24,040
3/3/15 1:16 A

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Hard water deposits form in the humidifier tank. Kind of like the stuff that builds up on shower walls which of course encourage bacteria growth. With the open humidifiers they can be scrubbed out with a good brush or green scratchy. I don't think the regular water bothers the workings of the machine. I am not so paranoid about using regular water now, but still use the distilled usually. For the most part I turn off the humidifier and don't use it anymore, but you are going to still need it while your sinuses adapt.

Clean your mask and hose daily. It will also help your sinuses not be so reactive and swell up every time you put the mask on. I think three days is the longest I have gone w/o cleaning. You might not smell it, but everyone else will. The equipment gets bad breath just like us. Clean equipment also prevents airborne infections. People have gotten bacterial pneumonia from not cleaning their equipment. It is nice to have two sets. One to wear and one to dry. Don't clean the headgear unless it gets stinky. The Velcro will last longer,

I will post the recommended cleaning schedule and add a sticky to it.

Each insurance plan is different. You will have to check with your insurance company. There should be a phone number on the back of your card to call ask that question.

Cathy
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22JAMIE Posts: 1,589
3/2/15 7:43 P

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If i want to get a chin strap and a holder for my tubing and a heated tube would my insurance pay for that or should I just buy it online?

How often do you really clean your equipment? I was cleaning my mask every night but now i'm only cleaning it every three days. I have yet to clean my tubing.

What happens if you put not distilled water in the humidifier?





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