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TUPPERWARE1's Photo TUPPERWARE1 Posts: 352
1/16/15 12:58 A

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Houndlover1 I do agree about the low carb which I follow.Let me explain better.I am not eating alot of carbs or sugar.I have learned this over the years.The pain in the feet is much different than the arms.They are both related to the nerves and damage.Feet the pain is tingling burning.The arm are dull achy.This is the nerves growing back as they were compressed.Both I rarely have due to excellent diet w8w and spin class! My Doc is happy with the A1C.Thank you for your wise words and also caring! Wendy

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HOUNDLOVER1's Photo HOUNDLOVER1 Posts: 8,869
1/16/15 12:41 A

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Tupperware, I'm so glad that exercise helps so much for you. Since you know that lots of sugar and carbs cause the neuropathy (although Avandia may play a role, metformin should not) take care of yourself and go as low-carb as you can. I'm doing great at 30-40 grams/day. Neuropathy will get far worse and spread to more areas of your body if your blood sugar continues to be higher than normal. The closer you can get to 100 average the better.
Birgit

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TUPPERWARE1's Photo TUPPERWARE1 Posts: 352
1/15/15 9:27 P

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I had the neuropathy and a chrio I saw said diabetes drugs were partly to blame.
i had been on metformin and then avanda which was recalled.I do get the burning numbness if I eat way too much carbs or sugar.I did go on a strict lettuce and plain chicken diet bf surgery for ulnar(elbow/arm) and carpal.Due to a fall on the elbows.Not much pain then.This is nerve compression in the elbows and wrists.This is also related to diabetes.It is the same pain in the elbows,arms and wrists and feet.To stop this pain I attend the gym 3-4 days a week.I refuse with my doctors permission to be off all drugs except tylenol.The creams do not work either! Exercise DOES help a ton.

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FANCYQTR's Photo FANCYQTR Posts: 13,682
1/14/15 11:50 A

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I also was diagnosed because of the foot pain. I had a job working on my feet and I had to leave one day because the pain was so bad I couldn't stand at all. At night my feet burned so bad I couldn't sleep. They had free clinic at the grand opening of an urgent care center and since I knew I would be working on my feet again in a couple of months I went to that clinic. When I got sent back for a blood test I knew before they took the meter out what the problem was (didn't before, but suspected for some reason).

I didn't know about the temperature regulation problems. I am almost always cold, but lately have been getting really hot at night. Hadn't had that happen since my cancer surgery almost 9 years ago.



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1CRAZYDOG's Photo 1CRAZYDOG Posts: 418,705
1/14/15 11:49 A

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Temperature control I'd more attribute to thyroid challenges, honestly. But glad you finally got your type 2 diagnosis too. Honestly, we have to be our own best advocate.

Love is the root of all things good in life.


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1/14/15 11:26 A

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1CrazyDog,

You had the same experience I did. I finally visited the Doctor to find out about the foot pain and ended up with a diagnosis of Diabetes. Pain had started about 4-6 months before that.

I also have trouble with temperature regulation (feeling cold, hot flashes) that I was ascribing to menopause, but now read that it could be diabetic nerve damage to the autonomic nervous system. My 75 year old neighbor who is healthy as a horse tells me that she still has hot flashes, so who knows?

Every day, in every way, I'm just getting better and better!

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1/14/15 11:20 A

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Houndlover,

Thanks for your response I am working on getting my carb levels down -- not at the Dr. Bernstein level yet. I have noticed an impact on blood glucose levels, but not any change in neuropathy pain yet. I will keep persisting with lowering carbs and may try upping my dose of Alpha Lipoic Acid, as suggested by some other posters.


Every day, in every way, I'm just getting better and better!

ACHIEVEMENTS:
One-derland! 199.1 9/14/2014
Out of BMI Obese range 184.6 11/28/14
40 Pounds gone! 179.6 1/02/15
50 Pounds gone! 168.8 2/27/15
60 Pounds gone!!! 159.2 5/22/15
Into BMI NORMAL range! 9/18/15
75 Pounds gone!!!! 3/01/16


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HOUNDLOVER1's Photo HOUNDLOVER1 Posts: 8,869
1/14/15 11:09 A

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I know that there are lots of people who have followed the the Bernstein approach to diet (Richard Bernstein) and are on his forum and report having had big improvements from diet alone with neuropathy. If you are willing to give it a try, even for a few months, you will be surprised. The dietary restrictions are much easier to deal with than the pain of neuropathy for sure.
Birgit

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1CRAZYDOG's Photo 1CRAZYDOG Posts: 418,705
1/14/15 10:33 A

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LITTLE: You're absolutely right. The idea really is to understand that perhaps the damage already done isn't going to be reversed, but it can be at least stopped where it is.

I am sure I was type 2 long before I was diagnosed, too. I had bad neuropathy in my hands and feet. I am very fortunate that both HAVE gotten better, but not gone completely.

Love is the root of all things good in life.


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LITTLEWIND53's Photo LITTLEWIND53 Posts: 17,177
1/14/15 3:11 A

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So if I understand you, you are taking a total of 600 mg of Alpha Lipoic a day?

My sister was told to take 1200 mg a day, double hat you are taking. It helps her.

As for me, I started having problems over 30 years ago long before I was even diagnosed, and although I do take 1200 mg a day also, I still have a lot of pain and numbness.. Even getting and keeping my numbers down does not reverse the damage already done, so it cannot eliminate the pain. At best, I can only hope to keep it from getting worse so I never have to go on those other pharmaceuticals....

Linda

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HOUNDLOVER1's Photo HOUNDLOVER1 Posts: 8,869
1/14/15 1:18 A

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It seems to depend on the person and for how long the damage has been there. The lower the blood sugar levels the better. Many people do report improvements that are very significant but it may take a few months. Eating very few carbs is healthier for many reasons so you really can't go wrong, especially if you want to avoid meds.
Birgit

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FANCYQTR's Photo FANCYQTR Posts: 13,682
1/13/15 8:28 P

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I think that it depends on the person whether getting your numbers down into range will help with the neuropathy. I have heard that it doesn't help at all, but it helped with mine. It isn't as bad now as it was, but my numbers were high and the neuropathy came back. I don't get the awful burning this time, but do have numbness.

I agree to talk to your doctor to see what might help.



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1CRAZYDOG's Photo 1CRAZYDOG Posts: 418,705
1/13/15 4:51 P

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About the best advice I can give you is talk about it with your DR.

I do take Alpha Lipoic, too, and it helps.

The only way really to assess the level of the neuropathy is to have an EMG (electromyelography) done. That gives an idea of what the status of it is.

Yes, anytime you have a blood sugar over 140, it causes damage to the veins, arteries and nerves, so tight control is what my Dr. advised and what has helped for me.

Love is the root of all things good in life.


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ICEWYNDE's Photo ICEWYNDE SparkPoints: (17,564)
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1/13/15 4:29 P

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Does anyone else suffer with peripheral neuropathy? I searched around but didn't see any discussion of it here.

A burning sensation in my toes was the symptom that led to being diagnosed with T2 Diabetes, but the Doctors never really addressed it. I am taking Alpha Lipoic Acid 200 mg. 3xday with meals, as recommended by the Mayo Clinic website, and that helps some. I really don't want to have to take anti-depressants or Lyrica if I can possibly avoid it.

Right now, the pain starts late in the afternoon and is most troublesome when I first go to bed. Will this improve if I can get my blood glucose levels down (they are mostly in the 6-7 range now)?

Anyway, any ideas, recommendations?

Every day, in every way, I'm just getting better and better!

ACHIEVEMENTS:
One-derland! 199.1 9/14/2014
Out of BMI Obese range 184.6 11/28/14
40 Pounds gone! 179.6 1/02/15
50 Pounds gone! 168.8 2/27/15
60 Pounds gone!!! 159.2 5/22/15
Into BMI NORMAL range! 9/18/15
75 Pounds gone!!!! 3/01/16


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