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GARDENSFORLIFE's Photo GARDENSFORLIFE Posts: 46,890
12/2/17 10:51 P

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"... my God is the rock of my refuge."
Psalm 94:22

"Peace begins with a smile.."
Mother Teresa

Fall Seven Times
Stand Up Eight
Japanese Proverb

Fruit, Grains and Veggies Oh My!-Leader

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SLIMCRUISER Posts: 1,047
9/23/12 2:55 P

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OMG!!! I had a great morning! I went to the Memory Walk....Walk to End Alzheimer's in the Boston area. Such an festive, amazing celebration of life! I am so glad I went. If you ever have an opportunity to participate in one of these events in your area do it!!!

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MICHELE142's Photo MICHELE142 Posts: 16,627
8/26/12 7:15 P

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The last 2 weeks have been hectic to the point that my mental health could snap at any time.
Last Wednesday DH took some of his family pictures down an put them away. When he started on the great grandchildren I ask him why as they are not old enough to drive or dial a phone by themselves. They are still up. After he accomplished that he has calmed down .
His Birthday is next month so I'm bracing for that day.
Today I did get him to Skype with me with my family, he is in the best mood at present. Yet, I know, tomorrow is another day.

Edited by: MICHELE142 at: 8/26/2012 (19:17)
Michele - Central Ohio


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8/26/12 6:21 P

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I would have to say my mental well being is anxious AND exhausted. I spent the week end at the hospital with my 90 year old mom after she had some irregular heart beat issues and then her BP bottomed out with the meds she was first treated with. It was the first time I really thought she might die. She was so cold and pale and confused. She was afraid to go to sleep...she said "I don't want to leave you" I kinda lost it.
She has had an aneurysm for years and we have always assumed that she would die quietly, quickly and not painfully from that. Even though doctors assured me she wasn't close to passing away yesterday, it seemed like she thought she was!!
So, today she is pretty much back to her old self just a little tired. We have new meds and although we missed our weekly beach outing we plan to get there next week!

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SLIMCRUISER Posts: 1,047
8/26/12 6:08 P

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Your girls sound awesome....hope things have gotten better in the past weeks s ince your post! Hang in there.

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MICHELE142's Photo MICHELE142 Posts: 16,627
7/14/12 1:12 A

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Today feeling frustrated an at a loss. Out of four of my husband's children only one will help when called or is around when not called. All his children live within 25 miles of their father.
My girls are supportive of me an their step-father an will travel an hour an a half to help out when ever needed. My only escape seems to be with Spark.

Michele - Central Ohio


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" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



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1/26/12 8:58 P

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AuntLisa2 why is it some children feel they owe their parents nothing
am fortunate that have three very supportive children out of five who will come whenever I need them
I do have two people from Catholic Charities who come also of course have to pay on a sliding fee basis it is cheaper than any home care agency
Thinking of you with love and prayers
One day at a time

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1/15/12 6:21 P

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I'm feeling weepy today. I just found out my sister is taking a full week of vacation next week and it is her third one since November. I usually don't find out until after they are over. Last year she took vacation at the same time as a seminar on ALzheimers was going on and I asked her to sit for me. She told me last year that her vacations are her time to relax so don't ask for anything.

I found out that my SIL thinks the house smells like soiled under clothes and I am so careful to strip the beds every day and take the trash out. Unfortunately I can not use lysol or sprays with perfumes because of mom oxygen. Now my feelings are hurt and I don't know what to say to her next time I see her.

Does anyone have a cave I can crawl into?





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1/9/12 8:11 A

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Feeling positive today

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1/8/12 10:21 P

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Feeling contented went to church DH was takative but those around him would rather see us there than not so have come to cherish our church family
Went to breakfast at local neighborhood cafe very good food and good people
Came home took a short nap
Doing our usual winter time activity putting together picture puzzles and so pleased when DH sat down and tried putting pieces in gave him a couple to put in the right spots and he did it very nicely
We truly continue to live one day at a time

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1/8/12 5:05 P

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My mental well being today is: feeling less guilt (due to dh's placement). Enjoyed going to work today. It is nice not having to rush every thing I do so I could get back to dh.

Dianne

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1/8/12 9:29 A

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I've completed my first week at sparks and I lost a couple of pounds but I am very irregular so I'm not sure how I am feeling. Can I get back to you on that?

warm thoughts and bright energy to everyone


this is my irregular face
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Don't wait for the storm to pass but learn how to dance in the rain..


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1/7/12 11:59 A

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My mental well being is calmness, quiet, busy without being overly busy. Not to much to worry about. And being content with myself.



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CANOGAPARKGAL's Photo CANOGAPARKGAL Posts: 214
1/6/12 10:15 P

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I guess on this thread (topic) we just reply to the latest entry.

My mental well being has not been great for a couple of months. I was in a real Friday funk today, but as always, doing something helped me. Took a neighbor shopping, and I did a little also. That helped. Then took DH and me out to dinner on the last of a Christmas gift card. So much better than cooking! (at least once in a while). Had a Stone Fire Grill petite salad with tri tip added. Only had oatmeal before that, as we got up late b/c DH was off on a "subject" for a couple of hours in the middle of the night, and so we didn't sleep well until after 5:00 AM.

Hoping tomorrow is a better day - we are seeing son and GF b/c they were sick at Christmas.

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11/10/11 6:35 P

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My mental well being is good decided on Thanksgiving dinner will either be 5 or 10 of us depending on the weather am ordering from Perkins this year so meal is simple but good
Today had to do three months of bank statements got a bit behind got most of it done except the credit card organization match up the receipts with statement will tackle tomorrow when brain is fresh from a good night of sleep
DH is great he has a set of Winnie the Pooh cards that he likes and plays with them for hours and he has his companion Ty Bear which was given to him by granddaughters and of course his ever companion our dog Pepper is always having to see what he is doing
One day at a time

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11/4/11 6:59 P

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My mental well being is pretty good today. The location and date of my husband's move to an assisted living facility has been decided. Today I am feeling excited, sad, aggitated and guilt. Each of these emotions are stirring inside of me.

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CANOGAPARKGAL's Photo CANOGAPARKGAL Posts: 214
10/9/11 5:41 P

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My mental state today is upset, trying to calm myself down. Has more to do with me than DH; haven't been "good" on several fronts. So it's back to tracking and trying. For me, if I do one or four action things it helps me feel better. So I called a friend, took some clutter to the trash, determined to drink 8 glasses of water (I did) and will eat good food only today. So I feel better.

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DMILLER33's Photo DMILLER33 Posts: 8,712
7/17/11 9:06 P

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This weekend was hard. We had started dad on new meds and his personality was so much better. But Friday he started in again. All weekend he has been downright mean. I take my husband along to run interference if needed. These up and downs are rough. Mom seems more confused. Thinks she is in Germany despite being in her own house

Doris
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6/25/11 8:59 P

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Taking one day at a time am so very grateful my DH is cooperative and happy
Most of you are dealing with parents and feel for you as it can be very hard to see your parents become children again and dependant on you
Have many times tried to put myself in my DH's spot and wonder how confusing it is
You are all in my thoughts and prayers and Remember
Take one episode at a time and do not judge
God Bless

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DMILLER33's Photo DMILLER33 Posts: 8,712
6/19/11 7:22 A

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Well...we are trying a new medicine on my Dad. I am cautiously optimistic. He doesn't seem as angry at me. Now mind you I still don't talk to him because I am afraid it will trigger his anger. He is having somewhat normal conversations with my DH so here's hoping. MOther is like a child always so happy to see me. The two opposites. With her I see a little progress in her independence. Leaving Friday on a 10 day vacation...my first days away since December 1st. Can't wait. My brother is coming to be in charge.

Doris
Northeast Ohio
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6/12/11 7:10 P

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Thank you so much JRAUTIO sure do appreciate your support
Know that love my DH dearly and have trouble trusting him in the hands of anyone else
Have Catholic Charities coming this week with a volunteer who will sit with him however will not take him to the bathroom and not sure what else they will do or not do will find out Thursday
Continue to take one day at a time


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JRAUTIO's Photo JRAUTIO Posts: 1,704
5/16/11 7:26 A

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Hang in there, MAYBER. I am here, but unable to get to SP very often for a while. My assistant is on maternity leave and I am doing the work of 2 people. Have also been in training the last month or two and leaving town for another week. Will check in as often as possible.

Meanwhile, sending you lots positive good wishes for you to stay strong for hubby. You've set such a great example for the rest of us! Don't forget to take care of YOU! --Julie

~~Julie~~


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5/15/11 8:16 P

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very sorry to see this team dying but there are so many different teams with the support and encouragment we all need when taking care of our alzheimers persons
best wishes to everyone as you continue to be kind, caring and thoughtful
my goal is to keep my DH happy, warm and safe as long as God allows
truly living one day at a time

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5/2/11 9:37 P

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well today went for arthritic check up doctor says we have to see him every three months in order to get the perscription medication and was disappointed two nlurses could not do a blood draw on DH so have to make appointment with family doctor lab to get a blood draw as there are two excellent nurses who can find the veins somedays it is frustrating to be going to the doctors offices continue living one day at a time

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4/28/11 9:12 P

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If we did not see the humor in what our loved ones do we would cry and have done my share of crying so Determinedchicky admire you for moving in to help your MIL care for her mother it is not easy but will be such a great lesson for your children and sounds like you have the time and right attitude in dealing with a lot of the things dementia makes a person do
Have been dealing with the memory loss for 15 years and now in the final stages of Alzheimers DH is completely dependent and my intention is to care for him in our home
And yes we did try to cut out some meds and just a note if the meds can be crushed it is much easier to give them to the person just be sure to check with doctor or pharmacy to see if all pills can be crushed my DH is on nine perscriptions as we also deal with heart problem and arthritis
It is so great to share stories and sometimes with a smile
Taking one day at a time

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DETERMINDCHICKY's Photo DETERMINDCHICKY Posts: 1,970
4/19/11 1:15 P

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Thank you Jrautio for the suggestions. I don't really have control over the meds or anything. I mean I give her the meds prescribed but I don't get to go to the appointments to discuss changes or anything.

Today, Gramma woke up early. Caught her sitting on the sofa with no pants, or underpants, just a bathrobe and one sock. I helped her dress up all the way to her shoes. I made her breakfast. And then after breakfast, my daughter sat at the table to eat her cinnamon toast crunch, which started Gramma on a tangent cause she wanted my daughter's cereal. MIL works full time nights as a CNA and with her liver condition she is absolutely exhausted. So I decided to take Gramma out to give MIL a chance to wake up. Gramma hasn't left the house other than to go to the doctor's in a couple years. I put her coat on, grabbed her walker and led her out the door. The physical therapy really helped her to get more freedom of movement. She walked all the way to the car! Without trouble! We got in and I took her on a tour of the new neighborhoods here in town, then up to an area she could remember which got her to talk about the old days (which always means she is happy). I brought her to dunkin donuts and bought her a small coffee with a chocolate munchkin. Oh boy you would think I gave her a golden egg she was so excited. Then we drove to the old monastery which she really enjoyed seeing. Then back to town. I brought her to the convenience store and told her we were going to buy the newspaper. She was a little concerned cause she forgot her pocketbook (sad that she really has no money of her own anymore). I told her I would pay for the paper. She walked all the way in the store and out again without trouble! She hasn't walked this much in years! We had a good time. We were gone about an hour.

That gave MIL enough time to clean up a little and wake up fully. Once we got home Gramma was back to driving MIL crazy. She just loves getting the negative attention from her. Oy....it's just nuts sometimes. But we really wouldn't want it any other way.

My ticker reflects my commitment to exercise each month. Because action gets results!

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JRAUTIO's Photo JRAUTIO Posts: 1,704
4/19/11 10:49 A

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Oh, DETERMIND! Sounds like you definitely have your hands full! Is Gramma on any meds that could help? We added in an anti-anxiety med for my mom after she ended up getting quite anxious with many things that were just simple pieces of her "old" life. It's made quite a difference in helping her be less argumentative about things. Maybe something like that could help? Although, sadly, I know what you're experiencing is just a part of the whole Alz's process and I'm sure we will have even more challenges ahead.

MAYBER has been dealing with her hubby's condition for quite a while. If I remember correctly, they tried taking him off some of his memory meds, and even those must make quite a difference as he became quite a bit less easy to deal with when they reduced the meds.

I am wishing you lots of luck! And patience!


~~Julie~~


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DETERMINDCHICKY's Photo DETERMINDCHICKY Posts: 1,970
4/18/11 9:25 P

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Hi I am new to the team. My family of 5 (hubby, kids 11,10 and 7) moved in with MIL, BIL, SIL, and Gramma (who has dementia).

Gramma has just came home from the hospital after 18 days. Prior to her stay, she ran the roost. She barked orders, stole food, drank any liquor she could find, demanded constant cigarettes to be made...all this from a devote church going catholic. When she went inpatient, we as a family decided we wanted things to be more fun for Gramma. To start doing things with her, like taking her outside to sit and watch the kids play, or to church, or wherever (she just went through physical therapy so keeping her active meant sense).

My Mother in law who is her prime caregiver, is suffering from liver disease and is not really well enough to care for her anymore and heck her siblings just want her money and could careless whether their mother rots or not as long as she stays alive so they can keep sponging off her social security. SO I have stepped up to try and help as much as I can while I am unemployed and living here.

Anyway, MIL really loves her mom and really wants to make her time with her pleasant and happy. So we talked about not letting her sit in her pjs anymore, actually getting her dressed, putting her jewerly on and making her start living a happier life.

Well, that was easy the first two days. I have been dressing her (which is new but its the only way we can get her to change her clothes otherwise she refuses), I make her all her meals (I have been feeding her the same sparkfriendly meals I eat), monitoring her sugar intake and levels....but tonight when it was bedtime...oh there was just no way she would listen. And if I don't put her to bed, she will literally raid the cabinets all night long.

Does anyone have advice?

Edited by: DETERMINDCHICKY at: 4/18/2011 (21:26)
My ticker reflects my commitment to exercise each month. Because action gets results!

Any fitness is better than no fitness, even if I just walk around the block.

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2/11/11 6:52 P

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We went shopping today at Target and DH pushed the cart he was very good but once in awhile wanted to wander away from me.
We went to the license bureau and got our tabs for the car and our trailer.
Finally we went to eat at Perkins where DH ate very well he had mini cheeseburgers and fries was sorry did not order a dessert as that is his favorite part of a meal.
It has been a nice day came home took a short nap and now watching tv and he is dozing in his chair
One day at a time

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JRAUTIO's Photo JRAUTIO Posts: 1,704
2/7/11 12:57 P

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I think that's the hardest part... that they are not "themselves" anymore. My brother said Mom called him the other day and she sounded "just like her old self".... for about 20 seconds! Then back to the disoriented, can't-find-the-right-word, confused Mom. Poor thing -- I don't know how she manages to stay as calm as she does when she can't get a complete sentence out of her mouth.

~~Julie~~


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HARTKITTY's Photo HARTKITTY Posts: 1,715
2/3/11 1:10 A

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Thank you so much for the encouraging words. It can be really difficult at times because she looks and act quite normally then suddenly she is not my "mommy" any more and I have to start laying down the rules. but thank you for hearing me.

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2/2/11 7:54 P

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HARTKITTY my heart goes out to you as you do not really know how to react to the changes
Take one at a time and cope the best to your ability one day at a time
Each day is different and arguing gettings nothing but frustration
Remember also that your mother has no control over how she is acting
Cherish the good day and cope with the not so good days

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HARTKITTY's Photo HARTKITTY Posts: 1,715
1/23/11 1:30 A

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Hi my mother has been changing from a tolerant peace loving independent person into a grouch where nothing i do is right. I'm getting very tiered of it. I recently bought a house for my partner and I an our two mothers her mother, who is the older is still reasonably active and sees to the house but my mother who used to be a nice person now fights with everyone and its all about how she suffers and how no one cares about her. so today I'm having a moan just to get it off my chest so that I don't loose it with her. Thanks for being here so that I can vent. emoticon

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1/18/11 6:10 P

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Oh now know all about being stressed if you have read my other posts at this site you may understand
Am very body tired and truly taking one moment at a time DH is very easy to care for and am very grateful for that
Praying for a quick recovery but he will never come back to where he was with each illness we will lose a little ground
One day at a time

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CANOGAPARKGAL's Photo CANOGAPARKGAL Posts: 214
1/16/11 2:43 P

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stressed this week. Went to a Dr. (surgeon) about DH's hernias (3) and he definitely needs surgergy to fix them. He had a pretty good discussion, but the next day didn't even remember talking with the Dr.

We have discussed it since then, and I think he remembers some. Does agree from time to time he needs to get them fixed, but we need to actually schedule the surgery, and he's not quite ready to do that.


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7/20/10 6:11 P

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Very sad today the city cited us for tall grass along our fence line and me with a bad back can do nothing about it so will just ride it out and then got news that my very best long time friend has colon cancer and maybe less than a year to live as she is not taking treatments she has lived a good and full life and am sure God will welcome her with well done good and faithful servant one day at a time

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7/6/10 8:50 P

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Frustrated DH does not realize how am hurting and am using every ounce of patience sometimes just have to walk away and take care of myself and let him on his own. He usually does not do much but put things in his pockets which can retrieve at bedtime and return to their orginal places. Went to chiropractor and hurting a little less hopefully it will not take too many treatments. Family doctor also prescribled a muscle relaxer. One day at a time.

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MEDICMOM316's Photo MEDICMOM316 Posts: 152
7/6/10 9:19 A

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WE are so sick of the rain... since last week! Ugh, we have to get out of the house today!
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7/1/10 5:11 P

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Have returned from 10 days at the lake and it was so nice attended open house of a grandson who graduated from high school nice to see family and friends.
Today am hurting did something to my lower back and now my left upper thigh is dull achy went to doctor and am on meds and doing exercising so hoping that with time it will get better.
Thankful that my DH is still calm and likes to read and watch tv so I can rest.
One day at a time

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6/3/10 1:20 P

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Returned from a week at the lake in our trailer that is at our daughter/son-in-law property
It was so nice up there they have three daughters and all helped care for gpa and give me a break
Great food Warm temps Good Company
DH did very well loved being outdoors
Went for a pontoon ride around the lake
Will be going back soon

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MEDICMOM316's Photo MEDICMOM316 Posts: 152
5/23/10 9:02 A

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WE had a good day yesterday. Went to Michael's Craft store and 'poked around'. Naturally, got some things we don't need. Mom got a cross stitch kit to work on. I didn't want to tell her she's tried for some time but can no longer follow the directions/pattern. It was cheap and she wanted to give it a try. I wish she could come across a hobby she can do-- she used to have so many [like me] but she is no longer able to concentrate on the specifics. This makes me feel feel a bit blue.

Edited by: MEDICMOM316 at: 5/23/2010 (09:03)
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5/22/10 9:08 P

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today was a pretty good day although very gray in the morning and a quick rainshower and then the sun came out very bright it was windy but able to get outside for some sunshine and fresh air especially after the rain had two granddaughter come at different times this past week to visit and stay overnight it was so enjoyable One day at a time

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PENTACLE9's Photo PENTACLE9 Posts: 173
5/14/10 10:41 P

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My Dad's coming home on Sunday and I'm both glad to have him home but a little anxious. I know a lot of my time is going to be taken up and Mama has kind of gotten used to him not being here. I don't even want to imagine how that's going to go. I see a lot of prayer time ahead. emoticon

His Lord said to him, "Well done , good and faithful servant; you were faithful over a few things, I will make you ruler over many things. Enter into the joy of your Lord." Matthew 25:21


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MEDICMOM316's Photo MEDICMOM316 Posts: 152
4/30/10 8:57 P

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WE had a good day today. Ate lunch out, talked and planned about our upcoming Alaska cruise, and then went to the 'casino' for a while. We walked the dog and mom got tuckered out. I did some yard work after supper, as it was 'cooler' by then. I feel quite fulfilled and feel we both had a constructive day.
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4/27/10 9:10 A

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Feeling good today had our weekend getaway at the trailer and everything was great. DH and Pepper our dog did well. The weather was cool but still nice. Attended confirmation and dance recital of a grand daughter and she did get at both. One day at a time.

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4/22/10 11:09 A

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Really am fiesty. Going north to open up the trailer for the summer season and have lots of things to get done. Spring is always a busy time want to mow the lawn before we go and plan some flowers. will just relax get off this computer and get some of the things done. emoticon

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WALNUT5612's Photo WALNUT5612 Posts: 3,063
4/18/10 10:38 A

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I am feeling pretty good today. I am well rested today.
Last of sleep = depression for me!!!

I woke up from a beautiful dream and found out I was NOT Oprah!! I had to clean (no maid) AND cook (no chef)!!! Life can be a bummer!! LOL I think they call it exercise!!!


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PENTACLE9's Photo PENTACLE9 Posts: 173
4/16/10 12:38 A

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Since this is a new day already, I have to say I'm doing fine. Latre night is really the only time I have to myself and I realize I'm stretching longer into the nights. So it a good thing that you're here or it would be the t.v. You're a lot more fun! emoticon

His Lord said to him, "Well done , good and faithful servant; you were faithful over a few things, I will make you ruler over many things. Enter into the joy of your Lord." Matthew 25:21


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MEDICMOM316's Photo MEDICMOM316 Posts: 152
4/15/10 2:07 P

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Thank you all for the Kudos! Mayber, we got food posioning from Sonny's BBQ... it was the chicken! Took Mom 2 weeks to fully recover! Grrrr.

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4/14/10 6:24 P

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We are doing okay today after a bout with food poisoning from Wendy Hamburgers should know better than to eat fast food got sick last time we ate chicken at McDonalds one day at a time

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GRATEFUL111's Photo GRATEFUL111 Posts: 501
4/14/10 1:30 P

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Today I am pretty good. I went to my first Alzheimer's Support Group meeting last night and it helped me a lot.

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4/14/10 8:33 A

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emoticon Medicmom316 emoticon

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4/14/10 8:27 A

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Good for you Medicmom316!!!

I woke up from a beautiful dream and found out I was NOT Oprah!! I had to clean (no maid) AND cook (no chef)!!! Life can be a bummer!! LOL I think they call it exercise!!!


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MEDICMOM316's Photo MEDICMOM316 Posts: 152
4/14/10 8:11 A

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I'm pshyched! emoticon
I'm down 24 pounds today and am headed north, to Siesta Key (SWFL). I have to keep my loss in mind, as this will certainly turn out to be a 'party' day... haven't seen younger brother in more than a year! emoticon

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MEDICMOM316's Photo MEDICMOM316 Posts: 152
4/12/10 2:59 P

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Today, I am PUMPED! I just broke 100 miles walking! It took a long time, just over 7 months, but I did it, and that's the idea. Hopefully, the first thousand [yes, 1,000] won't be as hard!

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4/9/10 3:51 A

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I can relate! Thank you Jesus. emoticon


Feeling fine at 3:52 AM! Naturally, I will crash and burn right before lunch. I am to meet hubby for lunch before his PT session. I have already planned what I will have!

Edited by: MEDICMOM316 at: 4/9/2010 (03:53)
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PENTACLE9's Photo PENTACLE9 Posts: 173
4/8/10 8:22 P

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I'm tired today, usually I can shrug Mama off, but not today. I had to go to my prayer closet and sic Jesus on her. Within ten minutes, she was taking a nap. Thank goodness.

His Lord said to him, "Well done , good and faithful servant; you were faithful over a few things, I will make you ruler over many things. Enter into the joy of your Lord." Matthew 25:21


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MEDICMOM316's Photo MEDICMOM316 Posts: 152
4/8/10 11:57 A

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Feeling pretty good; went out for breakfast and stayed 'on program'! I even brought home a doggie bag for my daughter [ate only 1 pancake, 1 pc bacon, and 1 scrambled egg]. I never did THAT before!

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4/8/10 9:28 A

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Positive need to feel that way every morning and hope for the best each day is different

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4/5/10 3:46 P

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I am doing ok today. I have already ate too much. I need to excersice some today!

I woke up from a beautiful dream and found out I was NOT Oprah!! I had to clean (no maid) AND cook (no chef)!!! Life can be a bummer!! LOL I think they call it exercise!!!


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WALNUT5612's Photo WALNUT5612 Posts: 3,063
4/4/10 2:23 P

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Feel the fear and do it anyway!!

I woke up from a beautiful dream and found out I was NOT Oprah!! I had to clean (no maid) AND cook (no chef)!!! Life can be a bummer!! LOL I think they call it exercise!!!


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SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL Posts: 9,709
4/3/10 5:47 P

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A little bored this afternoon, but overall--pretty good!

Kay from Tennessee



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4/3/10 12:05 P

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Anxious! I have to get my car fixed!

I woke up from a beautiful dream and found out I was NOT Oprah!! I had to clean (no maid) AND cook (no chef)!!! Life can be a bummer!! LOL I think they call it exercise!!!


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