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HAREBELL's Photo HAREBELL Posts: 10
4/26/12 5:02 A

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I've been taking vitex on and off for a few months, which I think has helped to bring my periods back into a more regular pattern. I'm now getting more serious about tackling PCOS, and for the last fortnight I've been taking:

Pregnacare Conception - basic multivitamin and mineral, with Inositol, Arginine, and Acetyl Cysteine.
Zinc
Calcium
Magnesium
Chromium
Vitex
Garcinia
Licorice Root
CQ10
Lecithin
Milk Thistle
Saw Palmetto

I think I will add in a D3 supplement too, especially as there seems to have been so little sun for the last few months. Oh, and apple cider vinegar also.

I'm hopeful that these will do something for me. Until relatively recently I was having very irregular or absent periods, so I am just pleased to be fairly regular again, although the cycle is very long at 47 days. I'm considering progesterone cream to help reduce cycle length, but am wary of this as I'm not sure if/when I'm ovulating, and I don't want to risk scuppering that.

Here's hoping! :)



Edited by: HAREBELL at: 4/26/2012 (05:05)
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4REDPEPPERS's Photo 4REDPEPPERS SparkPoints: (0)
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4/11/12 5:15 P

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I was just ready to ask this question when I found this board. There is some great information on this page. Thank you to everyone for your input!
I take a really good multi vitamin, vitex, and saw palmetto with zinc.

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BELROSA's Photo BELROSA Posts: 697
3/23/10 8:39 P

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Good luck! I hope you find the information you need.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
WIFEOFARMYGUY's Photo WIFEOFARMYGUY Posts: 205
3/23/10 12:32 P

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Thanks Ladies! I will check out all of the links and check the book out on Amazon.com. Our base library has one book on PCOS and it's been checked out ever since I got diagnosed!
I guess I should mention that I've also been diagnosed with pre-diabetes as well. That was the reason the doc prescribed the metfomin, to help my cells "open up and use the sugars in my blood properly".
Thanks again for the information!

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BELROSA's Photo BELROSA Posts: 697
3/23/10 10:55 A

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I've heard good things about that book, though I've not read it myself.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
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NEWLIFE801's Photo NEWLIFE801 SparkPoints: (0)
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3/23/10 10:38 A

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I found a book called The Ultimate PCOS Handbook by Colette Harris & Theresa Cheung and I have found the information very useful. It has sections on all of the supplements that would benefit and what they will do for you and it also has a section on dealing with the individual symptoms of PCOS.

I have started taking:
Vitamin D
Vitamin B 50 complex
Inositol (just started yesterday)
Omega 3
Prenatal vitamins
Chromium GTF
Co-enzyme Q-10

I just started the regime a week or so ago, so I am hoping to see some improvement over the next month. I'll keep you posted.

~ Live, Love, Laugh~

Yvonne


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BELROSA's Photo BELROSA Posts: 697
3/23/10 9:43 A

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Metformin can be a useful tool when used appropriately and for short periods of time. It should not be used indiscriminately or for extended periods of time without very good reason. The prescribing criteria are in the article on my website although they are largely ignored.

OK, I'm really off to bed now... goodnight.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

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BELROSA's Photo BELROSA Posts: 697
3/23/10 9:40 A

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Hi WifeofFarmyGuy, welcome to the dubious honour of being a PCOS cyster! I didn't mean to freak anyone out - having as severe a reaction to metformin as I did is very rare. I've come across a few people on various PCOS forums who suffered from a quite severe reaction to metformin called lactic acidosis. This is life threatening. Although it is more likely to occur in those with pre-existing conditions, I've come across two young, quite fit women who suffered it as a met side effect. I personally although young, very fit and teetotal at the time I tried met, began to suffer liver damage on a very small dose. This is probably even rarer at earlier stages of treatment.

I have written about metformin on my website - there are links to some studies which have been done on it there: mypcos.info/1/treatments/pharmaceuti
ca
l/metformin


though I don't seem to have gotten around to going through the side effects yet (I'll put it on my to-do list). Please take the time to read it - it's a lot more cogent than anything I'm going to write tonight as it's after midnight here.

There's a little on side effects of metformin here:
www.webmd.com/drugs/mono-7061-METFOR
MI
N+-+ORAL.aspx?drugid=11285&drugname=R>Metformin+Oral


This is more comprehensive: www.ovarian-cysts-pcos.com/gl
ucophage-
metformin-pcos.html


I personally chose d-chiro inositol a more recently discovered way to treat PCOS which does not have any side effects. It is actually a nutritionally derived human metabolite that most people can manufacture without a glitch. Unless you have PCOS, insulin resistance or Type II diabetes mellitus. All these people seem to have difficulty in converting a common b-vitamin - inositol - into DCI or DCI-IPG which is what turns the sugar inside the cells into energy (adenosine triphosphate or ATP for those of a more technical bent).

Hope this helps - I'll write more later if you have questions, just wanted to give you a few things to think about in the interim.



I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
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WIFEOFARMYGUY's Photo WIFEOFARMYGUY Posts: 205
3/23/10 9:09 A

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I'm really new to PCOS and my docs first response was to put me on Metformin... Seeing the comments about not touching that stuff and horrible side effects years later has me a bit freaked out... Will you please share what you've learned and where from? I'm off to search the net and see what I find. Thanks

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BELROSA's Photo BELROSA Posts: 697
3/19/10 10:10 P

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Myo-inositol is fairly cheap if you buy the powder from iHerb. I buy this one - http://www.iherb.com/Healthy-Origins-Inosi
tol-Powder-8-oz-227-g/4780?at=0 USD $13 for 227g.

D Chiro Inositol has also come down a lot in price in the last year or so, since I started importing and selling the pure powder. I sell it for as little as $24.91 AUD (a bit less in USD) for 18 grams or 2 weeks supply if you buy 6 months at a time and the other sellers have brought their prices down by up to 75% in the last year. They are still a bit more expensive than me, but nowhere near as expensive as they were, so it might be worth looking into again.



I have a website with loads of PCOS info www.mypcos.info Please stop by!

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MOTHERCROW's Photo MOTHERCROW Posts: 163
3/19/10 2:28 P

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Oops, I forgot to mention that I supplement Vitamin B. I want to do inositol, but it's fairly expensive for me. Plus, like you said, I take the glucophage.

disboards.com--blackunicorn

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BELROSA's Photo BELROSA Posts: 697
3/19/10 11:12 A

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They are all really good things to take, especially for PCOS, MotherCrow. You've done a good job of finding the right supplements. You don't take inositol or DCI? That's about the only thing missing that I consider essential. But I suppose you take Glucophage instead. I won't touch that stuff anymore.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

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MOTHERCROW's Photo MOTHERCROW Posts: 163
3/19/10 11:09 A

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I take:

1500mg Glucophage XR
Milk Thistle (liver support)
CoQ10 (heart problems)
Acetyl L-Carnitine (in conjunction with CoQ10, heart)
Chromium
Magnesium
Vitamin D (PCOS causes low Vitamin D levels)
Calcium
Cinnamon (help regulate blood sugar)
5-http (regulate mood)
Women's multi-vitamin
Fish oil (for low HDL, also common with PCOS)
20mg Lipitor

I know that's a lot of pills. I split them up and take them twice daily. I've pared it down to what I consider absolutely necessary for my health.

Edited by: MOTHERCROW at: 3/19/2010 (11:09)
disboards.com--blackunicorn

I dream of pants that fit me at my waist *and* my hips in an affordable price range.


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LADYPUERCOLOCO's Photo LADYPUERCOLOCO Posts: 427
2/23/10 4:29 P

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I'm on 1500 mg/day of Metformin (extended release) and on top of that I take a multivitamin, calcium, magnesium & zinc, vitamin c, and I'm supposed to take vitamin D as well (my bloodwork came back extremely low.) I have a bunch of others that I have tried but I get to the point I just can't stomach any more pills.

Be faithful to that which exists within yourself.
~Andre Gide


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TMCLEMORE's Photo TMCLEMORE Posts: 7
1/31/10 5:22 A

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I'm taking Metformin. I've been taking it off and on for about four years now and each time I take it I seem to get pregnant =). I started on Met in 2005 and 3 months later I was pregnant with my son. I stop taking it until 2008 and then I got pregnant with my second son. Without it, it seem I'm unable to concieve so I guess it's my miracel pill whenever my husband and I decide it's time for another baby i start Met,it hasn't fail me yet.

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BELROSA's Photo BELROSA Posts: 697
1/8/10 12:32 A

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On the subject of Vitamin D - I just read the most interesting thing on www.vitamindcouncil.org/vitaminDToxi
ci
ty.shtml


Vitamin D is one of the safest substances known to man - overdose of vitamin D3 doesn't occur until more than 100 times the daily RDA has been taken daily for several months. Acute, one-time overdoses require over 50 mg (10,000 times the RDA). Formal toxicity studies on animals have indicated that signs of toxicity begin at 20,000 i.u. per kilogram! That's absolutely huge. The oral LD50 (lethal dose 50% or the amount necessary to kill half the animals in a study) for Vitamin D3 or cholecalciferol in dogs is about 88 mg/kg, or 3,520,000 IU/kg.

I suppose it's still a good idea to have your Vitamin D levels checked to ascertain a baseline, but in light of this, it certainly doesn't appear to be anywhere near as important as I had thought.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
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BELROSA's Photo BELROSA Posts: 697
1/5/10 10:45 P

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You are quite right, it is best to have your Vit D levels checked before you start supplementing and better to get our nutrition from fresh foods if possible. I know in Australia, where I live our soil is deficient in quite a few minerals, like selenium, boron and lithium so I supplement with these occasionally too. I like the 'nutrition from food' hypothesis as an ideal state, I just wonder how realistic it is today, when we are exposed to so many chemicals, toxins and free-radical producing substances and our soils are so depleted through intensive farming practices.

Many labs use old reference ranges for Vitamin D, so it's a good idea to take some of the current research along to your Dr when you have them checked. The ideal level for 25-hydroxyvitamin D is 50-65 ng/ml. For treatment of specific conditions which respond to Vit D, levels can be as high as 95 ng/ml. Symptoms of excess/toxicity have not been demonstrated at levels below 200 ng/ml. Old ranges can state that as little as 20 ng/ml is ok, which is the point at which serious symptoms of deficiency can begin.

If you stay away from ergocalciferol (D2) the synthetic form of Vitamin D which can be toxic at high doses, and instead choose cholecalciferol (D3) the natural form extracted from fish oil and also the kind found in eggs, organ meats like liver, fish etc, you will be highly unlikely to have any toxic effects.

There are two vitamin D tests -- 1,25(OH)D and 25(OH)D. 25(OH)D is the better marker of overall D status as it is the biologically active form of Vit D, rather than a precursor.

I fear this may be getting a bit on the long side ... there's more information on Vitamin D on my website if anyone is interested: pcosinfo.wordpress.com/treatments/na
tu
ral/vitamin-d/


Edited by: BELROSA at: 1/6/2010 (00:50)
I have a website with loads of PCOS info www.mypcos.info Please stop by!

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CAH-RD's Photo CAH-RD Posts: 1,153
1/5/10 9:57 P

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I'm only taking PNV's and Fish Oil (1g) daily.

Then I've recently started 500mg Met qd.

Other than that I try to avoid meds and supplements at all cost. I get my vitamins and minerals from good healthy foods.

By the way, since D is a fat soluble vitamin, you can get too much. You should probably have your levesl checked before you just start supplementing. D is a hard one to get too much of and you're right, it's common to be deficient especially if you live in the northern part of the US, but still, it'd be scary to overdo it.

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NYXWOLFWALKER's Photo NYXWOLFWALKER SparkPoints: (168,812)
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1/5/10 6:46 P

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I take...

Vitamin D
general Multi-vitamin
CQ10
Omega 3
ALA
CLA
chited Chromium
Vitamin C
Vitamin B Complex

I use to take a host of other ones as well, but do to cost and overload on my body I've had to cut down on the ones I take - hence the multi-vitamin ... my Endro is also now the one who puts me on rotation for the supplements combined with the met and insulin.


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Living with...
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+Acute Intermittent Porphyria (AIP)
+Spinal Ostioarthritis
+Fibromyalgia
+Polycystic Ovarian Syndrome (PCOS)

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BELROSA's Photo BELROSA Posts: 697
1/4/10 7:33 P

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I know it's a major drag to take pills of any sort all the time. My father-in-law constantly teases me whenever he sees me take my morning vitamins/herbs etc that I won't need breakfast after all of that. It might have been vaguely amusing the first time, but golly gee it's lost all possible humour by the 20th time.

It's hard to know what will really be of benefit to you with PCOS. A lot of it is trial and error I think, just finding out what specifically works for you.

I stick with it because I have managed to keep the PCOS under control without drugs (metformin, sprinolactone, BCPs etc) and that is important to me. I've heard so many horrendous stories about women developing awful side effects from these drugs, sometimes years later that I just don't think that they are the best option for me.



I have a website with loads of PCOS info www.mypcos.info Please stop by!

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TRYINAGAIN3's Photo TRYINAGAIN3 Posts: 1,597
1/4/10 3:38 P

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I have a hard time just getting in the what I take now.. I'm not sure how I would be able to add anything else. I take thyroid meds along with metformin three times a day...I sometimes miss the prenantal vitamin I'm supposed to be taking daily. My problem is I have to take everything but the thyroid med with food. Trying to lose weight on top of that makes me feel like I'm eating all the time. My plan is to add the extra D too...I read about it being good for pcos women also. My daughter thinks I take to much meds and jokes with telling me shes going to bring me on a talk show LOL




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BELROSA's Photo BELROSA Posts: 697
1/4/10 3:57 A

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What supplements has everyone found helpful for PCOS? What do you usually take?

I vary what I take at times, but the things I almost always take are:

D Chiro Inositol
Vitamin C & B Complex
Multivitamins
Fish Oil & Evening Primrose Oil & Vitamin E
Magnesium
Chromium or Gymnema Sylvestre - usually one or the other
Vitamin D (only just got this one after reading that 73% of women with PCOS are severely deficient in Vitamin D and that taking it aids weight loss as well as lowering risk of a heap of other diseases)
Vitex Agnus Castus & Saw Palmetto (for hormone regulation)
I should take Liquorice & Paeony, but haven't gotten my act together yet.


I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
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