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SARCHRIS Posts: 33
12/29/13 11:26 A

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Thank you for sharing the information on the mx. Did my first shot this morning a couple hrs ago and notice little nauseau but not bad. Hope you all have a good day. I also am starting on a weight loss venture again. Not really following any plan but think I'll try portion control. The prednisone (and I) really packed the weight on the last couple months. Feel very puffy, like if someone stuck a pin in me I would take off like a balloon. Thx again for sharing your stories.

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12/28/13 8:49 P

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I think that methotrexate (also known as MTX) is the 1st line treatment for RA. When I was diagnosed I asked my rheumatologist what is the best outcome? He said some people are OK on just MTX.

I take it in pill form, once a week. Also take folic acid daily to prevent side effects such as mouth sores. You need blood tests every couple/few months while on it to check liver function. Mine got elevated once on MTX so I had to stop and go back on a lower dose. When I stopped I could see how much it was helping. In larger doses it is used as chemotherapy. My hair has gotten somewhat thinner, but it's worth it. I don't notice any other side effects.

I have been on it since diagnosis (4 years), combined with other DMARDS, which didn't help enough, (and one caused elevated liver test, which returned to normal after stopping it) and now along with Humira, my first biologic. (Injection every 2 weeks.) I tried everything before going to a biologic, but for me, it is the thing that really helped with my pain. Not 100%, but makes the RA just very annoying, not totally miserable.

Best wishes.

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CTHCTH1's Photo CTHCTH1 Posts: 103
12/27/13 1:30 P

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Methotrexate has been around for a long time and although it warns of possible leukemia as a side effect, my rheumy says that is extremely rare. I was on it for 9 years. I found that for me it had a predictable cycle similar to being on chemo, only milder. I planned on being not up to much for two days a week, better for one day and my normal self for 3- 4 days. I experienced few side effects other than low energy on some days and it did help with the RA some but not as much as the Xeljanse does now.
I never had shots of methotrexate, only pills, so can't speak to your exact experience.
Whatever you choose to do, I wish you well.

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SARCHRIS Posts: 33
12/19/13 5:34 P

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have fibromyalgia and recently diagnosed with rheumatoid arthritis. In oct had 7 injections in right shoulder and hand. This week had two more steroid injections in left shoulder. Also shot of methotrexate in stomach which I'm supposed to start doing 1xweek along with prednisone which I've been taking since Oct. Also have the folic acid to start taking. Really sick to my stomach today. Kind of apprehensive about doing the methotrexate but sounds like there's not a lot of options. Weight gain of 15 lbs in two mos. from prednisone and feel like I could eat everything in sight. Anyone with any positive comments ref methotrexate to maybe alleviate some of my fears would be appreciated. Have also thought of going to a homeopathic who does accupuncture...anyone tried that? Thanks for any insight.

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12/19/13 12:22 A

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A quick P.S. My rheumy told me not to go in water below 92 degrees as it would set off spasms. We don't have a heated pool in our community so I use my hot tub to exercise on "not so hot" days. I change the exercises to those I can do with a noodle or in a seated position.

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12/19/13 12:18 A

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I have both conditions and find that one can exacerbate the other. I am on Xeljanse for the RA and Cymbalta for the Fibromyalgia. Both are helpful. I do take an occasional hydracodone when the pain gets too bad but that is not nearly as frequently since I began the Xeljanse.
Just finished PT and was lucky enough to have a therapist who understands both diseases. She gave me a range of exercises as well as some information on how to gauge what I can do on a given day. By having a range of exercises, I can pick and choose what works for me on a given day, sometimes simply stretching before rising and sometimes resistance weights when I am doing well. Acceptance of "what is" on a given day works for me. Attitude has a lot to do with my health or at least, with my ability to cope with it. Hope this is helpful! Great topic. :)

CANMERA's Photo CANMERA Posts: 892
11/12/13 11:45 A

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I have Fibromyalgia. It is and continues to make life a tough go, but I will make it. I refuse to fall down or sink. I will swim and make it to the other side.
My fibro does have an impact upon my RA pain. My whole body sometimes just hurts.

I have no meds for my RA as of yet. Waiting to see the Rhumy and see what he/she has to say.
I know that my meds for my Fibro help me a great deal and that is how I am able to exercise as I do.

Living with Fibro and RA is tough. But if you keep a positive beat to your life and have faith, you will make it.

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11/6/13 3:21 P

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I have Fibromyalgia as well, but taking nothing for it. I am on general pain meds and that's all my doc has me on right now. I HAVE to get him started on taking care of some of this extra testing that I need while I have the Medicare. I might not have it after feb 2015... but who knows!?

I know that swimming this summer made me very tired and VERY, VERY sore that night and the day after. So I made sure it was the LAST thing I planned on doing all day. It was so bad that I wanted to just curl up in my suit and go to sleep without showering, but I would force myself to scald off a layer of skin in the shower to get the pain down somewhat. But it never really goes away. :-(

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4CYNDI's Photo 4CYNDI Posts: 14,218
10/31/13 12:43 P

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I don't have fibromyalgia but I do know that cold water does send me into spasms sometimes. My body just doesn't like it cold. I did have access to one pool (until my work hours changed) that was heated to a warmer temp for those with arthritis and other conditions like that. Perhaps you could check around locally and see if you can find one of those pools. The one I used was in a retirement community (my parents live there). I know that I could buy a membership to that pool since it's local if I wanted. The times it's open though just aren't compatible with my schedule right now.

If you can't swim can you do something else that is low impact like seated exercises?

Good luck! I hope you get some relief soon.

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DAZZLEANNIE's Photo DAZZLEANNIE SparkPoints: (672)
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10/29/13 10:16 A

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Does anyone else also have fibromyalgia? How are you handling it along with the
RA are you on meds for it? Mine seemed to have settled but when I tried MTX injections it seemed to come back full force... also it seems that the cold water from the swimming pool kicks it off as well.. my rheumy says to swim but now I can't even force myself to go to the pool because all I think is PAIN!!!!!!

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