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PURRBALLS's Photo PURRBALLS Posts: 7,966
1/2/10 1:34 A

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You need to get hard copies of your labwork for your own records.....never accept the answer that your results are OK.....get the numbers themselves. It's safer and you can see for yourself exactly where you lie numberwise. An endo is an endocrinologists....they specialize in endocrine systems of which thyroid is one. The problem with them is many times they are diabetes focused because that is the majority of their business. If you want to find a different doc have you tried these places?

www.armourthyroid.com/con_phLocator.
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www.thyroid-info.com/topdrs/index.ht
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www.functionalmedicine.org/findfmphy
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cian/form.asp



www.holisticmedicine.org/displaycomm
on
.cfm?an=1&subarticlenbr=49


If you get stressed out eat some catnip and go to sleep

“Many of life's failures are people who did not realize how close they were to success when they gave up.” Thomas Edison

If you soap or make bath/body/candle products join us at the soapers and chandlers sparkteam!

The Seven Dwarves of Hypothyroidism: Itchy, *itchy, Sweaty, Sleepy,
Bloated, Forgetful and Psycho


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DAGNY99's Photo DAGNY99 Posts: 1,302
12/31/09 1:51 P

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Finally got my lab results back. They said the T3 & T4 were ok/normal however the TSH was elevated (hypo) so they are raising my meds. They didn't change them however, I am still on the levothyroxine
But they want me to see a specialist (Endo I guess) and it might be a few months because apparently there is a waiting list if I go to the endo closest to my house...otherwise I have to go farther away...
So maybe...the endo would change my meds to the other stuff (like Armour or Naturethroid)
What does an endo do anyhow?

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


 current weight: 230.0 
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205.5
170
DAGNY99's Photo DAGNY99 Posts: 1,302
12/21/09 3:31 P

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I might give her a chance, I really don't have many options in my area. She is my family doc and not an Endo. I found several sites where you can search for Endos (endos that prescribe things like Armour) and of course none of them are in my area. I think one might have been 60-70 miles away...
However, I could call around to the general doctors offices and see if any of the doctors are good with dealing with hypos?

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


 current weight: 230.0 
312
276.5
241
205.5
170
TGRIFF's Photo TGRIFF Posts: 679
12/21/09 3:17 P

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If I were you, I would find a doc who will prescribe what you want. Don't wait to feel better. It sounds like she won't prescribe what you want and will probably give you excuses every time you go in.

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DAGNY99's Photo DAGNY99 Posts: 1,302
12/21/09 3:03 P

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So I took her the print outs from that site and took to my doctor.
She said that when my blood was checked in October, I was normal, but that she agree I should be tested again. I think I am going to do that tomorrow morning and just get it over with before school starts again.
She asked if the website was a T4 and T3 site, and I said yes. I told her I did still have symptoms and highlighted printouts to show her. She said that even at normal I might have some residual symptoms...
I asked if there was a better medicine than what I am on, and she said that for now that is all she can prescribe, but in the future I might be able to change meds. (not sure why)
But she said we will check my levels and depending on if my T3 looks good, she might prescribe me the T3.
But she said the T3 and other drugs are not like by all ednos...so she said it was a fine line to walk and so she rarely prescribes those meds. But she has prescribed the T3 to one person a while ago, but she said she hasn't seen that person since so she can't say if it doesn't work or if it does.

I guess I didn't get it, but I am happy that I might be able to get it in the future possibly...I wasn't sure if she just would never prescribe it. But I am hoping if she knows I want to try it, if the lab work is right then she might let me try it...

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


 current weight: 230.0 
312
276.5
241
205.5
170
PURRBALLS's Photo PURRBALLS Posts: 7,966
12/18/09 4:00 P

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Any doc that tells you your thyroid needs do not change is not fully educated on thyroid or they're lying. It's like a car, when you speed up does it use the same amount of gas as it did while driving 20 mph? No it can't and neither does your body. On top of it if you have hashi's your gland is fighting a battle against antibodies. Some days it's winning because the antibodies aren't as active and other days or even hours or minutes it's losing because the antibodies have the upper hand. Go read and research and learn because this doc is obviously not well educated or thinks you won't be able to understand. Try googling your entire question for instance say "are needed thyroid levels always constant" then go read the results. I give higher credence to medical sites and studies when I do this.

Also remember that the TSH is a feedback loop. The pituitary gland is responsible for producing TSH (thyroid stimulating hormone). Like any feedback loop there are cause and result issues. You cannot have a TSH that is the exact same every hour of every day. It's just not gonna happen in a human body where thyroid is affected by our exercise level, what foods we are eating, what is in our environment, etc. Again you need to ask your doc exactly what the level was rather than accept that it's normal. One person's normal is another person's basement. They can have me at a "normal" TSH of 2.3 and I'm going to be in a coma because on my porcines I do best at a TSH of .014 which is considered ABNORMAL and many would tell me I'm hyper. I'm NOT. Porcine meds at certain levels seem to make the person taking them do best at a more inhibited TSH level. I take four grains a day that puts me well above that level so I need to stay inhibited and pay more attention to how I feel.

All I'm saying is go read, find out what is medically supported and disregard the fact that we are tempted to think that every word out of every docs word is gospel. I did that just like you are doing....I did it for 25 years and all it got me was a heart attack. I am not saying that is what will happen to you but I am saying that docs aren't always right or know what is right. I'm the healthiest I've ever been in my life right now but it's only because I took my life into my own hands and went and read and continue to read every time I get spare time to go find out more about my condition and what has been found out about it. Docs told me I was lying about my diet and if I took their pills it was the best anyone could do. They were wrong. I found more information out there than they ever bothered to give me or tell me to go find.

If you get stressed out eat some catnip and go to sleep

“Many of life's failures are people who did not realize how close they were to success when they gave up.” Thomas Edison

If you soap or make bath/body/candle products join us at the soapers and chandlers sparkteam!

The Seven Dwarves of Hypothyroidism: Itchy, *itchy, Sweaty, Sleepy,
Bloated, Forgetful and Psycho


 current weight: 198.0 
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DAGNY99's Photo DAGNY99 Posts: 1,302
12/18/09 3:37 P

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Thanks for the support!
I have been reading more info on that site (stop the madness.com) and can relate to alot of it.
I know I sometimes get dizzy (when I stand up) but then I assume it is because I stood up too fast. Sometimes it does go away and sometimes it doesn't. They mention that is a symptom of something...
It also said that the TSH levels CAN be one thing one day, and a different number the next. For example, today I might be normal, next Friday I might be low or even high! But my one doctor told me that is not true...she told me my test results were normal, but I said that they were taken almost a month before that...and she said that did not matter...

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


 current weight: 230.0 
312
276.5
241
205.5
170
TGRIFF's Photo TGRIFF Posts: 679
12/18/09 12:10 P

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I just wanted to add a little something. Just remember that YOU are the one paying for the doc visits (whether it's out of pocket, insurance or school). They may be doctors, but they don't know everything. They don't know you, like you do. Ask for what you want. Make them do bloodwork. They are there to help you. And don't be embarrassed. They hear lots of weird and gross stuff every day. It's part of their job. Just take care of you.

 current weight: 22.0  over
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DAGNY99's Photo DAGNY99 Posts: 1,302
12/18/09 8:26 A

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Thanks for that link, I am printing that also.
I am in a secluded like area. I looked up endos on the web, the closes one is over an hour away. But there is another doctor's office near this one, so if I want to change doctors and try one of those I could.
I just need an army to go with me to the appointment I think...
I eat plenty of fiber though. For breakfast I aim to eat something like fiber one or a kashi cereal, then I try to get in fruits, veggies or whole wheat bread to get the rest. And I drink plenty of water (even more on days I workout)

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


 current weight: 230.0 
312
276.5
241
205.5
170
PURRBALLS's Photo PURRBALLS Posts: 7,966
12/18/09 1:40 A

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You sound like me....before I had a heart attack from being undertreated for 25 years for my thyroid. Find out your exact numbers. www.stopthethyroidmadness.com/recomm
en
ded-labwork/


If the doc won't listen to you then it is time to get a new doc. You know what your body was like before diagnosis. You know the range is suggested to be .3-3.0 but that most of us feel best at 1-2. If the doc isn't willing to get you in this range without a good reason it's most definitely time to get a new doc.

You need to start being willing to be your own advocate. You don't have to be talked down to like this. Just because you aren't a licensed doctor doesn't mean you don't know your own body. You're only being countered because you're accepting what they say. You don't have to accept this. You have a right to ask to try a certain med if that is your wish. If they come up with bogus information then you have the right to get a new doc. There's plenty of other docs out there. Sometimes we live in areas they are scarce but if you're in college you should be near someone. I drive an hour one way to get to my doc. My care is that important to me.

Definitely take in the symptoms. Reiterate that you did NOT have these symptoms before diagnosis. Tell them what range you'd like your TSH to be in and why. If you want studies ask here and we'll give you websites.

I know my first doc I bullied into letting me try armour said of the stopthethyroidmadness website that they seemed a bit militant. My response to him was that maybe that was because they were like me and tired of substandard care. I was nice about it....I told him very politely that I intended to try it and if he wouldn't allow me I'd be sure to let others know he was unwilling to cooperate with legitimate medical studies and that I would find someone who would let me try it. After my first month on armour....and he took blood work and compared to one he took the day he first wrote the script....he was flabbergasted and apologized.

Don't ever let someone treat you like you are an idiot or hysterical....you're not.

Know also that some of us have contradictory symptoms....you can be hypo and be hungry. It just depends how you react. I know others on here that are hyper and sleeping all the time. We're all different. Constipation however....that is CLASSIC hypo. Try increasing your fiber to 25-35 grams a day.

If you get stressed out eat some catnip and go to sleep

“Many of life's failures are people who did not realize how close they were to success when they gave up.” Thomas Edison

If you soap or make bath/body/candle products join us at the soapers and chandlers sparkteam!

The Seven Dwarves of Hypothyroidism: Itchy, *itchy, Sweaty, Sleepy,
Bloated, Forgetful and Psycho


 current weight: 198.0 
220
205
190
175
160
DAGNY99's Photo DAGNY99 Posts: 1,302
12/17/09 6:23 P

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I want to ask her to arrange a blood test on my levels and maybe consider switching me to the other thyroid meds. Everytime I try to do this though, with the other doctor, I was told I was normal.
If I told her I had dry eyes, why is this? I was told to use eye drops, it is due to the air (either heaters, air conditioners ect)
When I said my skin was dry, they told me it was moisturizer and bath stuff that I was using, even though I countered that I used that stuff for over a year. I also take biotin...eventually when I used more moisturizer the dryness did go away.
If I said I was tired, I was told it was because I am a college student...
When I say I am stuck at the same weight, I am told that I have already lost a ton of weight, my body will find it's set point and just stop.
So I have been countered at everything! I need to find a way to counter argue my case?

So I will bring up my symptoms at the appointment. I want to mention that my neck is hurting again (I have a goiter though). Also, what does being hungry all the time mean? Isn't that hyper?
I am going to request my level numbers too and share them here.
I guess it is not so odd to request a certain medication? I think it feels odd to me, since I am not a doctor, she is. However, they have tons of commercials for meds, like "Talk to your doctor about XXXX medicine and see if it is right for you"

Any other suggestions? I think I might print that list of symptoms and highlight my major symptoms and show it to her. Use it as a way to discuss it. But some of the symptoms I have are embarrassing for me...like I think I get constipated, I have PMS. I think I had a period this month but it was extremely light...:(
Advice?

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


 current weight: 230.0 
312
276.5
241
205.5
170
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