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APPEALSTOME's Photo APPEALSTOME SparkPoints: (206,800)
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11/11/09 5:10 A

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Maybe you have an infection. I thought my fatigue was due to thyroid levels being off, but they were fine. However, a CBC showed I had an infection. My energy has returned since I started taking anti boitics.

Have your vitamin levels been checked? My test showed my vitamin D level decreased to 20 from 50 after the thyroid medication change and I take 1,000IU of vitmain D daily. Doctor told me to take 2,000 to 3,000 vit D daily. People with thyroid/Hashimoto tend to have low levels of vit D.

I agree with the others about getting a copy of your test results are starting there.

Medicine is not an exact since and determining why you feel this way and have not lost weight is a matter of elimination what is not causing the symptoms to determine what is.

Good luck

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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PURRBALLS's Photo PURRBALLS Posts: 7,966
11/10/09 8:23 P

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Ok gal, you need to get the numbers for your test results in WRITING! The recommended range is .3-3.0 but many docs are still using the old ranges of .5-5.0 so if you were 3 of course she would say you're perfect! The truth is most of us feel best at 1-2 and if you're 3 that's not optimal for you. These symptoms are hypo symptoms. You're getting the normal self righteous doc two step. If she won't listen to you and continues to blame all your obvious symptoms on hocus pocus rather than LISTEN then you need a new doc. Best docs are ones that will work with you rather than shove their biases down your throat. Keep your journal and get your lab results to take to a new doc.

Your levels with hashimoto's not only change monthly but daily and even less time than that. If you have an antibody flare then it could very well have changed in this time frame. Hashimoto's is an autoimmune disease where your body is destroying your thyroid gland. I doubt yours is entirely gone by now....could be but you are young and treated so it's a consideration.

Edited by: PURRBALLS at: 11/10/2009 (20:26)
If you get stressed out eat some catnip and go to sleep

“Many of life's failures are people who did not realize how close they were to success when they gave up.” Thomas Edison

If you soap or make bath/body/candle products join us at the soapers and chandlers sparkteam!

The Seven Dwarves of Hypothyroidism: Itchy, *itchy, Sweaty, Sleepy,
Bloated, Forgetful and Psycho


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TGRIFF's Photo TGRIFF Posts: 679
11/10/09 6:40 P

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That's a very good idea. Let me know what happens.

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DAGNY99's Photo DAGNY99 Posts: 1,302
11/10/09 5:22 P

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Ok, thanks. I will try to get that tomorrow probably.
I might just wait it out. If the cold meds help my fatigue go away...but then I have a check up in December so I will get to talk to my "real doctor"
I think I might also start journaling how I feel each day. Keep track of how I felt overall, any symptoms I might have, maybe even weather and what I ate for the day?
Then, when I do get my bloodwork results I can always keep them and the date in order and see any patterns

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


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TGRIFF's Photo TGRIFF Posts: 679
11/10/09 4:01 P

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I can't answer your questions about Hashimotos, I don't know anything about that. But, my next suggestion is one that someone else has already said. Get a copy of your bloodwork results. They have to give it to you. Call you doc's office and request they send it to you or go pick it up. There are people on here who can tell you a lot if you give them your exact numbers. I think that's your best move.

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DAGNY99's Photo DAGNY99 Posts: 1,302
11/10/09 3:32 P

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It might have been .3 then...I did not write them down so I'm not sure.
I told her about my dry eyes, exhaustion/fatigue, allergy issues and why I wasn't losing weight but yeah she seemed to have an excuse for everyone! So even though they are on the list, there is another reason for them she thinks.
I am 23 years old by the way. I try to go to bed by 10 p.m. and I wake at 7:30 a.m. to get ready for school. In the afternoons after class I workout, but I am taking a break off of that for one week because I figured I was over training? Nope...still sleepy! And I don't drink or even party, so that is not it.
And why does she think I should not lose weight? My BMI is around 28 and that is overweight...healthy is 18-24 (women might be 20-24) and I pointed that out...she said 5 more pounds...
oh and I told her I have Hashimoto's disease and she said that just means my thyroid is burned out (or something like that) but I said I thought that meant my levels could have changed since last month when I got my blood drawn...she said no or it doesn't work that way.

Edited by: DAGNY99 at: 11/10/2009 (15:33)
Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


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TGRIFF's Photo TGRIFF Posts: 679
11/10/09 3:19 P

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Umm, wow! So many things wrong here. First off, the TSH level is .3 to 3.0, so if yours is 3. something then it is too high. Mine is .03 now because my endo upped my meds so I would feel better. If I go about 1.0 I feel horrible and very tired. Next, if you looked at that list of possible effects of being hypo, then the things you told your doc go along with being hypo. Did you ask your doc about the list? And, telling you that you are tired because you are a college student...well, that's just crazy! Are you the typical college age student (late teens to early 20's)? If so, then you can handle college without being tired. In my case, I was out all night drinking, usually until 6-7am then took a shower and went to class. After class I took a nap then ate, did homework and did it all again. It was not a problem and I was NEVER tired. I'm sorry to be so blunt, but I think your doc is full of it!

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DAGNY99's Photo DAGNY99 Posts: 1,302
11/10/09 3:08 P

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This is what my doctor said:
My levels are not only normal, but perfect. My TSH is 3. something and my T4 is 1. something (she didn't print or write these down, I just tried to remember them the best I could)
I do have a sinus infection, she gave me meds. There is nothing wrong with my eyes being dry, it is due to winter air. I said that they were dry over the summer...well air conditioners then. I could use eye drops she said...
She can't increase my dose because my levels are perfect and I asked why I wasn't losing weight. Well she said I had lost 10 pounds since summer and the doctor said I should lose only 5 more pounds...there is a place/weight where your body just wants to be...
oh and she says I am tired because I am a college student...
I will try my antibiotics and hopefully they will make me feel better/less tired...

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


 current weight: 230.0 
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APPEALSTOME's Photo APPEALSTOME SparkPoints: (206,800)
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11/10/09 2:20 A

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The article Purrballs posted certainly describes me on levoxyl. My sister and trainer that saw me on Armour question what happened to me. And I thought I was the only person that noticed the difference.

BTW, an immunologist said my allergies, etc. are Hashimoto related.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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PURRBALLS's Photo PURRBALLS Posts: 7,966
11/10/09 12:15 A

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Many of us have "allergy" type symptoms that are related to hypo. Rissas was initially diagnosed by her allergist. Mine always rampage when my levels are off.

If you get stressed out eat some catnip and go to sleep

“Many of life's failures are people who did not realize how close they were to success when they gave up.” Thomas Edison

If you soap or make bath/body/candle products join us at the soapers and chandlers sparkteam!

The Seven Dwarves of Hypothyroidism: Itchy, *itchy, Sweaty, Sleepy,
Bloated, Forgetful and Psycho


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DAGNY99's Photo DAGNY99 Posts: 1,302
11/9/09 4:49 P

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Thanks PURRBALLS
That is probably why I feel sick...I have been having constant headaches, allergies, eye problems and fatigue...I figure it is my sinuses but it could be the thyroid.
I will mention to her that I feel hypo and my symptoms might be a result of my thyroid because I don't have the normal cold symptoms that are typical for me (stuffy nose, sore throat, and earaches)
And they always want you to take over the counter meds for allergies (like sudafed) they don't help me ever anyhow, but I do take one and I am still having allergy related issues...

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


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TGRIFF's Photo TGRIFF Posts: 679
11/9/09 4:31 P

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Wow, what a list. It's a wonder we can even function on a daily basis.

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PURRBALLS's Photo PURRBALLS Posts: 7,966
11/9/09 4:24 P

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Dry eyes is a sign of hypothyroidism. My eye doc can always tell when my levels are off.

www.stopthethyroidmadness.com/long_a
nd
_pathetic


Edited by: PURRBALLS at: 11/9/2009 (16:25)
If you get stressed out eat some catnip and go to sleep

“Many of life's failures are people who did not realize how close they were to success when they gave up.” Thomas Edison

If you soap or make bath/body/candle products join us at the soapers and chandlers sparkteam!

The Seven Dwarves of Hypothyroidism: Itchy, *itchy, Sweaty, Sleepy,
Bloated, Forgetful and Psycho


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DAGNY99's Photo DAGNY99 Posts: 1,302
11/9/09 4:24 P

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Well I guess I will just ask. Otherwise I will have to wait until my check-up in December.
I went to the local hospital website in my area to search for an Endo but there aren't any in this area...but you said I don't exactly need an endo, just a general practitioner right? Maybe that is why she never referred me to anyone, there is no one in my area to go to...

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


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TGRIFF's Photo TGRIFF Posts: 679
11/9/09 3:20 P

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Well, whenever you go to the doc, just ask about changing meds, it can't hurt anything. As far as your eyes, well, that's a good question. I also have that problem a lot, but always figured it was because of my contacts. Maybe it's not. But, I do get sinus infections a lot. Probably 3-4 times a year or more. I really don't know if there is any connection between that and being hypo, though. Maybe someone else will know the answer to that.

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DAGNY99's Photo DAGNY99 Posts: 1,302
11/9/09 2:48 P

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oh...I don't know they work in the same building...it is a "medical group"
it is just hard to get my own doctor because I think she works only monday, Wednesday and Fridays when I am in school and when I got home today she didn't have any openings

does thyroid affect your eyes? I think I might be getting a sinus infection, so it might be that...but I think my eyes feel dry sometimes...maybe tired. And at other times (not just when I am sick) it feels like there is something in my eye, but there never is anything that I can see (eyelash, nothing there) and I can wash my eyes with my mom's eye wash and it still feels like that...

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


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TGRIFF's Photo TGRIFF Posts: 679
11/9/09 2:42 P

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That can probably only happen if the two doctors work in the same system. Otherwise, the doc you are going to see would want to do bloodwork to know what's going on. Pretty much every time you go to a new doc they want new bloodwork. Hope you feel better soon, though, and get over your cold.

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DAGNY99's Photo DAGNY99 Posts: 1,302
11/9/09 2:35 P

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well generic=levothyroxine
I think I am coming down with a cold anyways so wanted to schedule an appointment but I didn't get one with my main doctor (the one treating me for hypothyroid)
Can I still ask this other doctor for my results and if she/someone could switch me over to another medication?

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


 current weight: 230.0 
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170
APPEALSTOME's Photo APPEALSTOME SparkPoints: (206,800)
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11/9/09 12:27 A

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I have had thyroid disease for over 40 years and taken every medication on the market.

I felt like I was on speed when I took Armour and Cytomel. Doseage did not matter.

Synthroid and levoxyl makes me cranky, tired, weak, depressed, etc. although my levels are good. Even my cholesterol rose on these meds.

So I do not recommend any of these meds. Feeling good with thryoid disease revolves around regulating all hormone levels and doctor that take ins just are not into or up on do this.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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PURRBALLS's Photo PURRBALLS Posts: 7,966
11/8/09 10:38 P

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My alarm bells went off when you said GENERIC. Generic synthetic thyroid is known to have issues with consistency. Either get on a name brand or try a porcine. You can request meds but many docs don't know the natural or porcines and are set against them. That part is difficult to overcome sometimes. Call, insist to speak to the doc of leave a detailed message on their voicemail. You need to get hard copies of test results. It's for your future reference and if you change docs it's much easier since you already have a test history to show them. That way YOU can see what test result you feel best at...you have more info to talk intelligently to any doc.

For me the porcines were cheaper also until I went on compounded. Looking forward to naturethroid being back on the market this month!

If you get stressed out eat some catnip and go to sleep

“Many of life's failures are people who did not realize how close they were to success when they gave up.” Thomas Edison

If you soap or make bath/body/candle products join us at the soapers and chandlers sparkteam!

The Seven Dwarves of Hypothyroidism: Itchy, *itchy, Sweaty, Sleepy,
Bloated, Forgetful and Psycho


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TGRIFF's Photo TGRIFF Posts: 679
11/8/09 7:19 P

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And, by the way, armour is more affordable than synthroid for me. I paid almost $25 a month for synthroid, about $20 a month for levothyroxine and only $15 a month for armour. I understand insurances are different, but that's my experience.

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TGRIFF's Photo TGRIFF Posts: 679
11/8/09 7:17 P

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I have an endo who I am very happy with, but I don't think you necessarily have to see and endo. Just find a knowledgable doctor or assistant who will listen and work with you, not just tell you what to do. As far as getting your results, all you have to do is ask. They have to give them to you. I automatically get mine in the mail after any test I take. I don't even have to ask for them. Once again, I say just keep researching. Maybe you could even tell people on here where you live and then maybe someone on here is from your area and can tell you where a good doc or endo is.

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DAGNY99's Photo DAGNY99 Posts: 1,302
11/8/09 6:59 P

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My mom is not happy with her doctor (same doctor) and is considering finding a new one, but I am not sure why.
I did like my doctor over the summer. She is thrilled with my weight loss and I tell her how much more I want to lose...she never pressures me! She tells me if I lose it slow, that is fine because I will keep it off easier.
She never controls my diet, but when I tell her about what I eat, she is pleased and tells me to keep doing that. I tell her I sometimes eat a snack if I want, in moderation, and she thinks that is ok.
But the communication is not the best...the last few times that my levels were off I waited and went with my mom to her appointment to tell my doctor. She did up my dose when I wasn't feeling good...but she never offers to tell me the numbers and I didn't know how to get them.
I think why I am on the levothyroxine is that because she thought that it is cheaper and will be covered under my insurance...but then I also heard that Armour is just as affordable (not sure if my insurance covers them though)
I did find a website (the stop the maddness one) or another looking for an endo in my area..alot of them are really far away though.
It just seems like she is so hard to reach and when I called them about my dry skin it is like I didn't get anywhere...

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


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TGRIFF's Photo TGRIFF Posts: 679
11/8/09 4:42 P

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My question is...Are you happy with your doctor? If not, you know what to do.

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DAGNY99's Photo DAGNY99 Posts: 1,302
11/8/09 3:04 P

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I think she planned on putting me on synthroid but I guess she thought generic would be cheaper for me until we found a good level...
My hair falls out too! it drives me nuts...see she increased me once from 50 to 75 mg...I felt ok at 50 but complained my neck hurt all the time. Once she put me on 75 it was nuts...I would wake up in a ball of hair, it was everywhere. I think I was a little hyper too because I had trouble sleeping and would wake up with a racing heart. So I was changing insurance and was without it for a month so I went back to my old 50 mg meds...but then when I went back to her she told me to go back to 75.
I had also started taking the biotin at 75 mg because of the hair shedding, brittle nails, ect.
I too think it would be good just to try it...and if it doesn't work then there are other meds to try. But it might make me feel better!
oh and I told her about my shedding...she never said it was a big deal or that maybe it was a side effect of the meds or anything...

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


 current weight: 230.0 
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TGRIFF's Photo TGRIFF Posts: 679
11/8/09 10:23 A

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I can only tell you how I feel about synthroid and levothyroxine...I don't like either of them. My experience is that on synthroid I'm sluggis, cold, cranky, etc. and on leveothyroxine I'm all those things AND my hair falls out. I didn't like either of those options so I went to armour. Now I feel like a human instead of a zombie. But, armour is not for everyone. I've read some people's posts on here and they can't use armour, they do better on the others. But, you have to try each one to find out what works best.

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DAGNY99's Photo DAGNY99 Posts: 1,302
11/8/09 7:50 A

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Thanks.
I am new to hypothyroid since this year (beginning of January) I have done alot of research by lurking on here and other sites...
I guess it would not be unusual to suggest a certain medicine? I mean, I always see so many commercial about meds, not thyroid but others and they always say talk to your doctor about adding XXX medicine...
I'll have to call on Monday to get the lab results as I don't think that they are even open today. Would synthroid even be better than Levothyroxine? I was wondering if I could just request that they tell her I feel like I am still having symptoms so even if she thinks I am "normal" maybe going to a better medicine would improve it...

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


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TREESA57's Photo TREESA57 Posts: 3,767
11/8/09 7:10 A

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I would start with calling the office and get a written copy of the test results. Then I would post those results on here and let the gang here help you read those results. I think then we could all give you better answers to your questions. The drs office will give you a written copy of your results it is your right under the privacy act.

If you haven't got a smile on your face and laughter in your heart, then you are just a sour old fart!


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TGRIFF's Photo TGRIFF Posts: 679
11/7/09 10:04 P

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It sounds like you are very new to all this. First of all, keep getting on here to get good info. And, yes, you just ask your doc to put you on armour if that's what you want to try. Please get over your shyness, this is your health and only you know what's best. If your doc won't swith you to what you want, then you need to look for a new doc. Also, research, research, research. Make sure what you are asking for is what's good for you. But, this is YOUR body, YOUR health and YOUR decision. You have choices.

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DAGNY99's Photo DAGNY99 Posts: 1,302
11/7/09 9:23 P

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I have alot of questions...
Ok so last month around the 11th (give or take a few days) I had my blood tests for my thyroid levels. I did feel fine at this point. I got not confirmation that my levels were off so I figured I was normal.
But at the end of last month and the beginning of this month, I am not feeling fine at all! I am tired all the time, have gained 2 pounds that I lost last month and I think I have carpel tunnel (which I don't...but it feels like that)
When I got a small patch of skin on my neck, I thought it weird. My mom says thyroid causes dry skin. I moisturize daily with lotion that I have used since last year...I don't think I am allergic to them. Plus I have been taking biotin too for my hair and nails. So why the dry skin?
I did call the doctors office. They had never gone over my blood results so they sent a message to my doctor to do that and about my dry skin.
Then they called back and told me my levels were normal and to stop using my lotion and use this other brand of stuff...
I just switched from my lotion to a creme from the same brand and my dry skin did clear up...but I am still tired, aching, ect. If I have Hashimoto's disease, could my levels have changed that fast from the beginning of last month?
Also I take levothyroxine and have read alot about the natural thyroid and the T3...I was wondering do you just "ask" your doctor to prescribe these? I am thinking they might help me feel better, but am really too shy to ask...and plus they already don't think I need to change my dose anyways... emoticon
I told my mom I think I need to get my levels checked and she said it is a very expensive test and they only do that every 6 weeks or so...what should I do?

Goals:
SW: 280
GW: 150

Current Weight: 195

1st goal: 250 by 10/23/2008 -Goal met September 9 2008!
2nd goal: 225 by 1/18/2009 Goal met January 14 2009!
3rd goal: 200 by 4/16/2009 ---Goal met May 10, 2009!
4th goal: 180 by 6/25/2009----Goal Met!
5th goal: 150 by 10/8/2009


 current weight: 230.0 
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