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JLCONROD's Photo JLCONROD SparkPoints: (17,462)
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2/17/14 5:34 P

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A couple of days ago I updated by Spark Page and added a new Blog post about my January visit with my PCP who is also my Diabetologist, Endocrinologist, Metabologist, and a CDE.

Comprehensive lab results were perfect, other than slight low sodium levels (unusual, but good). Three month HbA1c was a fantastic 6.4, amazing considering over 43 years with genetically Brittle Type 1 Diabetes.

A few minor complications include hypoglycemia unawareness, also not usual with a long history of Type 1 and hypo symptoms are rare with human insulin. FYI, I use Novolog and several Basal rates. Control has improved noticeably since starting Insulin Pump therapy.

I use a Medtronic Paradigm Revel 723 Insulin Pump and a Bayer Contour USB NextLink Blood Glucose Meter which transmits BGs directly to my pump. Bayer Diabetes also sent me a complimentary Countour USB Next which I use as a back up meter, keeping it on my night stand for convenience in case of nocturnal hypoglycemia.

I am also now a Medtronic MiniMed Ambassador (volunteer) and provide peer support to other Medtronic MiniMed Insulin Pump users based on my personal experience. Disclosure: I receive complimentary materials and information which I can use as I see fit based on personal experience, but no other compensation. I do not represent Medtronic Diabetes except as a satisfied user.

Brittle Type 1 Diabetes was recognized by the National Institutes of Health (NIH) as a recognized Rare Disease, a distinct category of Type 1 Diabetes. Brittle Type 1 comprises less than 5% of all cases of Type 1, and consists of three categories: (1) Random incidents of hypoglycemia, (2) Random hyperglycemia, and (3) both hypoglycemia and hyperglycemia, the rarest of the three.

I have the third type, with random swings of hypo and hyper not related to overall health, diet, or insulin regimen. While challenging, this can be controlled by frequent blood glucose tests and compensating by adjusting Boluses, temporary Basal rates, and adjusting carbohydrates. Rather than considering this a roller coaster as it is frequently called, I liken it to walking a tightrope. Don't panic -- stay calm and focused, be alert and aware, and take it one step at a time.

The January physician check-up reconfirms to me this technique works!

Please take a few minutes to look at my updated Spark Page and Blog. Your comments and feedback there are welcome and appreciated!

My Spark Page:

My Peer Support Blog:

My Quick Update 2014 Blog:

Meanwhile, let's keep on keeping on! I am not a "diabetic", I have Type 1 Diabetes. It does not control or define me, I control this chronic but manageable condition!
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Edited by: JLCONROD at: 2/17/2014 (17:36)
John Conrod, Medtronic MiniMed Ambassador
Brittle Type 1 Diabetes 47 Years, Insulin Pump 7 years
Founder: BrittleType1Diabetes on Facebook

NOTE: As a volunteer MiniMed Ambassador, I receive promotional items and educational material to use and share as I see fit. No monetary compensation has taken place and any opinions expressed by me are honest and refle

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