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TONYTHETSANGEL's Photo TONYTHETSANGEL Posts: 231
3/19/13 9:34 P

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I'm sitting here reading the responses and I guess all of us have either learned to push through the pain or learning to push through. It can really be depressing to be in pain everyday, day after day, with no relief. Been there, done that! But I have learned that you have to figure out what works for you and try to do your best to keep yourself going! Listen at me, hum, I'm talking to myself too! For this has not been a good week or month. I have Sjogren's disease and I never know from one day to the next if its going to be a pain filled day or not. But none of us know, do we? I'm so thankful for this team and chair exercise team. They keep me trying, they keep me going. I started with the chair exercises and try to do at least 15 mins everyday. Some days I can barely do 15 mins. I exercise even if I have blown my meals for the day. Anyhow, the chair exercises got me moving and they are fun. Find something to keep yourself uplifted and moving!

Plus, we are all here to help! Sometimes just talking about it helps!

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WILMA102's Photo WILMA102 Posts: 1,486
3/12/13 6:47 A

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You're the right person to reply to this because your proof there is hope for us to feel better I will have RA forever but I can feel better if I lose the weight because carring an extra 70 pounds is hard on anbodys ankles I still have more bad days than good but I can't stop living I still enjoy life I just can't do it in one day

Team Leader
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Prednisone Before and After
Cass County NE Sparkers
"Eastern Star"


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~INDYGIRL's Photo ~INDYGIRL Posts: 16,002
3/11/13 11:13 P

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I remember finding out I was permanently disabled... but I keep getting better within limits.

Life is happening now, not 10 pounds from now.

230 lbs lost without surgery, crazy diets, diet products, or extreme exercise- so have hope!

Bethd101@comcast.net 317-964-3202 for texting

To join my team, go to Team ~Indygirl www.sparkpeople.com/myspark/groups_i
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TEXASLYNN's Photo TEXASLYNN Posts: 3,841
3/11/13 7:24 P

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Guess we needed to whine and moan, huh? Not being able to take aspirin is my biggest challenge because it seems to be the only thing that really provides any relief. I've got 3 different controlled drugs [Talwin, Vicodin, Tylenol #3] that I swap off and average taking one each a month but I can't work and medicate so...

Jesus Christ is Lord!

Make your words sweet; you may have to eat them!

No More Homeless Pets

On the Eighth Day God Created Texas

Stamp Out Puppy Mills


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NEWSPARKDEBBIE's Photo NEWSPARKDEBBIE Posts: 5,646
3/8/13 7:52 A

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Kristina I am the same way. I can take tylenol but not much of anything else...... I push through .Water aerobics helps so much and the heated pool really feels great! I am no where close to haveing the problems some of you do so UP I go to get busy!
Have a beautiful pain free day today my friends!

Co-Leader of Team Indygirl & NewSparkDebbie'
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=50783


Proverbs 16:3
Depend on the Lord in whatever you do,
and your plans will succeed.



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KMBJBB's Photo KMBJBB Posts: 1,209
3/7/13 10:07 P

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Wish I could take pain medicines but I am allergic to so many things they can't give me any. I have to deal with it. Luckily, I have a high threshold for pain.

Kristina

"Kindness is a language which the deaf can hear and the blind can read." - Mark Twain


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SNOWTGRR's Photo SNOWTGRR Posts: 691
3/7/13 9:56 P

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Oh yes my dear,

My back has just about everything you can name. lmao I have both Adult and Juvenile Spondy, bone spurs, bone on bone, ruptured disks, over a 6+mm retrolethesis, no fluid around my spinal cord for about three inches so it's touching the spinal bones and at any time there can be pain/legs or leg giving out to numbness etc. All that is just in my lumbar. lol I've lost over three inches because of all this even after have three levels stabilized, high blood pressure, high cholesterol, the list goes on and on. I can't be vertical for more than about 30 minutes at a time without major pain, walking with a walker for stabilization is painful. I'm also not allowed to bend over at all for any reason, lift anything over 12 pounds and definitely no twisting or anything towards the side.

All that being said I still get up everyday and do what I can. It takes me a lot longer than it used to but I do it anyways. Cooking is so painful that I have my 17 year old do it for me most of the times. If not we do it together so it doesn't take so long. I always choose everyday to have a happy demeanor. I have learned over time that if you are happy and laugh then people like being around and with you. If you are nasty and crabby then you are always alone and that's not fun!

I have a great pain management doctor as well who doesn't believe in just pushing pills. He gets me patches and compound cremes as well as a TENS unit. The last don't take the pain away completely but in combination reduce it to a manageable level during the day so I can drive and function clear headed. At night I take some of the pain pills if I can't take it anymore or if it rains like today. On rainy days I usually am stuck in bed on pain meds because the pain is so bad!

I don't like to make excuses either and I get very frustrated when I can't do something. I push it to the limit all the time and sometimes over the limit and then I usually end up in the ER or sometimes admitted to the hospital.

My Neurosurgeon is demanding I lose weight down to 170 pounds before he will do my next surgery that will hopefully take away most of the pain and "fix" most of the issues.

Reading this over I bet you can tell I'm on pain meds right now. lol Kinda rambling.

That's my sob story and I'm sticking to it. lol But as always no excuses. Oh, also I have a very, very high pain tolerance. All of my doctors after seeing the Meylogram and the MRI's and X-rays all wonder how I'm still walking. They all shake their heads at me and warn me to "be very, very careful"!

Also since the spinal cord is touching the bone, the bottoms of my feet always feel like they have Plantar Faciitus in both feet. If I put the compound creme on my back the pain in my feet goes away for a while. Weird. lol

Have a great night and don't sweat it. Keep on trucking and doing what you can. I totally understand what it is like to be in pain all the time. If you ever want someone to listen feel free to send me mail. emoticon

Patty

Edited by: SNOWTGRR at: 3/7/2013 (22:00)
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TEXASLYNN's Photo TEXASLYNN Posts: 3,841
3/7/13 2:57 P

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Not that I'm particularly stoic or anything but I refuse to let a label define my life. There is pretty much nothing named here I don't have: degenerative disc disease along with two ruptured cervical discs, three severely ruptured thoracic discs, three ruptured lumbar discs with sciatica; osteoarthritis in all major joints; both knees bone on bone, the right one ulcerated, the left one with two meniscus tears, spurs, and a partially ruptured ACL; 60% loss of range of motion in the left shoulder following a rotator cuff injury and incomplete shoulder separation; bone spurs in both feet and the left ankle with plantar fasciitis in both feet; Morton's Neuroma right foot; reconstruction of right elbow with relocation of ulnar nerve; pillar pain left hand following carpal/cubital tunnel releases; dislocated right temporomandibular joint; GERD; polycystic kidney disease with Stage 3 renal failure; polycystic liver disease; chronic fatigue syndrome; progressive left ventricular failure. I'm sure I could go on but you get the picture. Guess what? I go to work every day. It isn't easy, some days it's downright unpleasant because it is over a quarter mile from my parking space to my office one way. I agree that walking, treadmill, stationary bike are almost totally unmanageable and it grieves me I can't do my own yardwork/gardening anymore but I don't think those things give me a right or an excuse to whine, lay around, and do nothing but watch television and get fatter. And please no one think I'm accusing any of us as doing that. Our problems are very real and painful. Reading Beth's story never fails to motivate me and make me realize there are things I can do every day to make my life better or at least get through the day.

Edited by: TEXASLYNN at: 3/7/2013 (14:58)
Jesus Christ is Lord!

Make your words sweet; you may have to eat them!

No More Homeless Pets

On the Eighth Day God Created Texas

Stamp Out Puppy Mills


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CAROL3SAN's Photo CAROL3SAN Posts: 20,126
3/7/13 1:19 P

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Gee, it looks like many of us have some serious medical problems to deal with. Including me with my chronic bad back and heavy tired legs and feet. I feel like I can bearly move my feet sometimes. Seeing that others are having the same or similar problems, I believe all of our problems comes from being too heavy. Obesity leads to arthritis...some refer to it as degenerative joint disease.
Also, I would like to live to be well into my 80,s or even longer. But I never saw a 250 pound 80 year old walking around anywhere before. All who have been fortunate enough not be diagnosed with diabetes are very lucky. With diabetes, there are multiple problems to try to avoid that leads to severe complication, including kidney failure, amputations, blindness, heart disease and stroke.

So if nothing else good happens to me today, coming here to visit this thread has definitely been a blessingfor me. I realize more than ever that I must do what it takes to beat the battle of the bulge, because if I don't, the battle of the bulge will beat me.
Have a good Thursday every body. emoticon

Edited by: CAROL3SAN at: 3/7/2013 (13:23)

"You never know just how strong you are until being strong is the only choice you have"
Unknown
"....This above all, to thine own self be true"
Wm Shakespheare
"If it is to be its up to me"


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NEWSPARKDEBBIE's Photo NEWSPARKDEBBIE Posts: 5,646
3/7/13 10:21 A

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Very well written...... and so very true!

Co-Leader of Team Indygirl & NewSparkDebbie'
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=50783


Proverbs 16:3
Depend on the Lord in whatever you do,
and your plans will succeed.



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EXOTEC's Photo EXOTEC Posts: 3,327
3/7/13 10:15 A

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I'm sorry to hear your news. As others have noted, there *are* things you can still do. Water exercise is great. Chair exercises are great. I have a series of Tai Chi DVDs which are intended for people in wheelchairs, and another series of really low-impact Tai Chi. I run them both in my computer's CD drive sitting here at my desk. Both of these are a "physical meditation" for want of a better term. They help improve balance - physical and mental. You can get tone and more fit doing a combination of these things and not overstress yourself to get there.

I've been slowly losing mobility for several years. This is so frustrating to me, because I was always a very physical person -- one of my early jobs was farm labor on a horse farm. Translate: tossing about 50-75 pound bales and contending with young unruly horses! This has been a real challenge for me to adapt to a limited lifestyle. It doesn't keep me from anything I set my mind to do that I'm still capable of. I'm not depressed or fatalistic. Annoyed, sometimes! LOL Life is not over because some things are past. There are other things ahead which you may not have even realized you will like, because you never had reason to pursue them. Give yourself freedom to explore and find new pleasures.

My DH has a degenerative bone disease in his lower back. It can be very painful for him some days. He's been referred to a chiropractor who is also an acupuncturist. They have massage therapy in the office as well. Both these things have been very helpful for him. He'd never make it on pain meds alone.

On a hopeful note: don't assume you can't follow your dietary plan or lose weight because of this development. I've lost a LOT of weight, and have not been able to "exercise" even one day of the time I've been losing. Exercise is great if you can do it: it improves your mental outlook and makes for a more toned body. But as a weight-loss tool, it simply isn't necessary. If you can't believe the recent research into this, take it anecdotally from one who has been there (me!). You CAN do it without exercise.

You will find your new path. Listen to your body, give yourself enough lenience to accommodate the changes you're faced with now. But don't give up; you will find things to fill voids which will also give you pleasures. Trust me. I'm there!





...the problem with people these days is
they've forgotten we're really just animals ...
(attributation forgotten)

We did not create the web of life; we are but a strand in it.
~attributed to Chief Seattle

We don't have souls. We ARE souls. We have bodies.
~C.S. Lewis


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NEWSPARKDEBBIE's Photo NEWSPARKDEBBIE Posts: 5,646
3/6/13 3:43 P

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At 338 pounds I had such severe pain. I have arthritis in my feet, hips, knees, back, shoulders, and my neck. I also have bone spurs as well. I was constantly in pain and walking was so awful to deal with. My doctor had bugged me for 3 years to try water aerobics but the lazy and skeptical part of me just never got around to it. Then one day I decided to give it a try.... why not right?
Our local pool is heated and the beginning was 1/13/2013..... by the end of the 2nd week my pain had lessened by at least 50 percent. I am not pain free today and I have to be careful how I turn or not to do too much at once but the day to day pain has went down by 80%....
It's so worth a try right? What do you have to lose? Just be sure if you do try it give yourself at least 2 weeks to see the results..... Take Care!


Co-Leader of Team Indygirl & NewSparkDebbie'
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=50783


Proverbs 16:3
Depend on the Lord in whatever you do,
and your plans will succeed.



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WILMA102's Photo WILMA102 Posts: 1,486
3/6/13 3:05 P

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When I found out I was disabled and probably will get worse i cried and felt sorry for myself after awhile I figured that didn't do any good so I decided to just do my best that's why I like this team we support each other. I still have days when I feel sorry for myself but not so many nowt

Team Leader
Victoriana
Prednisone Before and After
Cass County NE Sparkers
"Eastern Star"


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KMBJBB's Photo KMBJBB Posts: 1,209
3/6/13 2:11 P

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Emmabe1 - I so wish there was a like button or something similar here on SP. I love your group and have been doing some of those chair exercises. They Rock!!

Kristina

"Kindness is a language which the deaf can hear and the blind can read." - Mark Twain


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EMMABE1's Photo EMMABE1 Posts: 17,841
3/6/13 2:04 P

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Realising you will be limited in what you can do fort the rest of your life can be hard - but learning to overcome that - can make you a stronger person.
Take time to absorb the news, then start to think to the future - there are spo many things you CAN do - so much ahead of you still
Click on the main team picture in this team (the picture of Beth) and it takes you to The Chair Exercise YouTube Channel where there are free videos of chair exercises that you can follow. Its surprizing the workout you can get from chair exercise.
And never forget, one door closes, but another opens - so look for other ways you can accomplish things - they are there.
The Sparkpeople Chair Exercise Team can be found at www.sparkpeople.com/myspark/groups_i
nd
ividual.asp?gid=32265


Edited by: EMMABE1 at: 3/6/2013 (14:27)
Everyone smiles in the same language.

www.chairexercisefun.com


THOMS1's Photo THOMS1 Posts: 13,787
3/6/13 1:37 P

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emoticon emoticon

Becky


"Anything is possible, It's your choice whether or not you choose to make IT happen."




"If a man really wants something he will find a way, if he doesn't he will find an excuse." Stephen Dolley, Jr.





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LRB444's Photo LRB444 SparkPoints: (16,611)
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3/6/13 1:34 P

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I am so sorry to hear this. I've had plantar fasiitis in both feet at the same time so I can truly sympathize.

There are a lot of chair exercise videos on Sparkpeople. I did one once at work. It was 10 minutes long and my heart was pumping and I even broke a sweat. They are great videos.

~Lisa


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IAMAGEMLOVER's Photo IAMAGEMLOVER Posts: 38,962
3/6/13 12:12 P

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I have degenerative disc disease and osteoarthritis in both knees. They are bone on bone. I work out in the therapy pool which helps tremendously with the pain. My feet are completely numb and every night I have to check the bottoms of my feet with a mirror to make sure I have no slivers or cuts because I wouldn't feel them. For 7 years now I have to have a homemaker 6 hours a week because there is housework that I can't do. I can't carry anything heavy so cooking spaghetti and things like that is impossible. My homemaker does it.

I use the recumbent bike at the fitness center and I have a cardio glide at home. If my knees are not bothering me, I do Coach Nicole videos and DVD's. If I am in pain, I do the chair exercises.

I love SparkPeople

Today is the first day of the rest of my life.

I am responsible for my own happiness.

My name is Bonnie I live in CT ET

I went from 258 to 126 pounds and have maintained it since 12/28/12.

Too Blessed to be Stressed.






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EVIE4NOW Posts: 35,984
3/6/13 12:04 P

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i am so sorry you all are going thru such pain. all i can say is do your best and only do what you can do for as long as you can do it without causing further pain. good luck to all.

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KMBJBB's Photo KMBJBB Posts: 1,209
3/6/13 11:03 A

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I so know what you are going though. I have fibromyalgia and neuropathy. I am unable to sit for long periods of time, stand for more than 5-10 minutes at a time and also cannot lay down for long periods of time. Makes for a very interesting and pain-filled life. I do walk, but have to use a rollator/walker. Have been told I will be in a wheelchair soon and my family is prepared for it. I think I am too young, but then I think of all the people who have had this for their whole lives. This started for me when I was 16 and I am now 49.



Kristina

"Kindness is a language which the deaf can hear and the blind can read." - Mark Twain


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BIGREDANGEL's Photo BIGREDANGEL Posts: 4,882
3/6/13 10:39 A

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Im so sorry you got this news! But I am glad you're not going to let it get you down! There are many disabled members on here that would be happy to help you thru and give you tip and pointers ;) have you ever tried chair yoga? There are certain yoga stretches for pain mgmt! Hope you find something that will work for you and as always the team will be here for you emoticon



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BEESPARKLE Posts: 5,170
3/6/13 10:24 A

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Sorry to hear of your news.



Edited by: BEESPARKLE at: 3/6/2013 (14:25)
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JUDYAASH's Photo JUDYAASH SparkPoints: (0)
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3/6/13 10:17 A

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I was declared permanently disabled 10 years ago. After neck surgery they said I had a degenerative disease in my neck and lower back and would never be any better. I have constant pain as well as nerve pain that causes me to want to scream. I found the chair exercise team and am working to be as mobile as possible. It was working until my pain doctor took me off all exercise for a while. I hope to be back in the challenges as well as some of these exercise challenges as soon as possible. You might want to try it. Any way I hope you feel better and emoticon emoticon emoticon

“Only as high as I reach can I grow,
Only as far as I seek can I go,
Only as deep as I look can I see,
Only as much as I dream can I be”

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PSIMSON's Photo PSIMSON SparkPoints: (64,885)
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3/6/13 10:16 A

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Hi there; That's a really tough situation for you and it sounds so painful. I'm waiting for a knee replacement in a couple of months, so I can't stand up to exercise. Sparkpeople has several exercise videos that are done seated and that's what I'm doing. I alternate the ones for core, cardio and upper body and feel I'm getting a decent and varied workout. Good luck with your journey.

Paula Simson
Vancouver BC, Canada


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BUGGLE3's Photo BUGGLE3 SparkPoints: (5,612)
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3/6/13 9:38 A

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So for three years I've lived with severe chronic foot pain, had surgery last May that didn't help, and went for another opinion this week. The surgeon said there's nothing more to be done, I have significant, painful scar tissue and this will be the way I'll be for the rest of my life. I still walk around, but it hurts -- every step. Cooking dinner means I have to sit and rest. I avoid the grocery store, as standing in any line is painful. What's frustrating is I used to walk as my exercise. I've taken to the exercise bike, although more than a half hour causes pain. Does anyone else cope with ailments that make exercise difficult? I'm determined not to use this as an excuse not to get fit, but today's spark goal -- envision your ideal fitness goal -- left me chuckling. Also, I find the daily pain frustrating. I'm a pretty optimistic person and I realize it could be worse and look on the bright side, but admit it can make me cranky -- and make me want Ben and Jerry's -- when my dogs are really barking. Just thought I'd share. It was frustrating news.

"Every journey begins with a first step" -- Confucius


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