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HEALTHYBEAR24's Photo HEALTHYBEAR24 Posts: 13,101
1/22/12 7:04 P

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Welcome to the team Kristen. I' m please to meet you

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11/20/11 2:56 P

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Man you guys have been through hell and back. In a way I am more fortunate. For my husband he cannot have chemo, radiation or surgery. He has had several strokes, one major one. If they stop his blood thinner for a week to 10 days for any of these treatments he is very likely to die from a stroke. Also because of his age (80) he did not have the physical health to go through it. Especially if he vomited continually like some cancer patients do, he would lose all the medications he is talking. So the cure is worse than the disease. He is followed by palliative care and luckily my G.P. is the doctor that oversees the palliative care residence. He is being moved to an assisted care living facility in Feb. and hopefully this will remove some of the stress of caring for him the last 17 years. Before that I took care of my son who is profoundly intellectually impaired. He has autism and the mind of a 2 year old.

But life goes on and we all have to deal what we have been given. What does not kill you will make you strong. You sound like a strong person.

I hope things go well for your husband and yourself. Don't forget yourself in the equation as if you are ill you cannot take care of dh.

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Dianne.

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KOZIESMOM's Photo KOZIESMOM SparkPoints: (968)
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11/20/11 2:14 P

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Josh had a biopsy on April 5th of 2011, on April 18th we were told that he had about 2 years to live (with treatment). We were also told that his tumor, which was about the size of a quarted, was inoperable because of where it is located in his brain. He continued to have more and more seizures daily.
In May Josh began 6 weeks of radiation along with temodar (chemo pill).
After Radiation was over (he got the full amount that his body could handle for his lifetime) we moved 500 miles away to where our families live. We met with a new Neurosurgeon hoping to become part of a clinical trial, but when imaging came back the tumor had grown to the size of a baseball and Josh was having 7 seizures a day. This neurosurgeon scheduled surgery right away.
He was able to remove about 97% of the tumor. After this surgery Josh had trouble using his right leg, right hand (numbness) and the right side of his face drooped. He also had trouble speaking, partially from the numbess in his mouth and partially because the part of the brain that was worked on is so close to where speak is formed. The doctor informed me AFTER the surgery, that if that hadn't been removed he only had 3-6 months left to live...meaning he would either be dead now or be on his deathbed.
after 5 weeks Josh began Chemo, Avastin and CPT-11. 2 weeks after that, right before his second chemo appointment Josh's temp spiked, after 3 trips to the ER they finally discovered that there was an infection in his brain. Surgery had to be postponed for 4 weeks until he was far enough out from the Avastin treatment. He had surgery on October 13th to clean out the infection, they removed a large portion of his skull that was infected too. We are now just over 4 weeks out from that and he's doing pretty well other than a dent and hole in his head. He's been on I.V. antibiotics since the beginning of September, and is scheduled to continue them until mid-December. Once the antibiotics are done then he will start chemo again. And at some point, months in the future, he will have a prostetic bone piece to replace the one that was removed.
So that's where we are.


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11/20/11 8:13 A

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Welcome Kristin

My name is Dianne and my dh was diagnosed with terminal lung cancer in June 2009. He does not show any symptoms at all. The only way that we found out is that one day in June his feet were really swollen and blood had pooled at the bottom of his feet (inside). The dr. immediately sent us to a lung specialist. I knew then that something was really wrong. We got sent for a CT scan followed by at PET scan. The news was official in October. His tumor is about the size of an egg in his left lung and has spread to the lymph nodes. We are going for another X-ray in a couple of weeks. I say terminal because his body cannot accept any treatment. The dr. said that the cure at this point is worse than the disease and all it would do is prolong his life by a couple of months at best.

How is your husband doing. Is he having to go through chemo or radiation? I know the stress level of the caregivers increase every day as we don't know from day to day what to expect. My heart goes out to you and your husband. How are your children dealing with the situation? How old are they?

I stop by this site each day, so please feel free to come and chat about anything you want. I will be supportive, understanding and patient. For me it is a relief to Be able to share this with someone else.

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JIBBIE49's Photo JIBBIE49 Posts: 74,600
11/20/11 12:03 A

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emoticon Welcome to the Team. I hope u r able to get some time for yourself so u stay strong. Cancer is an awful illness. My son who is now 27, had Testicular Cancer, & his Cat Scans have come back "clean" so we hope he remains well, as he had 4 Rounds of Chemotherapy after his surgery.
I do hope your husband has good insurance as that makes a big difference.

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11/19/11 11:02 P

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My husbands health took a major turn in October of 2010 when he had a grandmal seizure. For months after that we were on a mission to find out why all of a sudden he began having seizures, finally in February we learned that he did in fact have a brain tumor, and in April it was diagnosed as Glioblastoma.
Hi, my name is Kristin, I'm a mother of 3 and a caregiver to my husband (who is doing so well right now). My weight has always been an issue, but in the past year it's gotten even more out of control and now I am taking control back and doing all that I can to get my family healthy.
I have not been part of any support group before, but I think that talking to others who really understand what's going on, or can truely empathize really does help alot.
Thanks for listening...

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