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11/6/10 3:26 P

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Hi team! My DH has been sick for the past 2 days from the chemo and since Thursday morning his sugars have been out of sight from the steroids. His oncologist gave me his personal cell phone # to call every time his sugars are over 200 so that he could let me know just how much insulin to give him. He personally answers every time no matter when I call. I really appreciate that.

My question for all of you is hard. One of the symptoms of multiple myeloma is mental confusion. I thought my DH was suffering from early dementia before the diagnosis. It is very frustrating for both of us, I think more for me than for him. The difference is, he now knows that it is one of the symptoms and he wants me to tell him when he is confused. I don't think it is a good idea to point it out all the time. What do you think?

Lynda

Lynda


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11/5/10 4:52 P

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Thanks for the welcome and the advice. Unfortunately, I can't eat any fresh fruits or vegetables. I have a condition called gastroparesis and I have been on a modified liquid diet for the past 15 months. If I stray from it I get very sick, lose a lot of weight and have severe abdominal pain. I've lost over 100 pounds in the past 15 months. The doctors actually want me to gain some of my weight back, but I am unable to do so at this point. I'm 5'8" tall and I only weigh 115 pounds. That is not enough, especially considering the fact that I have a large frame. I kind of look like a skeleton.

I do appreciate your concern about junk food, however. Thanks. I also appreciate the comfort of God's word. Thanks for the welcome.

Lynda

Lynda


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JIBBIE49's Photo JIBBIE49 Posts: 75,487
11/5/10 12:27 A

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Lynda, I know you are under a lot of stress, but please don't go back to eating a lot of junk food now. You really need to maintain good eating and take care of yourself, or this stress can be hard on your body. I'm not trying to give you a lecture at all, but just remind you that fresh fruit, veggies, etc. will help you have your strength.
I am sure your DH's doctors will give him plenty of pain medicine. Tell him to take it as it will help him keep up his strength as pain is very exhausting. emoticon

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11/4/10 4:14 A

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emoticon Lynda, I am sorry you and your husband are having to go through this ordeal.

God is good. Keep the faith.

May you both be blessed with the peace that surpasses all human understanding.

God Bless You both.

I will be praying for you.

Heila, Cape Town South Africa. emoticon

My God shall supply all your need according to his riches in glory by Christ Jesus. Phil. 4:19

The Lord sustains the fatherless and the widow. Psalm 146:9

Life isn't about waiting for the storm to pass... It's about learning to dance in the rain.


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11/3/10 1:58 P

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I've read all the posts on this thread and I'm sorry for all that you are all going through. I truly understand how the patient feels as well as the family member. Twice within the past year I have been diagnosed with cancer; once with metastatic spinal cancer and once with transitional cell carcinoma of the left kidney. Both times the diagnoses came from multiple specialists and they were positive that they were correct. Both times, months later they were proved wrong. I know how it feels to "have cancer" even though they were false alarms. I'm glad I know, because now I can help my dear DH.

Last Thursday he was definitively diagnoses with multiple myeloma. This is a form of bone marrow cancer that attacks the white bloods cells of the plasma. His platelet count was over 1 million so he had a bone marrow biopsy. It was reviewed by 3 radiologists and 2 oncologists. Multiple myeloma is incurable. The prognosis is unknown. From the time of diagnosis the patient may have anywhere from weeks to 5 years. My DH has his first chemo session tomorrow morning. Again, we do not know how he will respond to that since he has so many other medical problems to deal with at the same time.

We have a strong faith in God and a lot of confidence in his hematologist/oncologist. That's very important. We have been busy all week getting business affairs in order so that we can enjoy whatever time God has given us together.

Please pray for my DH, that he will not suffer. He is susceptible to infection, bone fractures, severe pain, exhaustion and mental confusion. He is already exhibiting the mental confusion, exhaustion and the pain. Thank you in advance for your prayers.

Lynda


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