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ZEBRAMOM1's Photo ZEBRAMOM1 Posts: 2,307
9/4/09 5:10 P

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Thank you everyone for your support!

Praise God - we are NOT dealing with cancer! This is a blessing on more than one level. Obviously it is good for my son's physical health, but he has many mental health issues which could have been made worse with this diagnosis.

We do have a follow up with the surgeon in 2 weeks just to see how the nodes are progressing.

Artie - I am sorry for what you are going through. I know it very easily could have been us. I am grateful it is not, but do not wish it on anyone. Offering up prayers for you and your son.

"Live in such a way so that when your feet hit the floor in the morning, the Devil says "Oh, NO, she's awake!"

I can do all things through Christ who strengthens me. Phil 4:13


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ARTIE322's Photo ARTIE322 Posts: 725
9/4/09 8:55 A

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I, too, know the frustration of "hurry up and wait". My son had a pea-sized lump on his arm. GP doc told him it was most likely a cyst, but to come back if it changed. To make a long story short, within months he wound up at Sloan-Kettering in Manhattan to have it (soft-tissue sarcoma) removed. By this time it was the size of a walnut. Surgeon was confident that everything was removed. At his 4 month follow-up CT, however, it was found to have metastized to his lungs. He is now undergoing chemo (estimated 6 months), then surgery to remove the tumors and affected areas of his lungs, followed by more chemo.

My first reaction, and my son's also, was to rush to the internet and read, read, read. The more we read the more frightened we became. But then we made some decisions, the most important one being that we're going to face this with determination and optimism.

You cannot change what is. Take the hand you have been dealt and make it the best you can. Recognize that there will be difficult days ahead, but love and support can help you get through this.

Good luck and many prayers will be going out for you.

Take one day at a time, keep putting one foot in front of the other. Don't look back except to see how far you have come. Take comfort in the expressions of caring from loved ones and strangers alike. Most importantly, believe in yourself. You have the strength to withstand any storm.



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ZEBRAMOM1's Photo ZEBRAMOM1 Posts: 2,307
9/2/09 4:24 P

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We had the appointment at Children's Hospital last Thursday and the biopsy was on Monday. Now we are waiting for the biopsy results. My gut says this is Lymphoma. There were more tumor/nodes found on both sides of his groin. The doc spent more time talking about how to proceed if it is Lymphoma than what we do if it's not.

Hurry up and wait.

"Live in such a way so that when your feet hit the floor in the morning, the Devil says "Oh, NO, she's awake!"

I can do all things through Christ who strengthens me. Phil 4:13


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JIBBIE49's Photo JIBBIE49 Posts: 74,012
8/24/09 1:09 A

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I have no idea about that, since my son has had TESTICULAR CANCER, but I sure wouldn't waste time with a lot of talk instead of getting those tumors out of their so they can see what he is dealing with and get treatment started. Not wasting time is what matters. My son was diagnosed one day and had surgery the next morning, when the doctor saw on the Ultrasound that he had a cancerous tumor. The lab report took a week to come back and then he started Chemotherapy.

Edited by: JIBBIE49 at: 8/24/2009 (01:10)
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KAT860's Photo KAT860 Posts: 79
8/18/09 4:41 P

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Hi, I am so sorry to hear this about your son. I know you are very stressed. I don't know what you should ask but I want you to know I will pray for your son to have a good outcome and for you to know the right things to say and do and comfort for you. Hugs, Kathy

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ZEBRAMOM1's Photo ZEBRAMOM1 Posts: 2,307
8/18/09 4:34 P

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Hello all-

I'm new to this team and may not qualify, but I'm trying to be proactive.

Last week my son's foster mom (he's in court ordered care due to juvenile delinquency issues) called to say that she had taken my son (Tom) in for a routine physical and the doctor found 2 lumps near his collar bone that are about 1.5 cms each. Apparently there is another lump behind Tom's ear that he didn't tell the doctor about.

The doctor immediately called to schedule surgery. He said he had never seen lumps (lymph nodes) be this big without it being Hodgkins Lymphoma. Of course, this freaked me out a bit and I was out of town when I got the news.

We have scheduled a second opinion at Children's Hospital. I didn't know anything about the doctor or surgeon that were involved and we are still his legal guardians so we have the right to make medical decisions. Children's is not that much farther for foster parents and it's closer for us, plus is a far better facility - in my opinion. The surgery will NOT happen at the second opinion. This is more to discuss what our options are and if this doctor feel that it is cancer and if surgery is necessary.

I have been researching what we are dealing with and trying to find out what I can expect.

I would love any information anyone can give me about questions to ask, what the options are or anything else I need to know.

Thanks.

"Live in such a way so that when your feet hit the floor in the morning, the Devil says "Oh, NO, she's awake!"

I can do all things through Christ who strengthens me. Phil 4:13


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