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GARDENSFORLIFE's Photo GARDENSFORLIFE Posts: 46,512
9/29/18 8:51 P

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Interesting- I wonder what makes the it supportive- what is different in the setting.



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9/22/18 11:53 A

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Will there be activities available?

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9/22/18 7:52 A

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This is really great. I have seen many people facing Alzheimer's. My friend's mother has Alzheimer's and he is planning to give her the best environment and treatment.

I suggested him about the kosher assisted living jchcorp.org where his mother can get the best environment. There the caregivers are focused on creating a supportive and comfortable environment for people with Alzheimer's.

Edited by: ERNESTBROOKS at: 9/22/2018 (07:56)
GARDENSFORLIFE's Photo GARDENSFORLIFE Posts: 46,512
5/19/18 10:38 P

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That would be wonderful!



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5/14/18 8:11 P

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I recently read of a lady whose memory improved with a mediterranean type diet, Lots of fruits & nuts.

Edited by: GRANDMAKARENG at: 5/20/2018 (12:18)
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SIMPLY_JAE's Photo SIMPLY_JAE Posts: 18,534
5/14/18 3:25 P

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That is interesting

The pain passes ~ only the beauty remains...


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GARDENSFORLIFE's Photo GARDENSFORLIFE Posts: 46,512
11/23/16 7:55 P

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Interesting. Thanks for posting. emoticon



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11/23/16 4:55 P

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Did you know that India has a lower rate of ALZ ? Researchers think the use of Turmeric may be the reason. i take a Turmeric/Curcumin supplement.

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8/20/16 11:31 P

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emoticon emoticon emoticon



"... my God is the rock of my refuge."
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8/16/16 10:20 A

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Doing your own research is a smart thing! I did read that muscle relaxers may help slow dementia. I take muscle relaxers for my fibro pain so that would be a good thing for me!

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8/16/16 7:46 A

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Unfortunately, Doctors are really quick to used medications instead of foods.

I have researched Seratonin & Melatonin foods (to counteract depression)

Instead of putting my DH on Zoloft which MUST be taken daily, I am giving him a banana, an orange, and nuts (he likes cashews).

His depression lifted within hours! And his muscle mass and appetite are improving. Since he is practically 95, I'd say this is awesome!

It's worth looking into as every medication has side-effects.

Linda
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I didn't "make it happen" the first time, I "made it happen" the last time!



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6/27/16 11:12 P

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Thanks but I really get more than I give. It really is more blessed to give than to receive.

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GARDENSFORLIFE's Photo GARDENSFORLIFE Posts: 46,512
6/27/16 7:54 P

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I am so glad you go visit the people in the memory care unit. There are so many lonely people. You are just great! emoticon



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6/27/16 10:55 A

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I know very little about the medications.

I visited the memory care unit Saturday night. One lady was sad & in her room. She was happy to see me & cried when I ask how she was doing. She said they were mistreating her & she only had 2 showers since she came. I know that is not true but it is true to her. She said she misses me & I hope I am able to visit more.

Another lady is in the hospital. We were just 4 sitting at the table but we enjoyed some music together. They remembered the old songs & I am thankful I found the book of music at a garage sale. One lady is just turning 71. I am thankful I am still able to stay in my home even though it is small & not fancy, it is my home. I will be 70 soon.

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GARDENSFORLIFE's Photo GARDENSFORLIFE Posts: 46,512
6/25/16 10:18 P

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emoticon emoticon
Hoping to connect to team members. Come join us on this forum or post on the wall.




"... my God is the rock of my refuge."
Psalm 94:22

"Peace begins with a smile.."
Mother Teresa

Fall Seven Times
Stand Up Eight
Japanese Proverb

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4/26/14 2:19 A

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Please let us know what medications you are talking about - that's one of the main decisions I feel I am making a lot with my Mom.

Leslie MO
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BELSNICKEL's Photo BELSNICKEL Posts: 2,792
4/8/14 7:08 P

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Thanks for your sharing. I've seen the team get busy slow and busy again
Right now it's slow. BUT do not give up. IF you post they come.


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4/6/14 4:55 P

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My dad had reactions to Alzheimer's medications. The pharmacist actually suggested a medication that has no side effects. I don't believe it's main use is for Alzheimer's, though. My dad has been on it for over a year, and the doctor says to leave him on it because it has vitamins and other good stuff in it that is good for Dad. I'll check to see what it is and post again later. I have noticed, and we have been told by my dad's doctors, that the medications only work for a short time.

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BELSNICKEL's Photo BELSNICKEL Posts: 2,792
3/24/14 7:18 P

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The car, S W, and me all got inspections today. The car the best report.

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12/3/13 2:04 A

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I can tell you all - being off the Depakote has been a life saver for Mom. She is no longer using any kind of walker - She can get up out of her chair pretty easily now. She is able to walk (slowly) into restaurants with us and is not "confused" by all the action going on and is able to get to the table with no assistance. She is now able to do daily activities that she wasn't able to before -- fill up the dogs' bowls of water & food, load the dishwasher, take her dirty clothes to the hamper, clean off her plate at meals. I have been sick for several days and she made me a grilled cheese and soup for my supper tonight

I think over medication is a HUGE problem and caregivers really need to take heed of this. Please check your love ones medications and check with the Dr's and Specialists to make sure that they need to be on those prescriptions.

Leslie MO
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10/25/13 12:10 A

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EEG results were normal! We are now "weaning" Mom off of Depakote - she has been on it for so many years, she doesn't even remember much about why she is on it. Why take meds you don't need? Of course Dr said to call her immediately if there is any reaction at all to weaning her off. We are reducing the amount of the meds by 1 pill every 2 weeks.

Mom's still getting around pretty good - the baclofen seems to be helping and we started about 2 weeks ago giving her 3 tsp of the virgin coconut oil a day. She doesn't like it, but she is willing to take it by mouth each time.

Leslie MO
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Helen Keller explained the purpose of community best, when she said, "Alone we can do so little. Together we can do so much."

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10/18/13 12:00 A

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Still waiting on answer on the EEG - called the Dr's office today - hasn't called back.

Edited by: LESLIE_2B_LESS at: 10/18/2013 (00:12)
Leslie MO
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10/17/13 12:58 A

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Well, after a week of not being on the carb/levo (parkinson's meds) I think Mom is actually getting around a bit better, but that could also be from the baclofen. But we are def seeing a slight improvement on her movements.

The EEG went fine - was about 1 hour long - I read a book on my Googlepad (sure wish I would have had that during Dad's treatments) and got a bite to eat. Waiting on the Dr for the results. I think she should have read them today, as she is at the hospital on Wednesdays. I'll call the office tomorrow afternoon if I don't hear from them.

Leslie MO
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Helen Keller explained the purpose of community best, when she said, "Alone we can do so little. Together we can do so much."

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10/12/13 2:17 A

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Mom & I went to her new neurologist on Thursday. We both really liked her. She was very friendly, but also very professional. Her name is Dr. Michelle Wood. Her practice is at St. Joseph Health Center and St. Joseph Hospital West.

She went through a lot of hands on testing, reflexes, walking, etc... Asked a lot of questions, reviewed all of Mom's past medical records & MRI's, CT scan's, etc...

She seemed to agree with us on the Parkinson's diagnosis and has said to quit the
Carbidopa/Levodopa therapy - it had made no difference in Mom's symptoms to begin with
She actually thinks Mom has parkisonism
http://www.mayoclinic.com/health/parkins
onism/AN01178
She says that people that have had strokes can show these symptoms.

She also questioned why Mom is on Depakote. I also have asked this with Dr. Smith, Dr. Brown-Foot and Dr. Al-Dahhk. No one wanted to address this as Dr. Baaig prescribed this years ago when Mom was still working at the courthouse and apparently had some kind of seizure or black out and was prescribed this medication. So, now Mom is going in for an EEG on Monday to assess whether she needs to be still on this medication.

She did prescribe a new medication for the problem of her "dragging" left leg. This is baclofen. She seemed a bit surprised (but hiding it) that this medication hadn't been offered to Mom - She thinks this might be helpful with the after affects of the mini strokes on Mom's left side.

She also went over the brain scans of Mom's MRI and Cat Scans in a lot of details that we haven't had before. It was actually very scary and sad. There is a lot of "white matter" in Mom's brain - they can not really say why that is. They just don't have that technology right now. The white matter takes over the good part of the brain and squeezes it out. Her cerebellum is significantly damaged - which controls her balance - so that is why she falls so much.

She thinks continuing her Physical therapy with including lots of stretching is very important, starting this new medication and keeping her as active as possible is the best action we can take right now. As far as her memory goes -- she thinks the Aricept with the Nemenda is good right now... really her memory hasn't had a negative turn for awhile - pretty much staying the same, but after we see what the new medication for the left leg dragging, weakness has an affect, she will think about trying Exelon patches - I've read about those also.

So I really think this was a good choice to try out a new neurologist - especially as I have had some first hand accounts of people really unhappy with Dr. Al-Dahhuk.

Leslie MO
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Helen Keller explained the purpose of community best, when she said, "Alone we can do so little. Together we can do so much."

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BELSNICKEL's Photo BELSNICKEL Posts: 2,792
9/23/13 9:31 P

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It all sounds pretty good. We will.make our first visit to a neurologist in mid October, maybe there is some hope.

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8/23/13 11:28 P

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The vitamin E is interesting.

I'm so glad Nuwalk that the meds have made such a difference for your Mom!

Leslie MO
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Helen Keller explained the purpose of community best, when she said, "Alone we can do so little. Together we can do so much."

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TAMIBKD's Photo TAMIBKD Posts: 541
8/23/13 12:34 A

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Glad the meds are making a difference for your mom Nuwalk. It can m ake a difference in theri mood and confusion, too. Some Docs also use Vitamin E, but don't start this on your own because it can interfer with heart or other meds.

Starting Spark Weight in September 2010; 272 pounds. Been on and off a few times like a yo-yo. And here I am at 293 in March of 2017. I joined a work group for 'Weigh-down Wednesday' 12 week challenge. And came back to SP because I knew it worked.


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8/22/13 12:01 P

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we noticed a big difference fast, mom went from mostly dozing, not engaged back to being alert most of the day and now she wants to talk, moves to the seat next to the person... I treasure that...

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8/22/13 1:09 A

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My Mom is on aricept and namenda. I didn't notice a lot of difference when she started taking the drugs but she hasn't slipped away as fast as she did before we had her diagnosed. It does seem to keep her pretty stable.

Yes - it's a horrible disease and very heartrending.

Leslie MO
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Helen Keller explained the purpose of community best, when she said, "Alone we can do so little. Together we can do so much."

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8/21/13 12:34 P

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I think it is the Aricept... she is on so many meds... the change is night and day from when she started, or if she misses a day... I wish we could have gotten her on sooner but mom and dad both refused to believe this was alzheimers or even discuss it... it is a heartbreaking disease... As I understand it, it doesn't cure but can assist in function, so for what it's worth, i'm glad to have mom more engaged as long as I can... I really miss her (tears) and treasure the time we have left...

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8/21/13 1:18 A

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Nuwalk - what med did your Mom start on, if you don't mind sharing?

Leslie MO
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Helen Keller explained the purpose of community best, when she said, "Alone we can do so little. Together we can do so much."

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8/19/13 10:17 A

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mom started one of the alzheimers meds in Jan and it made a world of difference, changing her from sleeping, not engaged to very interactive, chatty and even more functional. It has been a blessing. We notice significant impairment if she misses a day, and this month some further slipping... Az is a cruel, heartbreaking decline... I hate it, and am mostly heartbroken...

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7/22/13 1:54 A

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I'm very excited to have found this team -- unfortunately doesn't look like a lot of recent posting.

We started noticing memory problems with my Mom in 2009 - but early 2010 really noticed it big time. She has been diagnosed with Alzheimers, TIA's, Parkinsons

She is now 68 years old. DH & I take care of her. She is currently taking Aricept, Namenda, depakote (someone gave that years ago when she supposedly had some seizures - and I can't get any DR to take her off that), citalopram, blood pressure medicine, eye vitamins, we took her off the bladder control medicines - because it supposedly interferes with memory issues.

Very interesting reading through the posts. We have dabbled a bit with the coconut oil, I really need to try it regularly.

Leslie MO
Central Time Zone


Helen Keller explained the purpose of community best, when she said, "Alone we can do so little. Together we can do so much."

SparkGuy says:
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RETURNTOTHIN's Photo RETURNTOTHIN Posts: 2,892
2/12/13 12:35 A

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Well, I really haven't had to live with someone with Alzheimers, but have close friends who have (and I helped) and I work as a nurse in a nursing home so see it a lot. Fascinated with your comments regarding the medications - their effect and their side effects.
But also intrigued with the comments about Coconut oil. I watched a video by Dr. Amen (brain specialist) and he recommended all "frying" in coconut oil (said Olive oil was toxic at a certain temperature level). Anyway, I took his advice.
I currently "fry" all my veggies on my GF table top grill with coconut oil poured over them. Toasted Kale, cabbage, zucchini, brussels sprouts, parsnips, carrots, leeks, and tons of other things. I, of course, also "fry" my meats and fish on the grill. I don't take extra coconut oil like one person described, but feel that I get quite a lot of it that way.
My thoughts are with each of you, who have to deal with a close family member with Alzheimers.

Lois - VA

"I can do all things through Christ who gives me strength!" (Apostle Paul)

"How I respond to my failures will determine my future. Learn, and grow."(Dr. Tony Evans)


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5/18/12 3:55 P

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Worth a try anyway... thanks for weighing in on it!

~~Julie~~


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5/17/12 4:50 P

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We tried coconut oil for about 2 months and honestly there was absolutely no effect good or bad. I mean, it can't hurt, but for my mom at least... it didn't help.

"Dost thou love life? Then do not squander time, for that's the stuff life is made of." Benjamin Franklin


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5/17/12 10:11 A

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My mom had good results with the Exelon patch, too, once the Aricept and Namenda stopped working so well. I've heard people having positive results with Coconut Oil, but having looked into it.

~~Julie~~


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5/17/12 8:22 A

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Hi Crazygygirl, sorry about your mom. I can't help you re your meds. My husband has severe dementia due to a stroke and from the medication that he is taking for cancer.

Hopefully you can find what you are looking for.

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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5/16/12 11:22 P

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Hi all

My mom was diagnosed 5 years ago and was put on Aricept, but she could not tolerate it. It made her too sleepy all the time. After that we tried 2 other meds (can't remember names) both of which she couldn't tolerate mostly due to dizziness and nausea. Finally we tried Execlon, a very light dose (1.5 mg twice a day) which had no side effects. About 12 months later we increased it to 3.0 mg twice daily and still not problems. What we did notice though was on the rare occasion that she mistakenly double dosed, she got very sick and had to be rushed to the hospital... like poisoning. Last year we tried to increase to 4.5 mg twice daily but she couldn't tolerate that dosage so we put her back to 3 mg twice daily.

I doubt at this point that this light dosage is doing much for her. I wonder if anyone knows of an natural supplements that cold help and not cause side effects. Mom had high blood pressure, has a pacemaker, etc.... so she has lots of other problems.

"Dost thou love life? Then do not squander time, for that's the stuff life is made of." Benjamin Franklin


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5/14/12 10:52 A

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Good morning everyone. Sorry that I have not posted recently. My dh has dementia but now also has terminal lung cancer. I have been taking care of him at home. But when I am no longer able to, he is registered for a palliative care centre. He can have a bed almost immediatley. He has been getting progressively worse since Jan/Feb. He has lost 23 lbs. Does not eat much, but sleeps alot. The pain varies from day to day. But most days it is not to bad.
So sorry you are leaving us. Have you tried the caregiver site? They are also very helpful with dealing with the situation you are going through.

Take care
Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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5/14/12 7:57 A

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MAYBER: I'm sorry if you're leaving the team, but understand. I think it's hard to be REALLY active on this team, when we are all dealing with a downward spiral. I DO have to say how important it's been for me to be able to share here and hear that others are battling the same thigns. Even if we aren't helpful to you, I know that you have been helpful to us. The kindness and poise you've shared in battling your husband's situation has set such a great example for me, and you have touched my life whether you know it or not. :)

DIANNE: How are things going with your husband at home? I think of you often and hope you are hanging in there.

It was a tough mother's day for me. When I visited my mom Saturday night, I wasn't sure she would make it thru the night -- they couldn't even get her up. On Sunday, though, she was up in the wheelchair and ate well at the mother's day breakfast. I am not taking any time with her for granted....

~~Julie~~


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5/13/12 9:17 P

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Think it is time for me to move on and leave this team it not very active or helpful in our situation DH has been on aricept since being diagnosised in 2001 and then namenda was added he has gone through all the tests to diagnosis alzheimers twice
We have been dealing with the memory loss since 1996 we cherish the good days and cope with the not so good ones
My DH is doing well physically started the coconut oil in 2012 have seen improvement in the alertness and talking so am pleased
We had blood test and it has not affected any of his cholestrol numbers so will continue to care for him
One day at a time

Edited by: MAYBER at: 5/13/2012 (21:27)
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5/3/12 3:24 P

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Hi everyone - just a quick hello and status update on my dh's cancer/dementia. I finally ended up moving him home. The palliative care home where he was supposed to go only had single (as opposed to double) rooms. That made it way out of my price range. Harry is really happy to be home but his cancer is spreading rapidly. Every time we up his meds the pain starts to increase again. It is becoming difficult to manage his pain. He is losing weight (17 lbs in 3 weeks) and is really started to look sick. He sleeps most of the time. Hopefully for him I hope he does not have to suffer too much longer. Thank you everyone for your continued support. It is a great help being able to talk to people about the situation.

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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DREAMCREATOR Posts: 22
5/3/12 1:15 A

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It has been awhile since I have posted anything it is nice to see that others have similar concerns about arricept as I have. My mother has been taking it off and on it for along time. When she first took it, it caused paranoia. She was sure that my father was giving me money and a host of other issues. You are supposed to take it in the evening. Another side effect can be cotton mouth. I have two aunts who are pharmacists and they are not sure that it is of any great help. That being said, i have decided to pick my battles and it is enough that she becomes angry when i check to make sure she is taking her blood pressure medicine. We have given up on the arricept. She is 77 and has had Alzheimer's for a long time. She is quite adept at hiding it in most social situations or when she is around any one that she sees infrequently. Which makes it hard on me. I am her full time caregiver. I try to take comfort in the fact that she is well fed, clean and still plays bridge twice a month. I am also glad that she is able to live in her own home although I had to quit my job and move in with her to make it possible. I have noticed that as long as she is in familiar surroundings and we stick to a routine, she copes much better. It is hereditary her mother and grandmother both had the same symptoms. It is very frustrating that she took very good care of herself, she ate right, exercised did everything she was supposed to and still ended up in this situation. She is also a lung cancer survivor

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BONONSENSE Posts: 553
4/19/12 11:34 P

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How nice to find a place with so few residents. This will provide him mich better care. It would be nice for him to have his desk, though. Isn't it sad that we accumulate so much "stuff" throughout our lives, only to end up with one item that we treasure, but don't have the room to keep it with us. Good luck with the move and take care of yourself, too, Diane.

JRAUTIO's Photo JRAUTIO Posts: 1,704
4/16/12 8:22 A

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What a struggle, Dianne. I'm sure it's hard to think of moving him, but thank goodness there IS such a place. I'm sure the adjustment to the move will be tough for your hubby -- especially since his confusion is increasing. Keep us posted on how things go. Will be thinking of you. Hang in there!

~~Julie~~


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4/15/12 10:34 A

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Hi everyone - just a quick hello and hope everyone is OK.

A quidk update on my husband. His condition (terminal lung cancer) is worsening each day. He is starting to loose weight and he is more confused. We are waiting for a bed in a palliative care home. Hopefully the move will go smoothly. Even though the house where he moving is really nice and has only 8 patients he will have to share a room. It comes furnished and the space is limited so he will not be able to move his furniture just some of his personal items. That upset him because he made a desk for himself that he is really proud and attached to.

The side effects of the medication causes him to have more confusion than with the dementia that he also has.

Not to much else in my life at the moment.

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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BONONSENSE Posts: 553
4/12/12 12:26 A

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I just joined this very vital team, and after reading through your frustrating experiences, I had to jump in to add my own opinions. For twenty years I worked on an alzheimers' unit in a nursing home as an activities assistant. No sooner did I retire a few years ago and we had to make the unfortunate decision to move my 95 year-old Mother-in-law into a nursing home. Though everyone tried to convince us to get her a cute little apartment in an assisted living facility, I insisted that she be placed in a skilled care facility, which would alleviate the stress of another move later if her health failed, which it did. Soon after the move she became more confused, not being in familiar surroundings. My husband followed the advice of her doctor to give her aricept, which made her agitated. Then they put her on another medication that made her sleep all day. For the first 6 months she was in the home her behavoir changed so many times we were afraid to visit her.

I guess the point of my story is that the more often alzheimers' patients are moved or their medications are changed, the more confused they get, which changes their behavior. This is not a curable disease, and the new medications merely alleviate the symptoms. I saw people in their 40's who did benefit from the new medications, which improved their memory, but, at 95, my Mother-in-law is pleasantly content with fleeting memories of her past.

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3/25/12 5:32 P

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We are still doing well and looked at the video and thank you for posting the coconut oil video site
The coconut oil seems to be helping DH does not sleep during the day half as much and am hearing conversation from him have not heard in months am pleased and so far have no side effects that can detect will be having blood test coming up in April
Am so grateful that have him at home and have great support from family and friends
We are truly blessed one day at a time

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3/6/12 8:42 A

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Hi everyone. The dr is having to increase my dh's pain meds (due to cancer) and one of the known side effects is confustion. That certainly not help his dementia. The manoir where he is living can only keep him up to a certain point of his illness, then he will have to be moved to another location that offers more nursing care. Hope that I don't have to move him too soon. It takes him a lot of time to adjust to new places.

Take care everyone

Dianne



HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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CASSANDIE_YR's Photo CASSANDIE_YR Posts: 305
3/4/12 7:17 P

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This is the video I saw.

http://www.cbn.com/media/player/index.as
px?s=/mp4/LJO190v1_WS

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3/4/12 7:09 P

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Have not seen the video so would appreciate the site
Got my information from a friend who is a nurse and she sent me an article
Did get an answer from Alzheimers but it lengthy and have not read all of it yet
Coconut oil comes in regular and organic the organic is suppose to be better I got the regular at our local Rainbow Foods and it was $6 32 oz Organice was $9 16 oz
It is solid at 76 degrees and liquid at 77 degrees so I put it in the microwave for 10 seconds in a custard cup and my DH will just drink just be sure it is not too hot
Otherwise it can be added to hot cereal, melt it on vegetables, put on hot popcorn just be aware that if what you put it on does not stay hot it will congeal
It can be used to fry with and bake with not sure how effective it is this way
My DH has had memory loss for 15+ years and given the Alzheimers test twice first in 2000 and again in 2004 and then said it was probably Alzheimers he is cooperative and am very lucky he is easy to care for
We went to a specialist for several years and then we moved three years ago but just may contact this specialist again and see what he says about the Coconut Oil
We continue to take one day at a time


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CASSANDIE_YR's Photo CASSANDIE_YR Posts: 305
3/2/12 12:47 P

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I saw probably the same video. I was amazed at the improvement in the man's ability to draw the clock. But I was also amazed that he had progressed that far without his wife, a doctor, even knowing he had dementia.

YOGAKARMAGRACE's Photo YOGAKARMAGRACE Posts: 1,273
3/2/12 11:55 A

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Mayber and Cassandie,

I have a video from a news report about the research done using coconut oil for alzheimer's patients. It's amazing and I think I'm going to take some to my mom next weekend when I go to visit and see if she will start using it. I don't know if it's too late or when one should start using it but I believe any help is more than none. If you'd like I can send this to you. I may see how I can post the link for it.



Grace aka YogaKarmaGrace

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CASSANDIE_YR's Photo CASSANDIE_YR Posts: 305
3/1/12 10:04 P

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Mayber, I read about coconut oil and wanted to try it with my mother, but she is in assisted living. I haven't asked them yet whether they could make any accommodations with her food to mix it in, but I am not hopeful.

What ways do you get your dh to injest it?

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3/1/12 10:01 P

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Have any of you heard of taking Coconut Oil for Alzheimers I have researched it and am trying it with my DH he seems more alert and responsive he is using words have not heard him say in a long time he is currently on aircept and namenda paxil for anxiety and also medications for arthritis and heart problems will consult our family doctor and have a question in to the Alzheimers Group to see if they have anything on coconut oil
Thank you for any information you can add

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YOGAKARMAGRACE's Photo YOGAKARMAGRACE Posts: 1,273
3/1/12 2:35 P

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Hi,

My mom is on Aricept and Citalopram (anti-anxiety). She was told she had to take the Aricept at bed time. Is this correct? Also, I've heard mixed stories about how anti-anxiety drugs can cause adverse affects with the dementia med. Have any of you heard this as well?

Grace aka YogaKarmaGrace

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Person that you are!

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CASSANDIE_YR's Photo CASSANDIE_YR Posts: 305
2/14/12 8:22 P

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My mom is on aricept and namenda too. I had actually never heard of namenda before - had to look it up. I've always known her drug as mematine. She's also on an anti-psychotic.

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1/26/12 8:35 P

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That is one of the big problems of having someone in a care facility you have no real control over their medications it is easier for the staff if the patient is quiet and makes no problems for them you really have to visit often and be an advocate for your mom
One day at a time


Edited by: MAYBER at: 1/26/2012 (20:36)
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JRAUTIO's Photo JRAUTIO Posts: 1,704
1/16/12 11:04 A

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My mom is on many meds now. She took Aricept for a long time initially, then switched out to Namenda and added in the Exelon patch. The Exelon has seemed to make the biggest difference. While it didn't seem like it made a huge difference when she was put on it, we saw big changes if a dose was missed.

Since being moved to the care facility, Mom is very anxious and tends to pace a lot. In addition to the memory meds, she is now on a number of additional meds (anti-anxiety, anti-psychotic, etc.). It's hard to reach a happy medium with getting the right combination of meds to keep Mom as comfortable as possible without over-medicating her so much she's a zombie!

~~Julie~~


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1/6/12 9:58 A

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Hello fellow soul keepers

My dad is on aricept and namenda x 2 and b12 . I found if I give him the aricept right before bed it cut back on his "lucid" dreaming. (thinking the things he was dreaming was happening in real time)

My goal at this point is maintainence. and some days are better than others.

Don't wait for the storm to pass but learn how to dance in the rain..


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DMILLER33's Photo DMILLER33 Posts: 8,628
10/31/11 7:28 A

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Both my parents are on aricept and my mom is on namenda also. I am not convinced I saw improvement with these meds but am afraid to try off. Has anyone ever tried their loved one off and had to put them back on. One parent has dementia from stroke and the other has frontotemporal dementia. I've gotten mixed messages from the professionals.

Doris
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10/28/11 10:11 A

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Hi everyone, my husband does not take any medication for his Alzheimer because the cause of his Alzheimer was a result of a major stroke. He is deteriorating slower than other people with Alzheimer. My husband also has terminal lung cancer. He was diagnosed a little over 2 years ago. He did not get any treatment - because of his age - he is 80 years old - he also has a multitude of other medical problems. The drs felt that the cure was more likely to kill him than the cancer. - again for some reason it is also growing very slowly. emoticon

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CANOGAPARKGAL's Photo CANOGAPARKGAL Posts: 214
10/1/11 3:11 P

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Your mom's experience and my husband's show how different every person is.

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9/30/11 2:13 P

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I was glad to see this topic. Thanks!

I've just become my mom's caregiver. Aricept made her VERY emotional and fearful and she basically stayed in her room. Namenda made her like a "clingy" zombie and she slept a LOT during the day. I'm not sure how anyone else feels, but I'd rather NOT have her on these meds and have as GOOD a quality of life as possible - even if it's shorter.

About 3 weeks ago I started her on coconut oil. I know, there is NO research on whether or not this helps, but I've got to tell you, I've seen a LOT of improvement in her. The first week I took her to bingo at the senior center, I just about had to point to EVERY number because she wasn't "getting it". Today I BARELY had to help her. She's smoothly putting the chips on the correct numbers, BUT she still doesn't know when she has a bingo. Regardless, she's having FUN and there IS improvement.

Kim


I have seen women looking at jewelry ads with a misty eye and one hand resting on the heart, and I only know what they're feeling because that's how I read the seed catalogs in January.

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CANOGAPARKGAL's Photo CANOGAPARKGAL Posts: 214
9/18/11 7:45 P

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back on the board after a few months break taking care of DH.

He is now on Aricept (10 mg) and Namenda (10 mg - up to 2 times a day from one).

On Monday we saw the neurologist that the PCP recommended. It was a 2 month follow up. She upped his Namenda from once a day to twice (10 mg ea.) and now wants a 4 mo. follow up. I take that as a good sign. As soon as she added the Namenda he became much more tractable and now doesn't fight taking his meds.

Next time I'll have to get more info. on his diagnosis. I believe they think vascular rather than AD, but I guess one can have both at the same time.

My DH also talks until 2:00 AM most of the time - same subjects over and over.
We are still having a few good times - thanks for the reminder to cherish them Mayber.

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8/16/11 6:34 P

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Have tried taking my DH off meds and it did not work
He is on Proxetine--Aricept--Namenda
He became combative and wandered everywhere
Do not really have a problem with sleeping at night although he does talk sometimes til 2 am
Take one day at a time
Cherish the good times and Cope with the rest

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MEDICMOM316's Photo MEDICMOM316 Posts: 152
8/2/11 9:15 A

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LeslieSpeakman,
You too, have your hands full! We want our parents to be as mobile as possible for as long as possible but it does have down sides to it! Talk about mixed blessings!

Sounds like you dad is exercising his independence in an aggressive way. He seems pretty cagey to make you feel bad about making him sit down! My mom is beginning to pull the same stuff. "No, I don't need to sit down!" She says this as her legs are literally shaking! "Sit down or fall down" is my usual response. Not very polite, but short and sweet-- she hears the message.

What does your dad's doc have to say about this? Is he currently on any medication? There are so many things that can contribute to weird behavior, worst of all, the progression of this terrible disease! Keep us posted on how YOU are doing as well as your dad... or is grandpa?
emoticon emoticon

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LESLIESPEAKMAN's Photo LESLIESPEAKMAN SparkPoints: (3,078)
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4/19/11 9:52 A

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I'm having trouble with pops...he wanted to go outside at 1pm and it was too hot then he chased me down...I had to MAKE him sit in the floor...he acted like fell and now his butt hurts. I feel really bad but I was scared he was going to do something to hurt himself worse. It's like he got this superman feeling and wanted to do what he wanted to do and try to make me let him outside. If he goes outside and he gets too tired then I'll get worn out the rest of the day. I had him drink lots of water now he isn't drinking as much because he thinks it goes straight through him. He also won't listen to me as much any more because he can move more...geeze what do I do?

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KARRYB1's Photo KARRYB1 Posts: 1,218
4/18/11 6:05 P

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My Mom has all of a sudden been very hard to get along with , not wanting to eat and wanting to go home. Today she yelled a loud emphatic NO when the aid tried to get her to go get bathed and dressed. I have been giving her Trazadone that they sent her home from the rehab with, but it doesn't seem to help her anxiety very much. Does anyone know if it it takes time to be effective?

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4/17/11 10:04 P

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DH had a blood infection in January and they put him through the throat scan and everything was great for which am grateful still am very careful and cutting up his food in small pieces however he chews and chews and chews before he swallows meatltime can take an hour or more and that is okay would rather have him safe than hurry him
One day at a time

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4/13/11 10:21 A

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Well his flapper in his throat is causing problems so now he needs a video done on it or he could get pneumonia. His arthritis has made him very stiff so it has been hard for him to get around lately. Waiting on next week when his son gets on vacation so we can take him to the va and get everything taken care of. He hasn't got up yet today yet so I hope he has gotten enough sleep. His son got more flowers for our yard, so more gardening for me, oh boy...but it will get done.



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4/10/11 4:14 P

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Tried taking my DH off of some medications needless to say it did not work out so until next doctor appt he is back on everything
Began with Proxatine cut in half then Aricept cut in half and lastly Namenda cut in half twice a day each pill was taken away 4 weeks apart
He became combative, anxious and was all over the place
A thing learned about giving meds is to crush them since DH takes a total of 15 pills a day due to heart and arthritis health problems beside Alzheimers be sure to check with your doctor or pharmacy to be sure all pills are crushable I put the pills in yogurt pudding applesauce and have no problems with him taking them
Also agree with everyone keeping hydrated is a must can tell immediately when more fluids are needed fortunately my DH likes water
Giving DH any kind of responsibilty so he feels accomplished is always a plus it need not be done correctly or completely just so he tried
All in all my DH is easy to care for of course being together for 55+ years I know what to do and what not to do LOL

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4/7/11 10:52 A

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Awesomeness!!! His sugar is 107! He called me a nag yesterday, but then this morning he appoligized. I am quite happy for him. My hunny bought him some flowers and some dirt so he can play in the yard. Maybe getting his hands busy will make him happy and give him accomplishments. Thanks for all of your idea's ladies!

Leslie Speakman

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JRAUTIO's Photo JRAUTIO Posts: 1,704
4/7/11 10:46 A

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Thanks, Deb! I couldn't for the life of me think of the Crystal Light (I should probably just book a "double" for Mom AND me at the care facility! LOL!) , but we've used that, too. She is really keen on watermelon when it was in season, so that has helped a lot, too. We don't care so much about the high calories, since it's hard to get enough into her a lot of times. Although it's funny that she's WAY into cookies, potato chips and cheesecake these days (unheard of in her house when she was "herself"!)! She is not overweight at all, and actually lost a lot of weight 2 years ago with gallbladder issues before the Alz's started REALLY taking hold...

~~Julie~~


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MEDICMOM316's Photo MEDICMOM316 Posts: 152
4/7/11 9:57 A

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Julie,
That's a great idea! I know Mom's cognition is better when she's well hydrated, too. We've found that Crystal Light [good for diabetics] has lots of flavors to choose from. We also use G2; it helps when she's been outside in the heat. G2 has lower carbohydrates and calories but still replaces those precious electrolytes. In a pinch [when Mom's being picky] we use PediaLite products. They're made for children so their flavors are a bit different. Don't forget that things like soup, jello, and high water foods ALL contain water. These can be good back-up, too, as well as some fruits [beware the high fructose/sugar in some!]. On occasion, we have low cal/carb beer. It tastes pretty good on a warm afternoon; just make sure it's good and cold.

Such great ideas! Thanks to everyone for caring enough to share thoughts, ideas, and experiences.
emoticon deb

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JRAUTIO's Photo JRAUTIO Posts: 1,704
4/7/11 7:27 A

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LESLIE, We have tried adding different flavor items to the water for my mom since we figure ANY kind of fluid getting into her is a step in the right direction. We've added Kool-Aid or other kinds of powdered drinks that might make the "water" seem more tasteful. You could try a lemon or lime slice or something like that if it makes it seem more attractive, too. We also keep putting bottles of water by her chair (or wherever she's hanging out) and we do find that she almost unknowingly will pick the bottle up and sip from it while it's there. It does make a big difference whether she is getting enough fluids or not -- she is much more confused when she's more dehydrated. Good luck!

~~Julie~~


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LESLIESPEAKMAN's Photo LESLIESPEAKMAN SparkPoints: (3,078)
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4/6/11 3:54 P

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I am worried the man I am taking care which is my boyfriends dad, because his type 2 diabities is high. His dr says to increase his fluids and to watch his diet but he won't drink any water. What the heck am I supposed to do? Help!

Leslie Speakman

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MEDICMOM316's Photo MEDICMOM316 Posts: 152
4/5/11 9:12 A

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Yeah, I figured I wasn't the only one wrestling with this issue. My mom has twin sisters and only one has Alzheimer's. My mother thinks 'it is ashamed, about poor Jean'... she doesn't seem to have a clue she has Alzheimer's, too! Sad and funny at the same time.

Speaking of hearing, we were just discussing that very thing earlier this week. I thought Mom was losing her hearing -- but only for some sounds; like the whip-o-wills that drive us crazy all night; she doesn't hear them... or the phone. Oddly, she does hear cars on the next street and 'The Lockhorns' a few houses down [aka The Loud Family]. I considered having her hearing checked, but what is the point? If she needs hearing aides she would NOT wear them and has made it clear to that fact. 'What would people think?' LOL

We are going to continue with the Aricept for now. I totally see the point of dropping it at some point in time as it won't work forever. That will be a tough call and I'm sure my brothers will 'be right behind my decision'... such helpers [not]. So much for my complaining.

My daughter got engaged on her birthday in March [LehighAmy] and mom gets her wedding news confused with our spring cruise plans. Not much I can really do about that, except try NOT to get frustrated with the repetitive questions.


I hope this note finds everyone in good health. Spring is here and at least the rest of the country can start getting outside for fresh air. I even planted a garden! What optimism! emoticon emoticon

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SKLUCE's Photo SKLUCE Posts: 82
4/2/11 11:47 A

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I tried to delete the duplicates, but I can't figure out how...and it just made another. Sorry!

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4/2/11 11:44 A

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Interesting things about mom and her meds...a year ago, she refused her pills, hid them, or pretended to take them and spit them out half melted. As her ALZ had progessed, she has given me less grief about them and only questions what "crazy doctor thought she needed all of these pills" When she was so adamant against taking them and seemed to be getting significantly worse anyway, I (non-doctor daughter) took her off both Aricept and Namenda and got her into an experiment on the Exelon patch. (She had been throwing up every day while taking Aricept and Namenda....and I had hoped that the Exelon would make a difference. It didn't, so they dropped her from the study!) Finally, I put mom on Priosec and she stopped throwing up--and, after finding a new geriatric doctor that specialized in ALZ, he put her back on the Aricept. He then chastised me for taking her off the drugs. Her ALZ did get worse while she was off of them, so maybe the drugs were making a difference--but, who knows? (I got over feeling guilty for taking her off of them, thanks to you team members)

Brain training: I was involved in a research study that used a super brain training product from Posit Science corporation. I learned that one of the issues with dementia patients is that they quit hearing certain frequencies of sounds. I tried mom on the on-line program and was amazed to find it was true. She couldn't really decipher whether a sound was sweeping up or down and couldn't hear some things at all. The training has great feedback and seems to really help. I at least feel like I'm doing something to stimulate my brain and keep me on track. I wish I had found it earlier in mom's disease..I think it might have helped. www.positscience.com/

Edited by: SKLUCE at: 4/2/2011 (11:46)
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SKLUCE's Photo SKLUCE Posts: 82
4/2/11 10:38 A

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Interesting things about mom and her meds...a year ago, she refused her pills, hid them, or pretended to take them and spit them out half melted. As her ALZ had progessed, she has given me less grief about them and only questions what "crazy doctor thought she needed all of these pills" When she was so adamant against taking them and seemed to be getting significantly worse anyway, I (non-doctor daughter) took her off both Aricept and Namenda and got her into an experiment on the Exelon patch. (She had been throwing up every day while taking Aricept and Namenda....and I had hoped that the Exelon would make a difference. It didn't, so they dropped her from the study!) Finally, I put mom on Prilosec and she stopped throwing up--and, after finding a new geriatric doctor that specialized in ALZ, he put her back on the Aricept. He then chastised me for taking her off the drugs. Her ALZ did get worse while she was off of them, so maybe the drugs were making a difference--but, who knows? (I got over feeling guilty for taking her off of them, thanks to you team members)

Brain training: I was involved in a research study that used a super brain training product from Posit Science corporation. I learned that one of the issues with dementia patients is that they quit hearing certain frequencies of sounds. I tried mom on the on-line program and was amazed to find it was true. She couldn't really decipher whether a sound was sweeping up or down and couldn't hear some things at all. The training has great feedback and seems to really help. I at least feel like I'm doing something to stimulate my brain and keep me on track. I wish I had found it earlier in mom's disease..I think it might have helped. www.positscience.com/ Take a look at their website and read some of the research.

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4/1/11 2:57 P

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I can relate, MEDICMOM! And I meant to answer you earlier, but I have been completely inundated with traveling and such in the last 2 weeks.

This is a question that has crossed my family's minds many times recently. My understanding is that there IS a point at which the Aricept and like meds don't assist any longer. My mom is physically healthy except for the Alzheimer's, and we question whether we should be keeping her on those meds or not. At this point she is SO confused -- half the time doesn't know how to turn the tv on or off or turn the furnace up or down, but in other areas she is still retaining. For example, friends of ours asked my husband and I to go camping with them with our horses this summer and when I asked Mom if I could borrow her horse for a few days (the horse lives at my house and I take care of him) she at first said yes, but then spent 2 weeks obsessing and anxious because 1) nobody should ride her horse by HER (we don't think she's capable anymore!) and 2) her HORSE has been invited on this little camping trip, but SHE wasn't! Now, the woman can barely complete a full sentence, can't function in her own home, but yet she can make heads or tails of that and have a fit about it? Remarkable!

If the only little bits of "sanity" she is hanging on to just cause her this much anxiety, we are wondering (as terrible as it sounds) if taking away the meds would just allow the faster decline and maybe be less stressful for her.

We will have legal documents completely revised in 2 weeks and will then need to get her signature. Once we get that accomplished, we will start broaching the topic of a new place for her to live. And if we think borrowing her horse is disastrous, I can only imagine how moving her to a facility is going to go! It makes me nauseous just to think about it!

~~Julie~~


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MEDICMOM316's Photo MEDICMOM316 Posts: 152
3/29/11 2:08 P

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Okay, I admit it; I'm feeling frustrated, confused, and a bit guilty for even thinking about it...

It is time to reconsider Mom's medications. She's on aricept [10 mg/day] along with some BP meds [Imdur & labetalol] , a bladder control med and some OTCs [80 mg aspirin & a stool softener]. I KNOW it isn't much, but she is beginning to question what 'all these pills are for' and as the disease progresses [some days better than others] I can see her refusing them at some point.

My question is, "At What Point is Enough, Enough?"

It really isn't so much the cost [which runs about $140/mo] but the idea that there is no set of guidelines as to when the Aricept should be augmented with something [usually Exalon or some such] or at what point these medications should be discontinued... if ever. I am truely struggling with this and would certainly appreciate any input and/or insights from team members.

Until Mom moved in with me, she never took any medications [true, she decided to stop taking her BP meds on her own]. She hasn't baulked yet, but I can 'feel' it coming. It seems we are at a transition point. Usually a chatty, small talk type when I'm around, she will sit in her room for hours and hours 'reading' or looking at pictures, appearing to be withdrawn. Her moods seem to swing from her normal self to quite sullen and withdrawn. She seems to have lost her a good deal of her decision-making skill, falling back on "what ever is good for you"... whether it's choosing a drink with lunch, a plant for 'our' garden, or when/where she'd like to have her hair done. Is this 'normal' or is it time to add medications? Family is no help, as they assure me that 'whatever I decide is best'... no help there. Please, what do YOU think?

Guess I'm just a bit sad to see these things slipping away. Always being independent, it is hard to see her as a woman who doesn't eat or answer the phone unless told to do so.

I am wondering if anyone has tried the online brain stimulation program [Lumosity]. It may be a good thing for myself and husband to 'exercise' our brains!
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2/28/11 8:46 A

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I totally agree, MAYBER! Thanks to everyone for being here! --Julie

~~Julie~~


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2/27/11 4:28 P

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Coming here to this posting is such a comfort seeing how others are coping with different thing that come up each day because certainly no two days are alike
Thank you all for sharing your ideas
Best wishes as we care for our loved one and for ourselves
One day at a time
May God Bless

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MEDICMOM316's Photo MEDICMOM316 Posts: 152
2/22/11 10:29 A

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You stated that beautifully! NO MEDICINE WILL CURE/STOP ALZHEIMER'S DISEASE; our best hope is to delay and/or slow the progression.

When switching to a new medicine or dosage, it is really important, I'd say vital, to keep track of your loved one's behavior. Not just the change, if any, on the new med, but all of it. My mom is on Aricept and I'm not so sure it's doing the job alone anymore. We, as a family are wrestling with what, if anything else, we should try. Naturally, being the caregiver [and the only one who seems to have an opinion] the real decision comes to me.

With regard to sundowning, there are several things we used in Special Care units to help alleviate this problem. I'm sure there are a lot of suggestions our team members, too.

ACTIVE DISTRACTION is the key many times. Think about what the evening means to people; getting supper ready, people coming home from work, it's the end of the work day, getting children ready for bed, tidying up before 'husband' comes home, all the things people did in their day to prepare for night. It is/was, oddly, an active time. If at all possible, do something active. This will not only 'distract' from the changes in light [put on a few more than usual until it is fully dark helps, too] but also burn off some energy in preparation for bed, later on in the evening. I save my laundry folding for this time, also, any baking [Mom loves to stir, drop cookies, grease pans, and watch them cook]. A walk is wonderful. It is usually better to address it than ignore it.

Better yet, WHAT are they doing to demonstrate this sundowning? Fidgeting? Pacing? Getting moody? Anxious? ASK them what they're thinking about! It may not make much sense to us, but it makes sense to them. If they're WORRIED, comfort them by assuring 'family' will be home soon for supper and they are all safe and sound. PACING oftentimes means a trip to the bathroom before a short walk would do wonders-- even just around the house, literally! FIDGETING indicates, usually, they know they should be doing something, they just don't know what-- give them some concrete task to 'help you out'. This is really important, the person feeling needed and helpful.

A basket of clothes can be folded and refolded many times. I keep a few 'baby things' in a stash to see if she wonders whose they are and they're great memory joggers and conversations starters. Men seem to take to tasks such as sweeping. I know this is when we are getting dinner ready ourselves, but we're the ones who much adapt. My suggestion: GET A CROCKPOT! Mine is a godsend as I don't have to fuss much with dinner when my own mom is getting fidgety. Just a suggestion. I'd love to hear some input on this... Don't forget to take some time for yourself, too. It's hard to do, but well worth it!
Take care.
deb emoticon emoticon

. . . sorry for such a long post. ALSO, thanks, we had a great weekend and birthday!

Edited by: MEDICMOM316 at: 2/22/2011 (10:33)
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