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KBEAR622's Photo KBEAR622 Posts: 13
1/13/11 11:45 P

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I just joined Sparkpeople after finding the ipad app last night. I wanted to say thank you for writing about Glumetza and thank you for starting this topic. I have struggled trying to lose weight for most of my life, but especially for the last three years. I tried metformin three years ago when my doc diagnosed me as insulin resistant. I tried to take it for three months, but after constant diarhea (to the point of keeping two changes of underwear and one change of clothes in the car at all times) and new problems with painful swelling in my hands, feet, and abdomen, I quit taking Metformin. Three years later I have controlled the swelling for the most part and have been diagnosed and treated for hypothyroidism for about a year. My current doc (who listens to me, novel idea) let me reason with her that though my thyroid numbers weren't "out of range" by the old standards, they were out of range by treatment standards and the proposed new standards that docs are locked in argument about. Given my list of symptoms, she agreed to treat and closely monitor for six months, and now she is a believer and I am finally feeling sane and human again now that we have my levothyroxine level right. She wants me to try metformin or glucophage, and under her care I'd almost be willing to try it again, but I will definitely talk to her about glumetza instead. Thanks, ladies!

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CD8099773 Posts: 382
11/16/10 4:26 P

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I will check it out...kind of you to share. You are right, we start to feel desperate and are willing to try anything that we think just might work. Please keep me posted on your results!

SHEBE100's Photo SHEBE100 SparkPoints: (0)
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11/15/10 10:34 P

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The other thing that I am trying and I have only made it past the first month is some all natural supplements from insulite labs. They are all vitamins and herbs combined into a combination of 4 different pill types that you take throughout the day. It seems like you are taking a lot of pills (and you are) but I have seemed to notice a difference. I have more energy and my skin is looking better for sure. Even my gyn doc told me today that I had a glow to my skin, and I'm not pregnant, LOL. I hardly have any acne as of now which is nice. The other thing is when I ran my bloodwork, I noticed that my testerone level finally came down to high-normal and is no longer out of range. My estrogen is down to a normal level as well. I can't wait to run my bloodwork again next month to see what happens. I cannot give you a full account of everything and tell you with certainity yet that it is a cure-all for PCOS, but they say it will address the underlying process of insulin-resistance which is a major component of PCOS. It runs about $97.00 a month and they say you have to take it for six months. Some people on the website have raved that they have lost weight, even though my scale has not moved, I can tell I don't have as much bloating as I use to. It's something worth trying. I know when you're desperate for help you will try anything, but I felt like I needed to pass this on so you could make an educated decision for yourself. It doesn't hurt to try. I can't remember the exact site, but it's insulite labs. They have supplements to address PCOS, metabolic syndrome, pre-diabetes, and one other thing, I can't remember. I went ahead and with with PCOS one since I know my testerone runs high and would not come down to normal. Good luck with whatever you try.

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CD8099773 Posts: 382
11/15/10 7:48 P

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Shebe100,

Thank you so much for sharing your experience. Truthfully I had just about given up hope. I will definitely try the cinnamon supplements. Do you have a suggested doasage? I will also talk to my doctor about glumetza and see how much my insurance will cover. It can't hurt to try. I really appreciate your insight!

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11/15/10 8:10 A

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I too was on Metformin. My insulin level was 2.5 points from being full-blown diabetic when they diagnosed me. He put me on glumetza at first (which is really expensive). To save money, I switched to meformin. I had no stomach issue with glumetza, but I have to watch what I eat on metformin (sometimes the weirdest thing will trigger an episode). I'm back on glumetza for now. Once I was put on meds for my insulin-resistance, and I kicked up my exercise from walking 3 miles a day to walking/jogging (I've been trying the BURST method go all out for as long as I can, and then have a couple of minutes of recovery, and then repeat), I lost around 20 lbs at first. winter hit, I was not able to keep that up outside and gained back about 5 lbs. But I can say I have maintained a 15 lb. weight loss over the last year. I since bought and treadmill and I am trying to condition myself to get on it everyday. I'm still working on that goal. But I think my meds for insulin-resistance has worked. I have seen some improvement in my levels. Good luck in your quest of having a doctor treat you properly. Do not give up, it will make a difference when you find the right doc. Until then, try taking cinnamon supplements. They help and are better than nothing right now.

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CD8099773 Posts: 382
11/1/10 8:50 P

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Thank you Mommasport for your very good advice! Please tell me more about the D-chiro-inositol. I'm very interested!

MOMMASPORT's Photo MOMMASPORT Posts: 57
11/1/10 3:23 P

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If your gynecologist has seen the PCO with an ultrasound (string of pearl cysts on ovaries )
and says metformin won't help and won't let you try it, time to switch doctors in my opinion. I would specifically ask for the blood tests results to show your second opinion doctor, just in case there is a problem not mentioned that makes the doctor think Metformin could hurt you. If the loose bowels is the only objection, my experience is that it does get you at first and also if you go off the low carbs (DO NOT EAT FROSTING..you will get toilet timeout if you eat frosting).... but if you can be good about glycemic foods and especially greasy foods then I think you will probably get used to it.

I have only been on D-chiro-inositol for a week, but so far it is helping and I lost 3 pounds the first week which is great for me. It is not prescription, only mail order so far. (I get it from chiral balance) while waiting to figure out the doctor situation you might give it a try.



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CD8099773 Posts: 382
9/16/10 6:14 P

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I go in for early morning blood tests in a few weeks. I'll hold off trying anything until I have some answers. I'll share if I find anything helpful!

KEBH8694's Photo KEBH8694 Posts: 117
9/12/10 12:32 P

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My OBGYN put me on Metformin while I was trying to conceive my son. I was more regulated but it did not help me lose weight. Most of the time I was also on a hormone: Clomid, Orthocyclin, and others.. No one has ever diagnosed me in my file. My former OBGYN said that my hormone levels showed that I had it but a diagnosis was unimportant as it was just a series of symptoms in need of treatment. As soon as I conceived, my OB took me off the metformin and no doctor has ever put me back on. I take levothyroxine for the thyroid and apparently need to go in this week to re-figure the dosage as my new OBGYN checked my levels and said all of my hormone levels, insulin, etc were good except my thyroid was low. I have lost 36 lbs since March. I will find out on Wednesday if that number is different from my last dr appt in February when he told me that all of my illness and anxiety was weight related. I will also soon find out if my weight loss helps my regulation of cycles as I am now off the orthocyclen after 3 years of taking it. My new OBGYN says that it should not be necessary if I do not wish to take it. We shall see....Good luch on your quest. Let me know if you get new information!

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ENTICINGRAIN's Photo ENTICINGRAIN Posts: 50
9/10/10 4:40 P

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That is a difficult question. I had zero luck with gyn's. Some women here love their reproductive endocrinologists. I would look for another endocrinlogist myself.
Sorry I am not more help.

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CD8099773 Posts: 382
9/9/10 6:07 P

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Thank you, Enticingrain. Since my endo is not very helpful, do you think an OBGYN would be a good 2nd choice?

ENTICINGRAIN's Photo ENTICINGRAIN Posts: 50
9/8/10 8:51 P

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I have been on Metformin for a very long time now about 10 years I think. It made a big difference for me. It stopped the male pattern balding and the chin hairs. It regulated my period and helped me with energy. The diarrhea only lasted for a very few weeks at most and I started on a low done and worked up to my 1000 mgs in the am and 1000 mgs in the evening that I have been on ever since.
Regular walking helped me as well because it helps with the insulin resistance. I also upped my omega 3 intake as well.
Doctors think that just because PCOS does not kill us that treatment is not important. Well it is important for our well being and often untreated PCOS develops into type 2 diabetes and metabolic syndrome. It is not just a benign bunch of symptoms. I would find another MD to go talk to.
I Eat a more Mediterranean diet as well. More protein less carbs and carbs I do eat are more whole grain type carbs.
Best of luck.


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CD8099773 Posts: 382
9/8/10 3:27 P

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Although my endo diagnosed me with PCOS, on top of my lovely hypothyroidism, she will not help me with the PCOS. I am taking Armour for the thyroid problem, but when I ask her about Metformin for the PCOS she told me it doesn't help, only gives you diarhea. So, please tell me if you are taking Metformin or any other med for PCOS and if it is helping. Please also include vitamins and minerals if they have given you a measure of success. I actually have a regular cycle and had no problem conceiving 3 children 10 years ago, and am not interested in having more. I just want to get this weight off. And what about the male pattern hair growth on my face and legs....yuck! Anything working for you?

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