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NEED2LOSELOTZ's Photo NEED2LOSELOTZ Posts: 968
5/23/15 9:33 P

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I can sooo relate to almost every single post(er) here. PCOS symptoms are no fun. I hate to admit to picking at my facial hair. I'm so tempted to carry around tweezers everywhere I go - just in case, 'cuz I can't pull them out with my bare hands! LOL!

I feel ya all!

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SMARTIN77's Photo SMARTIN77 Posts: 432
2/13/15 6:32 A

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The symptoms that trouble me the most...on a daily basis...is the facial hair and also increasingly thinning/balding hair. These affect my self esteem and make it difficult to carry on in my daily life. I looked into laser, but they wanted $6000+ just to deal with my chin, neck and mustache. I can't afford that, even broken down into monthly payments.

I shave, tweeze and sometimes use creams. But increased weight and growing older, the hair seems to get worse.

At 38 years old, I've come to accept the infertility. I've had horrible, painful periods (bleeding for 2 years straight) as well as months without one. The pain sometimes is unbearable (including PMS), but it's still not a daily concern. But people notice right away your face and hair. I used to have beautiful thick hair until my early 30's. I'm half-tempted to save for a wig.

I will say that my husband is true blue and tells me beautiful even when my hair is falling out, no matter how much weight I gain or lose, no matter that I often shave more often than he does! I just don't get that kind of love from the rest of society.

PCOS makes me feel: emoticon emoticon emoticon emoticon





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1/26/15 12:02 A

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Personally speaking, I hate not so much the symptoms as the judgements that come with them. It is very demoralizing to have people tell you that they think you are dishevelled when you miss a day of shaving or wait to try waxing. I think that most people do not even know what PCOS is or what happens or why. I always thought if I could figure out the why? I could figure out the best way to treat it.

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KELSER84's Photo KELSER84 Posts: 135
7/22/14 2:48 P

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I just thought of another thing I hate about PCOS.. the hormone switches whenever you make changes. Whenever I clean up my diet after a little bit of emotional eating (in this case it was 2 months) my PCOS symptoms flare up out of control for a couple of weeks till my body stabilizes again. Sucks!



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CAH-RD's Photo CAH-RD Posts: 1,143
3/18/14 9:11 A

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Infertility hands down. It took over two years to get pregnant with my first. *I know this isn't that long compared to many, and trust me, I feel for you!! Those 2+ years were some of the worst of my life for sure. Thankfully we were JUST at our breaking point when it happened. Thankfully with our son, it happened naturally and sooner than we had even expected. I feel blessed that we didn't have to go through that horrible experience twice!!

The rest of the PCOS symptoms are NOT fun either though. It all makes me feel less feminine. I definitely think it's a devistating syndrome as a whole. No woman should have to deal with PCOS!

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MOMMY2AUGUST's Photo MOMMY2AUGUST Posts: 12
3/16/14 12:36 A

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Infertility is the toughest part, hands down. I struggled for years to get my first. And then when I decided to try again, I was blessed with two. Thank you fertility drugs. I also hate the acne and facial hair.It seems to get worse as I age.

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LYSINGR's Photo LYSINGR SparkPoints: (100,093)
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3/9/14 10:52 P

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For me, the worst part is probably the body hair. The facial hair doesn't bother me as much as the hair on my abdomen and breasts. It just makes me feel less feminine and I hate that feeling. Thankfully, I have a wonderful significant other who doesn't notice and doesn't care.

Edited by: LYSINGR at: 3/18/2014 (01:22)
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KELSER84's Photo KELSER84 Posts: 135
3/4/14 12:51 P

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The inner tube weight gain.. right around my middle.. I hate it!! Especially when it causes muffin tops and makes pants fit funny. I will be soooo glad to get rid of it. As well as the acne and facial hair. Sometimes that is what I think about when I don't want to head to the gym.

But the biggest thing I am hoping to overcome is the infertility. That one has been the hardest for me to deal with!!!



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BELROSA's Photo BELROSA Posts: 697
3/2/14 11:15 P

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I'd guess that most of us can relate to that sentiment. It's very unsettling when you know something so fundamental (and powerfully driven) as your menstrual cycle is not behaving in a normal way.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
RAWSUNSHINE's Photo RAWSUNSHINE Posts: 92
3/1/14 6:20 A

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I hate the stigma most in a way. The minute I start talking about not having a period in 6 months all my friends laugh and tell me I'm lucky. I'm not lucky, its scary when your body doesn't do what its supposed to when you have followed steps A through Z from your doctor. I hate the run around with doctors, sometimes I feel like I research and know well more than they do. No one wants to worry about infertility, it makes me feel like less of a woman sometimes.

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BELROSA's Photo BELROSA Posts: 697
1/19/14 9:56 P

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Maybe you could try a different laser clinic, or ask them to increase the fluence? That's what I had to do. I've only ever been to regular, non-medical laser clinics and have had quite good results. At my first appointment, I said "I don't care about the pain, I just want the hair gone. Turn it up as high as you need to for it to be effective and I'll find a way to stay still". I found the treatment fairly painful, but persevered, with them turning the fluence up a bit each time until finding an optimum level. I changed clinics quite a few times for geographic convenience, better rates or Groupon-type deals and each time I change, I just say "please set the machine to X, I've been having this done for many years now and have found that these settings are effective and safe. I have PCOS, so the hair is a little bit more persistent than on the average woman". Good luck.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
HADESFLAME79 SparkPoints: (3)
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1/14/14 5:27 P

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My biggest concern used to be the infertility. My husband and I tried for over 6 years. Finally we found a doctor that would listen and 2 months later, I was pregnant with my very first child. So, the infertility is no longer an issue. My biggest issue now is how hard it is to lose weight and how ugly my body looks while I'm trying to lose it. The weight seems to linger around my stomach. It looks like my fat is eating my belly button. I used to be able to wear shirts that showed off my stomach. Now, I do everything I can to hide it. I work out atleast 3 days a week. I lift weights, I do cardio, I don't eat a lot of garbage. I've been able to maintain my weight but I just can't lose it. It's very frustrating and I don't know what to do anymore. I'm hoping that being here will help give me better info and help the weight to start dropping off. :)

PHOUKALADY's Photo PHOUKALADY SparkPoints: (325)
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1/6/14 3:12 P

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For me, it's got to be the hair.

Did you know, one of the genes implicated in PCOS can be carried by men? And when a man is a carrier, he tends to be extremely hirsute (hairy)? Yes, my father was a Yeti, and yes, I have PCOS, and yes, I have soooooo much more hair than I could possibly want. I started getting it when I was fifteen. From college through my late 30s, I was on the Pill almost 100% of the time.

Unfortunately, I had to go off the Pill when I started getting migraines and was approaching 40. Since I did, more and more hair sprouts where I really don't want it. Currently, the only way I can keep up with it is by shaving. I paid a little money for a laser hair removal package on Groupon, but it's not doing any good. I think part of the issue is that the little girls at the spa which offered the package don't get that this is gnarly al Qaeda hair, and they really have to be brutal. I think I'll need to save up and go to a dermatologist/plastic surgeon for the scorched earth laser hair removal.

In the meantime, I shave, and I gripe.

"No act of kindness, no matter how small, is ever wasted." - Aesop


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IMATEM3's Photo IMATEM3 Posts: 584
12/31/13 12:01 P

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I hate the big question mark on my fertility.

In terms of symptoms, I think the cramps, the mid-section fat storage, and delicate mood/hormone balance.

Yaara

Israel Team Leader


Time Zone: GST + 2 (Jerusalem)

bayittevoni.blogspot.com


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BELROSA's Photo BELROSA Posts: 697
12/31/13 2:15 A

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Although this used to be my most hated symptom, I have found laser hair removal has helped enormously with the unwanted hair, bringing maintenance down to 2-3 times a year, so long as I control my carbohydrate intake and take DCI regularly to keep my insulin sensitivity in order.

There is conflicting research on whether there really is an increased risk of endometrial cancer, and no real consensus amongst the experts, so as long as you focus on being as healthy as you can be to improve the risk factors you can control, such as weight, fitness, stress management and nutrition, you shouldn't lose too much sleep over a potential increase in cancer risk.

What a great question, I cant wait to hear what everyone else thinks. Welcome to the group Allison.



I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
HEALTHYDAISY's Photo HEALTHYDAISY Posts: 136
12/30/13 10:06 P

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For me it is the facial hair. And a close second is the way the weight settles in my midsection. Belrosa is your completion fair? I have thought about laser removal, but I am extremely fair skinned. I tend towards rosacea as it is and am concerned the laser treatments might increase the redness.

The cancer issue is new to me (I learn something new everyday). I had never heard that before. Makes sense now when I think back to the reaction of, and some of the tests ordered by, the doctor that diagnosed me.

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BELROSA's Photo BELROSA Posts: 697
12/30/13 7:30 P

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Although this used to be my most hated symptom, I have found laser hair removal has helped enormously with the unwanted hair, bringing maintenance down to 2-3 times a year, so long as I control my carbohydrate intake and take DCI regularly to keep my insulin sensitivity in order.

There is conflicting research on whether there really is an increased risk of endometrial cancer, and no real consensus amongst the experts, so as long as you focus on being as healthy as you can be to improve the risk factors you can control, such as weight, fitness, stress management and nutrition, you shouldn't lose too much sleep over a potential increase in cancer risk.

What a great question, I cant wait to hear what everyone else thinks. Welcome to the group Allison.



I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
ALLISONLP83 SparkPoints: (21)
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12/30/13 7:08 P

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There are so many PCOS symptoms to hate. Sometimes, thinking about what we are freeing ourselves from can help to keep us motivated. What are you most looking forward to lessening or being rid of?

For me, the increased risk of cancer if what scares me the most. The biggest hassle is the daily maintenance of unwanted hair! :/

What about you??

Allison

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