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SUNSHINECOOKIE's Photo SUNSHINECOOKIE Posts: 32
1/21/13 8:31 P

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NEVER EVER EVER GIVE UP!!!

It is not easy, but, if it was we would not have it.

I tell myself that lots, but, I have a super doctor, who is very supportive and when I am having
a flare up and have to go into his office, he calls to check on me, not a nurse, the doctor calls himself and re assure me that I will be ok and he is there for me.

It means a lot when, I walked close to death and he was there cheering me on and here I am 5 years later, inspite of all the surgeries, I am here enjoying this crazy mixed up life.

It is a good day when you can eat, we just have to watch what we eat and how much.

I wish you the best and remember one day at a time, one step at a time, and we can do it!!!

May you always have Love to share, Health to spare, and Friends who care


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GWEGNER SparkPoints: (4,449)
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1/21/13 8:24 P

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I was diagnosed a few years ago and it is so hard to loose the weight I gained from meciations to a more sediatary lifestyle.
I am so happy to see that I am not the only one with this issue, I had one (old) doctor tell me I could not posssibly have UC as I am overweight and only skinny people have UC. What a joke, I finally found a good doctor and was diagnsed properly.
I am finally on a good medication regiment and am finally well enough to work out. I am using Spark People to track my calories and exersize regiment. So far I think I have lost some weight but am resisting weighing myself till I see my nutritionist again in a few weeks. I want to be surprised. :)


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SUNSHINECOOKIE's Photo SUNSHINECOOKIE Posts: 32
1/13/13 7:51 P

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Hi to All,

I have been battling this for 5 years now, and sometimes I feel like i just want to sit
down and cry.

Sometimes, I wish I could just sit down without discomfort from what this ravages on your
other end.

It is trial and error, I am in the bathroom so much, and watch Everything I eat, but, it is seems to
have a mind of its own.

I will say some foods are triggers, stress is a trigger, even some things we drink, so I keep a log, that way when I am having a really bad day I can go back and review what I ate, drank and what could have been stressful.

Going out to dinner, that is a rare pleasure, and all of you know why and what can happen, and yes it is very embarrassing when you can't make it to the restroom in time, carry clean clothes with you in the trunk of your car and an emergency clean up kit.

A good support system, sisters, brothers, friends and my wonderful husband!!!!

Think positive, be happy and remember a year from now, you won't remember how bad
the day may have been, smile lots, and know you are not alone.

Hugs to All,
Sunshine Cookie

May you always have Love to share, Health to spare, and Friends who care


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CARADAWN's Photo CARADAWN Posts: 1,955
1/7/13 4:32 P

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From what I have experienced, learned, and heard diet with IBD is a very personnel thing. A food item that may affect me negatively may not affect you at all. I have heard of people doing an elimination diet to see what "trigger" foods affect them but to me this is a drastic measure if you really need it. It may help to keep notes on your food tracker (if you use it on this site) about how you feel after eating certain foods and on certain days. You may be able to find a trend in there somewhere :) Good luck

~ You are the only person that can make yourself happy ~

~I wake up every morning and CHOOSE to be HAPPY~



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MICHELLE655 SparkPoints: (544)
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1/4/13 8:45 A

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Hello I am newbe here, but was diagnosed about a year ago, I went to two different docs, both had similar opinion, trying to eat things, but hard to follow a diet. what do you do?
Michelle

SALLEE8's Photo SALLEE8 SparkPoints: (0)
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4/15/12 5:18 P

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Thanks so much for the info. I have dramaticaclly reduced suger intake. I have MC; I don't how the symptomns differ; however, controlling intake of certain foods seems to be with MC as well. I see GI Tues. for follow up and discussion of meds. Thanks again!

Sallee

"Happiness is like a butterfly. The more you chase it, the more it eludes you. But if you turn your attention to other things, it comes and sits softly on your shoulder."
Henry David Thoreau


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FREESTYLEPOET's Photo FREESTYLEPOET SparkPoints: (0)
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4/15/12 5:13 P

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Hi Sallee,

I just started here a couple of days ago, and saw that you pretty much had the most recent post.

I have Crohn's that's difficult to control right now. I'm taking Humira, but recently had my dosage updated to weekly instead of bi-weekly. I'm trying to keep my fiber intake up to help keep things running 'smoothly', and lessen the irritation of my Crohn's spot (mine is in the ascending colon, where the small and large intestine come together).

One thing I've done that the GI nutritionist who works with my GI said is to nuke any raw vegetables you eat for about 10 - 15 seconds in the microwave. It won't deplete the nutrients, and it breaks down the enzymes that give Crohn's people trouble. This way, you still get the fiber benefits without the sudden urge to go. Also, to stick to green/red leaf and iceburg lettuces. Another thing is to omit added sugar, and high-sugar items, including sugar substitutes. If you must have a sweetener, stick to natural liquid sweeteners, such as honey. It is more easily tolerated by people with Crohn's.

I hope this helps, and hope to see you around the board!

free-style poet

Married to Alan, pet-parent to Kirby, Jelly Bean, Pwincess and Punkin'

meowsmeantheworldtome.blogspot.com/


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SALLEE8's Photo SALLEE8 SparkPoints: (0)
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3/14/12 12:11 P

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Hi,

I'm glad I came across you on the site. There are not very many of us; I have a feeling many people are treated for IBS.

I was diagnosed with Microscopic Colitis 6 years ago after six months of being terribly ill. It was diagnosed by taking biopsy of my colon during colonscopy. I have a new Dr. and he took another biopsy during colonscopy Dec. 2011 for verification.

For me, the only way to control symptomns is to take Busonemide (Generic Entecort). I take it for a couple of months, then stop and see how long I can go without symptomns returning. Thank goodness it is offered in generic form as it was terribly expensive before. Last summer I made the mistake of staying off it too long by being stubborn and thinking I would conquer it. BIG MISTAKE. It takes 10 to 14 days for it to begin working upon resuming.

I see my GI Doc every 3 months to review. He doesn't want me to take it all the time because it does have a small amount of steroid in it. However, I've had 2 Drs. tell me the steroid stays in the colon. I stopped taking in last week and am keeping a daily diary to review with him April 8th. I have already begun to have cramps about mid day.

Well, I've certainly rattled on. If you have any advice for me, I'm open to anything and everything. I'm sure you've been there.

Take care.

Sallee Wise



Sallee

"Happiness is like a butterfly. The more you chase it, the more it eludes you. But if you turn your attention to other things, it comes and sits softly on your shoulder."
Henry David Thoreau


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DHATSUMI1 Posts: 2
10/26/11 12:16 P

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Thank you all for your comments and feedback, I was a little sick for while there, planned a wedding started Grad school, etc.. I am happy to report that I am doing a pure raw diet and have never felt better. I aslo juice 2x a day. I am up to 3 workouts a week, but all are still low impact. Hoping to get back to 6days a week, like before diagnosed.

I hope you all have a wonderful week, month and day! Form one C&C to another, take it one day at a time :-)

RMSPARKLES's Photo RMSPARKLES Posts: 537
4/22/11 12:21 A

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Today was a pretty good day! Felt pretty good and ran a lot of errands with my husband. Fun!
emoticon

Believe & receive or doubt and do without!
Have a blessed day! ☺
~ Rachel


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RMSPARKLES's Photo RMSPARKLES Posts: 537
4/13/11 1:21 P

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Hello everyone, I am Rachel, the new leader for this forum. I totally understand the frustrations. I've had Ulcerative Colitis for 30 years Plus! I have some good days and some bad days, depending on what I eat, and how stressed I am. Rarely am I able to exercise in the mornings, but sometimes I can. I love to work out in my yard, and in the Summer, it is discouraging not to be able to go out early when it is cooler. But all in all, I thank God that after hours of feeling bad, I usually feel better later in the day and function almost in a normal state. emoticon

People who don't know me personally think I am in perfect health because it doesn't show. ha ha
I am looking forward to discussing what we can do to improve our health and therefore our lives! It helps to know that we are in this together! emoticon

Edited by: RMSPARKLES at: 4/18/2011 (12:34)
Believe & receive or doubt and do without!
Have a blessed day! ☺
~ Rachel


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DONELLE SparkPoints: (40,257)
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2/11/11 3:14 A

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I totally understand the figuring out what to eat and what not to eat. Start a list. I have some definitely DO NOT eat or you'll be paying. Other stuff I kinda know, sometimes I get tummy aches and other times it's not to bad. Roller-coaster/guessing game and I don't like either. That is why I'm up tonight with a tummy that sounds and feels like a volcano ready to blast! Sigh... what did I eat?? is always the question. My back has been bothering me as such so working out has not even been in the picture. But that will change. I need to get a hold of this. I know I feel better when I workout. I have a treadmill at home, a really nice one I bought myself - to many dogs and not enough bathrooms! So I go and if I have to jump off I do, then hop back on I go. But now I'm working full time, with 2 grown kids and 2 grand kids back home, so time is the problem. I'm use to walking in the morning but my treadmill which trust me would take a team of Sears blue people to tear it down, is in my son's room. (wasn't ready for him to come back home so made it my workout room!) But NO EXCUSES! To get a hold of this, we have to eat right, and exercise.

For I know the plans I have for you, declares the Lord,plans for welfare and not for evil, to give you a future and a hope.
(Jeremiah 29:11)

SW: 198
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STEPHANIE40403's Photo STEPHANIE40403 Posts: 18
10/23/10 9:39 A

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Boy do I ever understand. I was just diagnosed in September and now it seems like things are worse than they were before I was diagnosed. More symptoms and pain than before the diagnosis. Granted I had a tear in my colon over the summer, that's why I was diagnosed and also probably why there is pain, SINCE the diagnosis. But I am struggling to figure out what I can and cannot eat. On top of the Crohns my body also doesnt break down fiber, therefore I am EVEN more limited in what I can and cant eat.

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PAULSNANASUE's Photo PAULSNANASUE SparkPoints: (0)
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10/20/10 11:24 P

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It is really a day at a time. There will be days when you feel comfortable to exercise and days when you don't. It's okay to listen to your body.

I don't have Crohn's but I do have microscopic colitis. There are days when I can't walk very far without having an accident. Not fun to admit, but it happens.

As for the eating, it is really a case of trial and error because each person has different triggers.

It sounds like a support group to help you get through the initial "How do I handle this?" may be in order. Contact your doctor's office or look online. But do keep reaching out. There are answers out there.

Hang in there. It will feel more doable as you get a better feel of what your body needs and less overwhelming.

We care,

emoticon



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DHATSUMI1 Posts: 2
10/18/10 1:17 P

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I was dignosed with Crohn's this year and ti seems to be an ever losing battle. I cannot manage to find the right things to eat, and I retain and gain weight weekly.

Any suggestions? Does this get easier? Anyway I am going to get better at being able to workout?

Thank you for your notes and thoughts.

Donna

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