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PRUPLEBEAR's Photo PRUPLEBEAR Posts: 23,311
12/4/15 10:29 P

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Well we are here to help you a much as we can. It does take a long time to get in a groove. I know that I did live off of Gatorade and protein shake for a very long time!

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FOXYROXY13's Photo FOXYROXY13 Posts: 938
12/4/15 8:38 P

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I'm possibly celiac so I do try and avoid all gluten. I find I do occasionally give in because my results were inconclusive. I do not get severe pains unless I eat it several days in a row too which doesn't help me be more diligent. most of the time I am good with avoiding gluten. I think recently it is just because I have so many more restrictions now in trying to follow the GP recommendations and it just isn't sitting well with me mentally. I gave in and had some fast food. It was not too bad. Just a bit bloated.

I think I will very slowly get used to things. I used to love oatmeal at breakfast. I found I like rice porridge which is ok according to the recommendations I have and I like it just as much as the oatmeal. It just takes a little more prep work. I am also supplementing with ensures at least once a day just cus of the stress I feel every time I need to decide what to eat. ensures are easier, nutritionally balanced and I do just fine with them.

I have a half a mind just to live off ensures but I don't think I can live with that solution. It would be simpler but not good for me mentally. I struggle with an eating disorder and that has just gone into high gear with all this as I am now tracking to make sure I get enough nutrition with my small meals. It was not an issue before to get in enough. I was just feeling a bit bloated and occasionally had a few days where I was not getting enough due to nausea. For the most part I was doing ok. These new restrictions seem very drastic given the level of my symptoms which have been worse since getting the diagnosis. Yay stress >_>

the good thing is I think I am finally starting to process it. it has been so hard on me. much harder than the celiac and lactose intolerance diagnoses. I'm not entirely sure why. maybe because with this there is no guarantee I will feel better once changing my diet. and there will be unpleasant things to deal with, like constipation, even with the new diet. It just seems like a lose-lose situation to me which really sucks.

It is very frustrating to me because GP is a symptom not a cause. In my case we don't know the cause. I am not diabetic, have never had abdominal surgery and I do not have any autoimmune disorders other than possibly celiac which is not even confirmed. I'm sorry I'm ranting again. I need to stop obsessing about this so I'm gonna shut up for tonight lol.

Roxy


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PRUPLEBEAR's Photo PRUPLEBEAR Posts: 23,311
12/4/15 8:00 P

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Yeah I don't do so well with gluten. I know I can tolerate a food if I have not had any stomach pain for like 3 days after trying a food. And like always I had some potato bread ( that I have had before) and today it is killing me!

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GRNDMOM43's Photo GRNDMOM43 Posts: 47,152
12/1/15 7:15 P

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If you feel that medication would help your PTSD definitely talk with your Dr.. My Gastro said to try a food for three days as you do when introducing baby foods to children. That amount of time seems to be a good indication.
It sounds like you have a very mild GP, so be very thankful, we are the lucky ones. Be sure to discuss any questions with your physicians. I take Cymbalta which is a dual drug, used for my anxiety and my osteoarthritis. If I have to take a muscle relaxer or pain medication it slows things up more and I have to make adjustments.
Hunger is something we contend with a lot or you may have no appetite at all. The problem is in the slowness of the gut. I cannot eat much food at a time because it will just come back up . If I am careful of the amounts, I can usually eat enough to feel full. The recommendation is to eat 6 times daily, not full meals but more grazing. GP may have a tendency to keep foods in the stomach too long thus messing with blood sugar levels.
Low fiber is good as long as you try to avoid the foods which can cause bezors. Carrots, potatoes, mushrooms work for me but remember no peels.
I obsessed when I first had the diagnoses. It came from not knowing much about the disease and knowing that it can be so horrible for so many. Learn what you can and go slowly. Low fat is recommended due to how hard it is for fat to digest. I have to be more diligent when going through a flare. Trackers tend to not be happy when I use them as I cannot follow what is recommended. I never meet the calorie or nourishment recommendations.
The high fiber smoothie may work because the grinding work is already done for you and your stomach does not have to struggle to digest the foods.
I have lactose intolerance as do many GPers. Many also have Gluten intolerance. I will send you my phone number by Spark Mail and feel free to call me if you want. We have many things in common. Take time everyday to take care of YOU!

Nola

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Don't quit! Tomorrow is another day to Sparkle.







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FOXYROXY13's Photo FOXYROXY13 Posts: 938
11/30/15 9:35 P

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thank you for your response. that is helpful to me.

as a follow up question I would like to ask how you determine if you tolerate a food? I mean is it more based on an absence of symptoms? how long until you get hungry after a meal? both? something else?

I struggle with an eating disorder as well and though I have begun tracking my food and responses I question how in depth I should be. Since the diagnosis I have been obsessing. Almost all of my energy every day is put into planning food and meals and it is extremely tiring. My food is basically what my whole day is about. I think the stress will only make the issue worse.

I have also had a high fat meal today and got hungry in under 3 hours. This, along with the tolerating the high fiber smoothie, makes me question the diagnosis. I also have PTSD and I know stress can cause delayed gastric emptying. I wonder if the heightened stress of the test caused a false diagnosis. The test was only an hour long and there was virtually no emptying at all in that time. I just wonder how representative of normal this is for me given the PTSD and my seeming lack of serious symptoms. The test itself was very stressful and I wonder if the results would be better if I had anxiety meds the day of the test. I understand they can slow gastric emptying but I wonder if it's worth a try. I intend to discuss it with my gastro doc at my follow up next week.

I do experience nausea and bloating every now and then but its not super often anymore since going gluten and dairy free. those restrictions on top of the gastroparesis diet are extremely difficult and for now at least my dietitian is recommending I still eat low fiber fruits and vegetables even if they are restricted on the gastroparesis diet. I am confirmed lactose intolerant and suspected celiac though the results were inconclusive due to my inability to tolerate the gluten challenge. I have also never vomited despite it being a very common symptom of gastroparesis.

Any thoughts would be helpful while I await my gastro doc appt. I am obsessing and worrying excessively and it's really not helping my mental health which I greatly struggle with.

Roxy


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PRUPLEBEAR's Photo PRUPLEBEAR Posts: 23,311
11/28/15 8:35 A

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I would say that you tolerated the smoothie. I can go weeks with out being home hungry and then wake up one day and I am starving. Everyone tolerates things differently. I would suggest getter Nguyen a notebook and keeping track of how food makes you feel. Also I have noticed that I can tolerate some say 25 times and then on the 26th time...not so much.

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FOXYROXY13's Photo FOXYROXY13 Posts: 938
11/27/15 8:07 P

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So I know the team is not all that active but if anyone sees this and could give me some advice I would much appreciate it.

I am wondering if its possible to get hungry if there is still food in the stomach from a previous meal.

I am starting to eat smaller meals more often as recommended. I had gotten this new protein powder and it is high in fiber which I did not notice when I bought it. I had a small serving of it in a smoothie and with a banana it came out to about 8 grams of fiber which is a lot. I will be replacing the powder next time I go out. The thing though is that I got hungry within 2 hours after the smoothie. That seems weird to me as in the past I did not get hungry except in the morning. Does that mean I tolerated the smoothie alright? I'm not good at recognizing my body's cues but this was clearly hunger. I felt fine after and was surprised I got hungry when I noticed the amount of fiber in it. I still got hungry about 2 hours after my next meal also. It's both nice to be actually feeling hungry and annoying that it is happening so often.

Any thoughts?

Roxy


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