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LEYWREN SparkPoints: (0)
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10/6/12 4:23 P

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Read my initial post. I am not asking for medical avice. I asked if anyone else has gone through pregnancy while having gastroparesis. If not, then I wasn't asking for anything else. I know the standards to try, and thought maybe someone who had been there/done that would have some suggestions.



1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
10/6/12 12:32 A

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If all of your doctors are afraid to treat you, your best bet is to find new doctors. I know it is very scary to go to new doctors, but no doctor should turn you away because they're afraid to treat you. Every doctor is different, so we must find those who can help us the most with the least harm. Sometimes we have to be our own advocate and learn what's happening in our bodies (good and bad) so we can speak with our doctors more on their level. As for the medications, I'm glad you checked them out, but after an ER visit you're supposed to be informed to follow up with your regular doctor within a week, and at that time they should be notified about the new medications. ER doctors are only concerned about what is in front of them at that moment and not much else (they're there only for the most urgent needs, not the chronic issues) and your primary doctor should follow up with their recommendations and apply it to your situation to determine if the meds/treatments make sense or not in the long term.

As for the food intake, if the only thing you're getting down is liquids and pureed foods, that's what you're stuck with. You can try smoothies, applesauce, and yogurt, you can even cut ensure, boost, or carnation 50/50 with water, but if you can't get and keep the liquids down and have enough calories to stop losing weight (losing weight in pregnancy, even if the woman is morbidly obese, is not safe for the baby) the doctors have to intervene. The doctors should be in contact with each other (you may have to request they do so) because there's so much going on in you right now there's not a single doctor that can do it all.

Honestly, we can give you hundreds of ideas of what foods to try, but it is up to you to figure out what your body accepts. Sounds like you've tried most of what anyone would suggest. The easiest things to digest have low fat, low fiber, moderate protein, high simple carbs, and are liquid; even so, some GP is so severe that the person can't even drink water without throwing it up. There's no way for us to know how bad your condition is and how much worse it's getting from the preganancy. If your body won't accept much of anything then it's wholly up to you and your doctors to figure out how to get you enough calories.

What I'm saying is probably not going to seem helpful or even be what you want to hear. Having GP is difficult and having severe GP can be life-threatening. Being pregnant when healthy is difficult and with medical conditions it's exremely difficult. Having all of it together may be an uphill battle every day. That means advocating for yourself and your baby with numerous doctors, hospitals, and probably insurance also.

Remember, SP is not about giving medical advice. If our team is found to be giving direct medical advice it could be shut down. We can give suggestions (I have posts all over our team about what foods to try), talk about the mechanical/physical issues of the body, and give emotional support, but we have to recommend you speak with your doctor(s) in cases like this. Even if a trained medical professional is on our team, they legally can't give you medical advice because they don't know your entire situation and haven't treated you.

I've suggested the easiest foods to try, I've given some explaination of the physical problems involved, and I can't speak much on the emotional part because I'm in an extremely different position from you. I'm not sure I can do anything else for you, so I'll stop here and let someone else step in and see if they have anything else to offer you.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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LEYWREN SparkPoints: (0)
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10/4/12 10:46 P

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Yes I've seen a doctor. I see mine every week to every other week. I had been told 2 months prior to become pregnant that it couldn't happen due to PCOS. The OBGYN was amazed that it happened. The drs at the ER are the ones who put me on the B-6, Unisom, and Ativan. The GI and OB drs put me on Reglan and Zofran. I made sure to check the safety of each medication very thoroughly before taking. I have multiple illnesses and am well aware of the need to speak with my drs. I just hoped that maybe here someone would have been through this and have had some tips or suggestions. I can't stomach Ensure or Carnation instant breakfast. Very rarely, I can tolerate Boost. My doctors are all scared to treat me. My OB doesn't want to handle the GI issues, my gastroenterologist doesn't even want to see me until after I deliver, and my GP admits she has no clue what to due. I'm struggling through this the best I can. I fear I will end up on TPN but if it is what is best for the baby I'm all for it. I haven't worked since 2004 due to disabilities. The caloric intake is why I posted here. Just curious about ideas for getting in calories without making it worse. Drs are so scared of lawsuits they make life difficult for patients. We had tried for a long time to get pregnant, and gave up years ago, and were then told it couldn't happen. We'd already resigned ourselves to that so we are happy to be blessed with this one. I'm just kind of worried because I've lost 24 lbs so far in the pregnancy. You were right though, I had it to lose.



1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
10/4/12 9:01 P

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No, I've never been pregnant (much to my dismay), but I've heard of others who have been pregnant with GP. Still, I've studied the body and GP enough that I have an idea about the mechanics.

First, did you speak with your doctors before getting pregnant? Do they know that you're pregnant while on all of those medications? While some medications are okay during pregnancy, some are not okay during the first trimester due to the rapid growth of the fetus. So If you've not expressly discussed all of your medications with your doctors, be sure to do so very soon.

Second, meds don't always work the same way for everyone. If they're not helping then they might not be right for you and your GI doctor needs to try new treatments. Also, while pregnant your body changes dramatically (you basically have a parasite inside you, living completely off your body) not only physically but hormonally and chemically. So what worked before might not work now. Again, that could mean your GI doctor needs to review your prognosis and treatment options.

Third, as that baby grows it takes over more and more of your abdominal cavity. If you're already overweight (I'm sorry to make the assumption, but you'll hopefully understand why I'm making this point), there is so much mass taking up your abdominal cavity that your organs are going to be very squished and will have an even harder time working. Compound that with having GP and it could be that your condition will only worsen as the pregnancy goes along. So you have a very difficult road ahead of you. Every doctor you have needs to have a part in this pregnancy. Now, in some cases, after having a baby GP can get better for a short time, or even fully, but it's not the standard.

Obviously, you must keep your nutrition up while pregnant. So eating healthy with proper caloric intake is so important. It is up to your doctors to make this determination, but it is possible that you will end up on a wholly liquid diet to ensure you can digest enough nutrients. It's also possible you'll need more drastic treatments such as TPN to get you through the pregnancy. I truly hope not, as I've been on it and it is difficult and annoying. Still, if you're not getting enough nutrition then you have to be prepared for any treatment option. I don't mean to be scary, but I think nothing is worse than being blindsided.

In the meantime, while you're waiting to see your doctors, try drinking Ensure and Carnation instant breakfast. This will give you good nutrition in an easy-to-digest way. Make sure you're taking your vitamins and drinking water. Do everything healthy and nutritious you can do.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
teams.sparkpeople.com/doalittlebette
r

My sparkfriends are my greatest support and I'm grateful for it.
LEYWREN SparkPoints: (0)
Fitness Minutes: (82)
Posts: 80
10/4/12 8:25 P

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Has anyone else gone through pregnancy with gastroparesis? I am 18 wks pregnant. I've been in the ER twice for dehydration. I'm taking reglan, zofran, ativan, B-6, and unisom, but the don't seem to help very much. At the moment, I'm stuck eating baby food because its the only thing I can keep down. I feel like I'm starving but unless its liquid or pureed I throw it up, and sometimes even then. Has anyone been through pregnancy with gastroparesis, and have any suggestions?



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