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10/18/14 6:32 P

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Hi all what is a "small portion" for you? I think 1.5 cups liquids is my limit but I usually add more and then get nauseous and bloated. Solids - varies esp what I ate prior day.

I learned on a trip I can eat anything if slow, calm, settled, in social setting, empty of food and liquids (4-8 hours since last intake), and only 1/2 cup with cup liquid ( more in morning - up to 2 cups). Yet I continue to eat way more than this because it doesn't feel satisfying and I am so tired!

1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
11/21/11 6:33 P

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www.thinkgeek.com/caffeine/bacon/
To be honest, if you just want the taste (or smell) of bacon, there are many ways to get it. Bacon salt is on there as well. And here's the nutritional information for bacon salt: www.thinkgeek.com/interests/giftsund
er
10/c4e9//images/4981/


(I love thinkgeek and I've watched their stash of bacon items grow, including the bacon salt that they've had a for at least 2 years. So I thought I'd share the link since Shari mentioned it.)

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


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11/21/11 5:27 P

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Odd thing about onions with me; the fresh onions bother me, even if they are cooked, but I can do the dried onion, or the dry soup and recipe mix with the onion in it.

If you like bacon flavor, I found something called Bacon Salt; it adds a nice bacon flavor things like eggs or potatoes, and despite the fact it is called a "salt" it's only 6% of the RDA for sodium per serving.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
11/2/11 2:05 P

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Glad you're finding a couple things that work. As for the triggers, sometimes we just want to try something 'just to be sure' - and at least I think that's okay, because how will you know otherwise? Plus just because something doesn't work for one person doesn't mean it won't for someone else. Did you try cooking the dickens out of the onions and peppers, or were they only slightly cooked? Some foods work better when they're really cooked, so if you really like them you could attempt to cook them almost to mush and see what happens. The flavor won't be the same, but when you really like something you often take what you can get.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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GUTHRIESM's Photo GUTHRIESM Posts: 47
11/2/11 10:41 A

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I've been testing things on the potato and so far I can do Frank's Red Hot with no problems. Margarine seems ok too. A little salt and pepper also seems to be safe. Sour cream didn't seem to work though.

Latest trigger foods- onion and peppers. I know peppers are discouraged b/c of the skin but I had to try them anyway!

Don't think of organ donations as giving up part of yourself to keep a total stranger alive. It's really a total stranger giving up almost all of themselves to keep part of you alive. ~Author Unknown

"It's tough to make predictions, especially about the future." ~Yogi Berra


1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
10/21/11 9:17 P

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I've found that highly acidic or very spicy foods make my stomach revolt. Many juices can be acidic (even if they don't seem like they are). When I had my GERD testing I had about a half cup of juice and within minutes the pH in my esophagus was 1.6 (your stomach is supposed to be 1.5-2.5). I've learned I can't drink soda (diet is MUCH worse than regular) or juice without my stomach hurting very bad. I stick to water now.

Have you tried something on the potato? Of course there isn't a lot you can put on it, but I found this stuff called Butter Buds that consists of sodium and just 2 carbs (in 1 tsp). It is a butter flavor, not great, but better than nothing.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


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GUTHRIESM's Photo GUTHRIESM Posts: 47
10/21/11 12:10 P

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I finally have a "safe" food- boiled potato (one). Still working on finding more foods I can consistently eat. Also I can now keep down Coke. Apple juice (even the store brand, no fiber kind) sets me off pretty badly.

Don't think of organ donations as giving up part of yourself to keep a total stranger alive. It's really a total stranger giving up almost all of themselves to keep part of you alive. ~Author Unknown

"It's tough to make predictions, especially about the future." ~Yogi Berra


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10/12/11 4:20 P

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It's hard to find cereal that doesn't have a lot of fiber in it; and it also has to taste good dry, because I don't like the taste of milk.

I have found I can eat the original Special K; it only has 2% fiber per serving.
I can also eat Rice Krispies; I like to mix them into my yogurt. They also make a good chicken coating when crushed up with a little Parmesan cheese.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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MOM2ACAT's Photo MOM2ACAT SparkPoints: (0)
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10/9/11 4:52 P

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I can eat chicken and turkey. When it comes to beef, it has be ground, other cuts of beef I can only eat if they have been cooked for a long time so that they are tender, like beef stew made in the crock pot.

I can't eat raw carrots, but I can eat cooked ones. I also like the Bolthouse Farms carrot juice. Each 1 cup serving is 2 servings of veggies.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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TENTACLES's Photo TENTACLES SparkPoints: (0)
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10/9/11 8:40 A

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Hmm, Safe foods?
- Crackers
- Pita bread (For some reason it doesn't hurt as much as general white)
- Carrots, Celery, easy to eat raw veggies
- High juicy fruits, like grapes, apples
- Rice!! I used to hate rice with a passion, well unless it came from the local take out place then saw how much I ate. (Could down 3-4 cups before I noticed it.) Now days I make it at home in the morning and add half a cup to everything I eat. Helps with bulk.
- Soda Water. Okay it seems weird but I have a Sodastream so I can bubbly anything, so even just plain juice can be really good if bubbled up.

Triggers?
-MEAT! Oh me and meat do not get along. I mostly just eat Chicken and Pork. Anything 'red' and I feel horrible
- Anything spicy. From garlic to hot peppers, don't cross my lips on bad day.
- Milk. [Shiver]
- Super high fiber Bean dishes. Feel like I can't use the bathroom for days after that. ^^''


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DEEDSTER Posts: 29
9/3/11 4:11 P

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I am able to eat fat-free refried beans, but not other beans. I love nectarines, but I have to peel and poach them now to be able to eat them. I can eat fresh cherries and green grapes if I limit my portion.

I also love fresh brussel sprouts, but I though I was going to die when I tried some for the first time since being diagnosed. If I eat foods with too much fat, I get diarrhea. Like everyone else, it's mostly trial and error. When I find a food that doesn't agree with me, I just give it up. It's not worth the pain later just to enjoy the taste now.

1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
8/12/11 10:15 P

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I know some places like to keep their recipes secret, but I wonder if you gave a brief explanation of how it helped you and say you would like to share it with others who could be helped too, if they would tell you.

No big deal if they don't - I just always figure it doesn't hurt to ask.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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8/11/11 4:12 P

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I know they used a whole banana; not sure what else; they make them so fast!


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
8/11/11 3:20 P

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www.biggby.com/menu/beverages.php

Darn there aren't any locations near me. They do give the nutritonal information and basic ingredients (chocolate, butterscotch, fresh banana). Any chance you can get a better recipe to share with us? If you can watch them make it and guesstimate the ingredient amounts I'm sure some of us would like to try it!

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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8/10/11 4:34 P

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I tried a creme freeze yesterday at Biggby's ( a small chain that is kind of like Starbucks) that did not aggravate my GP! It's called a Hopscotch Bear, and it had real banana in it, (I watched them put a fresh one in the blender!) and butterscotch and chocolate, and it was so good.

I had it after my chemo yesterday, and I usually get bad heartburn a few hours later, but I didn't last night; the only thing I did different was drink that Hopscotch Bear!


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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7/12/11 5:46 P

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I experimented last night with zucchini, I thought it would be ok if I peeled it, did not eat the parts with seeds, and cooked it really, really well. Turned out to be a bad idea; about 2 hours after I ate it, the pain started; then hours later, when the stomach pain stopped, I ended up with diarrhea. I'm sure it was the zucchini, because that was the only "new" thing in my diet yesterday.

Thankfully I felt recovered from it this morning, and the leftovers went into the trash can.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/24/11 10:46 P

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I've been to a BK that has it on the wall, but it is right next to the check out, so you have to keep telling people to go past you. I was at IHOP tonight and they have a printout in a binder they can bring to the table. Many fast food places have pamphlets behind the counter you can ask for and take with you. That way you can step away from the line or sit at a table and decide. I don't eat at sit down restaurants often, but that is mainly because they rarely have anything I can eat. Still, I've learned if they don't have it online that you can plan ahead, or if you aren't certain what you will want until you get there, call ahead and ask if they have it available when you get there.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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MOM2ACAT's Photo MOM2ACAT SparkPoints: (0)
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6/24/11 4:12 P

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I wish those places would have a board with all that info in a spot where we could take our time and look at it and study it without being made to feel we are slowing down the line. I try to check that info out ahead of time online, but it's not always possible to know ahead of time where you might end up eating.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/24/11 2:21 P

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www.g-pact.org/restaurantcards.html
There's the page where you can order it from. They are free, just send a SASE and they'll mail it to you.

I don't eat out often (I have no one to go out with, and it takes me so long to eat that unless I have a book with me, I feel stupid just sitting there looking around), but I will get fast food now and again and take it home to eat. If I haven't been there in awhile, or want something different, then I have to sit there looking at nutritional information for 15-20 minutes to figure out what I can have. I apologize a lot, but I also give a brief explanation of WHY I'm staring at it. It is amazing how many people look at me and say "you don't need to lose weight" when I say I'm on a very special diet. Then I have to explain it is a medical diet to keep me alive and eating, not a lose weight diet - the medical problem is what caused the weight loss that makes it dangerous for me to not eat properly and risk losing more weight.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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THIKCHIC's Photo THIKCHIC Posts: 89
6/23/11 12:34 A

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Interesting info, has anyone ordered this card or used it? Has it worked for them or have you had any problems using it? We go out to eat a lot and I end up bringing my food home and having the rest the next day. That card would be helpful. Thanx!

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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/21/11 12:16 A

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I do small portions or pick up food to take home and then take 2+ hours to actually eat it. I find that when I can't get a smaller meal I'd rather just take 4x as long as a normal person to eat a medium sized meal.

G-Pact has little cards you can either order or print out (I can't remember for sure) that briefly explains the situation and requests the server allow you order a half meal or from the children's menu. This way you can slip it to the server instead of saying it aloud in the restaurant.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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SUNSPARKER Posts: 148
6/20/11 9:50 P

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MOM2ACAT, I'm also one of those who can't really eat a regular size meal anymore, and I have found that I do seem to do much better when I stay with the smaller portions. I tend to do the same thing you did--I order side dishes. Doing that allows me to enjoy what I want, in a portion size that I can tolerate without too much of a problem (if any) afterwards.

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6/20/11 4:14 P

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I had lunch today at Bob Evans; I love that that they have a menu of ala cart side dishes I can order from, instead of getting a regular size meal that I can only eat half of, or have to leave things on the plate because I can't eat them at all.

Today I had cooked glazed carrots and mashed potatoes with gravy; it's been 4 hours and so far, no tummy trouble from it.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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1STATEOFDENIAL's Photo 1STATEOFDENIAL Posts: 4,529
6/10/11 9:51 P

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I'm very day-to-day. On bad days, fruits and veggies are definitely out - even cooked. Also foods with moderate amounts of fat are out (they're not so bad for me on a good day). Plus high protein foods - chicken, yogurt, eggs, etc are out or my kidneys feel like they're processing thumb tacks. On a really bad day, I go to the ensure and simple carbs like fruit snacks and hard candy. Plus I eat a lot less at one time, and much more often - sometimes just a few bites every 1-2 hours. On a good day, I can eat many things within reason, even some whole fruits and higher fat foods like pizza. But then I eat too many calories.

I tend to keep a wide variety of foods around me, and always keep the 'bad day' foods nearby no matter where I am. That way I can eat based on how I feel at that time.

One thing I do really like are Stretch Island Fruit Co fruit leather strips. I bought some pretty cheap on amazon and I love them. It has the sweet taste of fruit without extra sugar and each one has 1g of fiber and 45 calories, so my body usually likes them. Also, they don't go bad. So instead of buying fruit when I can eat it just to have my stomach stop working and having it go bad before the flare eases, these are individually sealed and can sit for months.

~ Sheri ~

My blog about Ehlers Danlos Syndrome: www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=5444844


Every Day is a Chance to Do a Little Better! Forgive Yesterday, Hope For Tomorrow, Do Better Today!
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SUNSPARKER Posts: 148
6/5/11 9:13 P

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I am gradually learning which foods seem to consistently cause a problem, but I still find myself modifying my meals on a "daily"--sometimes meal by meal--basis. What agrees with me one day does not necessarily do so another day. My food preferences have definitely changed since being diagnosed with gastroparesis (due to intolerance, taste, seasonings, texture...); so too have my eating habits. After longtime adherence to a dietary lifestyle based primarily on the Mediterranean/Anti-Inflammatory Food Pyramid principles, I am finding it to be quite challenging coping with the new food option choices/restrictions necessary for managing my gastroparesis.

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4/29/11 11:11 A

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I'm just starting out with trying to identify safe foods and trigger foods. But one thing I know I cannot eat is banana's. I know no fresh fruits or veggies are good for GP but I knew not to eat banana's even before I got diagnosed. It makes the acid in my stomach flare up so bad. I have to immediately take a zantac after eating one. Another big no-no for me is brown rice. I can eat some whole grain products occasionally but not that one. I avoid it like the plague.

Edited by: ARCHDANDY3828 at: 4/30/2011 (00:12)
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THIKCHIC's Photo THIKCHIC Posts: 89
4/29/11 4:18 A

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I have trouble with sweets (which we shouldn't have anyway I know) but that was before SP, and milk/icecream. I would say dairy but not all dairy gives me trouble. Cheese seems to be fine, cottage cheese and yogurt. When I say sweets I mean like candy, cake, starbucks sweet coffee types, juices like OJ and icecream) Yeah my MD said that stuff would make anybody sick, but NO, Its not like I ate a truck load or anything. Yeah I am a bit overweight but, still!!

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4/24/11 2:20 P

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I found some frozen lemonade treats that are GP friendly; I bought them when I had the sore throat. They are made by Minute Maid and are with the ice cream and fruit bars in the store. They are in squeeze tubes; the only down side is that my fingers get numb with cold holding on to them, but I wrap a towel around the bottom for that. They come in a pack of 8, just 70 calories each.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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4/10/11 4:15 P

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My safe foods are mostly carbs too. I was going to buy some sandwich thins last week, and I learned that even with white breads, you have to look at the label; I'm surprised that some of them contain more fiber than I can have.

I can do dairy, but I have to be careful not to have too much dairy in one day.

I can't have anything that is greasy; something I learned the hard way when I ate at Bennigan's a few months ago, I got really sick from that.


My name is Shari; I have been a Sparker since July 2006, I am now in hospice care for metastatic breast cancer, but I'm not letting cancer stop me from Sparking!

Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.

A. A. Milne



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ANDREWS_MOM's Photo ANDREWS_MOM SparkPoints: (104,653)
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4/8/11 2:07 P

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We all GP is so individual, but have you found any foods that you consider to be on your safe list or anything you know is probably going to trigger a flare up?

For me, my safe foods (most of the time) seem to be mostly carbs- pasta, bread, crackers, mashed potatoes, baked fries- all in small amounts.

Most soups are okay too.

Trigger foods so far: full fat milk/dairy- am aok with the low fat versions just not full fat, ice cream, anything fried, coffee (aaahhhh.....i still have a cup on most day but not the huge amt i used to enjoy).....

And for the really tough flare up days- well, there's always Ensure & Boost! emoticon

Hope you are all having a great day!

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