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LUCKY-13's Photo LUCKY-13 Posts: 11,837
8/25/10 9:59 A

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Archdandy,

I found this answer to one of your questions about the course of GP:

"As far as the course of gastroparesis, it is different for each person probably due to the inherent uniqueness in each individual and gastroparesis can be caused by a variety of different factors and may or may not be interacting with other conditions. There are some who have gotten better with diet modifications, medications, and/or other treatments. Some tend to stay about the same while others may go through periods of ups and downs in regards to their symptoms."

Hope you're getting help and feeling better!

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
8/19/10 10:18 P

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Hi Archdandy,

I don't believe the stomach growths are related to GP, but there's so much that is unknown about GP that I'm not sure. A lot of people who have GP also have other health problems that could be causing the stomach growths.

Complications from GP? The GP can get worse, your colon can get sluggish, beazors, blockage of intestines, malnutrition, losing weight, gaining weight...and according to the Mayo Clinic website, even bacterial overgrowth and if you have diabetes, blood sugar levels can fluctuate.

Try some of these links and the ones that I've recently posted for our site. The more you can learn about GP, the better educated you'll be.

www.mayoclinic.com/health/gastropare
si
s/DS00612


digestive-disorders.health-cares.net
/g
astroparesis.php


www.webmd.com/digestive-disorders/di
ge
stive-disorders-gastroparesis




Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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ARCHDANDY84279's Photo ARCHDANDY84279 Posts: 2
8/17/10 5:55 P

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Thanks for your replies. The doctor who did my stomach scope was a GI specialist. When I woke up from the anesthesia he just told me that my food hadnt digested from the night before and gave me the prescription for the stuff that messed with my eye sight. He didnt even tell me what the stuff was for or what it was called or anything else for that matter. I think the doctors around here are just really ignorant of gastroparesis, either that or they just dont care very much about their patients. I could ask my GP to see another GI or maybe the same one again but I dont think it would do much good even if she did set up the consultation. I guess I'm just going to go with that I have gastroparesis because from what everyone else says and from my symptoms it seems pretty likely. Would you be able to educate me on the risks or maybe complications that could happen with gastroparesis? I saw a couple people on the forum mention stomach growths, is this common?

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
8/15/10 5:27 P

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Welcome to the group ArchDandy!

I agree with Lynda, and just about all of us have gone through the same thing, you really need to get with a gastroentronologist who is knowledgeable about gastroparesis. Get a gastric empty study to see how you're digesting (or not digesting) food. Meanwhile, I'd keep a food journal of what and how much you eat, when you start feeling queasy or throw-up. Does your stomach ever hurt? Do you get the burps? Make notes of these if you do.

What foods seem to be easiest on you? The more info you can give your doctor, the better. Are you ever constipated? Do you have to take laxatives often? Expect questions like these from a good GI doc. And I hope that these questions don't offend you. I wouldn't say our group is graphic, but considering the problem, there isn't TMI here.

On your excessive acid, most of us here have the same problem. I've been on Prevacid/Nexium/Prilosec, etc. for over 10 years now, and I'm sure there are others that have had to take it even longer. My GI doc has run a lot of tests, but can't figure out why my stomach continues to put out 4 times the normal amount of acid. What has helped is avoiding things that trigger acid reflux: anything with tomatoes, onions, coffee, tea, fried anything, rich foods like gravy, milk chocolate ... I gotta stop here. Just thinking about these make me feel ill.

What each person can easily digest differs with each person, just like what can't be digested differs and on some days they can and then can't be digested. Usually anything with fibers (citrus, meat, broccoli, lettuce, seafood - just to name a few) differs with each person. For some, GP gets worse with time; others are able to find some relief with Domperidone or stomach pacemakers or erythromycin,,, again, it's different for each person. Some of us are blenderizing whatever we "eat" because that's about the only option we have left in order to eat.

Stress is the number one enemy (with ignorance by the medical community being a close second). Stress can make a lot of health problems worse, but it really shows up loud and clear with GP. For some people, GP gets REALLY worse and they even have to be hospitalized. It's wise to know what your stress triggers are and have a plan to deal with them (deep breathing exercises, meditation, journaling, even sweating it out with some exercise).

Please feel free to ask questions. The team members here are really nice and willing to share what works for them. Sometimes you have to try to see what works for you. You're welcome to vent, share, ask, suggest ...whatever helps!

Hugs,
Lucky



Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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READINGDOC's Photo READINGDOC SparkPoints: (0)
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8/15/10 4:10 P

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If it walks like a duck and it talks like a duck, it is probably a duck.

My advice is to go to a good gastroenterologist who understands GP and get a gastric emptying scan. That is pretty much the gold standard for diagnosing GP. Not vomiting is not necessarily an indication that you don't have GP. Also, a diagnosis of GP is basically a rule out diagnosis. In other words, they have ruled out every other possible cause of your symptoms.

God's speed in your search.
Lynda


Lynda


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ARCHDANDY84279's Photo ARCHDANDY84279 Posts: 2
8/15/10 11:56 A

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Okay, this might be long but I need to get my full story out there and see if there is anyone who can give me some information because I am very confused! About two years ago I started having some acid pains in my stomach and so I just started taking over the counter acid reducers. It started to get increasingly worse so I decided to go to the doctor. She asked me a bunch of questions like does the acid ever come up out of my stomach and I said no. It stays in the stomach. She gave me a couple different medications to try, one of them was Prevacid (I can't remember the name of them all) but they would work for a couple months to get rid of the acid but then it would come back with a vengeance. So she decided to send me for a stomach scope. I had that procedure done to be sure there wasnt in my stomach causing the acid pains like a bezoar or cancer. But the surgeon who did the procedure noticed that my food still hadnt digested from 12 hours before and gave me a prescription for something similar to Domperidone. I had to stop using it because it started affecting my vision and eventually got a prescription for Domperidone from my GP. I've been on that for about 4 months now and I take about 40-60mg a day (two pills half an hour before I eat a meal). During all this time my doctor never gave me a diagnosis and when my stomach scope was done and I was on the domperidone it seemed to be helping with my acid pains, I still get them and need to take at least one acid pill a day to help with them but they have reduced. My doctor has pretty much told me she has no clue what is going on with my stomach other then the food doesnt digest and she wont give me a diagnosis because she hasnt come up with one. I did some research online and found gasroparesis and when I mentioned it to her she seemed to know what it was and said yeah that whens the food stops digesting and that was it. I asked her if thats what I could possibly had and she said she wasnt sure and there was no way to know and that because the medication was working to just leave as is for now. I'm not the type of person to leave things as is. I like to know if I have a disorder and what complications it can come with and how best to manage it. So that's why I am a little confused because I have no idea if I really do have gastroparesis or if I do what to do about it. My doctor had given me no other information at all. I've never thrown up because of this but I do get nauseas. And I used to be able to eat three times a day fine but in the past couple of weeks I get really full after eating only a little bit of food and have cut it down to one maybe small meal like a smoothie and then dinner because I just cant eat any more then that. I feel really bloated and full all the time. So thats the end of my story. Like I said I'm just really confused and need to get the facts straight about GP so that I can manage it better and to know the complications that could occur with this so that I am aware. If anybody has any advice or information I would greatly appreciate it.

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