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LUCKY-13's Photo LUCKY-13 Posts: 11,837
4/1/10 12:41 A

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Please visit the April chat thread. This one is closed now that March has flown the coop!

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/31/10 11:24 P

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I'm so sorry I haven't been posting as much lately. I've been distracted a lot.

I hope you all are doing well and that April brings more sunshine, flowers and blessings to us all.

Hugs,
Lucky
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Edited by: LUCKY-13 at: 3/31/2010 (23:24)
Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/23/10 3:18 P

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Thanks Judy!

I shouldn't have assumed that everyone has been seeing those Reglan class action lawsuits. Seems like the lawyers have them on almost every channel that I'm watching. I looked on the internet and saw almost 2 million entries for Reglan lawsuits. Amazing.

Hope you have a great rest of the week and I look forward to hearing how you're doing!

Hugs,
Lucky
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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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JUDY_LYNN's Photo JUDY_LYNN Posts: 35
3/22/10 7:36 P

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Lucky, I am so sorry your Dad is slipping away faster than first thought. I hope you get the chance to spend some quality time together soon.

I'm glad the Domperidone is starting to help you. Maybe now you can carefully expand your diet.

I'm not sure if you know, but I live in Canada. I happened to be flipping channels this weekend and saw one of the lawyer's ads for a Reglan class action suit on a U.S. station. Wow! I was shocked! No wonder you are so reticent about it. We don't get those ads here. I'd like to show it to my doctor.

I hope everyone is doing well. I will pop in form time to time and check up on you.

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/18/10 8:22 P

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Judy,

It's good news that they didn't see GP, and even better that they're getting you off Reglan. I'm familiar with Ativan and am currently taking the generic form of it. It has been helping my stress a bit as my job is getting busier and my dad is slipping away faster than he thought he would.

The Domperidone is starting to work, I think. I actually ate soft-scrambled eggs for the first time in years, and it stayed down. I did feel queasy, and I'm not that fond of eggs, so I don't expect them to become a regular part of my diet.

I hope that the Ativan does help your digestion, and I hope that even though your test didn't indicate GP, that you'll stay on the team. I've really enjoyed "talking" with you and would hate to lose contact with you!

Hugs,
Lucky
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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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JUDY_LYNN's Photo JUDY_LYNN Posts: 35
3/18/10 7:34 P

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Well, I had the follow-up appt today to find out the results of my gastric emptying study. It was normal. I don't have gastroparesis. All those months on Reglan for nothing. Back to the drawing board. My doctor really doesn't know what it is. She was so sure it was GP. I think I will be seeing the specialist again. My dr. did give me a prescription for Ativan, an axiety drug. As I mentioned before some of my stomach problem seems to stem from stress/anxiety. At this point I am willing to try anything.

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/16/10 3:31 P

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You're so welcome! I also think that the new drug has the potential to help many. I've been watching it advance through its trial phases and am excited to see that there is some medical research for GP patients that looks promising.

This team means a lot to me. I really enjoy staying in touch with everyone and the opportunities to be helpful. It's my labor of love, so to speak, but it doesn't seem like labor at all! LOL

Hugs,
Lucky
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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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READINGDOC's Photo READINGDOC SparkPoints: (0)
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3/16/10 6:48 A

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Lucky, I appreciate you and all that you do for this team.
Thanks for the info on the upcoming new medicine. It sounds potentially exciting.
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Lynda

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/14/10 1:36 P

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Hello everyone!

I hope you're having a great day! One that's full of sunshine, warmth, happiness, and love. Each day is so precious that we need to take advantage of all the opportunities it has to offer. Remind your loved ones how much you care, and tell yourself that you're lucky to be alive. It's better than the alternative.

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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/14/10 12:45 A

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New Info on GP drug getting ready for FDA approval

Tranzyme Pharma announced today that data from the Phase 2 clinical trial of ulimorelin (TZP-101) for the treatment of severe gastroparesis have been selected for an oral presentation at Digestive Disease Week (DDW) 2010 being held May 1-5, 2010 in New Orleans, LA.

Ulimorelin has previously shown the ability to enhance gastric emptying in patients with severe diabetic gastroparesis. The present analysis focused on the ability of this drug to relieve nausea and vomiting, which are the most serious and potentially life-threatening complications of this disorder. Consistent with its effects on gastric emptying, ulimorelin significantly reduced nausea and vomiting and improved overall symptomatology. These results further support ulimorelin’s future role in the effective management of this debilitating condition.

“We are very pleased that the study results have been selected for presentation at this esteemed forum,” said Gordana Kosutic, M.D., Vice President, Clinical and Regulatory Affairs for Tranzyme. “There are limited therapeutic options to treat this serious medical condition and the clinical community is eagerly awaiting a new safe and effective prokinetic therapy.”

The presentation will be given by Richard McCallum, M.D., Professor and Founding Chairman of the Department of Internal Medicine, Texas Tech University Health Sciences Center at El Paso, and a Clinical Advisory Board member of Tranzyme, at the Neurogastroenterology and Motility Distinguished Abstract Plenary Session on Monday, May 3rd at 4:15pm EDT in Rooms 283-285 of the Ernest N. Morial Convention Center.

About Ulimorelin

Ulimorelin is an intravenous ghrelin agonist with potent prokinetic properties in clinical development for the treatment of gastrointestinal dysmotility conditions in acute care settings. Ulimorelin has been comprehensively studied in the management of two indications, severe gastroparesis and postoperative ileus (POI), and has the potential to treat other conditions requiring administration of intravenous prokinetic agents in critical care settings. The safety and pharmacokinetic profiles of ulimorelin have been extensively characterized in healthy subjects and patients across multiple dose levels, and the GI prokinetic properties of the compound have been well established.

Read more: http://www.pharmiweb.com/PressReleases/pre
ssrel.asp?ROW_ID=17954#ixzz0i7vTLZQG


Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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JENJONES28's Photo JENJONES28 Posts: 54
3/10/10 6:41 P

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Good luck with the Domeperidone. Let us know how it works for you. I'm taking Reglan four times a day, although I'm going to wean myself off (already dropping the night time dose and doing well!), Levsin for the stomach spasming that the doctor says causes a lot of the pain, Zofran for the nausea, and I have Scopolamine (sp?) patches for the nausea, but they make me feel like I have the flu, so I don't use them.

A couple of the best things I've found lately are the Carnation instant breakfast powder and Ensure high protein drinks. Love them!

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/10/10 5:28 P

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Hey Jen,

Don't feel bad about asking questions, even ones about nausea/vomiting. It's a big part of GP and all of us are either struggling with it or have struggled with it. My HMO won't approve Sancuso unless I get cancer again. But so far, Tigan works pretty well for me. It works well and then I stop taking it and then the nausea comes back. I've got to stop being so hard-headed and just keep taking it. LOL

I got my Domperidone from Canada yesterday so I can now take it regularly without getting overcharged for it. I'll keep everyone informed as to how things go. I'll be taking 20 mg three times - four times a day.

Hugs,
Lucky

Edited by: LUCKY-13 at: 3/10/2010 (19:49)
Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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READINGDOC's Photo READINGDOC SparkPoints: (0)
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3/10/10 12:32 P

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You have just described me to a tee! The only difference is that without my anti-emetic patch I do actually vomit. The patch that I wear is called Sancuso and it is for chemotherapy patients. Without it I was losing an average of 5 - 8 pounds per week just from vomiting. I stay on an almost complete liquid diet these days. It is so much more comfortable and my weight has stablized.

Lynda


Lynda


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JENJONES28's Photo JENJONES28 Posts: 54
3/10/10 8:07 A

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I'm sure this has been covered before, and sorry if this is the wrong place to post. Just wondering.... to what degree do each of you have nausea and/or vomiting? What about difficulty eating solids? Me, for instance, have difficulty about 50% of the time right now eating solids of any kind, and the solids I eat I have to be VERY limited and particular about. I have nausea perhaps 25% of mornings (weird, that) and maybe about 25% of the time after eating solids. Rarely after having liquids. It's hit and miss though. I never vomit, although it feels as though I should, if only my stomach could gather the strength to actually do it.

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/10/10 6:51 A

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Good morning!!

Found this article on a unique surgery for GP:

www.ktsm.com/news/surgery-gives-girl
-n
ew-hope


Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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JUDY_LYNN's Photo JUDY_LYNN Posts: 35
3/8/10 7:31 P

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Welcome Jen!

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JENJONES28's Photo JENJONES28 Posts: 54
3/8/10 3:58 P

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Thank you for the welcome. I'm very glad to be here!

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/8/10 3:45 P

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Please help welcome our newest member: JENJONES 28!

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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READINGDOC's Photo READINGDOC SparkPoints: (0)
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3/7/10 2:07 P

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Judy, I'm sorry you have to wait so long for your results. I had my scan done in the morning and it was read that morning. My doctor got the results that afternoon and gave them to me that afternoon. Of course, I am blessed with a great doctor!

I hope you do get your results soon and that they are what you want or at least that they answer your questions.

Lynda

Lynda


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/7/10 1:32 P

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Happy Sunday to ya' Judy!

I've worked in places with those infamous temperature wars. The only solutions we came to was having everyone dress in layers and take some of them off when they got hot, and put some on when they're cold. Good luck with that!

I (and I'm sure you were too!) was hoping that you'd learn your results a little quicker. How long did they have you there? Did you have to eat that egg you were dreading? Usually during the empty study I could pick up on their conversation what was happening, and then get home and start researching in the internet. I'm addicted to the internet and probably should join an internet addiction club. I'm a bad girl! lol
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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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JUDY_LYNN's Photo JUDY_LYNN Posts: 35
3/6/10 10:09 A

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Good morning! I am so glad it's the weekend. We are having temperature wars in my office. There is one whole wall of south facing windows, so it gets very hot in there - up to 77 degrees this time of year. So, I have been putting the a/c on. Well, there is one skinny little employee that is always freezing and she has been putting her space heater on. Boss is too much of a wimp to do anything about it. So there we are with the a/c and heat both cranking away in competition with each other. Well, that's my rant for the day. Sorry.

The gastric emptying went well. They wouldn't tell me any results, I have to make an appt. in about a week to see my doctor.

Hope everyone has a great weekend.

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/3/10 8:34 P

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Hi Judy!

Hope your gastric empty study goes well. Either way, I guess it'll be good to know. They usually know as soon as the study is finished if you have GP or not, soo hopefully they won't make you wait.

I couldn't believe the Weather Channel this morning when it said that Asheville, NC got 9 inches of snow last night! Whoa!!!

Everyone else doing OK?
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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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JUDY_LYNN's Photo JUDY_LYNN Posts: 35
3/3/10 7:32 P

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Hi new members! Drop by and chat!

The only sign of Spring that I have noticed is that the days are getting longer. Yay! Oh, and the snow is almost all melted.

Tomorrow is the big day for the gastric emptying study. I will be interested in the results. My doctor is 100% sure that I have GP, but I am not that sure. Time will tell, I guess.

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/2/10 2:59 P

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Anyone seen any early signs of Spring yet? Birds coming back into your area? Flowers or plants pushing their way through the soil or mulch? Easter candy ALREADY in the stores? (Saw that a couple weeks ago!).

Hope everyone has a great day! Please say hello to our newest members!

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/1/10 12:41 A

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Woo hoo!

I don't know about you all, but I'm SO happy that March is here! March is full of all kinds of things to celebrate and enjoy: Daylight Savings Time begins on the 14th; St. Patrick's Day (17th); First Day of Spring on the 20th, and rounding out the month are Palm Sunday (28th) and the First Day of Passover on the 30th.

So get that Spring fever and pass it on!!!
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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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