Hey there!
Sounds like you've a really rough time with the doctors and the GP lately.
As for doctors, I don't know what to say. Sometimes it seems like doctors aren't speaking the same language, you know? You get one who tells you that you "have" to get something done in order to get better, but that a specialist or another doctor, would be better to do the procedure/surgery/radiation/whatever. And then the specialist contradicts what your first doctor recommended. I can't count how many times it's happened to me or how many times I've heard about it happening to others. Most recently I had a GI surgeon want to perform fundoplication for my GP. My GI doc says GP is one of the biggest reasons fundoplication shouldn't be done. What a screw up! If I had listened to the surgeon, who knows what kind of trouble I'd be having right now.
I think it's a great idea to meet with your GI and ask questions. The contradictory suggested treatments need to be explained by at least one of them. The third doctor might even disagree with both of them, so explanations are really necessary before things get even more complicated.
And, of course, all of this stress is making your GP worse. I just don't see any easy and permanent answers for GP, just frustration by sufferers, and either indifference or ignorance by a lot of the medical profession.
Domperidome....I had to get off it. The two things I was able to digest (eggs, tuna) at the beginning soon became food to avoid like the plague. My GI doc said we could increase the dose but I opted not to. After six months of being on it, there wasn't anything that was better. My last three weeks on the Dom., were the worse. My bloating and distention was painful. It felt like fluid was pushing in on my lungs and my liver. Heart palpitations, bloated face and hands, gaining weight way too rapidly. Since quitting, I lost 10 pounds in two weeks. My lungs and liver don't hurt because of the water distention. My speech is better and I'm not feeling like depression is going to take over my emotions.
I'm going to stay with very soft food, smoothies for breakfast, smooth soups that I plan on making for myself for lunch and dinner. Baby food if I have too. Protein drinks maybe once a day. I know I'll probably lose weight pretty fast, but it's better than the pain, bloating/distention, vomiting and nausea, and...the list goes on and on. Too many of us are familiar with it.
I don't know how long I'll be able to tolerate the "mushy diet," but it's better than any so-called "alternatives" that didn't work. Even though there have been many people who have taken Dom. for many years, it's not for me.
I hope you find some answers and some relief. I tried all kinds of things to help with the bloating, but being bloated with air/gas is different than being distended with fluid. Maybe diuretics would help with the fluid, I don't know. I tried Gas-X, charcoal tablets, avoided all dairy...nothing worked because it wasn't gas, it was fluid. I've still got some of it, but getting off the Dom. did seem to help somewhat.
I'll be thinking about you and hoping you find some answers and something that works.
Many hugs,
Lucky
Edited by: LUCKY-13 at: 6/21/2010 (21:21)
Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!