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LUCKY-13's Photo LUCKY-13 Posts: 11,837
11/5/09 5:10 P

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Tiff,

I meant to ask you, when you were on domperidone, did your doctor start you on a real low dose and work upwards? My GI doc said domperidone was originally made for women who wanted to breast feed and had trouble, but that it also had the side effect of making your stomach muscles work enough to help people with GP digest food. He said the best way to avoid the unwanted side effects is to start on a really low dose. I've been on 10 mg for almost three months now, he'll add another 10 mg at the end of each three months until I'm up to 40 mg in hopes of it helping.

Has anyone else heard this? What doses were tried and how did they work for you? Apparently no one knows how domperidone might effect a fetus or a baby that is being breast-fed, and that's why the FDA doesn't want to approve it again. Women who want to breast feed their babies but are having trouble might use it without knowing it could harm their little ones.

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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DOMERSUZ Posts: 8
10/22/09 2:52 P

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Thanks for the update. This is really interesting to me since I'm planning to start it soon.

I previously took Reglan to help with both the vomiting and actually with lactation after both of my pregnancies. That's kind of scary that it has messed with your ovulation.

DIVA540's Photo DIVA540 Posts: 692
10/12/09 10:13 A

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Tiff,
Thanks for that information. I took domperidone for a while, like a month, and did not notice anything. I can not take Reglan, i took it many years ago, post op my gallbladder surgery and i had a HORRIBLE reaction to the meds. Hopefully you won't and it will help you with your GP. Keep us posted on how you are doing.
Eileen

LUCKY-13's Photo LUCKY-13 Posts: 11,837
10/12/09 8:36 A

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Tiff,

Thanks for the update! I'm still on it but ovulation isn't an issue since I had to have a total hysterectomy some years back. But, like Reglan (I was on that for years before I found a great GI doc and he yanked me off it) I have concerns since the FDA hasn't approved even though other countries are using it.

These drug companies have huge PACs and tons of lobbyists and I can't understand why they haven't put enough pressure on the FDA for approval even after all the research that's been done.

I'm not sure it's done me any good so far and my current GI doc wants to double the dose next month. I have reservations about it. I hope you'll be OK!!

Hugs,
Lucky

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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TIFF1480's Photo TIFF1480 Posts: 5
10/12/09 8:26 A

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Hi everyone,

Sorry I have not been online, I have had some complications with meds and have been sick. I just wanted to warn anyone taking domoperidone to be careful. I was just pulled off of it last weekend. I had been taking it for the last 2 months and it stopped my ovulation. My prolactin levels are really high and my doctors are worried. Right now I can't take any meds until my period comes back so eating is difficult. Once my cyle starts up again I will be put back on Reglan.

My doctor was suprised though, when I was on Reglan my cylce was fine and they are trying to figure out why the domperidone made my prolactin levels increase so much in just a 2 month time span.

Well I will be online as much as possible to keep everyone posted.

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