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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/7/09 4:05 P

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Happy Saturday!

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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/6/09 1:19 A

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YAAAAAAAAAAAAAAAAAAAAAAAY!!!!!!!!

I'm letting out a nice long Yay since it's Friday, the end of a crazy week, and the weekend is almost here! Enjoy!

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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/1/09 11:25 P

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Yeah, like you, it took a long time for me to get a doctor who ran the tests and found out I had GP. I was told just eat whatever you can. I lost weight like crazy because I'd eat and then throw it all up. This went on for months, and I lost weight so fast it was scary. Then, I tried the erythromycin syrup (EES); nasty stuff. After a few years, it stopped working.

Then I went to the teaching hospital here where they do a lot of research. The doc there ran more weird tests and found that Zelnorm might help, but after three days it stopped working. A few months later the FDA pulled it off the market. They found that it was causing abnormal heart rhythms and sudden heart attacks. Same thing with the EES.

The research doctor said he was running experiments with azithromycin, another similar antibiotic that makes your stomach churn. "No side effects! Works terrific!" He said. Well, three years later and it has stopped working for me. They're finding out that it can cause heart problems too, and irreversible earring loss! I've been having trouble with my ears this winter and my regular doc couldn't find out what was wrong with them. I'm hoping I caught it in time.

I'm not going to be a guinea pig any longer. I've got other health problems, like you I am hypothyroid, and I have anxiety and depression plus other things that I won't go into just now.

This doesn't mean it will happen to you. But GP can get worse over time. My list of things I couldn't eat got so long that I just started keeping a list of what I could eat. It keeps getting smaller. Most of it is carbs anyway. You could say I'm on a high carb diet -- and that will definitely help you gain weight, especially if you sit behind a computer at work all day.

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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KHALVE's Photo KHALVE Posts: 66
3/1/09 10:42 P

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That must be so hard. I guess I should count myself lucky that I am able to handle solid foods (for the most part). Did your GP start out where you could have some solid foods and it just got worse to the point of only liquids?
I really wish there was more research to cure this horrible curse.

"Life is not measured by the number of breaths we take, but by the moments that take our breath away."


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
3/1/09 10:35 P

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Today, my husband took me out to eat at a nice Italian restaurant. Can't eat anything with tomatoes/tomato sauce, and can't handle the cheesy sauces either. So I thought maybe some linguine with a little olive oil, some sauteed mushrooms and zucchini would be OK. Ugh! I've been sick ever since. I bet I ate 4 bites and that was all it took. I'm guessing the olive oil? I've been able to cook with it before, so why now?

There's a lot of questions, and not many answers. I've had gastroparesis (GP) for quiet a few years now. I've run out of things to try. I've run out of doctors to see. I'm now officially on semi-liquid and liquid diets for who knows how long. I just want to cry.

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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KHALVE's Photo KHALVE Posts: 66
3/1/09 8:57 P

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Ok...now for my venting :)

I have been so miserable for a year. I was told over and over by my doctor and by my husband's parents that I was just exaggerating how I felt (so nauseous that I could hardly even get out of bed in the morning...stomach pains so bad I was incapacitated....this happened daily!). I was so tired of my father-in-law always making the comment "You're always sick! You are faking it". I felt like it was all in my head. Then I got a new doctor who ran every test imaginable on me. One of the last tests done was the gastric emptying test which showed severe slowed emptying. SO I finally 4 days ago was told there really is something wrong with me. It wasn't in my head. That made me feel relieved. But now I am totally depressed by it. And being depressed makes me want to eat. I am struggling so bad. I have been purposely watching sad movies so that I have an excuse to cry. As if having endometriosis, thyroid disease, fibromialgia, ovarian cysts, hypoglycemia (that doctors are saying is now turning into pre-diabetes), depression, anxiety disorder.....as if that weren't all enough. Now I have GP on top of it. I am so tired of always having a health problem affecting me. I know it is better to be a happy optimistic person, but it is so hard to do right now. I just want to lay in bed all day and cry. When am I going to finally accept this is who I am? When am I going to accept that I just have to deal with it and have no choice?
And when the heck are people going to stop giving me crap for being sick when it isn't my fault!??!
Sorry, I am having such a hard day today. My depression is trying to kick me down and well, my husband doesn't really listen. He just nods his head and doesn't really hear me.

"Life is not measured by the number of breaths we take, but by the moments that take our breath away."


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KHALVE's Photo KHALVE Posts: 66
3/1/09 8:47 P

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Thank you, 1313Lucky! I get leg cramps often and they keep me awake. I am sure I don't get enough potassium...I will make sure to up my intake!

Edited by: KHALVE at: 3/1/2009 (20:47)
"Life is not measured by the number of breaths we take, but by the moments that take our breath away."


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
2/24/09 1:04 P

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YES! I think I've found what I needed to get rid of the terrible leg cramps (muscle contractions) that keep me from sleeping! After using the SP nutrition tracker, I found out that I was getting almost no potassium; of course the big clue came Googling "calf cramps."

Now that I've increased my potassium I'm not having the cramps. If you want more info on this, check out the blogs on my Spark Page. I really learned a lot, and if I can help someone with the same problem then that's even better!

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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LUCKY-13's Photo LUCKY-13 Posts: 11,837
2/10/09 6:20 P

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Grrrrrrrrrrrrrrr!!!!

I'm tired of "gimping" around with my bum knees! Up to about a month ago it was just one bad knee; now it's both of them! grrrrrrrrrrr!

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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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LINDABERT's Photo LINDABERT Posts: 91
1/27/09 11:37 A

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Thanks for the concern. I am hopeful about things and that is truly what I have needed. Thanks to you, and all of you, for being there. You are a blessing.

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
1/27/09 11:28 A

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Glad to hear it! I've been concerned about you. Always so busy and tons of things on your mind. Hope you're making time for yourself. Stress can make GP worse, but I think you've found that out already.

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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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LINDABERT's Photo LINDABERT Posts: 91
1/27/09 11:25 A

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Yes, it is. Thanks. I feel much better today :-)

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
1/27/09 11:19 A

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Isn't venting great!

Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


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LINDABERT's Photo LINDABERT Posts: 91
1/26/09 5:52 P

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OK - here goes! I am so frustrated that I ate a little bit of pasta with olive oil, pretty plain, and I couldn't digest it. It is utterly challenging to know what to eat anymore. I feel like giving up eating sometimes but I know that isn't the answer. Ugghhh! My husband just doesn't understand how I feel or the condition. He just thinks that if I eat something in moderation, it should be OK, no matter how much I explain it to him. Is he ever going to understand?
There, I do feel better. Thanks for listening!

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LUCKY-13's Photo LUCKY-13 Posts: 11,837
1/18/09 3:56 P

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Here's a place for us to express our frustrations, anger, sadness, elation, happiness, success...whatever we need to get out in the open that maybe no one else wants to hear.

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Life's an adventure ... take it one step at a time and don't underestimate yourself! You're capable of more than you think you are! How do I know this? You're still here aren't you? That means you haven't given up!


 current weight: 208.0 
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