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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
10/25/10 10:53 A

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I agree that the fatigue is one of the worst problems I have.

Mark
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KHELIA's Photo KHELIA SparkPoints: (6,224)
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10/21/10 4:27 P

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So this is an interesting thread for me.
I suffer a lot of fatigue.
This is, i gues what causes me the most stress - not to be able to do my work appropiately. Im a freelance writer and i have to deliver first class work....

Since yesterday i try to get more protein.
im a near-to-be-vegetarian, i dont like meat very much (without enbrel ;-) ).Substituted with soja and tofu, but i dont like it very much :-(
Today i went on vitamins again and had chicken for dinner.
Hope this works :-)
Thanks for advice


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KRICKET57's Photo KRICKET57 SparkPoints: (259,052)
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8/27/10 8:37 P

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I agree, anything more that an hour, and I will pay for it for days. I set the alarm and make myself get up after 30 minutes otherwise I could sleep for hours. Once I get moving again I usually find that was all I needed.

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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
8/27/10 12:35 P

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I wish I could limit mine to 30 minutes. I usually need at least an hour. But if I nap more then 2 I will not sleep at night.

Mark
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KRICKET57's Photo KRICKET57 SparkPoints: (259,052)
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8/23/10 7:58 A

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Finding the right balance for diet and exercise is essential. Like others here I find getting enough protein in my diet is an issue and when I don't fatigue is an issue. There are days when a nap is essential. I try to limit my naps to 30 minutes though, just enough to recharge batteries but not enough to disrupt my sleep patterns. Getting 8 hours sleep a night is also essential for me.

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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
8/21/10 10:30 A

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That does sound very interesting to me. So I would like the link to the website. I friend of mine swears by the "caveman diet" to help him with his Fibromyalgia. I also avoid most canned and processed foods. I do by a lot of frozen vegetables though. Part of having Celiac Disease is that I am very limited in what I can eat and gluten is found in a lot of processed foods. So I make most of what I eat from scratch. It has caused me to eat much healthier and I think I am very better off because of the diet.

It is interesting that Celiac Disease, being an autoimmune disease, makes it so someone is also more subject to other autoimmune disease. Thus the reason why I also have AS, RA, and Fibromyalgia. Does anyone else also have multiple autoimmune diseases?

Edited by: 1GRNTHMB at: 8/21/2010 (10:33)
Mark
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8/17/10 12:51 P

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I agree to both of your statements. Actually I am not a vegetarian, but I do eat in a "different manner." I had acid reflux really bad. I was taking 2 Nexium a day, supplemented with Gaviscon and still hurting, sometimes so badly that I could hardly sit up straight. My doctor told me 3 times I would have to have surgery, but I declined. I was beginning to think it might be worth it when I found a web-site that said it all could be controlled by the way you eat. I tried it and it works. Now I don't take anything for the acid-reflux at all. I also had ulcerative collitis and was told I would have to take 6 pills a day for the rest of my life. I have also been able to stop taking that medication. It is a matter of food combining and keeping your body in an alkaline state instead of an acidic state. I separate the protein from the starches and wait until whatever I'm eating is digested before eating the other. I eat more healthy (whole wheat bread, soy milk, fresh veggies and fruits, etc., instead of canned, or processed. I do not drink caffeine, I can eat almost anything I want (with a few exceptions) but just not together. It also helps to keep my weight under control because my body absorbs more nutrients this way. The reason I got sick is because I sometimes just don't want meat (I think it is a side affect of the Humira I take for AS) and I forget to supplement the veggies and fruit with other protein foods. I have always loved meat of almost any kind, but since I've been taking the Humira, sometimes I just don't want it. There are a lot of other benefits to the food combining, too. I've been on it almost two years and it's the best thing I've ever done. If anyone is interested, I'll be happy to share the web-site with you.

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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
8/17/10 12:32 P

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You are so correct that moving right and eating right are important in how we feel. Since I started exercising my overall pain is much lower but it does increase my fatigue. It is a trade off but I think the exercising and having lower pain is more important then the fatigue. Protein is essential for the body. Even if you are a vegetarian you can get it from beans, eggs, dairy, soy and nuts.

Mark
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8/16/10 1:48 P

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I, too take vitamins. I take a multi-vitamin everyday, and 1000 mg of Vitamin E, in addition to the huge dose of vitamin E each week that my doctor prescribes for me. I also seem to feel better when I eat correctly. I have a tendency to not eat enough protein, so I have to watch myself and be sure I eat enough protein with plenty of green veggies and fruit. About 3 months ago, one morning I awakened and felt so bad I could not get up from the bed! I had felt fine the night before. I finally made myself get up and was trying to get dressed for work and had to lie back down, twice! I finally had to call my manager and tell him I couldn't come in. I called my daughter to let her know I wouldn't be at work today in case she tried to call me. She asked what was wrong. I told her how I felt. She first asked me if I had taken my medications correctly. When I told her I had, she said "Mom how long has it been since you've had some meat?" I couldn't remember! She said, "I've been noticing that you don't eat protein very much anymore and I've been worried about it. I'm bringing you lunch today - a steak and you have to eat it all!" She came in a few hours later with a large steak and a green salad. I ate it and began feeling a little better. I don't have any medical knowledge to find out if it was possible that the steak was the reason I felt better, but I just know that I began feeling better. By late that afternoon, I felt almost normal, and was able to fix a quick dinner for my husband and me by the time he came in from work. Late that afternoon I began to feel better! I can't say that it was all because of the steak, but I do know I felt so much better! The next morning I went to work and felt fine. That has happened twice! I also feel much better when I eat lots of fruit and veggies. I try to eat more alkaline foods and less acidic foods, with as few additives as I can. It has made a world of difference for me. Also, as you said, I have to keep moving too. If I don't, it makes me feel worse, not just stiff, but I feel "bad all over!" I asked my doctor why I felt bad and he said it was due to the AS, but I could help counteract it by moving and eating right. It has helped a lot! When my energy level is high enough to get through the day and still feel well, my emotions are so much better, too. One other thing really helps me: Plenty of sleep/rest, although that is sometimes difficult to accomplish. I still do not sleep as well as I should. My back keeps waking me up and even though I'm very tired, sometimes I can't go back to sleep.

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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
8/16/10 1:41 P

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Fatigue is one of my worst problems. I feel tired all the time. Some days all I want to do is sleep. Especially if I am having a flare up of either the AS or the Fibromyalgia. It is hard to determine which cause the most fatigue. but it is there all the time. I take B12 injections every two weeks as well as daily oral B12 which both really seem to help. Coffee is a must in my life. Hate to admit that with out coffee I would just be sleeping. There are days though that all that I can do is give in and sleep more. Taking naps seems to be a big part of my life.

Mark
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HALF2EAT's Photo HALF2EAT Posts: 253
8/15/10 11:32 A

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Since fatigue is a huge side effect I am wondering how everyone stays "up", emotionally and physically. I try to keep moving, I take vitamins, B-12 works somewhat too. The more I move the better I feel & the more energy I have. What about you?

Make it a Great Day!!
erin :)
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