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SUPERFAN99's Photo SUPERFAN99 Posts: 105
12/21/10 9:00 A

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I got diagnosed 2 months ago after having terrible neck pain for the last year, and then a persistent swelling in the right knee, ankle, and elbow starting a few months back. I also had a nagging pain on the left sartorius connective tissue which never healed since last March. My rhuematologist has been really sharp and started me on sulfasalazine and naproxen (for now). She doesn't think the sulfasalazine is working, but we're going to give it another month before she switches me to methotrexate. I'm sure I got the spelling of these goofy drugs wrong, but hey it's still early in the morning. No bad side effects, but the naproxen gives me very vivid dreams which is unusual for me.

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SURVIOR53's Photo SURVIOR53 Posts: 150
12/20/10 12:50 P

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I have many symptoms. My back, my butt, hips, elbows,ankles, hands, feet. My legs ache a lot. I take tramadol, also another pill but the doctor says they use it for rheumatoid arthritis which I don't have but it helps with the AS. I was told never go barefoot. Never where flat shoes. I can't stand or sit for long periods of time. I do a little bit at a time.












TINYT158's Photo TINYT158 Posts: 5
11/8/10 3:48 P

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Thank you! It is so nice to know that someone understands! LOL He has given me something and has started me on Lyrica. It is not agreeing with me too well. I hope I am on the backend of this thing. It has really had me in a funk! I guess this was my first experience with one. Concentrating on losing and something else, helps a lot too! Thanks again!

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HALF2EAT's Photo HALF2EAT Posts: 253
11/8/10 3:41 P

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Boy do I understand those flare ups. They're miserable. One thing is they make you realize just how well the meds normally work. Has your weather changed? When the barometric pressure is up or when the high pressure brings northerners down. Where do you live? I hope your doctor can give you something for pain. Take it easy and remember this too shall pass.
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erin :)
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TINYT158's Photo TINYT158 Posts: 5
11/8/10 11:51 A

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Hi, I am a new member. I have AS. I have been on Embrel for a year.I also take the sulfur medicine. It has worked great until the last six weeks. I have recently been in a 6 week flare up. This has not happened before. It has been rough adding pain to my joints in my legs and calves. I can't stand for over 30 min. Until this flare up I had been wonderful! Looking forward to sharing with this group.
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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
8/10/10 10:41 A

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Kerry, Right now I am not on biological. I was on Remicade for a year and it really helped. Then the insurance decided not to cover it. I am starting with a new Rheumatologist in September and hopefully he will put me on one the insurance will cover.

Mark
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
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KERRYMONIQUE's Photo KERRYMONIQUE SparkPoints: (0)
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8/9/10 11:47 P

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Thanks Mark for your help. I am seeing a rheumatologist - just recently started. I have hypermobility syndrome, which is causing some contra-indications for A.S. Some of my joints are way too loose, causing degenerative osteoarthritis, but I'm also showing fusion and inflamation which are symptoms for A.S. My HLA-B27 was negative, but about 10% of people with A.S. test negative.

I'll start Enbrel at the end of this month to see if it will help the ankle pain and limitation. Are you on any biologics? How are they working for you?

~Kerry~

"The reason we struggle with insecurity is because we compare our behind-the-scenes with everyone else’s highlight reel." - Steven Furtick


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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
8/9/10 11:43 A

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My AS mostly affects my spine. It is fused almost completely from my neck to my tail bone. Although I do have hip and knee problems they consider that degenerative joint disease. Because I have five different types of arthritis it is hard for me to distinguish what is caused by which one.

AS is a difficult diagnoses. The HLA-B27 is a primary indicator but does not necessarily mean that you you have AS. Usually AS affects the spines and the hips but can also affect the tendons in the rest of the body, primarily in the knees, ankles and feet. This is what it sounds like what you have.

Are you seeing a Rheumatologist? If not you really should. They are better at treating the disease then other types of doctors.

Mark
Leader: Gluten Free and Healthy
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
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KERRYMONIQUE's Photo KERRYMONIQUE SparkPoints: (0)
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8/9/10 3:32 A

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Hi Everyone!

My name is Kerry and I'm new to this team and to the A.S. diagnosis. I have a very complicated case and they can't say for sure that I have A.S. because a lot of the diagnosis is evaluative. The worst health issue I have right now is ankle pain, which limits me to ~90 minutes of activity for the whole day. Hip, knee and ankle pain are associated with A.S., but my doctor said that they aren't really sure how they're linked.

I was wondering if people could list their symptoms to see what we have in common. And if anyone has ankle pain or gotten ankle pain relief from medication that would be extra helpful.

Thanks!

~Kerry~

"The reason we struggle with insecurity is because we compare our behind-the-scenes with everyone else’s highlight reel." - Steven Furtick


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