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DEEA2Z's Photo DEEA2Z SparkPoints: (101,261)
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1/5/17 1:06 P

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I think Linda's advice about diet is good! I know that it's best to avoid any foods that cause inflammation, and sugar is one of them. I have not gone totally gluten-free, and I suppose you have to go totally gluten-free to notice any changes if you are not particularly sensitive to gluten. I went totally gluten free for 2 weeks during a cleanse, and I didn't notice any difference after adding it back to my diet. Now that the holidays are over, I really need to get my added-sugar consumption down. I don't want to go sugar free because I won't give up fruit, but I do try to limit the really high-impact sugar fruit. I also don't want to use any artifical sweeteners, and stevia is ok, but I'm not crazy about it. I'd rather use honey or maple syrup and often in organic foods I find honey used as a sweetener. I'm finding a lot more affordable organic choices, so whenever possible I do buy organic products, as well as gluten-free products, which I also check for sugar content. Everyone is different, and the one good thing about that is you can try what others are doing and there is usually a wide variety of things to try.

My rheumatologist put me on amitriptyline (Elavil), 20 mg. at night and that takes care of helping me sleep unless I'm having a major flare from the weather. I'm not supposed to take Nsaids because of HBP, but during a major flare it's the only pain reliever that works. Another thing I try to do nightly is to rub my legs with lavender oil infused coconut oil (which is good for so many things).

Welcome Yvonne! Please don't ever apologize for "complaining". We all know what you're going through, and we also all know that we need a safe place to vent. This board is a safe place! Worst case scenario, you receive understanding and compassion from the team. And you may even pick up a few hints/tricks from us. There are days when we're hard-pressed to find anything positive, and there are days when our tolerance for pain is higher and we can manage our conditions. Hang in there, we're here for you.

Diane (from PA)
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TRCOUNTRYGIRL's Photo TRCOUNTRYGIRL Posts: 470
1/3/17 7:09 P

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I have only been diagnosed for a couple of years then this summer I was diagnosed with Psoriatic Arthritis. I was wondering if anyone has any ideas about what I should be eating or not eating? I am also type 2 diabetic.

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YVONNE95's Photo YVONNE95 SparkPoints: (324)
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12/16/16 7:33 P

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Hello Ladies,I have been reading your post and found them so engouraging,I have been suffering with Fibro and osteoarthritis since as far back as I can remember and after 34 years on meds it doesn't get any better ,as a matter of fact as I get older the pains seem to worsen. I live in Canada and right now we are having temps from minus 10C to minus 39 with the windchill and the cold makes me hurt even more.

I was widowed in 2010 and in 2012 I relocated to a new province and since being here I don't have a family doctor,I do have a doctor at the hospital for my diabetes and through him I am finally able to see a neurologist in January. I am hoping that maybe he will be able to help me because I believe that the meds that I have been on for 34 years are no longer working.

Sorry ladies I hope that I don't sound like a complainer, I don't mean to be but is nice to be able to share with people that understand. For 51 years of my marriage I lived in a very small country village and no one even heard of fibromyelgia.

Fear believes,if you are not a success by now, you must be a failure. Love believes,you are only a failure if you give up on your dreams.


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LINDAF49's Photo LINDAF49 Posts: 11,057
7/22/16 11:14 P

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Couple of new gals that might wonder what a long time fibro person is doing diet wise.
I was encouraged to go gluten free for several years before I agreed and when my daughter was diagnosed Celiac and forced to go Gluten free - I made the decision to finally do it. I made the mistake of going to a lot of processed gluten free items and they are not healthy choices - esp too much sugar!
So presently I am basically sugar free - using some local unrefined honey and stevia for my sweet tooth. I do occasionally slurge and have something sugary and always suffer high blood pressure the next day or two...choose your battles and fight valiantly.
So I stick to old fashioned calorie counting ---maintaining about 1200-1400 and recently began alternating a careful 500-600calorie fasting every other day [M-W-F]
So if you asked me my diet...I would say Gluten free, low sugar, no beef, 1200calorie and dental soft because I only have lower front 6 teeth and no dentures at this time.
I work hard at keeping it heart healthy with lots of fruits/veggie/low fat dairy/olive oil and coconut oils.
I also read the list for "eat to defeat cancer and fat cells diet" often and general anti-inflammatory.
Good luck and choose your effort, make a plan and work the plan for a month. Re-evaluate, make new plan for the next month. One Day at a TIme!!!!.....

Linda in WA state *John 10:10b Jesus came to give me life, an abundant life!
*Gluten free, Heart Healthy, Anti-inflammatory, Low Carb I.F. way of eating and life structure
Ticker started at 208# Jan 1 2018 long term goal of 160#


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LINDAF49's Photo LINDAF49 Posts: 11,057
7/21/16 3:05 A

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I planned to do this diet [Up Day and Down Day] for month of July - I am thinking I will use it through August or modify it to fasting only two days a week and eventually only one day a week, I would like to continue to lose weight until I am down to 160 and maintain.

Edited by: LINDAF49 at: 7/22/2016 (23:02)
Linda in WA state *John 10:10b Jesus came to give me life, an abundant life!
*Gluten free, Heart Healthy, Anti-inflammatory, Low Carb I.F. way of eating and life structure
Ticker started at 208# Jan 1 2018 long term goal of 160#


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DEEA2Z's Photo DEEA2Z SparkPoints: (101,261)
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7/20/16 11:57 P

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Linda I've been taking amitriptyline for probably 6 months. My PCP put me on 10mg./night and a few months later my rheumatologist upped it to 20mg/night. I definitely helped. I also make sure to rub my feet before bed each night with lavender infused coconut oil. I don't know how the lavender oil works, but it does.

My husband read that SAM-e can help fibromyalgia. I was all set to try it until I checked drug interactions and it's contraindicated with amitriptyline if the amitriptyline is taken for depression (which would be a much larger dose than what I take for fibro). I am going to ask my doctor about the SAM-e to see if it can be taken in addition to a low dose of amitriptyline.

The past week has actually been pretty good most of the time, even with the high heat. I attribute that to westerly winds and low humidity. As I think back, I've had fewer painful nightime episodes this past week. I'll take what I can get!

Linda, how long will you stay on the every-other-day calorie restriction diet?


Diane (from PA)
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When you have self-determination, you are owning your personal power and freedom of choice.

"Success is the sum of small efforts, repeated day in and day out."
-Robert Collier

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LINDAF49's Photo LINDAF49 Posts: 11,057
7/16/16 12:39 A

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How long have you been taking the Amitriptyline ? I had not been aware of its use in chronic pain situations until last Dec. I regard it as a main component of my anti-pain routine now. I have tried to decrease dose and immediately see the effects --- the Dr said he thought that I probably was at a keeping dosage for me right now and to just keep it for three months before trying to decrease it again.

I have been two weeks on the every-other-day diet and body is responding quite well - I do 1200 calories and only 500-600 the next day alternating back and forth. I still get hungry some on the fasting day but not unbearable---extra water helps me too. Diet seems to affect the brain fog more than energy expenditure - I have never used the ribose before - have it on my list to get next supplement order.



Edited by: LINDAF49 at: 7/21/2016 (02:55)
Linda in WA state *John 10:10b Jesus came to give me life, an abundant life!
*Gluten free, Heart Healthy, Anti-inflammatory, Low Carb I.F. way of eating and life structure
Ticker started at 208# Jan 1 2018 long term goal of 160#


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DEEA2Z's Photo DEEA2Z SparkPoints: (101,261)
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7/14/16 9:32 A

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Linda, I've started taking 2 Magnesium Malate at night with my amitriptyline, along with one ribose; it makes me more comfortable at bedtime. I'll also take a ribose after a strenuous exercise session as it does help with muscle recovery. OH, and I noticed that it really helps me with fibro fog! I think I ordered it on Amazon, but if you know where Jarrow products are sold you can probably find it. Maybe a GNC or another health food store. I ordered it because they are chewable tablets, and I already swallow enough pills. I take the tart cherry/turmeric caps in the morning with my other morning pills. Managing the fibro takes a lot of experimentation and research. I'm fortunate that both my PCP and Rheumatologist are on board with everything I do and take. They both ask for a list of all supplements and meds each time a patient comes in, and that's smart.

Diane (from PA)
Eastern Time Zone

Champions in the Kitchen/Since 2015

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Champions in the Kitchen/2015 Spring Challenge (GOAL reached!)

When you have self-determination, you are owning your personal power and freedom of choice.

"Success is the sum of small efforts, repeated day in and day out."
-Robert Collier

Sweat is fat crying.


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LINDAF49's Photo LINDAF49 Posts: 11,057
7/13/16 12:09 A

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Diane, I take Mag malate one capsule 4 times a day to spread out the benefit over 24 hours - I do the same with all my meds and supplements - and my water intake as well. I can tell if I go without a day of mag malate --- increase in pain and in muscle cramping in particular. I study it daily and then sit down with Dr and blood test results and my notes and get his approval or at least agreement to progress with plan. Oh note, he has told several other patients about me [with my permission] and I will sit and encourage, explain or just cry with them. Fibro-mites are a precious group of people nd unique in our needs and gifts to be shared with others.

Linda in WA state *John 10:10b Jesus came to give me life, an abundant life!
*Gluten free, Heart Healthy, Anti-inflammatory, Low Carb I.F. way of eating and life structure
Ticker started at 208# Jan 1 2018 long term goal of 160#


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DEEA2Z's Photo DEEA2Z SparkPoints: (101,261)
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7/12/16 8:14 P

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I've looked at other "Fibro Support" groups, and this team is the absolute best group! We all fight! Yes, we all have pain 24/7, but we do as much as we can and stay as positive as we can. It's because we can come here to our safe place and talk about what we're experiencing. I've not seen any other group as positive as this one! I am proud to be with all my strong friends! And yes, you are ALL strong! I wonder what could do were we not saddled with fibro??? Well, I think this is an amazing group!!!

I was able to get so much accomplished the past 3 days or so, but the humidity and extreme heat have returned, so I'm probably gonna pay for my good days. Made it to Zumba today and the class was great (our much loved instructor is having a hysterectomy on Thursday as part of her cancer treatment; we're all praying real hard for her), it was her last class for at least 4 weeks and we all really wanted to be there for her..

Does anyone else here take magnesium malate? I'm thinking of taking two tonight, and I already took a ribose to try to stave off fibro fog. I'm going to try to be more proactive in trying to manage.

Diane (from PA)
Eastern Time Zone

Champions in the Kitchen/Since 2015

Champions in the Kitchen/2015 Summer Challenge EL(Goal Reached)

Champions in the Kitchen/2015 Spring Challenge (GOAL reached!)

When you have self-determination, you are owning your personal power and freedom of choice.

"Success is the sum of small efforts, repeated day in and day out."
-Robert Collier

Sweat is fat crying.


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J_HENNINGTON's Photo J_HENNINGTON Posts: 9,970
7/12/16 3:23 P

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I t makes me feel good to know that people can begin to feel at home and be themselves..and share..it helps on the journey to know we are not alone.


The pain passes only the beauty will remain.


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LINDAF49's Photo LINDAF49 Posts: 11,057
7/12/16 12:35 A

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Judy, it is so wonderful to see new friendships growing here - I just read you r blog and am so impressed that you are recognizing that you are strong - and you are strengthening others - you are strengthening me!!! Thank you

Linda in WA state *John 10:10b Jesus came to give me life, an abundant life!
*Gluten free, Heart Healthy, Anti-inflammatory, Low Carb I.F. way of eating and life structure
Ticker started at 208# Jan 1 2018 long term goal of 160#


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J_HENNINGTON's Photo J_HENNINGTON Posts: 9,970
7/11/16 8:36 A

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I'll tell you a funny story,, While working on my page...trying to find a profile picture that denoted a strong woman....I looked and looked and could not find anything that seemed to fit..all of a sudden my eye caught my picture..and I said.."That is the strongest woman I know."
I surprised myself because in the past I would have never thought that..It shows real growth in me..Yes we are all strong and I am happy to know all of you


The pain passes only the beauty will remain.


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LINDAF49's Photo LINDAF49 Posts: 11,057
7/11/16 1:28 A

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I am sitting here crying with and for you two gals ...I feel you r pain and frustrations and am encouraged to find I am not totally crazy in how I feel, how I describe my pain and numbness and that there are others like me - you are precious and I will close sparking time tonight just thanking God for you and praying for your strength to face each new day. Gentle hugs from me to you!!!

Linda in WA state *John 10:10b Jesus came to give me life, an abundant life!
*Gluten free, Heart Healthy, Anti-inflammatory, Low Carb I.F. way of eating and life structure
Ticker started at 208# Jan 1 2018 long term goal of 160#


 current weight: 209.5 
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DEEA2Z's Photo DEEA2Z SparkPoints: (101,261)
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7/10/16 2:06 P

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I now believe I started exhibiting fibro symptoms in the mid-nineties, but attributed the symptoms to aging and weight gain. Each year from 1997 on brought some major trauma that caused the symptoms to become worse. By 2005 I was beside myself with trying to find out why I had so much pain, why I had such trouble walking, why, why, why. I kept researching diseases online and finally in 2005 my family doctor diagnosed fibromyalgia. I was so relieved to know I wasn't losing my mind that I just broke down and cried.

I've tried lots of different things before finding a combination of meds, supplements and exercise that help. I took Lyrica and Cymbalta for a year or so, but stopped because the side effects (extreme sweating and especially head sweating) were disruptive and the dosages weren't taking care of the pain.

I wear magnetic insoles, which significantly improve my balance. I take 20mg of amitriptyline nightly (for pain) and magnesium malate, Vitamins D and B12 in addition to a multivitamin, D-ribose to help with fibro fog, Omega 3 with Cinnamon, a tart cherry/turmeric/ginger capsule and I rub my feet each night with lavender infused coconut oil (with helps with paresthesia).

I can feel my toes, and the outside of my right thigh, yet they are constantly numb. It's a really weird thing! I am extremely sensitive to high humidity and barametric changes. The paresthesia and restless legs interfere with my sleep, and some nights I only manage 4-1/2 hours of sleep. Needless to say, chronic sleep deprivation really takes it's toll on my days. High humidity brings the fibro fog, and that aspect makes me depressed, frustrated and furious. I also recently discovered that winds and weather fronts coming from the E and SE are my worst enemies.

I must learn to not feel guilty when I listen to my body! It's difficult for me to accept that I can't cure or control fibro, only manage it. And as I mentioned before, my symptoms always increase from 10 pm on. I have finally accepted that exercise really does make me feel better, even though there are many days I have to push through the worst of the symptoms.

Diane (from PA)
Eastern Time Zone

Champions in the Kitchen/Since 2015

Champions in the Kitchen/2015 Summer Challenge EL(Goal Reached)

Champions in the Kitchen/2015 Spring Challenge (GOAL reached!)

When you have self-determination, you are owning your personal power and freedom of choice.

"Success is the sum of small efforts, repeated day in and day out."
-Robert Collier

Sweat is fat crying.


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J_HENNINGTON's Photo J_HENNINGTON Posts: 9,970
7/9/16 9:06 A

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I finally got my diagnosis in 2000 also..although I am sure I had it much longer than that.after studying about fibro and CFS.. I believe I have gotten Fibro because of my Chronic Depressive Disorder which I have had since a young woman. I am on Gabapentin for pain, Prozac for the depression. I have some good days and bad days..I have learned to watch the barometric pressure because that has a effect on how my day is going to go. I think the depression is the hardest because it zaps my energy...I have done alot of studying about fibro and the symptoms are vast..and no two people are alike.. I have balance issues now because of the fibro so I walk mostly with a walker..somedays I can use a cane..not very often these days..on my worse days I spend in a wheelchair to get around..I had spinal stenosis which they did surgery for but it did not work..It makes me sad that my life has gotten to this point but life goes on and I have to do the best I can each and everyday..it is a lesson in being positive


The pain passes only the beauty will remain.


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LINDAF49's Photo LINDAF49 Posts: 11,057
7/9/16 2:18 A

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I would like to become more proactive and supportive on our team - would it be appropriate to share how long we have had Diagnosis of Fibro and what supplements/medications we are taking specifically or generally and what is greatest need for our days.

I was diagnosed in 2000 - so 16 years was bedridden the first year and aggressively studied and tried to build up out of it - in that 16 years I have also had heart stents and severe peripheral neuropathy [which may be due to fibro since it has no other specific cause] added to my health issues.
I supplement with Magnesium Malate, Calcium/Magnesium/zinc, Thyroid support, Turmeric and Glucosamine/MSM specifically for fibro; only need Tylenol for pain usually since heart Dr discourages Advil. Going LGuten free for Dx of celiac was huge pain control measure for me.

Some other things to share eventually but want to hear from you first.

Linda in WA state *John 10:10b Jesus came to give me life, an abundant life!
*Gluten free, Heart Healthy, Anti-inflammatory, Low Carb I.F. way of eating and life structure
Ticker started at 208# Jan 1 2018 long term goal of 160#


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J_HENNINGTON's Photo J_HENNINGTON Posts: 9,970
7/8/16 6:34 P

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This is a place to ask questions about anything pertaining to your health..and especially Fibro..sometimes we just want to know is it fibro or not..or if anyone has info about what they go through....if I do not know the answer someone else may or I will research it and get back to you..So..ask away...it can also be a place to just share your knowledge of what you have learned.

Edited by: J_HENNINGTON at: 7/8/2016 (18:36)

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