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2/16/14 11:03 A

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I had to re-train and get my administrative assistant certification because I could not work in health care anymore as it was too hard on my body. I know work at a hotel as a front desk agent and that is much more doable for me. I have only had a few sick days in the last 2 years. With this job, I can fake it til I make it and do as much or as little as I can on any particular day, my boss is also very understanding if I don't get as much extra cleaning done on my off days as I do on my good days as it really isn't part of my job

All journeys start with a single step


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MAMADEE016's Photo MAMADEE016 Posts: 1,035
1/30/14 2:51 P

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HI emoticon
I haven't been too active here but employment caught my attention! LOL

Currently I'm on SSI and living with 3 adult children, none of whom make enough to be on their own.

Working for someone else when you have fibromyalgia affecting so much is darn near impossible! I tried for a long time and had to finally give it up.

Now we are starting our own business... but not like any other home-based business. We found one we can do when we are ABLE and when we're not so able it doesn't go away - we just pick it up again and go at it.

Maybe you can find something like this in your area. emoticon

Andee
Eating CLEAN as possible!
T-Tapp! Walking!
Always be grateful for something each day!
Nothing changes IF nothing changes!
Change SOMETHING to meet your goals!


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JAMER123's Photo JAMER123 SparkPoints: (586,923)
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1/23/14 11:43 P

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I agree that clothes do hurt. Today is a weather shift day that has been wild and the FM is going wild. We have gone from 76 degrees to a current 46 going down to 35!!! And it is raining so the pain is tough. Tonight I was at our "Western Days" which is a dinner and then entertainment. Lost power for a short interval then as the power returned, a lady fell and I was called to assess her so quick movements etc. made me even more uncomfortable. Sounds like the weekend is to be many ups and downs. The life of a FM person that is lived day to day!!

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott



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SHIRLEYGIRL45's Photo SHIRLEYGIRL45 Posts: 89
1/23/14 7:34 P

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you mentioned some days your clothes hurt... i totally understand that. my clothes hurt all the time. i turn anything i can inside out so the seams wont touch my skin.


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SARAHTAIT's Photo SARAHTAIT Posts: 26,911
1/23/14 2:58 P

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Thanks Eileen...now the issue is finances...I can't afford massage on my disability. there are just so many things that cry for money around here....I am barely surviving.

Hope you all are doing well...today I am feeling yucky. Great day for a NAP!

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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1/23/14 12:40 A

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Sarah, I am so sorry that you had such a bad experience with massage. The gal I started with understood the "disease" well and the one thing she said was she would give my a purple ribbon for the worst back she had ever seen. It was like trying to push your thumb through cement. She began very light and had me tell her when to let up. I have gone to her for yrs. and I now can get a day or 2 of little pain after a deep tissue massage. I go every 2 wks. and if I don't the spasms can put me down. We winter in TX. and I have 2 great ones here so they are out there. Don't let one bad experience take away what could be a salvation!! Ask how many FM clients they have and that tells a story. A good one IS very hard to find!

Shirley, I wish I could think of another job that you might be able to look for. I think it will be one that you are going to work into. Have you thought of an employment center of job training center that can help you work through possibilities? They may have the best answers for you.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott



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SARAHTAIT's Photo SARAHTAIT Posts: 26,911
1/22/14 7:04 P

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Eileen..you are blessed to have a god massage therapist. My experience with massage was in Atlanta where I went to a supposed fibromyalgia massage expert. She almost killed me...every touch was misery (except my feet--you can always rub my feet-he he) I will NEVER have another massage.......just can't tolerate it I guess. Some days clothes hurt.

The job market is pretty tight I am told. It may be difficult to get back into work. Could you go to school for something? Maybe you want to make a change in your life now.

Hugs,
Sarah

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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1/22/14 5:48 P

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Great suggestions Sarah. I would definitely look for something you could do from home as you have a setting that you are comfortable with. All the issues you have may make it a little more of a challenge to find employment. Do you do any physical therapy of massage therapy? I have found massage to keep me up and mildly active. Without, I end up with too much pain to function. I ended up taking early retirement because of the pain and then found a massage therapist that knows how to deal with FM. I wish you the best in your job hunting.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott



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SARAHTAIT's Photo SARAHTAIT Posts: 26,911
1/22/14 2:12 P

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Try being a medical secretary or you can possibly train to become a medical transcriptionist and work at home. If you do work at a hospital let them know your issues and they can assign a occupational therapist to help make your workplace more comfortable to your needs.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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SHIRLEYGIRL45's Photo SHIRLEYGIRL45 Posts: 89
1/22/14 9:35 A

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I need to get back to work one of these days. I've been helping with my grandchildren for a couple of years. I was working part time as a home health caregiver but that work has become way too physically impossible for me with my Fibro issues.
I have an Associates degree in General studies. I previously worked in Health Care and as a Secretary. I love office work but sitting in a chair too long causes pain and spasms.

I applied for Social Security Disability and my case is at the stage where it goes to court but the lawyer says I won't have enough medical evidence to win my case. I prefer to work anyway.

I have severe muscle spasms that are controlled with medicine but still get worse with extra physical activity. I have constant pain, severe IBS(D), anxiety, headaches, major fatigue

Any suggestions for a field of work I might try ?

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