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9/29/08 2:20 A

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This could be so many different things, especially with your Cushings. I'd start with diet and something that might be missing. My docs just surprisingly diagnosed me as extremely anemic. Enough that they were worried. I've been moving toward vegetarian and hadn't been focused on iron since I've never been anemic. Anyway, it sounds as if you're doing the right thing, getting some lab tests with your doctor. Good luck figuring it out!

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9/28/08 4:56 P

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I have some thoughts...

Write down your questions before seeing the doc. If you are comfortable, it sometimes helps to take someone with you who can write things down as well.

First, are your symptoms common with Cushings? If yes, what can be done to alleviate the symptoms (nutrition, exercise, medical intervention, etc.) Have you seen an expert in this area - rather than a GP?

Also make sure that your blood work is being done by the same lab.

Then you need to look at trends rather than straight numbers. For example - if your numbers are lower but still in the normal range - LOW Normal may be too low for YOUR particular body. So you look for a trend -- are your numbers down.

In addition to thyroid levels, you do want to check iron and perhaps vitamin D levels.

Let us know what the doc says...


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LORRAANN77's Photo LORRAANN77 SparkPoints: (21,721)
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9/28/08 11:19 A

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Hello all! I have been MIA for the last few days and back this weekend trying to catch up here on sparkpeople. I have a question in regards to symptoms I am having with my body. I am going to the doctor's office this Monday to discuss, but wanted to get some thoughts from people here and perhaps questions I should be asking my practitioner that I may not be thinking of.
For the past yr to 2yrs I have had my hair start "shedding" and now falling out(no bald spots) with a little bit of thinning in places it seems to be just getting worse as time goes by. I am also VERY fatigued/tired almost all of the time. Sometimes it takes a miracle to get me moving and most of the time I do just what I have to do to get by. I am very tired of living like this so that's why I am starting to question my hormones. I am being currently treated for Cushing's Disease (caused by pituitary tumor) which is being closely monitored along with my thyroid levels which are all coming back in the "normal" range but they are not checking iron with these labs. I have been told that sometimes the reference range for lab values especially with thyroid can be based on that of for example of a 23 yr old male...basically innappropriate levels if you're comparing to a 30/40 something woman.
Does this scenario sound familiar to any of you out there? What kinds of questions or tests would you be asking your provider for? Any ideas would be greatly appreciated.
Thanks for reading such a long post!!!

"What you do speaks so loudly that I cannot hear you speak."
Ralph Waldo Emerson

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