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HOPEING's Photo HOPEING Posts: 980
7/17/12 12:43 P

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Sounds so much like what i'm experiencing hold on most of the time and havent fallen yet. but is there a way you fall without hurting myself that i can use if i do fall? i'm not on any meds for this yet i was just told about the mini strokes. i had been like this for about 3 or 4 yrs just getting worse over time i'm really not knowing what to expect, get tired so easy. my weight is 25 lbs over maby the losing weight would help i keep telling myself. i wonder if i'm setting up for a bigger stroke? Hopeing

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��������� TO GOD BE THE GLORY.������������
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����������� �� EACH� TIME I BEGIN TO FEEL THAT THERE JUST ISN'T ANYMORE STRENGTH IN ME, I END UP KNOWING THAT THERE IS MORE IN HIM.� PRAISE GOD, �����


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BARBGEO's Photo BARBGEO Posts: 784
7/17/12 9:46 A

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Hi everyone!
I developed seizures several years after my brain injury (I gather this is not uncommon). I take an anti-seizure med now... this is my second one. After a year or so on the first one, I became the 'poster child' for the disclaimers on the commercials... 'this medication may cause suicidal tendencies'. Fortunately I lived thru that, but barely.

I take a bennedryl for head pain which increases if the barometric pressure changes. That is about it, beyond vitamins.

All the best,
Barb G


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SDANLSON's Photo SDANLSON Posts: 1,103
7/17/12 9:04 A

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Oh yeah, I make lots of notes to my self and have a calendar by the door I write down appointments and other things I want to remember or do on. A lot of us were given the suggestion fairly early in rehab. -- often several times. I can remember being frustratingly unable to recall things even after a few mins on a regular basis early on.

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SDANLSON's Photo SDANLSON Posts: 1,103
7/17/12 8:51 A

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I drift to the left and turn to the right. It shows up more now (20 yrs post TBI) when I a really tired, have sinus problems, or am in low light/visability conditions. I am in the frequent fallers group too. Fortunately, I seem to have developed the ability to drop into it when I fall so I rarely get hurt badly from the falls.

I am not on any meds anymore other than some lower end meds for high blood pressure which I do not take in really hot weather anyway. I have shown allergic or neurological reactions to most of the antidepressant or antianxiety class drugs.

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HOPEING's Photo HOPEING Posts: 980
7/16/12 1:07 P

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Thank you for the reply. the only thing Dr. told me was to keep a close watch on my chol. Diabetic numbers. blood pressure. will help but can't tell me the outcome. seems like i'm just getting worse like you said i'm tired at the end of the day and it really flares up. are you taking any meds for your situation? do they seem to help? Thanks Hopeing

��������������
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��������� TO GOD BE THE GLORY.������������
������������
����������� �� EACH� TIME I BEGIN TO FEEL THAT THERE JUST ISN'T ANYMORE STRENGTH IN ME, I END UP KNOWING THAT THERE IS MORE IN HIM.� PRAISE GOD, �����


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BARBGEO's Photo BARBGEO Posts: 784
7/16/12 9:48 A

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HI!!!!!
I am so sorry I had not gotten on the computer all weekend. YES! I have balance issues as well as vertigo... I haven't thought of which side I 'veer to' but I guess I do, and yes, I go right most of the time. My brain injury is on the left frontal lobe, so I guess that makes sense.

My own issues are much worse when I am tired. The later in the day it is, the worse I am. My speech and memory most of all.

Do the doctors say there is anything they can do?
Again, sorry I didn't get back to you sooner.

Hugs!!!

All the best,
Barb G


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HOPEING's Photo HOPEING Posts: 980
7/15/12 6:30 P

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I wonder if i'm the only one in the world that has this problem? I'm leaning on the LORD what ever happens i know he will be there for me. hope i get a reply from someone soon I just got this comp. and not to familiar with it i misspelled a few words sorry. maby can do better. emoticon

��������������
������������
��������� TO GOD BE THE GLORY.������������
������������
����������� �� EACH� TIME I BEGIN TO FEEL THAT THERE JUST ISN'T ANYMORE STRENGTH IN ME, I END UP KNOWING THAT THERE IS MORE IN HIM.� PRAISE GOD, �����


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HOPEING's Photo HOPEING Posts: 980
7/14/12 7:35 P

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Hi there all, am new to this site and havent seen anything here that is like mine unless it was mentiond earlier. i have been having alot of issues with my balance, headaches, verring off to theright all the time. i do use a cart all the time in the store never go anywhere witout a cane. went to the DR. saied get a mri. everthing was ok except the very small blood vessles in my head were closed some of them not all. i have had mini strokeshas what caused this problem. anyone else have this? i really need help my memory is really bad anymore and it all comes from this Hopeing

��������������
������������
��������� TO GOD BE THE GLORY.������������
������������
����������� �� EACH� TIME I BEGIN TO FEEL THAT THERE JUST ISN'T ANYMORE STRENGTH IN ME, I END UP KNOWING THAT THERE IS MORE IN HIM.� PRAISE GOD, �����


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GOOFYNANNY1's Photo GOOFYNANNY1 SparkPoints: (0)
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7/11/12 9:38 P

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Barb I always push a cart at the stores it gives me freedom for a bit.

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BARBGEO's Photo BARBGEO Posts: 784
7/11/12 12:29 P

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Thanks for the info. Sounds like many of us!
I too have balance issues. I use a cane sometimes, but mainly am OK... in big places (like the store) I always have a shopping cart. I have vertigo, so walking on the treadmill has been good for me--but the lights at the gym really hurt. And the noise.
I am glad you are here.

All the best,
Barb G


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GOOFYNANNY1's Photo GOOFYNANNY1 SparkPoints: (0)
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7/9/12 10:03 P

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Thanks Barb,

I have balance problems, tremors sometimes, now I use a cane. My doctor wants me to do 5lb weights for upper body strength and walk on treadmill. This is to keep me out of a wheel chair.

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BARBGEO's Photo BARBGEO Posts: 784
7/8/12 10:16 P

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So glad you found us GoofyNanny!
I am not familiar with this brain issue. What do you deal with? Glad you found us though!
Take care!
Barb

All the best,
Barb G


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GOOFYNANNY1's Photo GOOFYNANNY1 SparkPoints: (0)
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7/7/12 5:31 P

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Hello I am new to the team. I have spinocellerbum degeneration and ataxia. I would like to talk to anyone else who has either problems or ataxia.

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MAMABIRDY Posts: 140
1/1/12 11:20 P

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Hi! I'm new to the team. I have Chiari 1 malformation, syringomyelia, and hydrocephalus. I had decompression surgery last September, and a VP shunt placed in November. I also have a son with Asperger Syndrome.

Looking forward to getting to know everyone.

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BARBGEO's Photo BARBGEO Posts: 784
9/13/10 10:23 A

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Good Luck with this!!! I have found cysts to be as painful as can be (not in the brain--no idea)!
Keep us up to date!
Barb

All the best,
Barb G


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ADAJLIM's Photo ADAJLIM Posts: 4,633
9/12/10 9:03 P

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Will you have to have surgery for that???

Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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3ALIASYNCOPE's Photo 3ALIASYNCOPE Posts: 10
9/12/10 11:15 A

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Hi, It turned out that the thing in my brain is only a cyst, thank god! But now we have to find out if it is a cyst that causes seizures. Oh, brother.

" Yesterday is the past, tomorrow is a mystery. Today is the present so treat it as a gift". -Ali Bekki

"Time is Money" "NOTHING is free"-Ms. Hoke


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PAMELAINE123 Posts: 5
9/5/10 3:32 P

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Hi Barb

Thanks for the response. I tend to focus on the things I didn't get done instead of remembering the accomplishments. My son returned to school today so I am sad, but I am trying to focus on the positives.
Thanks again.

Edited by: PAMELAINE123 at: 9/5/2010 (15:35)
ADAJLIM's Photo ADAJLIM Posts: 4,633
9/4/10 9:05 P

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I used to get panic attacks in the late afternoon. That's because night time was near and it would be time to sleep and that is when I would have my seizures. I ended up having to take an anti-anxiety med to help me get through the days.
I also find that stress makes me very anxious and I would not eat but now that has changed to eat, eat, eat everything in site!

Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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BARBGEO's Photo BARBGEO Posts: 784
9/4/10 3:32 P

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Hi and Welcome!
As a Brain Injury Survivor, I too suffer from panic and pain. Most of all, when stress overwhelms me (or sneaks up on me!) I can have a roller coaster of a time.
As I have found, there is little I can do about the 'sneak life attacks'--but for daily life, I can plan to rest, recoup, and regroup. I have to plan my meds out--and the reminders that I need to remember to remember to take them... *i need lots of reminders.

I can't control:
Raccoons getting under the deck and the dog going insane at 3 AM.
The dishwasher running over... UGH
Babies. You cannot control babies.

I can control:
Having (clean) underwear! smile!
Making my bed (I am a firm believer a made bed starts the day well...
Getting Dressed. (maybe not showered, but dressed!)
Doing the BEST I can for the day.

I work HARD at counting my ACCOMPLISHMENTS. No one is standing by me telling me how GREAT a JOB I did NOT falling up/down the stairs... I have to give my own applause for these things. Oh, and yes, I have PERFECTED falling UP. (grin).

I hope that the coming week proves that you 'paid your stress bill last week so this week you are stress-less'!

Hugs and welcome,
Barb

All the best,
Barb G


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PAMELAINE123 Posts: 5
8/26/10 10:49 P

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Hi,
I am new this month and still finding my way around. I am a 48 yr.old single mom diagnosed with trigeminal neuralgia. Last weekend I had a painful attack twice in one day(after a very emotionally stresful week). Both attacks subsequently triggered very frightening panic attacks. Has this happened to anyone else? Any suggestions- I have felt very drained all week with no appetite and I am in fear of the panic attacks....

ADAJLIM's Photo ADAJLIM Posts: 4,633
8/25/10 9:25 A

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Thank you Danny for your inspiring message to all!

Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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DGIBSON61 Posts: 259
8/25/10 8:47 A

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Hi all, my name is Danny. I have a 13 yr old son who has Tourette's and OCD. He is a youth ambassador with TSA and has a given a speech at a conference in DC. He has not let his TS stop him at all. He is a honor roll student as well as an athlete. He plays in numerous sports with baseball being his first love.

My wife and I run a support group in Va Beach for people with TS. The group is for anyone but it's mostly kids and teenagers.

For anyone with TS, don't let it stop you. You can do anything you set your heart to.

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ADAJLIM's Photo ADAJLIM Posts: 4,633
7/23/10 11:14 A

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Hi Paige,
Welcome to the group! I have a friend who has a son who has Tourette's Syndrome. This came after his epilepsy was under control. I grew up with a mother with severe OCD and she doesn't believe in getting help for it and she drives me crazy whenever I visit here because she cannot sit still long enough to carry on a conversation! My brother also has OCD and maybe ADD. I am willig to talk with you about OCD since I have lived with it and have to deal with people that are affected by it! Have a great day!!!
HUGS, Janet

Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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CD7836499 Posts: 8
7/23/10 4:52 A

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Hi! My name is Paige Elise and I have Tourette's Syndrome & Obsessive Compulsive Disorder.
I was diagnosed with Tourette's Syndrome when I was 12 years old and it's been up and down since then. I was diagnosed with OCD when I was about 14. I would love to talk to anyone else who has either of the same conditions that I have-but even if you don't-I'd still love to be friends! :)

ADAJLIM's Photo ADAJLIM Posts: 4,633
7/15/10 12:09 P

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The meds my friend was taking that seemed like a miracle drug stopped working for her after a week. Now she is back to her same routine of severely limiting her time to talk to people face to face and having to deal with her headaches, nausea and heart pains.
Her son is a doctor and came upon this info. 'Hemiplegic Migraine'..Which symptoms fit her condition, which are...
Difficult to be around people, sensitivity to light and sound, nausea, loss of balance, confusion, language and speaking difficulties, and headache.
There is an expensive test to determine whether she has this and then there are some medications that she could try to help her with her problems.
I pray that the neurologist will okay the test and then get her started on some medications that will help her live a more normal life!!!
We are going to Taco Bell and only going to spend 2 hours together this Friday. We usually end up talking for at least 5 hours then it takes her a few days to recover from all of that so this time I am going to set my cell phone alarm and after 2 hours we have to say farewell~until next time!

Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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BARBGEO's Photo BARBGEO Posts: 784
4/19/10 9:37 A

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Thank you so much for this info! I nearly missed your post--not sure why, but anyway...
I am the brain injury person, my husband has been recently diagnosed with aspergers. He is 62. He has been this way all his life, though with recent changes it became more apparent than ever. He coped while he was working full time (and mainly traveling across the country). Because he had 'back up' at home (me) and his 'people' (company folks who booked business stuff, flights, etc and kept him on deadlines!) he was able to 'cope' (not really). When business changed and the 'details' were expected for him to do, it flopped.

The more I learn the more I know. OK, I am sleep deprived and that is as good as I can get it today!

Barb

All the best,
Barb G


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ADAJLIM's Photo ADAJLIM Posts: 4,633
4/18/10 7:34 P

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My best friend who had a stroke at the age of 50 started a new medications called Namenda this past week. She is now able to be around and talk with people and seems to have more energy! This medication is used for Alzheimer patients, but is working wonders for her! She doesn't shut down after 10 minutes of conversation and I got 3 emails in one day from her and a phone call! I am so happy to get my old friend back and hope this medication continues to work for her!!! emoticon emoticon emoticon

Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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SDANLSON's Photo SDANLSON Posts: 1,103
3/9/10 10:15 P

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My experience with Aspergers is that there can be a lot of frustration dealing with the things that cause that individual more problems. Dealing with instuctors in the early grades who had no real understanding of it many years ago never helped. Getting called lazy when working with a subject you were slow with and then being accused of cheating on things that just clicked never helped. Bordom in some areas can be a big problem too since the occupying behaviors may be seen as annoying to others.

I have seen Aspergers and Autism described as a problem with connectivity between different areas of the brain. Brain injury, which is a disruption of normal pathways, on top of it could be a pretty big mess for a while while new connections are being established.

Personality change to some degree is very common especially in the early stages, but remember what it was like in the early stages when being able to remember things even for a few minutes was something that didn't happen any more. Submissive behavior for some and short tempers for others is pretty common from the early restricted movement wards on until some adjustments start to be made over time. Much of society sees deviation from what they see as normal as a big problem, so those individuals who are different are a problem as far as they are concerned. Oh, well.

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RONDARC's Photo RONDARC Posts: 10,956
3/8/10 8:57 P

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Mine was a meningioma. I had surgery 9 years ago with radiation and it hasn't come back, which is good. My Dr said there was a chance it could, but they are suppose to be slow growers.

Will they do surgery or take a watch and wait approach? Mine was 5cm at the base of my skull (near the brain stem) so I was an emergency.

~~ Ronda~~

If you make up your mind to be happy there's no reason why you shouldn't have a fairly good time.

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3ALIASYNCOPE's Photo 3ALIASYNCOPE Posts: 10
3/1/10 4:29 A

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I don't know if it is with or without contrast. I did have my friend in yemen go to the head doctor in his medical group and he says it is a meningioma tumor. Which will mean I need surgery. Hopefully everything will be ok.

" Yesterday is the past, tomorrow is a mystery. Today is the present so treat it as a gift". -Ali Bekki

"Time is Money" "NOTHING is free"-Ms. Hoke


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RONDARC's Photo RONDARC Posts: 10,956
2/28/10 1:53 P

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Hi Alia, I know how scary this is. I seen my tumor after the MRI and it basically looked like a golf ball, white and in the base of my scull, and that was using contrast. Did you use contrast with your MRI? I'm asking because maybe that's why it showed up black on the CT?

Depending on the size, location & type, you might not need surgery. You need to ask you Dr those questions and then start doing research on it and find out treatment options.

I wish you the best and if you need to talk, we are all here for you. emoticon emoticon

~~ Ronda~~

If you make up your mind to be happy there's no reason why you shouldn't have a fairly good time.

Border Collie Lovers - Team Leader
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3ALIASYNCOPE's Photo 3ALIASYNCOPE Posts: 10
2/26/10 11:41 P

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Hi, I am Alia and I am new here. I found out on Monday that I have a cyst in my brain through a CT Scan. Today (Friday) I went through a snow storm to the hospital to have an MRI done. I asked to see what they are looking at. I saw a black mass in one image, and then a white mass in another image. I am so scared. I mean do I need surgery? Do I need Radiation? I can't believe that I have to wait until April to see the doctor about this. This is so stressfull.

alia

" Yesterday is the past, tomorrow is a mystery. Today is the present so treat it as a gift". -Ali Bekki

"Time is Money" "NOTHING is free"-Ms. Hoke


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BARBGEO's Photo BARBGEO Posts: 784
2/9/10 10:53 A

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Asberger's Syndrome is somewhat like Autism. We thought for years he had ADD. His social and verbal skills are very lacking--although he has been able to maintain a high level of employment and is brilliant (until he lost his job 2 years ago that is...). He is one-minded, and non-focused on anything other than his own interests (I am NOT trying to sound like I am putting him down--it is what it is). He has a tremendously high IQ and is very high on the Mensa scale. Very contradictory.

As Autistic kids need structure and routine, the Asberger adult does as well--though they are hard to get into a routine at ALL--and their stubbornness fights it.

This has been very difficult to cope with--he is 62 and was diagnosed last year (duh). With my brain injury and his situation, we have had some MAJOR problems.

I have not had brain surgery. My TBI was entirely a closed 'brain bounce' (sometimes compared to shaken baby syndrome--or boxer's brain.

I am sorry you are having pains -- not fun. I find that most of my meds -- um....bind me up (sorry for being insensitive) and I get pain from that.

Stress STINKS!

Thinking good thoughts!
Barb



All the best,
Barb G


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ADAJLIM's Photo ADAJLIM Posts: 4,633
2/9/10 10:20 A

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Barb~I have never heard of Asperger's Syndrome and will have to research that!

I was wondering how many people have had brain surgery? Since I had it, I no longer have seizures but it when I am stressed it seems to manifest itself in stomach pains~dreadful! I tossed and turned last night and thought I had appendicitis last week because of it! If only I could rid my life of all stress! ?????
Have a great day all!
emoticon Janet

Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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BARBGEO's Photo BARBGEO Posts: 784
2/2/10 12:05 P

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Thank you for letting me know... I have always been a 'bucket mouth' but now I have fewer 'filters' and my brain does not always connect what I have said to what I mean.

I am glad he is in the Mild/Mod zone. Mine is Moderate. How strange it is, no blood, very little outward injury, and such a life change. The BEST thing I ever did was find someone to talk to online--I was able to plug together a few (miss-spelled and all in capitals) words, early on. That was how I was able to get my speech back.

Please know, I wasn't trying to put down my husband--we have since learned that his has Asperger's Syndrome--which makes much of his inabilities understandable. Not easy, but some clues at least.

Be sure to care for yourself. It is hard to relay a hidden injury to family and friends. Men don't want to 'need' and may go 'overboard' with activity before it is safe... If he has a friend who can 'be real' with him, it might help him to see the needs to slow down to insure good solid recovery.

Thanks again for letting me know!

Have a good day!
Barb

All the best,
Barb G


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ALISA1223's Photo ALISA1223 Posts: 663
2/2/10 11:54 A

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Oh I didn't take any offense. I was actually glad for the info because I would have been lost as to what to look for and what was normal for him. I can imagine your care suffered if he wasn't prepared for what was the new "norm". Funny how now we refer to before and after because it is like he is a new person. I don't know how they have him labeled. I would say mild or moderate, but not severe.
Please don't be sorry I was not upset at all :)
emoticon
I am actually glad to have someone who understands to talk to emoticon

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BARBGEO's Photo BARBGEO Posts: 784
2/1/10 9:38 P

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Did they give you an idea of how severe his TBI was? Usually they call it Mild-Moderate-Severe.

Holy Cow, I didn't mean that you wouldn't read everything coming home... Please know I absolutely didn't... it is just so much to cope with coming home, that sometimes things get missed--my comparative mention of my husband is typical of HIM...and getting past that anger has been rough--as my care suffered for it. I SO did NOT mean that the way it may have come out. I am so sorry!!!

Barb

All the best,
Barb G


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ALISA1223's Photo ALISA1223 Posts: 663
2/1/10 7:26 P

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Thank you all....I did read everything that came home from the hospital, but it seemed that he only did or suffered from a few of the many. He is doing much better and we just have to be patient ;)
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BARBGEO's Photo BARBGEO Posts: 784
2/1/10 10:58 A

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Hi Amy, and Glad you are here (sorry you need to be) but there is tons of info out here.

I am a TBI survivor x 2. One of the things they did not tell me, was that once you have had a head bonk--it is POSSIBLE (it does NOT happen all the time) to be off balance and bonk again...mine are 6 months apart, and nearly in the identical place. So--watch his balance. It may get 'wonky' late in the day or when tired or stressed out. Just be aware.

His brain has changed. He may have fear.... or may just be looking at what he could have lost...contemplation is not a bad thing.
Personally, I have never 'checked' myself well... 'Little trooper' 'energizer bunny' you know the type. Now I don't have a choice.

Read everything that came home from the hospital--you would be shocked at how much info there is in that packet. My husband never did open it. Not a good idea.

Vision is an issue for some of us--mine was perfect before--now it is toasted.

I am 5.5 years out. Many here are less and some are longer. Some of us have other things going on with our brain.

Let us know what we can do, and Welcome!

All the best,
Barb G


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ADAJLIM's Photo ADAJLIM Posts: 4,633
2/1/10 10:55 A

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ALISA1223~Glad to hear that your husband is on the mend! If he had any brain trauma, it will take a little time for the brain to recover from the trauma. But don't be discouraged, the brain is a powerful organ and it can repair itself with time.
Maybe your husband is thinking about his accident and thinking of ways he could have avoided it and all the pain he has been going through? Good luck to you both!
emoticon Janet

Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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ALISA1223's Photo ALISA1223 Posts: 663
2/1/10 10:45 A

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My husband was in a motorcycle accident 4 months ago and suffered many fractures and TBI. He is home and doing well physically and his memory seems to be intact, but sometimes I think he isn't quite the same. However I think he is calmer and more contemplative than before the accident. I would love to hear from anyone who has been through this so I can get an idea of what we have in store.

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ADAJLIM's Photo ADAJLIM Posts: 4,633
1/5/10 7:09 P

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Welcome Amy and congrats on being a brain cancer survivor. I wish you a good MRI result.

Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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BARBGEO's Photo BARBGEO Posts: 784
1/5/10 6:10 P

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Welcome to our team Amy. What a couple of years you have had... May 2010 be wonderful (!) for you! Glad you are here!

All the best,
Barb G


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AMY79A Posts: 6
1/5/10 4:05 P

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Hi, I'm Amy, I'm a 30 year old primary brain cancer survivor. I had surgery in June 2008 followed by 6 weeks of external beam radiation. I'm on the "watch and live" list right now with an MRI coming up tomorrow. My biggest struggles are fatigue, focus, and stamina. I also tend to get headaches if I overexert myself since having surgery. While never "thin" I ballooned from the time I was diagnosed with a brain tumor until the time I completed radiation. (Some steroids some stress over 1 year) I have managed to get back down to the weight I was prior to diagnosis by losing 68 pounds but that has plateaued and I have a lot of weight to still lose to get to a safe weight.

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AEFAUCETT Posts: 272
12/14/09 8:23 A

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Greetings all. Saw my beloved this weekend. I remembered what yall said about reactions to lights and sounds and getting frustrated. She did really well and I saw a video of her when she was recovering in the hospital. It was absolutely incredible to see how far back she had gone developmentally. Thanks for the support. I know that I wouldn't know how to be so understanding if yall hadn't helped.

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ADAJLIM's Photo ADAJLIM Posts: 4,633
12/8/09 6:12 P

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I agree with Barb about the anger, frustration and fear. Bright lights really bother me and when I am stressed, my emotions can really change fast! I hate to be cornered into making quick decisions and it makes me mad, cold and even harsh at times. It takes time to get over brain injuries!





Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.


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BARBGEO's Photo BARBGEO Posts: 784
12/8/09 5:47 P

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I am not a doctor--but I am a Brain Injury Survivor--and YES I do feel it is expected for have some anger, frustration and FEAR. Depending on where she was hurt--Mine is left frontal lobe damage--and yes, my personality changed. Let's just say, me on a good day now is somewhat like a semi-bad day was before... A bad day? Watch out.

Having said that--I think it is important to note the good days--and the bad. There may be a need for less activity, medication changes or some therapy--3 weeks is a VERY short time to be totally released... I would question that--but that is me. Minimum, you need to mention the personality change to her doctors.

Good luck.
Barb

All the best,
Barb G


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AEFAUCETT Posts: 272
12/8/09 12:46 P

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You were totally right on about the light sensitivity and the frustration. It's been 3 weeks, she's out of the hospital, has been to therapy and has managed to be released back into her normal environment at school and sports.

Now I've noticed that she has a quicker temper and her personality is different. Where she once was kind and sweet and gentle, she is now cold and mean and harsh. Is this to be expected?

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BARBGEO's Photo BARBGEO Posts: 784
11/20/09 10:49 A

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HEY THERE! I am glad you found us. I agree with the photos, but take it slow--too much can cause frustration (in both of you). Easy going music is a plus too--if you have an ipod, some of those hold photos as well... I have an entire playlist for my 'difficult times'.

Hospitals are really hard places to be for a brain injury patient. The lighting stinks... hurts the eyes and helps the headache worsen. The interuptions of staff is difficult, as they are all strangers. Don't assume she will remember them--and they are up and about and few know much about brain injury.

We are here if you need us!!! emoticon

All the best,
Barb G


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