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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 4,631
9/17/15 3:50 P

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Edited by: TIGERSEYEHEART at: 9/27/2018 (04:25)
TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 4,631
9/17/15 2:17 P

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Edited by: TIGERSEYEHEART at: 9/27/2018 (04:26)
TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 4,631
9/12/15 2:26 P

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Edited by: TIGERSEYEHEART at: 9/27/2018 (04:26)
MATER88's Photo MATER88 SparkPoints: (199,929)
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9/7/15 10:08 P

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I'm so glad to hear that! I hope you do well on the rest of your journey. emoticon emoticon emoticon

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LAYNIEMAC88 Posts: 3
9/7/15 6:28 P

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Hi! I am also triple + and am currently in remission from a Stage 3 diagnosis in February. I am currently doing Herceptin alone and radiation therapy. Herceptin does not make me feel any side effects except for one time when. I was on antibiotics and the nurse thought that was the culprit. I have had 3 radiation treatments out of 29 and so far, no real side effects.
Leftover side effects from chemo is still some chemo brain i find that sometimes I cannot find the words I want to use or I get a little confused sometimes. It's not as bad as it was during my 4 drug cocktail as it is now on Herceptin. I still have neurpoathy off and on and it hurts when I do have it. I feel pretty good overall.

ABBYSHARPE's Photo ABBYSHARPE SparkPoints: (12,873)
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9/4/15 9:47 A

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I know I'm new here, but I went through a lot of this, too. Chemo brain was very similar to pregnancy brain. And my medication caused hot flashes. I didn't need any lotions for radiation until near the end, and then for a few weeks afterward. But the good news it when it's completed, it's over.



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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 4,631
8/27/15 7:12 A

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Edited by: TIGERSEYEHEART at: 9/27/2018 (04:26)
MATER88's Photo MATER88 SparkPoints: (199,929)
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8/23/15 6:00 P

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Christina,

Thank you so much for the link you posted about "chemo brain." My medical oncologist has made me feel so much better by telling me that it's the meds. But this article explains it in more detail.
I am going to print this article out and show my husband and daughter.
I really appreciate that you responded.
emoticon emoticon emoticon

Edited by: MATER88 at: 8/23/2015 (18:01)
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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 4,631
8/23/15 5:38 A

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8/23/15 4:51 A

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Edited by: TIGERSEYEHEART at: 9/27/2018 (04:26)
MATER88's Photo MATER88 SparkPoints: (199,929)
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8/20/15 7:59 P

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That is a lot to consider. I had a tumor in both breasts and I had a lumpectomy on each side and a lymph node on each side removed, too. I sailed through radiation with no problem at all. I did my best exercising then. I wish I had been prepared better for the meds I got put on. I am way past menopause so I wasn't given tamox. I am taking Arimedex. That's when I got side effects. I've had hot flashes (although it is better after two years.) But my memory problems have been significant. I can forget what I'm taking about in the middle of a sentence. I have talked to my medical oncologist about them. She has offered to put me on something else. But since that was her drug of choice I have decided to continue taking it. One of my health care advisors told me right now they say to take the pills for five years. But she said that they may recommend another five after the first. Oh, I also now have intolerance to both heat and cold. It drives my husband crazy. I do so hope that your journey will be blessed and you can come out the other end just fine.
MaryAnn emoticon emoticon emoticon

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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 4,631
8/14/15 11:22 A

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Edited by: TIGERSEYEHEART at: 9/27/2018 (04:27)
SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL Posts: 9,709
8/13/15 7:10 A

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Christina,

I understand where you are coming from with your concerns. I think, in my case, since I was triple negative, grade 3, stage 2b that I wanted to do everything I could.....knowing that I didn't have any targeted treatments available. You are on the opposite end of the spectrum having targeted treatments for Her2+ and er/pr+ and being treated in both breasts at the same time. Are you triple positive? Your treatment plan is much longer than mine and more involved.

I imagine you are spending hours on the computer doing research on everything you can find about your particular form of breast cancer and it's treatments. I did the same thing for months and months. I still get into "research mode" from time to time.....but that's another story.

I think it's great that you are doing all this research and questioning things. We each have to make our own decisions because we are the one that ultimately lives with that decision. One thing I will say is that people tend to post on the threads at breastcancer.org and other sites like that when they are having problems with side effects or have had complications arise. I noticed that in pretty much every area of treatment. I think it gives a lop-sided view of things.

I can only really speak for myself, and the long-term side effects I've experienced with treatment. On a scale of 1 to 10 (with 10 being the worst), I would probably put my SE's at about a 2. I have: (1) very mid neuropathy on my feet from the taxol; (2) some joint paint that I attribute to the chemo; and (3) the firmer, drier breast from rads. My risk for LE from the ALND and rads is the SE that I worry about the most.....but I seem to be fine with that two years later. Heart issues and secondary cancers are a lot less likely to occur than LE, but can be obivously much more serious. For me, I felt those risks were one's I was willing to take in exchange for a significantly reduced risk of stage IV breast cancer. I know I can still go to stage IV at any time, but at least with the treatments, I have a chance of making it through. Without the treatments, I'm sure I would be stage IV by now and most likely gone because grade 3 triple negative cancers tend to be very aggressive.

I don't know if that helps you any with your decision-making process.

Wishing you the best....




Kay from Tennessee



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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 4,631
8/11/15 2:59 P

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Edited by: TIGERSEYEHEART at: 9/27/2018 (04:27)
SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL Posts: 9,709
8/9/15 9:31 P

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I'm sorry the link didn't work. I was trying to direct you to a post in breastcancer.org. It's a great post. To find it go into the discussion board part of the site and then go under the Radiation subsection. It's the third pinned post under that section. It's called "A rad onc weighs in on radiation "burns".

As far as side effects of radiation itself, I haven't had anything significant. My radiated side is firmer than my unradiated side and my skin is drier on that side and it's very minor. My biggest gripe about radiation is that it makes it much harder to do reconstruction in the event that it's ever needed. It also makes lymphedema more likely. I had a complete axillary lymph node dissection because there was cancer in 2 nodes. Between the ALND and the rads, I'm at a pretty high risk for LE, but I haven't had any problems so far. Knock on wood!

Kay from Tennessee



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TIGERSEYEHEART's Photo TIGERSEYEHEART Posts: 4,631
8/9/15 5:00 P

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SIMPLELIFE4REAL's Photo SIMPLELIFE4REAL Posts: 9,709
8/7/15 1:07 P

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Here's an excellent post written by a radiation oncologist that really helped me to understand what happens to our skin during rads treatment. community.breastcancer.org/f
orum/70/to
pic/783321?page=5#idx_121


I bought all kinds of suggested lotions and potions, but ended up using very little of it because I had miminal skin breakdown (at my collarbone area). I can't remember if you had a lumpectomy or MX. It seems that people with small or moderate sized breasts that have a lumpectomy don't have much of an issue with skin breakdown. I fell into that catagory. My biggest issue during rads was fatigue....a lot of that was a hangover from chemo and surgery. I decided not to fight it after the first couple weeks and got into the habit of coming home after rads and taking a nap.

I hope you don't have a long drive to where ever you are going for rads. I did mine at the local hospital instead of going to where I went for chemo and surgery. It was nice to be able to get in and out quickly.

Kay from Tennessee



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7/30/15 12:39 P

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