Group photo
Author:
CD5263005 Posts: 376
10/24/10 8:23 P

Send Private Message
Reply
Dee - my port was very uncomfortable. It was on my left side by my collar bone and hurt to lay on my left side and was just very tender. I had it removed with doctor's permission when I had my final implant put it. I was glad to get rid of it even though it is still a little uncomfortable. Never damage I guess. I was never told or advised to keep it in. Good luck.

DEETHEDIETITIAN's Photo DEETHEDIETITIAN Posts: 356
10/24/10 8:08 P

My SparkPage
Send Private Message
Reply
Thanks for the feedback everyone!! :-)
It helps to hear from others going through this ~ I am definitely going to get it out sooner rather than later!! I hope my plastic Surgeon will do it for me or maybe get another physician to be there to do it when I am getting my implants.

I'll let you know how it goes!
Thanks again,
Dee

It is not enough to simply show up. You need to step up for results.... keep on stepping! Dee


 Pounds lost: 0.0 
0
10.775
21.55
32.325
43.1
CD1234936 SparkPoints: (0)
Fitness Minutes: (58,029)
Posts: 20,078
10/24/10 8:05 P

Send Private Message
Reply
Dee, I still have mine in, also.

I completed Chemo Dec '09. My Dr. said that I can have it removed whenever I choose.
However, I afraid to have the procedure done. I've been cut and stuck so much. I'm just afraid.

But, I do want mine out. I just have to make up my mine to do it.

Do what makes you feel comfortable. I hope this helps.

SWARMSOFLIZARDS's Photo SWARMSOFLIZARDS Posts: 231
10/24/10 7:19 P

My SparkPage
Send Private Message
Reply
Hi Dee,
It sounds like we had a similar situation. I finished chemo January 28th and had my port out February 12th--I wanted that thing out! I have had my blood drawn every three months since for the followup appointments. Once they had to use a baby needle to get blood, but I've always had hard-to-find veins. Personally, I'm really glad it's out. Mine was more of an inconvenience than painful, but having it in made me feel like a cancer patient, and having it out felt like I was putting part of that behind me.


Meredith

"Imagine that in front of you is a castle. That's where you want to be. But surrounding that castle is a moat, full of piranha. The only way to get into Sexy Abs Castle is to swim across the moat and let the little fish painfully chew off hunks of fat. The real situation is exactly like that, only the swim will take years."
tinyurl.com/piranha-moat


 current weight: 151.0 
152
147.75
143.5
139.25
135
JOCALAT's Photo JOCALAT Posts: 1,036
10/24/10 6:56 P

My SparkPage
Send Private Message
Reply
I have not had a port but I agree with JOY here..I would remove it and put it back should you need it but we are think positive so hopefully not...even so if there was ever a reoccurrance what if it doesn't happen for 5, 10 or 15 years thats time living comfortably and who knows what the protocol will be then though again we are thinking positive here!!

JOYSGARDEN's Photo JOYSGARDEN SparkPoints: (0)
Fitness Minutes: (4,510)
Posts: 12,869
10/24/10 6:18 P

My SparkPage
Send Private Message
Reply
Not having had a port, all I can offer is my humble opinion. Are you supposed to leave it in for the next 5 or 10 years? We all stand a chance of a recurrence, that's the nature of the beast. You could have the port in for months, and nothing happen, or have it out tomorrow, and need it again. As long as it is bothering you, were it me, I would have it removed, and go on with my life as if I knew I was going to be OK. Do your tamoxifen, and live healthy. It's all any of us can do. Good luck making your decision, and with the rest of your very long life!!


♥ .* ) ..*) -::-
(. ;..♥ .* ) ..*) -::- ♥.*-:
(. ;..♥ Joy ♥.*) ;..
♥.*-:♥:-. ;..♥ -::-
Albion, PA
Joined 2/10/08

Co-leader of Managing Diabetes, Over 50+Over 50+
View my photos @ flickr.com/photos/joysgarden


 Pounds lost: 30.0 
0
12.5
25
37.5
50
DEETHEDIETITIAN's Photo DEETHEDIETITIAN Posts: 356
10/24/10 5:43 P

My SparkPage
Send Private Message
Reply
Hello my trustee friends! I went for my first follow up visit with the oncologist since finishing my chemo Sept 7th ~ all he did was chat with me about how I was doing on the Tamoxifen (I just started it on Tuesday)... and they did a blood count (with a finger stick). He said I should follow up with him in 3 months.

While I was there I told him how incredibly annoying this port is and how limiting it is for me. I am very active and the port is placed quite close to my collar bone - so much so that it aggravates me and sometimes I feel like I am wearing a very tight short sleeve shirt on the side where my port is. Long and short of it is... he said I can have the port removed - his only concern is that if I have a recurrence I will have to have another surgery to get another port.

I told him I prefer to think positively and I am NOT going to have a recurrence. He said he feels good about that too (what else would he say right?) ~ So ~ He is leaving it up to me. I have my replacement surgery scheduled for 11/5 and am hoping my surgeon will be able to take the port out then (since I will be sound asleep!)... I'm going to ask him tomorrow.

I realize that there is a chance that I will have a recurrence - however, I have made all of the choices possible to lessen that chance. I chose the double mastectomy, I did the 4 rounds of chemo and I am taking the lovely Tamoxifen. This should be my payoff -- getting rid of this port! LOL!

I know that I will have blood drawn every 3 months when I go to see him (that was another reason he gave for my leaving it in) .. but they dont' normally have a difficult time finding a vein - not necessarily an easy time but not terrible either.

Anyway -- what do you think?

Thanks!!
Dee

It is not enough to simply show up. You need to step up for results.... keep on stepping! Dee


 Pounds lost: 0.0 
0
10.775
21.55
32.325
43.1
Page: 1 of (1)  

Report Innappropriate Post

Other Breast Cancer Survivors and Those Who Care General Team Discussion Forum Posts

Topics:
Last Post:
6/14/2020 10:37:04 PM
6/20/2020 1:10:08 AM
7/1/2019 10:16:22 AM
6/5/2020 5:14:55 PM



Thread URL: https://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x17755x37509362

Review our Community Guidelines