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PROVERBS31JULIA's Photo PROVERBS31JULIA Posts: 5,187
7/18/18 4:11 P

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had second round of Neulasta last night and today I am feeling cruddy. Yet I think maybe I should lay outdoors in the heat and “thaw out”, get a little sun. Are there contraindications??

She girds herself with strength, And strengthens her arms.
Proverbs 31:17


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RAVENRX3's Photo RAVENRX3 Posts: 31
9/15/08 7:44 P

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While I did not take Taxol, I did have Taxotere, Adriamycian and Cytoxan 4 of one 12 of the the other for 16 rounds total...and I totally had Chemo brain after my treatments as well.
It got to the point where I flat out told my husband and mother not to bother asking me anything about the evenings after I had chemo because I would not remember any of it. I had my treatments at about 3:30 or 4:00pm so I could go straight home afterwards.

Hang in there!

LORI2008's Photo LORI2008 Posts: 1,624
9/11/08 10:09 A

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I'm doing 6 cycles of Taxotere, Adraimycin and Cytoxan. Major chemo brain fog. I have continued to work full time but my work has been fraught with mistakes. And it doesn't take much to distract me from getting anything useful accomplished. Some days are worse than others, though. I have decided to quit driving unless I absolutely must. One time, I was taking my daughter to the pool. I got to a stop sign and suddenly had no idea where I was or where I was going. THAT was scary! But yeah, I've had whole conversations with people and then completely forgotten that I spoke with them or had no idea what we spoke about.

Lori
STANNER3's Photo STANNER3 Posts: 2,459
9/11/08 8:43 A

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I agree, the steroids do cause a sleeplessness, I always made sure that I had Lunesta on hand, it worked the best for me, and the nurses were able to give me a couple of free samples. I had Taxotere, not Taxol, but I can relate to the chemo brain. But be encouraged, I think if you keep active, brain and body, that it's not so bad, I worked full time through my chemo, and the only time I would blank out was in casual conversations, just couldn't remember the point I was trying to make! Which was embarrassing, but at least I had something to blame it on. It never effected my work, and I do precision computer treatment plans (for radiation for cancer patients, go figure!)

After the first Neulasta I had incredible bone pain, kind of the "curl up in a fetal position and not move ever again" type stuff, but I found that if I had Advil in my system that the side effects were hardly noticable. (Just took it regularly for one day seemed to do the trick.)

Hang in there, there's a light at the end of the tunnel!

Suzanne

That which does not kill us makes us stronger.

Phil. 4:13 "I can do all things through Christ who strengthens me."

"A pessimist sees the difficulty in every opportunity; An optimist sees the opportunity in every difficulty. Winston Churchill

"Victory is not found in the ease of our circumstances, nor in the strength of our own resources, but in the presence of the Lord, who is with us" Roy Lessin


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IVYLASS's Photo IVYLASS Posts: 7,185
9/11/08 8:00 A

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I only get steroids as part of my pre-meds before the chemo. I do feel a little bit more with it today, I think it was lack of sleep. I have a breast cancer support group meeting tonight, and aside from a bit of achiness from the Neulasta, I do feel better.

One stumble does not a failure make.

Everything in moderation.


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JAZZID's Photo JAZZID Posts: 8,834
9/11/08 1:05 A

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Hi Ivy, I had 4 treatments of Taxol in 2006 and it didn't affect me mentally, but it caused a rapid heart beat and mild neuropathy in my fingers and toes. But what made me feel mentally challenged was the AC, Adriamycin "the Red Devil"& Cytoxan, I hated those drugs. I had a killer head/nose/face ache within 5 minutes of completing the treatment and I had to sit there for 20 minutes or so before it let up...

Maybe it will clear up gradually... My neuropathy is getting better, it's tolerable, just annoying.

I know the nurses and the doctor always, mentioned "chemo brain", which I think I do have, because my memory is not a sharp as it was prior to chemo. I find myself writing more notes and making sure that I place things, like my keys/credit cards, bank book, etc., in the same "desinated" place, or I will "lose them"... but I don't know which of the chemo drugs caused it...

Remember to emoticon tons of water to flush the drug out of your bladder/kidneys. My nurse and cancer advocate, recommended that I start drinking at least 10, 8 ounces cups of water, 1 day prior to treatment, treatment day and 2 days after treatment.

Keep a notebook and write everything down...I worked during my treatments, and had to learn a new software program. You should have seen my desk, it was covered with post-its, but I have since put everything in a notebook for reference.

Don't worry too much about it, keep a positive attitude and remember why you are going through these treatments.

Good luck & "stay encouraged"...

emoticon ~ Dee ~

PS: I just thought of something, if you are taking steroids to prevent an allergic reaction, this may be affecting your sleep. Before the Taxol treatments I was given 2 Dexomethosone's and I felt wired. I would then have to take them for 6 more days, stepping down every other day and I do remember that I didn't sleep well during this 4 week period, but I connected this side effect with the Dexomethosone not the taxol.

Edited by: JAZZID at: 9/11/2008 (01:24)

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ROSEWHISPERS's Photo ROSEWHISPERS Posts: 109
9/10/08 9:57 P

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I passed on Taxol so I can't really relate to how you feel. The side effects scared me more than the cancer did. I hope you feel better soon. Chemo brain is not fun at all.

emoticon

Gail

Gail,
Shoshone, ID
"And in the end, it's not the years in your life that count. It's the life in your years."~ Abraham Lincoln


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IVYLASS's Photo IVYLASS Posts: 7,185
9/10/08 6:39 P

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I had my first Taxol yesterday. Fortunately, I wasn't allergic to it. But I either did not sleep well last night (my husband is disabled, and I had to get up with him a couple of times last night) or the Taxol is fogging up my brain.

Tell me this goes away after a bit. I had training at work today on a new process, and I'd hate to go to work tomorrow and go "huh?" emoticon

One stumble does not a failure make.

Everything in moderation.


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