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BELROSA's Photo BELROSA Posts: 697
10/27/10 2:58 A

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I think it's largely because your average GP just doesn't have the time to keep up to date with the current research and recommendations for treating everything. Although PCOS is very common (1 in 10 women, maybe more), it's not well known. Getting a diagnosis is hard enough, let alone appropriate treatment. There've been a few studies which found that some BCPs actually *cause* insulin resistance (believed to be the underlying reason behind PCOS) and many women develop it after coming off BCPs. It does make you wonder.

The best ways to treat PCOS - regular exercise, low glycaemic load and glycaemic index diet, insulin sensitising agents like metformin or d chiro inositol, cinnamon or chromium - all require a lot more intensive advice and coaching than simply writing a prescription.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
LINZERLOU's Photo LINZERLOU Posts: 203
10/26/10 12:23 P

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I was on birth control for 7 months and in those months I gained 20 pounds. I went off the pill and was miserable and later found out I had PCOS. I never even knew I had it and according to the specialist I recently saw, I have always had PCOS, but because I was at a good weight for me that I never saw many symptoms, but gaining those 20 pounds caused me to stop ovulating, no periods, acne …….
I will never take another birth control pill again and I’m not sure why a doctor’s first suggestion is to try birth control to take care of symptoms of PCOS.

I have had to work really hard to lose 12 pounds and I have still more to go, but I have noticed PCOS symptoms are much more manageable and hopefully it will get even better once I lose 25 pounds which is my ultimate goal.


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10/26/10 9:47 A

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Yes, I'm so glad it keeps things in check. BTW, initially there was question if I was asthmatic because I was having trouble breathing, but it was the fluid I had in my lungs. At night, when asleep it was easy (so I'm told) to hear how 'wet' my breathing sounded. In addition to starting back on the Yasmin, I was also started on HCTZ...in the combination of both those meds, I lost over 10 lbs of fluid in a week!

first you must be happy with yourself


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BELROSA's Photo BELROSA Posts: 697
10/26/10 7:19 A

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Holy cow! You poor thing! Thank heavens the BC does keep it in check, that's serious.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
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10/25/10 9:57 P

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Hi everyone, I see this discussion has gotten kind of heated. I just wanted to say I guess I'm one of the 'lucky' ones. I've been on Yasmin now for a few years and it helps me tremendously. The one time two years ago I went off it, I ended up in awful trouble. I didn't have a period for five months, I started retaining fluid to the point where not just my limbs and face started puffing up, but my lungs were filling with fluid. It was really scary. For me, the Yasmin in combination with my other meds keeps me healthy. I just wanted to let people know that the BC pill may not be for everyone, but for me is essential. : )

first you must be happy with yourself


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FIRESTARINFINI's Photo FIRESTARINFINI SparkPoints: (27,563)
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9/21/10 10:43 P

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Actually I did read your post and the reason I keep on bringing up the sexual orientation part was because I don't understand why it is important to hormonal imbalance. Again, I'm sorry if I seem antagonistic but I don't understand the relevance. Could you give me the clarification?

Edited by: FIRESTARINFINI at: 9/21/2010 (22:46)
Finish each day and be done with it. You have done what you could; some blunders and absurdities have crept in; forget them as soon as you can. Tomorrow is a new day; you shall begin it serenely and with too high a spirit to be encumbered with your old nonsense.

- Ralph Waldo Emerson

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MMEEAAGG's Photo MMEEAAGG Posts: 723
9/21/10 6:37 P

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Did you even read my whole post? Out of EVERYTHING I said, you're paying attention to the orientation part? It was COMPLETELY relevant to everything I posted...I was indicating how some people need BC to provide them with the Estrogen that PCOS causes them to lack SUCH as myself. The reason I brought up the sexual orientation factor was due to the fact that new studies show that it has to do with hormonal factors. Now, keep in mind, if you had of actually read my entire previous posts, you would have seen that the orientation part was about ONE sentence in a a few paragraphs. I'm guessing you did not even take the time to read it all, since that was such a small factor in my post. It was absolutely relevant because it has to do with the hormonal differences I was referring to. It's not like I brought it up for the hell of it out of the blue.

The point in my posts (Which I'm guessing you didn't take in) Was to let people know that BC can be suitable for some with PCOS such as myself and a few others I know. Some of us NEED that Estrogen. This thread is entitled, "IF YOU HAVE PCOS DO NOT TAKE BC!!" So I came here to say, DON'T be scared to take it - it works for some. I explained several valid points as to why it is suitable for most...The sexual orientation study was one SMALL piece to back up what I was saying.

Edited by: MMEEAAGG at: 9/21/2010 (18:39)
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9/20/10 11:54 P

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I don't want to seem antagonistic, but shouldn't we talk about dealing with PCOS (and in this case, using birth control to treat it), not necessarily what it could possibly or not possibly implicate in regards to sexual orientation? I'm sure a lesbian with PCOS would like to know other people's experiences with PCOS and the pill (including yours as well).

I'm a little curious about the percentage of straight woman that have PCOS.
I know 5%-10% of woman have PCOS, but what's the percentage of straight woman that have PCOS?

Also, why does that matter? I know my sexual orientation, I need to (as you said) manage my symptoms and find the root cause (if I ever can).

As I said, birth control (for me) seems like too much, but for a lot of people (I have a friend who has PCOS and has no choice but to take the pill and several supplements) it works out.



Finish each day and be done with it. You have done what you could; some blunders and absurdities have crept in; forget them as soon as you can. Tomorrow is a new day; you shall begin it serenely and with too high a spirit to be encumbered with your old nonsense.

- Ralph Waldo Emerson

Leader of the 'Fans of Jon Stewart & Stephen Colbert!' Team
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roups_individual.asp?gid=58781




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BELROSA's Photo BELROSA Posts: 697
9/20/10 10:34 P

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Oestrogen dominance is actually a common component of PCOS. Progesterone levels are typically low, resulting in absence of menstruation.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
MMEEAAGG's Photo MMEEAAGG Posts: 723
9/20/10 2:57 P

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Well, everyone is different and I'm glad you made the right decision that you feel is healthy for you. I just wanted to put my two cents in, because the pill doesn't make eeeeveryone gain weight, and it has significantly helped my PCOS symptoms. I had horrible acne before...My face was covered it was so painful. I also had some hair growth, and bloating. Since BC and Metformin, those things have gone down a HUGE deal, if not went away all together. The pill is no more of a cure for PCOS as Adderal is for ADHD...It can help symptoms, but nobody is saying that it's the savior to everyone's problems. The whole point in taking medicine is to manage symptoms, not really cure it.

BC helps me manage my symptoms more than anything else could. So does Metformin. I know everyone has different levels of hormones, but I just wanted to put in my point of view so people don't see this thread and become scared to try BC to treat their symptoms. Not everyone gains weight...In fact, if I stopped taking BC right now, my chances of having children in the future will GREATLY decrease, so I choose BC side effects over infertility any day.

The reason I brought up the Homosexuality thing is because tons of research is being done showing that it has to do with hormones. They did a study where they found a whopping EIGHTY percent of lesbian females have PCOS and only 20 percent do not. That's a hugeeeee difference. This was just one study, so of course it shouldn't outweigh every other study out there, but I was just bringing it up because of the Testosterone factor. I was diagnosed because my testosterone levels are too high..The OP was saying her Estrogen levels were too high, which is why I was confused.

Edited by: MMEEAAGG at: 9/20/2010 (15:00)
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FIRESTARINFINI's Photo FIRESTARINFINI SparkPoints: (27,563)
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9/19/10 8:16 A

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The truth is, scientists don't really know a lot about homosexuality, or the affects of the birth control pill.
There was a study done showing that the birth control pill effected what type of synapses form in the brain of rats, and another study done showing that the birth control pill changed the preferences in what type of man a woman was attracted to.

www.scientificamerican.com/ar
ticle.cfm
?id=birth-control-pills-affec
t-wom
ens-taste


Hormones (and chemicals in general) do dictate how heterosexuals, bisexuals, homosexuals, men, and woman behave, but much more research has to be done before we really know how.

When I was offered the birth control pill, my gynecologist told me "It will clear up your acne, it will get rid of your facial hair, it will bring back your period."

But she never said it would cure my PCOS. Just the symptoms.
I wanted to know why my periods were missing, what's the root cause?

My estrogen levels are fine, why would I need more?


It seems like the pill is being advertised as a miracle cure when in actuality it's just covering up the symptoms of a problem.

The reason testosterone levels go up when you have PCOS is because the cysts in your ovaries are producing them, if they'd "pop" like normal, your hormonal cycle would go on like normal.

What causes the cysts to stop popping?

My gynecologist couldn't give you an answer.


I'm aware that everyone is different, and for some people birth control works fine.

But for me, I'd rather not take the risk of messing with my hormone levels, realize it was a mistake, and have a painful road back to "normal".

I already have a long road to getting to my goal weight, I have good estrogen levels, and I'm not dating, so I'll find another route.

Edited by: FIRESTARINFINI at: 9/19/2010 (08:39)
Finish each day and be done with it. You have done what you could; some blunders and absurdities have crept in; forget them as soon as you can. Tomorrow is a new day; you shall begin it serenely and with too high a spirit to be encumbered with your old nonsense.

- Ralph Waldo Emerson

Leader of the 'Fans of Jon Stewart & Stephen Colbert!' Team
www.sparkpeople.com/myspark/g
roups_individual.asp?gid=58781




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MMEEAAGG's Photo MMEEAAGG Posts: 723
9/19/10 12:14 A

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I know this thread is old...But I'm a bit confused. I was diagnosed with PCOS because my Testosterone levels were too high, NOT my estrogen levels...In fact, that's usually the case with women and PCOS. Not to go off topic, but studies that show that homosexuality is related to hormones, also show that 80% of lesbian women with high testosterone levels also have PCOS. I can provide the article if anyone wants to read it, just message me. SO as far as I'm aware, and from doing years of research, BC is what PROVIDES us with the estrogen we need. I'm aware everyone is different...But the reason why PCOS symptoms include hair growth and acne is because of too much testosterone...Not estrogen. BC does NOT make everyone gain weight so I hope not everyone reading this jumps to conclusions. I have lost 30 pounds now on it along with PCOS meds.

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FIRESTARINFINI's Photo FIRESTARINFINI SparkPoints: (27,563)
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8/18/10 1:07 P

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Bitter melon is really an acquired taste. My mom's palette is accustomed to it, but she only eats it when she's sick.

Think of the stereotype of foods that are healthy for you taste bad (and by bad I mean bitter).

Bitter Melon is really really really good for you.
They aren't joking when they call it Bitter melon.

Finish each day and be done with it. You have done what you could; some blunders and absurdities have crept in; forget them as soon as you can. Tomorrow is a new day; you shall begin it serenely and with too high a spirit to be encumbered with your old nonsense.

- Ralph Waldo Emerson

Leader of the 'Fans of Jon Stewart & Stephen Colbert!' Team
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BELROSA's Photo BELROSA Posts: 697
7/14/10 4:40 A

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Bitter melon is very difficult to get hold of. It's in a few anti-glycaemic preparations, and I once bought a tub of the powder (DISGUSTING - Absolutely terrible).

You can also buy it from Asian grocers. A friend of mine juices it and uses it in stir frys. I haven't been game to try after taking the powder, that was so vile.

They don't call it bitter melon for nothing!

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
FLOWERSA1 Posts: 1
7/13/10 12:29 P

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I've heard about bitter mellon. Where can I find it? Is it in pill form?

SARAHTESSA's Photo SARAHTESSA Posts: 62
7/12/10 8:34 P

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Hmmm... I was on BCP (Ortho Tri and then Seasonique) for 10 years. Like most of the stories, my PCP put me on it when I was 18 and had had irregular periods for 7 years. I don't remember having any weight gain when I first started the pill, and it was great to get a regular period. I went off the pill last October, because I wanted to see if I could lose weight faster off the pill. Well, over six months later, I don't see a marked difference in my weight or my weight loss. It wasn't until my ob-gyn diagnosed me with PCOS this past January and put me on Metformin that I started to see regular periods and some minimal weight loss. They just upped my dosage last week, so I'm keeping my fingers crossed. I honestly don't think BCPs have anything to do with my weight.

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BELROSA's Photo BELROSA Posts: 697
7/12/10 5:34 A

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Saw Palmetto can be useful for reducing facial hair, but anything you take you will need to be religious about it for 3-6 months at least before noticing a difference due to the hair growth cycle.

Saw Palmetto inhibits the conversion of regular testosterone into a supercharged form (dihydrotestosterone) by inhibiting an enzyme called 5-alpha-reductase.

The best thing to do is get to the root of the problem, which is increased insulin levels, caused by insulin resistance combined with eating too many carbohydrates (more than you particular system can handle anyway). There are nutrients which can help such as chromium, b vitamins (particularly d chiro inositol), magnesium, manganese, iodine, and herbs such as gymnema sylvestre, liquorice, bitter melon or cinnamon.

Ultimately though, being very strict about the amount of kinds of carbohydrates you eat and making sure you get a sensible amount of exercise daily is essential.

Edited by: BELROSA at: 7/12/2010 (05:38)
I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
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SCENIC_ROUTE's Photo SCENIC_ROUTE Posts: 589
7/11/10 12:42 P

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Hi all,
I am 42 years old, was officially diagnosed w PCOS at 33 but I swear it hit me when I was in 3rd grade when i suddenly ballooned. I am glad that at least doctors now are bit more informed about PCOS and what it does to you. For years i was badgered for being Fat and causing my unstable periods. I was put on some synthetic hormones when i was 22 by my first gyno that turned me psycho (to the point that i started hearing voices - hormones were that out of balance). The next Gyn gave me natural progesterone to only take if i skipped 2 months in a row.
Metformin was also prescribed but I gave up on it 2 years ago as the side effects worsened (Stomach and bowel). And I won't even start with the weight issue that everytime i lose, i gain it back and some more.
My latest Gyn is also an endocrinologist and she is more informed and all the rest I had. I refused to go on the pill due to my age and the fact it is going to be tough to get pregnant when I want to.. so why add one more issue.
But now the facial hair growth has gone out of control. *sigh I tried that cream they advertise... and didn't really do anything to eliminate the hair, but when i stopped it - I GOT MORE!! ?? Oh yes Vanica is the name.

Thank you to all the new info you have shared. I will be asking my Gyn about different options.
And if anyone has any other tips about the darn facial hair... PLEASE.... HELP!!
:)
Ven

I am doing it!


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QUELEENDAH's Photo QUELEENDAH Posts: 132
7/11/10 11:56 A

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My SIL has had amazing success with Yaz as well. She lost a ton of weight and was able to keep it off.

Wouldn't it be awesome if all of our bodies just had a simple one-fit-all answer? It would save so much time, energy and heartache.

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QUELEENDAH's Photo QUELEENDAH Posts: 132
7/11/10 11:54 A

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Yaz was horrible for me as well.

They thought I might have PMDD at one point. After 3 bladder infections, 3 kidney infections, kidney stones and then Acute cholecystitis (acute inflammation or infection of the gall bladder) and an emergency removal of my gall bladder...we decided to get off of Yaz.

I have been on Orth tricylen off and on for several years. After my first 2 pregnancies it seemed to really help me feel better and I lost all of the weight I had gained (60lbs after my oldest and then 80lbs after my second)
This time around it hasn't helped at all. In fact I seem worse. My PCOS has seemed to found a playground in my current weight and is having a good ole time. I'm going to my obgyn to see about getting on a low estrogen bc.

I never realized how much hormones can help or hinder a person until these last couple of years. My gosh it is a confusing mess sometimes!

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MARIEVERMONT Posts: 51
6/22/10 8:22 A

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Wow, I'm really surprised to read about these negative experiences with bc..specifically Yaz... IT was my miracle..I IMMEDIATELY dropped 35 pounds, stopped growing facial hair, go ta period again after a year and a half.......however....I'm S T U C K!!!!! and have been for ages at 232-235
Anyway.,...I"m scared to STOP taking Yaz...but I know I don't want to take it forever.

Years ago they put me on ALesse (before PCOS) b ecause my mother was dx with breast cancer and my sister and i both freaked. Alesse made me a crazy woman. One day I was suicidal, the next homicidal. NEVER again! *L*

GOod luck ladies.
Marie


GODDESSLIL80's Photo GODDESSLIL80 Posts: 439
6/13/10 7:04 P

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I was on depo when it first came out and it made me crazy and fat with bad skin.
It's a really effective BC when it makes you so psycho and ugly no one wants to sleep with you anyway!
Side effects are a body chemistry thing. My bff actually loses weight on the pill. So unfair.

Well Behaved women rarely make history
~Gertrude Bell

Doing the best at this moment puts you in the best place for the next moment.
~Oprah Winfrey

You did what you knew how to do, and when you knew better, you did better.
~Maya Angelou


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NSRLY88's Photo NSRLY88 Posts: 139
6/13/10 6:47 P

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I didn't gain any weight at all on Yaz, I was just out of my mind bonkers... extremely moody for the first couple months. Around the third it came down a lot but I was just generally unhappy. No physical changes though except some er..personal stuff

June 2010- Joined spark, SW 201lbs. (size 14-16, 33.4 BMI)
January 2011- 193lbs (about a size 14, 32.1)
April 2011- Plateaued at 187lbs (size 12, 31.1)
June 2011- Joined Weight Watchers- 181lbs (size 12, 30.1)
July 2011- 171.2lbs (size 10, 28.5- "overweight!")
August 2011- 164.4lbs (size 10, 27.4)
September 2011- 161 lbs (a bit tight in a size 8, 26.8)
(October 12 is my 16th week at WW: mini-goal= 159lbs.)
October 2011- 156.2lbs (size 8-10 26.0)
November 2011-


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SKIITTLES's Photo SKIITTLES Posts: 53
6/13/10 6:17 P

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My gyno put me on the Nuva Ring when I was first diagnosed with PCOS, and I instantly gained A LOT of weight. 10 pounds within the first week, and then 20 more in the following months. He said it was just my body adjusting and that I should wait it out, but I sitll asked to switch to Yaz (which he told me was better because of the lower estrogen amounts), after which I still gained weight. Eight months and 40 extra pounds later, I decided to go off. If you decide to go on the pill and start seeing bad side effects right away, I would advise getting off it, no matter what your doctor tells you. They won't have to live with all the extra weight, you will!

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NSRLY88's Photo NSRLY88 Posts: 139
6/12/10 7:00 P

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does this kind of explain why Yaz made me totally bananas when I was on it? My gyn is talking about putting me on another BC but... I'm just nervous about it because of how I was with Yaz :(
Is it really bad to be taking BC with PCOS? She's telling me it will help control the cysts and regulate my cycle, as well as control acne and mood swings? That's why I went on the pill in the first place but now I'm just not sure!! emoticon

June 2010- Joined spark, SW 201lbs. (size 14-16, 33.4 BMI)
January 2011- 193lbs (about a size 14, 32.1)
April 2011- Plateaued at 187lbs (size 12, 31.1)
June 2011- Joined Weight Watchers- 181lbs (size 12, 30.1)
July 2011- 171.2lbs (size 10, 28.5- "overweight!")
August 2011- 164.4lbs (size 10, 27.4)
September 2011- 161 lbs (a bit tight in a size 8, 26.8)
(October 12 is my 16th week at WW: mini-goal= 159lbs.)
October 2011- 156.2lbs (size 8-10 26.0)
November 2011-


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GODDESSLIL80's Photo GODDESSLIL80 Posts: 439
6/12/10 5:25 P

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I'm headed to an endocronologist here shortly. I'm trying to find a support team and a form a plan.
I was at the on base gyn this week and asked about the birth control pills. She said they weren't a good idea at my weight. I'm considering making her my new gyn.
PCOS is pretty complicated. I think we're all just trying to figure it out and how it effects us as individuals. I've found (and am disturbed by the fact) that some doctors still have issues even identifying, let alone properly treating, it.

Well Behaved women rarely make history
~Gertrude Bell

Doing the best at this moment puts you in the best place for the next moment.
~Oprah Winfrey

You did what you knew how to do, and when you knew better, you did better.
~Maya Angelou


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JAQUILLIN's Photo JAQUILLIN SparkPoints: (0)
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6/12/10 9:36 A

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I was just diagnosed Wednesday and my doctor put me on metformin and spironolactone. She suggested I not take the pill because it is not supported by the latest research. Plus...the pill makes me nauseus. Hope that helps!

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BELROSA's Photo BELROSA Posts: 697
6/10/10 3:19 A

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Rita, I would definitely suggest that you do your own research and make your own decisions about whether the risks of taking the pill are justified for your own personal circumstances.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
RITA_PETAL's Photo RITA_PETAL Posts: 14
6/8/10 1:33 P

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I am quite confused. I was recently put on a combination BC pill to regulate my irregular/absent periods, and thought it would be good to have more balanced hormones? I wasn't aware of any 'extra' risks to having PCOS, and also I have still been losing weight -both before and since taking it. Should I consider going off the pill?

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BELROSA's Photo BELROSA Posts: 697
6/7/10 5:26 A

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Goddess, the offical answer is "no" severe cramping is not currently deemed to be a symptom of PCOS, however, in my experience, a lot of women with PCOS also have endometriosis which causes bad cramping and pain. It is also possible that the hormone dysfunction in PCOS could contribute to more painful periods. I personally have found that since my menstrual cycle returned when I started taking D Chiro Inositol, the periods are much lighter than they used to be and much less painful. In fact they aren't really painful at all.

If you are able to regulate your hormones, then perhaps the cramping may go away (presuming you don't have an underlying condition like endometriosis though).

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
ATHENA0302's Photo ATHENA0302 Posts: 59
6/4/10 12:44 P

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I am pretty sure severe cramping is part of PCOS. A couple of drs have asked me if I get severe pain in my ovaries bc of PCOS, and they were really surprised when I said no. So my guess would be that it is pretty common.

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GODDESSLIL80's Photo GODDESSLIL80 Posts: 439
6/2/10 2:25 P

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I am so tired of these damn doctors! I was 16 years old trying to tell them "Hey i think i have PCOS." I was 26 before anyone believed me enough to even give me a pelvic ultra sound. I went to 5 different doctors after that, all of whom thought I had something different. They had me believing I had cancer, all kinds of craziness. I had surgery in January, that now I'm not even sure was warranted. I found out afterward my ovaries were as big as softballs. After all that they put me on Yaz and metformin (which makes me sick) ... your telling me that's not even right?
I pitched a fit a week ago and am waiting to get my referral for an endocrinologist b/c I am beginning to hate my GP and GYN.
What are we supposed to be doing instead? I read the book from the PCOS foundation but it still has the old info.
And can one of you tell me if severe cramping is part of PCOS b/c none of the doctors seem to know and won't give me any way to control it.
I'm sorry to rant, I'm just so tired of the BS!

Well Behaved women rarely make history
~Gertrude Bell

Doing the best at this moment puts you in the best place for the next moment.
~Oprah Winfrey

You did what you knew how to do, and when you knew better, you did better.
~Maya Angelou


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ATHENA0302's Photo ATHENA0302 Posts: 59
5/27/10 12:51 P

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Thank you for these posts. I had lost 180lbs a few years ago, while I wasn't on the pill. I decided to begin taking it again because while I was off of it I had a lot of problems with hair growth and acne. I had no idea the the pill causes us to gain weight! My docs had always suggested that it would help me lose weight. Anyway, I took a break from the pill because I heard it was bad to be on it for too many years in a row. During this time I lost 180 lbs in about a year, but I had a lot of hair growth and constant acne. I went back on the pill to combat these 2 symptoms and I gained back 130 lbs in a 2 years. I have been using spark for 2 months and haven't lost a pound and cant figure out why, but I think after reading this it may be the pill.

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BELROSA's Photo BELROSA Posts: 697
5/3/10 1:20 P

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From what I have gleaned from the published scientific literature, the link between PCOS and Endometrial Cancer has not been established. Irregular periods can cause endometrial hyperplasia or thickening, which could *theoretically* increase the risk of endometrial cancer if the hyperplasia was for a very prolonged period of time (years), however, in reality, this hypothesis has not proven to be correct.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
MELANIEK42's Photo MELANIEK42 SparkPoints: (24,620)
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5/3/10 11:40 A

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I came off the pill a few years ago (after being on it for about 6 years) and a year and a half later had been diagnosed with polycystic ovaries and still hadn't had a period. The doctor recommended I go back onto the pill so that I would have regular periods, reducing the risk of endometrial cancer.

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BELROSA's Photo BELROSA Posts: 697
4/18/10 11:41 P

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I know what you mean Thedime, it upsets me greatly how out of date most doctors are with the current research - and by current I'm talking nearly 2 decades ago! That's at least how long we've known about the effect of oestrogen on insulin resistance.

The symptoms of PCOS are hard enough to deal with without making it worse by taking something like oestrogen-containing OCPs, in a misguided attempt for a quick fix.

All the best, Belrosa

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
BEACHESANDCREAM's Photo BEACHESANDCREAM Posts: 423
4/18/10 8:50 P

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Also, thanks to Pokey-Turtle because I couldn't remember the name of the pills without estrogen (progesterone only pills). I remember my Dr. thought about trying those with me while I was breastfeeding. I'm allergic to condoms and I got Cystic Acne from SATAN himself with the Depo shot emoticon , which really seemed to limit my options. A few of my friends have tried the IUD, but those can cause a lot of problems if your husband is well endowed (for both you AND him). We didn't think we would ever get pregnant again after the first so I didn't worry about it too much, but 4 yrs later when I got pregnant with our daughter I decided to have my tubes tied during my c-section. I had to fight to be able to have the procedure done because our local hospital is catholic and they don't believe in birth control (or tubiligations). I had to write a long letter to the catholic board and the only reason I got approved was because of my PCOS and the complications associated with other forms of birth control.

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BEACHESANDCREAM's Photo BEACHESANDCREAM Posts: 423
4/18/10 8:37 P

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Thanks Belrosa, that's what I was saying exactly. Unfortunately, everybody's doctors don't all have the same or new information! emoticon If I can save anybody from going through the hell I went through for over 15 years because of the wrong diagnosis and uneducated medical advice then I am more than willing to help! emoticon

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TMCHEER's Photo TMCHEER Posts: 62
4/18/10 4:27 P

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Thank you to everyone who has posted on this thread. I am new to all this information, and being about to read how other people feel about different treatments gives me information that I can speak to my doctor with! Thanks!

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A_POKEY_TURTLE's Photo A_POKEY_TURTLE Posts: 117
4/18/10 2:10 P

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There is progesterone-only BC that has no estrogen in it. I am on that because I had breast cancer at 33(2 years ago) and I can't be on estrogen due to that. Everyone is different and with ANY medication there are risks and you have to weigh the risks for your body factors and the benefits. Plus, sometimes women are on BC for the Birth Control factor. I am. I am on another medication that would be very damaging to a fetus if I became pregnant and I don't want that to happen, if I want to get pregnant it will take a LOT of planning and we will see then if I even get pregnant. Anyway, one size doesn't fit all with medications. Just my two cents.

-Enjoy the little things for one day you may look back and realize they were the big things.


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BELROSA's Photo BELROSA Posts: 697
4/18/10 6:41 A

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Just because the birth control pill hides some of the signs of PCOS, doesn't mean it is controlling the cause - they actually make the underlying condition worse (the insulin resistance) and this has been known for a few years now.

Unfortunately this does apply to everyone, whether their symptoms have been ameliorated for a little while or not whilst on BC.

This has been confirmed by many studies.

www.ncbi.nlm.nih.gov/pubmed/10774107
?d
opt=Abstract


www.ncbi.nlm.nih.gov/pubmed/10715368
?d
opt=Abstract


www.ncbi.nlm.nih.gov/pubmed/8137525?
do
pt=Abstract


www.ncbi.nlm.nih.gov/pubmed/1530790

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
BEACHESANDCREAM's Photo BEACHESANDCREAM Posts: 423
4/17/10 6:06 P

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Sorry, I was just sharing what several Dr.s have told me was new information on PCOS..not what was only relevant to me personally. If you have PCOS, additional doses of estrogen, ESPECIALLY the higher doses in BC pills, are detrimental-even if they do seem to treat (AKA mask) some of the symptoms. It's the same situation with SOY...if you have PCOS you need to avoid it, if possible, because it will make our hormonal imbalance worse. Just sharing a little medical evidence with those that may want it...you can probably google some of what I share, or talk to your PCOS specialist about the rest. A lot of regular PCM's are unfamiliar with our disease or have out of date information. Feel free to ask any questions. Thanks! emoticon emoticon

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NYXWOLFWALKER's Photo NYXWOLFWALKER SparkPoints: (169,368)
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4/17/10 12:01 P

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Everyone with PCOS id different I spent about 5 years on Depo Provera and lost weight while on it (over 130 pounds) yes its not a common side effect of the drug I know, and I know about the other side effects that can be long lasting for being on it, but I wasn't on it for BC but to treat another condition which meant I was getting the shot every 6 weeks to ever 4 depending on various factors.

The course of treatment with the Depo didn't work, so I had the hysterectomy that it was trying to put off, which wasn't an issue to me since hubby and I are ChildFree to start with.

Some people BC actually helps with their PCOS signs, granted for most its not a great solution to it, but just because it wasn't right for you doesn't mean that for anther with PCOS that it might not be the right solution to their issue, perm or temp.



Nyxks Musings - nyxstium.info
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Living with...
+Type 1 Diabetes
+Acute Intermittent Porphyria (AIP)
+Spinal Ostioarthritis
+Fibromyalgia
+Polycystic Ovarian Syndrome (PCOS)

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BEACHESANDCREAM's Photo BEACHESANDCREAM Posts: 423
4/16/10 11:46 P

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I was on the pill for many years to regulate my period and come to find out that this is one of the worst things we can do!!! We already have too much estrogen and significant hormonal imbalances so the BC pill only makes it WORSE! It will also usually make us gain more weight. I was on the patch for a while, but my Dr. said it wasn't worth the health risks. Some people with PCOS can tolerate the lower dose BC pill, but you should talk to a PCOS specialist before starting any form of BC that includes hormones. My Dr. was about to try me on Yaz when I found out I was pregnant, but even then he said there would be risks that normal women wouldn't have. I finally got my tubes tied when I had my daughter because there just isn't a great form of BC out there for us yet.

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