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KATHRYN1985 SparkPoints: (0)
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2/28/12 3:51 P

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Thank you! That's true--I figure that by us watching what we eat and literally taking into account every singe gram of carbohydrate we put into our mouths, we've gotta be doing better than a lot of people out there, right?! I suppose everyone's got some sort of medical or health problem these days and we are just more aware of it. I get nervous though, that all of a sudden a bunch of complications are going to hit me and I'm going to become a huge burden to my family. SP is a great site :)

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GRANDMADAR2 Posts: 52
2/28/12 12:02 P

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Welcome, Kathryn! I was so sorry to hear about you and your sister. I have retinopathy, too, in my eyes. I don't know about big and little injections. I just know I don't like ANY of them. Ha! Please, do not stress about complications. Stress is not good for us! Just think...by watching our diet and exercise, we may be healthier than people our own age. Good luck to you both! I have met WONDERFUL people on this website!!!

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KATHRYN1985 SparkPoints: (0)
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2/28/12 10:19 A

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Hi all,

My sister and I have had diabetes for 20+ years each (we are in our early and mid 20's and were diagnosed at 2 and 3 years of age). At this point I do not have any complications and have been on a pump for the past 5 years or so. I get really nervous reading posts about complications and it seems like my blood sugars have been on a rollercoaster lately so it makes me even more stressed out. My sister recently had a bunch of injections for retinopathy. I know she had several minor injections and then one big injection (sorry, I don't know all of the details and my sister referred to them as the big injections and small injections) in each eye recently. She said her eyesight has been so much better since that. She also has some minor kidney damage and was prescribed medicine for that.

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GRANDMADAR2 Posts: 52
2/10/12 9:39 P

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It was so good to hear from you, Denise. Your news is absolutely WONDERFUL!!! I still have blurry vision and floaters in my right eye. Straining while I'm driving or reading makes me a little cranky. Ha! I get my next injections on the 24th. I will keep you posted. I will also keep you in my prayers!!! Darlene

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NESEKS Posts: 281
2/10/12 8:26 P

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Darlene, I just wanted to update you since I saw the retina specialist last week. He said everything looked great right now so no treatments needed and I get to wait for 9 months to see him again!!! Any new news on your eyes? I hope you will remember that even if it seems horrible for now...it's amazing what they can do for you, and you'll make it through to some good results eventually. Keeping you in my prayers. Denise

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GRANDMADAR2 Posts: 52
1/24/12 9:30 P

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Thank you, Denise, for your calming words. I appreciate them more than you know. Darlene

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NESEKS Posts: 281
1/24/12 7:09 P

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Thanks GrandmaDar2. I was a really big chicken too about it all. I had a bad experience with my first injection (scratched cornea which was extremely painful) so I really don't like the shots. Laser wasn't so bad. Not painful...just a dull ache when done. Vitrectomies aren't painful and it depends on whether they put oil, gas bubble or air bubble in your eye as to how easy the recovery is. My right eye has alot of distortions from some scar tissue so I really only have good vision in my left eye. Compared to how I was for awhile though I'm very happy with the results. It's amazing how you can adjust to things. I know it's really scary when you don't know what they will do, but if you need surgery (laser or vitrectomy) you'll do ok. I hope you have good results and I will keep you in my prayers too. Denise emoticon

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GRANDMADAR2 Posts: 52
1/24/12 1:17 P

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I am so proud of you, Valerie!! That is WONDERFUL that you have no complications. I hope it stays that way for you. I think I will order Dr. Bernstein's book right away. I need reinforcement for what I already know, but don't always practice it. I also joined Overeaters Anonymous, which has been a Godsend for me. Thank you for all of your suggestions!! I truly value them.

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GRANDMADAR2 Posts: 52
1/24/12 1:09 P

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Thank you so much for replying, Neseks. I really appreciate it. They are talking laser for one eye, as of now. How is that? The Dr. has mentioned a vitrectomy, but I never asked what that was. I am such a chicken..I would rather deal with one thing at a time. Good luck next week. I will keep you in my prayers!!

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NESEKS Posts: 281
1/24/12 1:39 A

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I also have diabetic retinopathy. I've had injections (hate them) laser surgeries, vitrectomies in each eye, and cataract surgeries in each eye. 7 surgeries between both eyes in the past few years. Not fun at all, but so thankful for modern medicine. I go back next week for a check up and hope all is looking ok. It's amazing how much better I can see now after all that has been done. Good luck with your treatments...I hope it all goes well for you. emoticon

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VALERIE1619's Photo VALERIE1619 Posts: 1,090
1/23/12 10:24 P

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My goal is to avoid all complications from diabetes and so far, so good. I've had type 1 for about 20 years now and all of my doctors (eye and dentist, too) tell me they have to check my chart to see that I actually have diabetes!

One thing I've done for many years is follow a low carb diet. Back when I ate carbs, my numbers looked like a roller coaster. In 1999 I read Richard K. Bernstein MD's "Diabetes Solution" and everything clicked.

Insulin is a fat-storing hormone, so it only made sense that the less insulin I use, the less fat I'll store. I adopted his plan and lost 38 pounds in three and a half-months but the best part was that my blood sugar was perfect from day one.

Now, I'm reading "Why We Get Fat" by Gary Taubes. He reaffirms everything I learned back in '99. It's somewhat drastic to consider reducing carbs to such a low amount of your diet, but for us, we've got a carbohydrate intolerance disease so it only makes sense.

Take care!


Valerie

Sh*t is hard. Do it anyway.



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GRANDMADAR2 Posts: 52
1/23/12 9:28 P

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Thank you so much for asking these questions. Of course, I don't know a lot about the conditions. The doctor told me they do use the laser, if the eye injections don't work. The gastroparesis is a slow emptying of food through your esophagus, stomach..on down the line. I take domperidone (sounds like champagne, doesn't it?), and several other stomach drugs. I am so sorry to hear about your kidneys. This disease is so awful. You never know what organs it will attack. Thank you again for writing!

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GRANDMADAR2 Posts: 52
1/23/12 9:22 P

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Thank you so much for writing, Valerie. I had two injections today. The right eye is progressing well. but the left eye is being stubborn. We may have to do the laser surgery, but then, the doctor said the injections would continue for awhile. I am quite uncomfortable tonight, but I'm sure I will feel just fine tomorrow. Isn't modern medicine incredible? With you being an artist, I pray that this is something you never get. The doctor said it is most important to keep your blood pressure and sugar stable. Sometimes, I think "stress" is my middle name. Ha! I guess I should think of asking the doctor for a little something. He DID say to keep my blood pressure stable!


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RLEEGIRL's Photo RLEEGIRL Posts: 530
1/23/12 10:27 A

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What do the injections do and what is gastroparisis? Ive got stage 3 kidneys and had laser for the retinopathy but havent heard about injections so Im curious....

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VALERIE1619's Photo VALERIE1619 Posts: 1,090
1/22/12 7:35 P

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Yikes; I've heard of them and I applaud you for doing what you need to, even though it isn't pleasant. Are you able to take some Ativan or something to help relax you before doing it? That's what I'd have to do, I'm sure.

I'm lucky enough that I don't have any complications and pray that I keep it that way. However, I've always thought the worst one would be losing my sight, as I'm an artist.

Hang in there!


Valerie

Sh*t is hard. Do it anyway.



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GRANDMADAR2 Posts: 52
1/22/12 5:22 P

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I have been a type 1 diabetic for a long time. I have been so lucky, having only gastroparesis. Last September, I was diagnosed with diabetic retinopathy and have to have eye injections. Even though they don't hurt that much, I just HATE getting them. I know the consequences if I don't get them. I just need a little encouragement. Thank you for listening.

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