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SHARI0721's Photo SHARI0721 Posts: 23
6/15/10 11:36 P

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I am still using it. I have a love-hate relationship with it. I have had some hypo-unawareness so it's a wonderful tool but I hate having another thing attached to me.

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TOOTIEFRUITIE1's Photo TOOTIEFRUITIE1 Posts: 87
6/13/10 10:39 A

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Are you interested in selling your CGM? If so, how much?

 current weight: 157.0 
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TOOTIEFRUITIE1's Photo TOOTIEFRUITIE1 Posts: 87
6/13/10 10:36 A

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My son is 10. Hasn't hit puberty yet. That is why I want a CGM now. I know we will need it when he is about three years older!

 current weight: 157.0 
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VALERIE1619's Photo VALERIE1619 Posts: 1,084
6/13/10 10:31 A

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Good luck with insurance. I bought a Dexcom out of pocket a couple years ago and was only able to wear it for about three weeks. They only give a 30-day return policy and I wasn't happy with the bulk of the unit and didn't get enough time to see if it made a difference for me. But with an A1C that hovers around 5.4-5.8, my doc says I don't need one.

Not knowing how old your son is, I'm guessing puberty is throwing him for a curve. I've heard from other parents that those are some tough years. For now, hopefully he's testing, testing, testing.

Valerie

Sh*t is hard. Do it anyway.



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TOOTIEFRUITIE1's Photo TOOTIEFRUITIE1 Posts: 87
6/11/10 8:39 P

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I have contacted the Dr's office and they are writing a prescription for a CGM and will try to fight with the insurance company with me. So here goes the fight. I have experience fighting with insurance companies. So I am ready. My son needs help, and I am his advocate.

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SUPERDUPER26's Photo SUPERDUPER26 Posts: 1,553
6/11/10 8:14 P

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Hi Tootie,
I spent about 10 months arguing that my insurance should cover the CGM and supplies, and it definitely took a lot of paperwork and a lot of phone calls and a lot of follow up, but it was worth it I think.
I don't use it always, but I know the first few weeks with it were eyeopening, I hadn't realized things like just how HIGH I really did go after lunch, and what sort of things grazing buffet lines did over the next few hours. I had found that many of my regular tests weren't so out of line, but the CGM helped me pinpoint some of my bigger problem areas. Its worth the fight.....
Some doctor's offices have a loanable CGM, its not exactly the same because it doesn't give you an instant read-out, but I think the standard is you use it for a week, return to your DR and they print out and go over things that might help making a difference.
Even with mine though, my A1C is still 7ish. I've yet to hit a 6.something, but I have less surprises with my CGM so I feel better.
Good luck!


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TOOTIEFRUITIE1's Photo TOOTIEFRUITIE1 Posts: 87
6/8/10 10:51 P

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No we have not tried the CGM. It will cost more than we can afford. And insurance won't pay. We will have to appeal to the insurance company. Going to keep trying. We need to do something.

 current weight: 157.0 
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SHARI0721's Photo SHARI0721 Posts: 23
6/8/10 9:58 P

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I am ashamed to say that I hit 7.3 and that was with wearing a CGM! Granted a cracked pump didn't help along with adding synthyroid and estrogen too. I work in a pediatric clinic. Has he ever tried wearing a CGM before? They are great tools but I know my teens start to feel like a cyborg from wearing so many devices. I am so sorry you guys are riding the beetes rollercoaster. I have had this for 30yrs and this disease still throws me surprises.

 current weight: 144.4 
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TOOTIEFRUITIE1's Photo TOOTIEFRUITIE1 Posts: 87
6/8/10 9:05 P

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My son's A1C was 7.7. Not happy. Last time it was 7.0. We just can't get it under control. There are no patterns to work with. Just random elevated numbers. And insurance won't cover the cost of a CGM. I am going to try to appeal that ruling. And I am going to get my son's endocrinologist to write a letter petitioning the need of one for him.

I feel your frustration. I too am frustrated. Don't know how to improve his BG.

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SHARI0721's Photo SHARI0721 Posts: 23
6/8/10 8:33 P

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Ok, I hate to admit this but I am a CDE and I work in a diabetes center. I knew I had been struggling with my BG's for a couple of weeks....crazy numbers that I wasn't used to seeing. Well, 2 weeks ago, I pulled the skin off my pump to see not 1, but 3 splinter cracks right where the motor was. Today, I thought I'll check my A1c just to see how it was going since I replaced the broken pump with a new one. Grrrr! It was a full percent higher than my last; and it was the highest I have had in 5yrs. Take heart 'Betes Sparkies, even those of us in the clinic are struggling. I am so disappointed.

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