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CAREY.LISK's Photo CAREY.LISK SparkPoints: (0)
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11/3/09 6:02 P

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My doctor from NC is doing my long distance care now since the army doc decided to switch my humalog to novolog which in turn caused hypo and hyperglycemia and so Dr. ellis my doc said hell no and called in 12 refills of my supplies so I don't have to worry about problems and he also said he would follow my care and if changes need to be made then he will give me the numbers to switch my pump basal or correction factors if needed. he also is taking care of the seizure meds as long as i don't have a seizure since the army doc tried to switch those too. then the kidney infections and stones he will deal with as long as they don't have to be surgically removed or stents need to be put in which I am having done next week. the urologist is going to allow me to wear my pump during the surgery and anastesia said the same i just had to show them how to work it and the cgm so if I go high or low they can fix it. and this way they don't have to check the sugars since my CGM does unless I go low or high then they will double check it. they were excited to learn about the pump and cgm so they can better help others with pumps too. i am the first pumper they have had in surgery wearing the pump through surgery.

"you CAN do ALL things through Christ which STRENGTHENS you"
phil 4:13


I don't believe in failure.

( this includes getting healthy!!)


 current weight: 178.0 
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CALOTYPE's Photo CALOTYPE Posts: 7
11/2/09 11:50 A

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Ouch, that is rough. Even in non-military life it can be difficult to find a doctor that is not only up to date on the latest studies but is familiar with type one diabetes. I've had a lot of trouble finding a practice that is just as familiar with type one as they are with type two.

As far as your situation goes though...maybe if you do end up having to go to the not so diabetic friendly location you could make an arrangement with your current doctor to do 'long distance' care? Like with my doctor I can email his nurse practitioner my numbers and since they're familiar with my case they can give me basal/bolus corrections and suggestions via email. And they could have you run your normal tests where ever you are and just have the results sent back to them. Of course, that is worse case scenario. Hopefully your husband will be relocated somewhere that better fits your needs soon!


As far as what you tell a kid...well...when I was diagnosed at 12 my doctor told me flat out that in order to stay alive I would need to take (at the time) two shots a day and test my blood sugar regularly. What made it less scary was having my parent's full support. At first they gave me my shots and walked me through giving myself shots. They also followed my diet. Outside of parental support they found 'children with diabetes' support groups and camps in the area - I was able to meet other people my own age and that made the whole disease feel less weird to me. But, really, it would depend on the kid.

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MISTIK's Photo MISTIK Posts: 119
10/27/09 2:32 P

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I am so sorry you are having this challenge. Just thank god you have the resources to move to a place that you can care for yourself at! I had a similar problem when I was diagnosed.

If I used Air Force docs, I would have to travel THREE hours! I opted for using the NHS (National Health Service, UK) who are available just a few minutes away. I have been told by another type 1 diabetic, who does not use NHS, that I should just make the drive as I would be better off. I am not doing that. I figure they discovered it, saved my life, and its all free while I am here. I must say I struggled with the decision only because I wasn't sure I would receive a high level of care under the system.

I'm glad I chose NHS. I have had every diabetic check recommended in the US on schedule, everything is free (prescriptions, appointments, classes, nutritionist... everything), and because it is NHS this care is the best offered as it prevents high costs in the long run to teach me to care well for myself! When I was initally diagnosed, I found fellow T1s via the web. Overtime I found myself knowing much more than they about how they should care for themselves. This makes me feel pretty good about the decision at this time.

I know that waiting to PCS AGAIN, so soon, SUCKS. But I think you will both be happier in the long run. Your hubby loves you and doesn't want to worry!

The T1 vs T2 issue on Army Research... I think that's because T2s can stay in and T1s are discharged. Insulin can't keep on the front lines (yet) but Metaformin can!

As so far as talking to a child about insulin. I suppose it depends on the child. How old they are at diagnois, maturity, intelligence, learning style, etc. Some ideas off the top of my head are: Show them pictures and videos on how the pancreas works and what happens when it doesn't; Youth Diabetes peer support groups or mentor to "coach" them in healthy practices; or perhaps the ADA website. It has sections for kids/teens with activities and "care tools". They also have a cool kit for kids who are newly diagnosed and mentor for parents who are also parents of T1 children.

All in all, it is a battle to live with this sometimes. I've only been T1 for 1 year and 10 months and I know it has taken a LOT to get used to the new life. I'm glad there are places for us to VENT with people who indeed understand!

Glad your hubby is back from Iraq. I pray that all works out as it should!

If we choose, we can live in a world of comforting illusion.

~Noam Chomsky


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CAREY.LISK's Photo CAREY.LISK SparkPoints: (0)
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10/27/09 5:28 A

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this is more of a rant sorry but no one understands unless they have our disease. Hubby just got back from Iraq Wohoo!! but is stationed in ft drum NY and it is a small town the post doctors can't seal with my diabetes since no one knows how to deal with a pump and then there is no endo or primary who deals with pump pts with in 70 miles the joslin center is about 2 hrs away which sucks. so I am still in NC to keep my current docs to keep me healthy I was in fort drum for a week and the doc in the army clinic tried to change my insulin in my pump to novalog from humalog which as we know every body is different and my body reacted bad to it with lows every day he didn't know what to do so I called the doc in NC and he called the script into ny for humalog to keep me safe from lows this is the first time in months my sugars have run normal between 90 to 180 and we didn't want to risk it to save money on insulin so my copay is 3 dollars for a months supply which is manageable even though novalog is free at army clinic but hubby sent me back to NC till he can get transfered to a post that can care for my needs he wants me to be safe and not have to worry about my care but I miss him and it is hard the army has a program and if you have to travel more then 50 miles for care then you can be transfered to another post that can provide care either on post or off post near by. I hope this happens soon but for now we have to be apart stupid disease. the army is on cutting edge for medical care but has no clue on diabetes type 1 they treat many type 2's so i am a special case. ohh well the sacrifices hubby makes for me. I just pray when we have kids I do not transfer the genes to them I never would wish this disease on anyone especially on a kid BTW how do you tell a kid the only way to keep them alive is by giving them a shot every meal or insulin pump and site changes evry 3 days??

"you CAN do ALL things through Christ which STRENGTHENS you"
phil 4:13


I don't believe in failure.

( this includes getting healthy!!)


 current weight: 178.0 
178
169.75
161.5
153.25
145
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