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PILSON1's Photo PILSON1 SparkPoints: (22,738)
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9/21/16 9:52 A

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Great to see so many questions because there isn't enough awareness of HeFH or HoFH. First, here is a fantastic website with the best information I've ever seen about it: https://thefhfoundation.org

Some high cholesterol has nothing to do with diet and exercise. That doesn't mean that those can't help, because both are still good to control. But, with HeFH and HoFH, you can eat the most healthy foods in the right moderation and exercise like crazy and your LDL cholesterol will still be nearly double the healthy range. Since it is genetic, it is inherited from either one parent's side (that is HeFH) or from both parents (that is HoFH). HoFH is the most rare and most dangerous, but both can be helped with treatment.

In my case, my mother's cholesterol has always been very high and my dad's normal. I have 3 siblings. 2 siblings did not inherit this. One brother and I both inherited it. My brother died of a massive heart attach at age 34. He was a heavy smoker and never got treatment for his HeFH.

HeFH and HoFH cause the cholesterol to act differently for us. It causes it to calcify more within our arteries.

It is detected through a physical exam (They can feel some of the calcifications in your body. Mine were at the back of my ankle), blood tests and family history, etc.

Check out the link I gave and then let me know if you have more questions. I will do my best to answer.

Pilson1 Central Standard Timezone

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BEBARB149's Photo BEBARB149 SparkPoints: (179,685)
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9/19/16 11:05 A

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thefhfoundation.org/hefh/

I've just recently had a nuclear stress test and everything was good so I don't think I have it, but my brothers' all had heart attacks at a young age, my mother had her first really bad heart attack at 60 and her mother died of a stoke at 50 so I'm wondering if isn't in my family.

Edited by: BEBARB149 at: 9/19/2016 (11:06)
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MISS_VIV's Photo MISS_VIV Posts: 13,379
9/19/16 8:48 A

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Ok, some questions. What is it actually..everything I have read goes back into genetics - and that being understood. How is it detected? What prompted your Dr. look into this for you?
How do you feel? And what can you do about it?

I know NOTHING about this condition.



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PILSON1's Photo PILSON1 SparkPoints: (22,738)
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9/18/16 11:02 P

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I was recently diagnosed with HeFH. Genetically high cholesterol from the maternal side. My brother had it and I do, too. My other brother and my sister do not. Have you been diagnosed with HeFH or HoFH? If yes, I thought this could be a good place for support.

Pilson1 Central Standard Timezone

"Today's the day! I have the courage to start, the perseverance to keep going, and the unwavering spirit to cross my finish line today."


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