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9/15/13 4:07 P

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oh and if you can a subscription to diabetes self management is the most awesome of magazines for getting a subscription they are the best and my endo recommends it and always keeps copies in his waiting room and the library will sometimes order those for the magazine shelves if you ask for it my endo is the best..he teaches the subject in a med school and he writes the reseach articles in the mediacal journals
the lady mary

TODAY IS LIFE THIS IS NOT A DRESS REHEARSAL

there is no cause when there is no effect km

i can do that, but not on a tuesday
for that is my day of thrust in the opposite direction -
off the starboard bow
over the hurdles,
and down the shute.

last is just the slowest winner. c.hunter boyd

people often say that motivation doesn't last. well neither does bathing - that's why we recommend it daily. zig ziglar

if i stitch fast enough do


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WOWEETOO's Photo WOWEETOO SparkPoints: (170,979)
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9/15/13 4:03 P

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welcome cannot stress enough the weigh and measure of portion control therein lies the weight control and blood sugar control and the water again glad to hear that some things are changing..it is better to have three small meals a day and two or three snacks all portioned controlled i hope you get a good nutritionist because they are the best at helping you understand what works..there is a way to do snacky food..first weigh or count or measure whatever the serving size is and put it in a bowl and that's it..i count carbs for insulin coverage..i always know exactly where i am during the day and the sugars stay relatively normal all day a good book to read and one that can be found in the library along with bunches of others is diabetes for dummies..routinely i don't like the dummies title on anything but they make diabetes a lot more plain and simple and it can be with effort..it is my favorite to recommend because it doesn't put you to sleep and it encourages to participate in the book itself..it uncomplicates a lot of questions you might have for sure
as for the lawyering ..see if you can't get yourself some time with a bunch that do that for a living..they are real eyeopeners and a blessing to many diabetics..sort of like an apprenticeship for six months to a year for instance so you know what you can do..some of those guys are really fierce and they really know how to get the job done for sure and it will be a win win but know you gotta go out and round it up..they won't be coming to you and you need to be able to sell yourself so you can learn the ins and outs
i encourage you guys to stay with us and come here daily and ask questions..we are open 24/7 and among us have years and years of experience
again welcome
the lady mary

TODAY IS LIFE THIS IS NOT A DRESS REHEARSAL

there is no cause when there is no effect km

i can do that, but not on a tuesday
for that is my day of thrust in the opposite direction -
off the starboard bow
over the hurdles,
and down the shute.

last is just the slowest winner. c.hunter boyd

people often say that motivation doesn't last. well neither does bathing - that's why we recommend it daily. zig ziglar

if i stitch fast enough do


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LMB-ESQ's Photo LMB-ESQ Posts: 12,187
9/12/13 9:02 P

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Thanks for the responses.

We saw the pain management doctor today and he was actually much better than the PCP. He agreed that the sugar is out of control and seemed a little confused when we told him what the PCP said. He really wants my BF to start physical therapy because that's the way to ease him into regular exercise in a controlled, supervised setting. But he can't do it until the sugar is more under controlled.

He agrees about seeing an endocrinologist, and he also recommended two different diabetic education programs. One is a one-on-one thing with a nurse practitioner but we have to see if that would be covered by his insurance. If not, someone here posted a link to the Stanford Diabetes Self-Management program that just happens to be offered at the same facility as the Pain Management center. That one is free, but you need to be referred.

We already eat a pretty low carb diet. I've been eating that way for years, just because it's better for me. He was stubborn about it for a long time, but I think he's finally coming around. We don't eat pasta at all, very little rice, potatoes, or bread, no milk, no fruit juices. He already drinks a ton of water and unsweetened iced tea. He drinks the occasional diet soda, but not too often. He has a weakness for chips and snacky food though and he still kids himself about being able to eat that stuff. The interesting thing is that he has very little appetite and doesn't eat a lot of food, yet he's gaining weight. The doc thinks it could be at least partly from the medication.

So we'll wait to get into the endocrinologist and see what he/she says, and pick one of the education programs and go from there. At least it's a little progress. If the endo works out, maybe we won't need to worry about a new PCP.

***** Laurie in Northeast Ohio *****

Fortunate are you if you love a dog, for that dog will surely love you.

Fly Free my friend.... for only in true freedom can we find our true selves

Treat stressful situations like a dog... If you can't eat it or play with it, just pee on it and walk away!

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LITTLEWIND53's Photo LITTLEWIND53 Posts: 17,178
9/12/13 6:09 P

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Welcome to the team. We don't have medicaid in Canada, so I am no help to you there.... In fact, I have trouble finding an endo here so I rely on my GP

I agree, that the sugars are out of control and even if he still has to take meds, the first step in trying to control them is with diet. Have you seen a Diabetes Educator and Diabetes Nutritionist? I mean a nutritionist who specializes in diabetes...... Many do not and the recommendations they give are cookie cutter for the general population and are not suitable for diabetics at all.

Carbs are the enemy of diabetics. Jackie is correct, Your BF should get them from veggies and fruit, but do remember that fruit is also high in carbs so should be eaten wisely and sparingly. (Remember that fruit juice usually has very little fibre and goes straight to the blood stream so limit fruit juices.) That is not to say that he can never have a baked potato or even a piece of cake, now and then, as long as they are counted and planned for.....

The other thing is to use portion control, weigh and measure all his food. If he has excess weight, he should try to loose some if he can (I know, that is easier said than done and I still am struggling with that myself......) And he should drink lots of water. Try to limit the sodas and avoid the extra calories from sweetened coffee or teas

Basically, try to think of the daily carbs as cash in your wallet. Each meal you are "spending" carbs so you want to try to spread them out evenly over your day because once they are gone, there is no more for that day......

I hope that makes sense and gives your some ideas. Keep coming back and asking questions and let us know how things are going..... We cannot give medical advice, but we can give you the benefit of our various experiences.

Best wishes to the both of you......



Linda

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JMORRIS85's Photo JMORRIS85 SparkPoints: (65,787)
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9/12/13 5:14 P

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Hi and welcome to the team!!! You are right, his diabetes is definitely out of control. Have you checked to see if any of the Endocrinologist in your area accept medicaid? I got my numbers under control by giving up bread, pasta, battered and fried foods, rice, and potatoes. I get all of my carbs from fruits and veggies. Eating carbs tend to make you crave more carbs. Physical activity will also help to control his diabetes. I wish you both much success!! emoticon

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LMB-ESQ's Photo LMB-ESQ Posts: 12,187
9/12/13 7:24 A

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Hi all, I just joined this team today. I am not diabetic myself, but I live with my long-term BF who was diagnosed in 2009. At the beginning of this year, he started developing neuropathy pain and by July, he'd been "laid off" from his job because he could no longer perform the physical labor it demanded and his employer couldn't make any reasonable accommodation for him. He's now on Medicaid and is in the process of applying for disability.

He's on his second PCP (demanded by his Medicaid provider) and these doctors are seemingly of no help at all. His A1C is a bit high (just over 7) and his blood sugar roller coasters every day multiple times, between about 140 and 400. To me, that's out of control, but his doctors disagree, saying the only thing that matters is the A1C. I don't get it. He feels like crap all the time, whether it's higher or lower, he is in constant pain, and we're at a loss for how to manage it. The doctors blow it off. He also sees a pain management doctor, who seems marginally more helpful than any of the PCPs we've seen, but there is no coordination of treatment. He is on a pharmacy of meds, but he isn't seeing any relief.

The doctor yesterday actually acted pre-occupied and I got the distinct impression that he felt we were wasting his time. He was playing with his pen and looking around the room everywhere but at us. We told him the pain management doctor suggested asking for a referral to an endocrinologist, and it clearly ticked him off. I can't deal with that crap and I tend to lose my temper. I was good, I promise... I held my tongue, but those feelings are a clear indicator to me that we need to find someone else.

So how does one go about finding a doctor who will actually listen to us and address our concerns? Especially under the constraints of Medicaid? What are the questions we should be asking about diabetes treatment and management?

Just as an aside, I'm a recent law school graduate waiting for my bar exam results. I want to make Medicaid/Medicare and SS/Disability law part of my law practice. They don't offer those classes at my law school, so any pointers in the right direction to learn this law will be very helpful to me.

Thanks all!

Edited by: LMB-ESQ at: 9/12/2013 (07:26)
***** Laurie in Northeast Ohio *****

Fortunate are you if you love a dog, for that dog will surely love you.

Fly Free my friend.... for only in true freedom can we find our true selves

Treat stressful situations like a dog... If you can't eat it or play with it, just pee on it and walk away!

Neat Link: The Rules for Being Human rules4humans.com/


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