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BELROSA's Photo BELROSA Posts: 697
8/19/13 8:58 P

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Hi and welcome to the group. It's really inspiring to read your stories and see how positive and proactive you all are about gaining control of your own health! I hope this group helps give you some useful tools to help you in that journey.

If you have any questions about PCOS, just ask. We are all here to support each other.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
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3/9/13 7:37 P

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Hello all! I've been looking into natural approaches for balancing my body and some support for that here on SparkPeople. So, I'm really excited to have found this group. I don't like to focus negatively on my issues. So, I have stayed away from most PCOS groups. I really believe that we can heal and that a part of that is keeping a positive attitude.

A little about me: I knew something was wrong in my mid 20s when I had such an adverse reaction to birth control pills. I was repeatedly told that nothing was wrong. I had my first child in my mid twenties and think that was part of why doctors didn't see the problem. In my early 30s I went to a fertility doctor for treatment because I was trying to get healthy and being fertile is a part of being healthy. Unfortunately, he put me on meds that almost caused a stroke. He was treating me for hyperprolactinemia but didn't make that clear or offer much compassion. So, I shied away from doctors for several years. In my late 30s, I finally convinced my doctor to send me to an endocrinologist. He treated the high prolactin levels and I was able to have my second child. Before we could look into the PCOS issues, though, we moved. Now at the age of 43, I live in a small town in southern Arkansas and have to drive several hours to see competent specialists. Last year a doctor tried to convince me to have a hysterectomy to treat my enlarged uterus. So, I changed doctors once again. Unfortunately my current endocrinologist is 2.5 hours away and is only treating me for a vitamin D deficiency.

Since I've had such a hard time with doctors, I'm looking into treating myself with a more natural approach. I recently read _Is It Me or My Hormones?_ by Marcelle Pick and found the information very enlightening. So, I went to her website womentowomen.com and ordered the supplements she recommends and am eating according to the guidelines that came with them: higher protein, reduced carbs in the form of complex carbs and fresh (organic when I can find it) produce. I really enjoyed the book because it was the first time I had found such a detailed explanation to the health issues I've been facing. I'll let you all know how and whether this helps. For the first time in over 20 years I have hope.

I'm also planning on switching over to more green products for cosmetics and cleaning. This is to avoid chemicals that can also interfere with hormone balance.

I'm really excited to be on this journey with all of you!

SMARTIN77's Photo SMARTIN77 Posts: 433
1/20/13 7:38 P

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Hi fellow cysters! I'm Sandra and I live in Indianapolis, IN. I'm married to a supportive husband going on 14 yrs. this June! I was diagnosed w/ PCOS around 2003, but I didn't take conventional routes to heal myself...no metformin, fertility drugs or even birth control to regulate. It was a deep conviction I had. I studied up a little on nutrition, and made a few changes, but due to circumstances beyond my control and also a lack of willpower, I mostly followed a S.A.D. diet and continued to gain weight.

I am 35 yrs. old, and would still like a baby. It seems like less of a possibility now, but I know it can happen. But no matter what, I made a decision last November to make permanent lifestyle changes. This was partly due to some major heart palpitations that started last Memorial Day and continued off and on for several months. I finally was able to get medical insurance and had some tests done, including wearing a ECG monitor for 30 days. I had high cholesterol and high blood pressure, putting me in pre-diabetes and pre-hypertension range. I made immediate changes, including giving up fast food and tracking my salt intake as well as different nutrients. I eased my way into fitness under doctor's guidance, and I'm getting stronger and more toned every day.

I will continue to receive conventional care right now, but I'm not on any meds. My dr. insisted I take thyroid pills for underactive thyroid, but I don't want to take synthetics. I am at a crossroads, and seriously considering giving up medical insurance in next couple months and using that money towards natural treatments. I have no clue how much a naturopathic/holistic dr. would cost, but I'm willing to explore that option. It's a "leap of faith" but I've done this before...too many times to count! I want to continue to educate myself about the best way to heal my body naturally, so it is functioning at it's prime. I know with God's help and the support of friends and loved ones it's possible!



CHRISSEL3519's Photo CHRISSEL3519 Posts: 30
11/15/12 4:03 A

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Hello! I am Optimistically. I chose that username because that is how I am trying to approach all aspects of my life including my recent diagnosis of PCOS. I am in my late 30's and like many, I went for a long time having an idea that something was wrong but not knowing what exactly. I have also recently changed jobs which caused me to change doctors because of my new insurance. She wants me to consider medication. I don't want to take any maintenance medication. I want to lose weight and be healthy a natural way. I am hoping to find hope, inspiration, and encouragement.

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BELROSA's Photo BELROSA Posts: 697
7/18/12 2:37 A

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Hi HealthyDaisy and welcome to the group.

It's such a shame that you've had to wait so long to find out what is causing all your symptoms, but it sounds like you have a really good handle on how to start tackling it now that you do know.

If you are looking for natural methods for treating PCOS, I've put together a website at www.mypcos.info with lots and lots of info, the vast majority of it referenced by peer reviewed scientific research.

If you have any questions at all, just let me know. I'm happy to help any way I can.

Have you looked at d-chiro inositol yet? http://mypcos.info/1/treatments/natural/dc
i/

There's a lot of research behind it, it's a naturally occurring substance and it even tastes good! If you would like me to forward you any of the studies, just let me know.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
HEALTHYDAISY's Photo HEALTHYDAISY Posts: 138
7/17/12 11:49 P

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Hi, I have been a member of Spark People for 2 1/2 years (on & off) with moderate motivation and success. I was diagnosed w/ PCOS a week ago and was pretty much floored by it. I am 49 and really expected the GYN to tell me my irregular cycles were the result of menopause. He said we would discuss metformin which sent me to the Internet and I have decided I want to approach this in a non-pharmacological manner before I go on a life-long medication that is not FDA approved for the condition.

One thing I learned in my research is that a low carb/high protein diet is best. The default on the nutrition tracker is 55% carbs. I had to go in and edit the tracker to reflect a 40% protein, 30% fat, 30% carb mix. I've been following this for four days and have dropped 2 lbs. Unreal results for me. I have pretty much cut out anything considered a baked good except Arnold Sandwich Thins, Triscuits, and 100 calories whole grain sandwich wraps. Luckily, I have used whole grain pasta for years and developed a taste for dark greens (kale, spinach, & swiss chard) in the past two years. I am really concentrating on veggies, berries, lean protein, & low/no fat dairy.

I have re-vamped my exercise routines to include a greater variety of aerobic activities and cut weight lifting activities.

For years I have wondered why it seems that I have chronic inflammation and how I could reduce it. I am sort of wondering why I am just being diagnosed at my age. My entire life I have struggled with my weight, anxiety, & acne. My hair started to thin in my 30's, but the irregular cycles and chin hair are recent symptons. I agree with others that this just isn't on most Drs. radars. The dr that diagnosed me is a fellow of the ACOG. My primary care physician just sort of shrugged when I told him about the diagnosis.

If the diet & exercise changes are not enough I am considering acupuncture. A study out of Sweden found that women who used acupuncture had a reduction in waist circumference and those who exercised did not. Hopefully, both would be more effective. I have joined a couple other SparkTeams that center around PCOS and natural approaches to controlling it.

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MERRYROBYN's Photo MERRYROBYN Posts: 315
1/31/12 3:11 A

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Hi everyone emoticon , I was recently diagnosed with PCOS in the last few years and I am just trying to figure things out. I would like to lose 50 to 100 lbs this year and hopefully have a baby in the next few years. I will be turning 40 years in March and I feel a bit anxious about if I still will be able to before its too late. I often only check my mailbox on the weekends,so please post on my page if you like to get a hold of me.

Thank you!

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BELROSA's Photo BELROSA Posts: 697
12/8/11 8:45 P

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Hi!

For the last 3 years or so I have been the leader of the PCOS Healthy Lifestyle group on SparkPeople. I hae handed that group over to a vibrant new leader and would now like to focus on leading a positive, results-focused group of women who believe in taking accountability for their lives and want to learn about PCOS and how their actions can improve their lives and give them control over this syndrome.

I have known that I have PCOS for nearly 10 years. I've been diagnosed for about 8 as it took a while to find a doctor who would agree to run the tests on someone who didn't fit neatly within the criteria. I have a background in health and science, namely nutrition, biochemistry, nursing and naturopathy, so at least I was equipped to research the condition, the triggers, what it does to the body and how to manage it. I really feel for those who have PCOS, can't find a practitioner who is well-educated and competent to treat PCOS and are lost with all the misinformation out there. I'd like to help by sharing what I know.

I have a website with loads of PCOS info www.mypcos.info Please stop by!

Leader of Managing PCOS Naturally www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=54257
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