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4/17/14 8:34 A

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Do not under-estimate the effects of post traumatic stress disorder on your after-lymphoma life.

I still get flashes occasionally of stuff after 25 years post-chemo for stage IV. Yesterday I happened to have a meeting near where I got chemo. As I drove past the tall office building, I became nauseated.

There is no such thing as the final success in life. What is really meaningful is the courage to face the next minute, the next hour, the next day.

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3/9/14 5:50 P

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I found your post very well written with sincerity and passion. Good on you.

My case is different if only in our ages. I am 78 and facing Non Hodgkin's Large B Cell Lymphoma. Started with R-CHOP last July and my body rejected any improvements after 3 doses. Moved on to GEM/OX W/ RITUXIN with the same rejection. Now I am on ASHRAM and have had 2 doses. I am having a PET scan this coming Wednesday and will get the results on Friday. I have been told that if there is no improvement by then, they will stop the chemo and also that there are no other options, short of clinical trials.

I have known that my condition is considered TERMINAL and because of my age (78) bone marrow transplant is not in the cards. So, not sure if I can ever call me a survivor or not, but if I go down, its not without a fight.

Good luck on your journey.


"It is easier to raise good children than to fix bad men" by Fredrick Douglas.

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QUESTFOR35 Posts: 1
2/21/14 6:55 P

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I had stage IV Hodgkin's when I was 25, and relapsed two years later. I'm 18 months out from a bone marrow transplant and am finally emerging from a "survival only" mindset.

Before I got sick I was a good athlete. I played competitive sports, I had lots of endurance, I ran a marathon with very little training. I never had weight issues or difficulty motivating myself to exercise. Since treatment, I have struggled with having the endurance to get through the day, let alone work in a trip to the gym. Once I do, my workouts are so pitiful they make me want to just give up. The weights I'm lifting now are embarrassingly light, my cardio short and weak.

I would never laugh at or belittle a person who was beginning to exercise and change their life but was forced to take it slow, but I find myself treating myself that way. I think I'm ready to make a change and build be the life I've worked so hard to keep.

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